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elaine1029
New Member


Date Joined Dec 2012
Total Posts : 1
   Posted 12/11/2012 1:12 AM (GMT -6)   
Ugh...after reading some of these posts...I'm not feeling any better. I've been seeing a Rheumotoglist for a bit over a year. On Metx and a bunch of anti-inflames and been doing infusion of Remicade for about 8 months. Although the dosage has been upped for the last 2 treatments, now sure it's no longer working for me. Take hydrocodan for the flares (which the last 2 days have been H***) it isn't doing anything other than increasing my wanting to nap. I am so depressed over this. My hands are on fire, my feet feel like they are hot bricks...just terribly miserable. I need to know what to ask for next. My next infusion is Jan 17, & thinking it's a horrible waste of time and money. Anyone have any ideas?

elcamino
Veteran Member


Date Joined Sep 2005
Total Posts : 1740
   Posted 12/11/2012 11:12 AM (GMT -6)   
Elaine,  I'm sorry you're having difficulties right now, and I hope you're feeling better soon.  I have never taken Remicade, but was on enbrel for many years (same class as drug as remicade, TNF-inhibitor).   Enbrel stopped working for me as well.  I asked about being switched to remicade but doctor said it was the same class as enbrel so it didn't make any sense to try another tnf-inhibitor.  He started me on orencia, which is a biologic but it is not a tnf-inhibitor.  I'm really not sure how the drug works.  I've only had two infusions so far, so not feeling the major effects yet, but I'm also on mtx and anti-inflammatories.  Orencia, evidently like the other DMARDs, takes a while to build up in your system. 
 
But know that we have drug therapy options that were not possible even 10 years ago.  There are many more options available to us today, so it's just a matter of finding the right drug combo that works for you. 

golitho
Veteran Member


Date Joined Sep 2008
Total Posts : 1670
   Posted 12/13/2012 5:47 PM (GMT -6)   
Hi Elaine, it can get so deressing trying to find the right treatment. Remicade didn't work for me but humira does, so its not entirely true about TNF inhibitors being lumped as one. They work in different ways and it totally depends what part of your immune system is in overdrive. Its a matter of going back to your rheumy and complaining and trying to get a trial of another treatment. Its a pain because you have to wait so long for them to build up in your system to see if they will work.
But hang in there if you get the right combination the pain just goes or minimises. Don't forget the people on this forum are the odd ones whos treatment doesn't really work properly, most people I know with RA are in a good place with the meds.
But in the meantime we are there for you, best wishes, golitho

wearyRAsufferer
Veteran Member


Date Joined Mar 2010
Total Posts : 1547
   Posted 12/13/2012 10:15 PM (GMT -6)   
wishing you all the best in finding what gets you comfortable!

4SSSS
New Member


Date Joined Mar 2013
Total Posts : 4
   Posted 3/3/2013 1:09 PM (GMT -6)   
I see this is an older thread but does anyone have new information on how the Remicade is working? I will be talking with my MD soon and I'm just not sure where to go from here. I've tried enbrel, methotrexate, plaquinil, anti-infls, and currently on humira...Vitd weekly and B12 monthly.
Dx'd with RA and fibromyalgia, gastric bypass & lost 80 lbs! But still go day to day with RA symptoms...work full time and stress is my worst enemy...
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