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curley
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Date Joined Mar 2005
Total Posts : 4305
   Posted 6/8/2005 1:48 AM (GMT -7)   
Help I'am hurting so bad and here latley it seem's like nothing is helping I have Lorcets for pain but I can't just eat them like candy.
 
Any one with any idear's?I have took three very hot baths trying to get some relife done the heating pad thing and nothing is helping.I have even too a sleeping pill and I still cant go to sleep because of the pain.
 
Called today and my rhemy is out of town untill the end of the month and this is just the 8th.Oh well guess I will just have to deal with it.Thanks for letting me vent.
 
Curley.............
a.k.a.Mela........ mad mad mad

CaMama
Veteran Member


Date Joined Mar 2005
Total Posts : 1884
   Posted 6/8/2005 3:11 PM (GMT -7)   
I'm sorry to hear you are hurting so bad with no relief. I hope that changes soon. Can you see a different doctor? Even a primary to make sure nothing else is going on? I get like that right before I get sick....possibly there is something else that will help give you relief or they can give you some prednasone until your rhuemy returns?
 
If the warmth is helping - do you have an electric blanket? Not the same as a the moist heat of a bath or water bottle - but maybe you can try to make yourself as comfortable as possible in bed and cover up with the blanket? That way you get the constant heat everywhere you need it. I know in June it might be too much in some areas.....
 
Anyway, just a thought. If it's a stupid idea, I won't take offense if you vent back why! I've been living in SoCal for so long, I can't remember how those blankets work/feel.
 
I hope you feel better soon.

curley
Veteran Member


Date Joined Mar 2005
Total Posts : 4305
   Posted 6/8/2005 10:14 PM (GMT -7)   
Hi CaMama,

Thanks for your reply and what you had to say is not crazy.I don't have a heating blanket but I do think that I'am going to get on.I seen my ENT doc today and I have a severe sinus infection so now I'am on Flagyl500mg and I'am on Levaquin 500mg for ten day's and if that does not get it well then it surgery.I just had my tonsils taken out in March.

Curley.........

CaMama
Veteran Member


Date Joined Mar 2005
Total Posts : 1884
   Posted 6/9/2005 9:42 AM (GMT -7)   

Yikes, Curley. You DO have a lot going on and I bet that is why you are aching so bad! sad   Feel better soon.  I'm on my 9th day of antibiotic for pneumonia and I'm JUST starting to feel better this morning! I've taken Levaquin before - man, that is some insane stuff.

Take care.


curley
Veteran Member


Date Joined Mar 2005
Total Posts : 4305
   Posted 6/9/2005 6:08 PM (GMT -7)   
Hi CaMama,

I have to agree with you on the Levaquin I hate to take it but it's better than having surgery.Might have to have surgery any way but at least I can say that I have done every thing that I was told to do.I hate that you have been dealing with pneumonia blees your heart.I had double pneumonia a couple of years ago and I don't ever want it again.I was in the hospital for eight day's.Hope that you continue to feel better.

Curley......
a.k.a.Mela.....

CaMama
Veteran Member


Date Joined Mar 2005
Total Posts : 1884
   Posted 6/11/2005 1:00 AM (GMT -7)   
What type of surgery do they do for a sinus infection? Is it very intrusive? Yikes. I hope the double meds kicks this for you, that would be awful to have to go through surgery while feeling so rotten even though it is supposed to make you feel better. But doubly rotten since you just had surgery in March. All that anesthesia can't be good for you.
 
I had my tonsils and adnoids taken out when I was 15 - I rememeber how painfully hard that was to recouperate from. And I had it done in December!
 
I'm on the mend - finally! I have an inhaler and codeine to help me out. Though, I haven't been taking my plaquinil while sick and my joints are starting to remind me of it.  I hope you can say the same (being on the mend part...) Do keep me informed on your progress and I'll be keeping my fingers crossed for your non-surgical recovery!
 
**

oreo
Veteran Member


Date Joined Feb 2004
Total Posts : 528
   Posted 6/15/2005 10:07 AM (GMT -7)   
So sorry to hear that you guys are under the weather. Sinus infections and chest infections are so hard to get rid of when you are on arthritis meds. I pray for healing for both of you and hope that you mend very quickly.
Oreo
Worry not for tomorrow, for tomorrow will take care of itself.
 
Remember healing comes one step at a time, sometimes it seems that its one forward and 2 back but ultimately, always in a forward direction!!!
 
Help HealingWell continue to help people.  Please donate today.  Every little bit helps.  To donate go to www.healingwell.com/donate
 


CaMama
Veteran Member


Date Joined Mar 2005
Total Posts : 1884
   Posted 6/15/2005 5:43 PM (GMT -7)   
I'm finally on the mend. Hubby is gone for a week and hope that taking care of kids and trying to rest at the same time doesn't do me in! Remicade infusion postponed indefinitely! sad   Hopefully there will be no problems in getting it once I'm okay for it.  
 
Curley, I hope you are feeling better!!! Not hearing from you makes me worried you had to have surgery. Maybe I'll poke around Chron's site and see if you've been online.
 
**

effie
Regular Member


Date Joined Mar 2005
Total Posts : 344
   Posted 6/26/2005 9:53 PM (GMT -7)   
Dear curley,

I was put on levaquin for a sinus infection and bronchitis once and it sure made my arthritis worse. I found out later that muscle aches was listed as one of the possible side effects. However I can understand curley why you would take that as opposed to surgery. My understanding on sinus surgery is that it is very painful and sometimes needs to be repeated. If you get a chance look at the post made by Keah on how to avoid sinus infections. There is a homeopathic doctor here, on breakfast television in Toronto that comes on the morning news, and he swears by a special steam clean every day to prevent sinus infections. I use saline solutions and secaris a lubricating gel for more serious congestion. I also put these patches that you can only get in chinese stores. They are quite resonable. Much more reasonably priced than the regular menthol patches you buy at the regular drug store. There are two kinds, salonpas, and something like Toukohan. They are both basically menthoyl patches with aspirin or tylenol. For sinus infections or migraines I cut them to the right size and place them exactly where the pain is. Just make sure you avoid your eyes, and wash your hands after you use them. I also use the same patches on my arthritis. Some nights I will have ten to twenty of them on each leg from the knee down and two or three on the wrists, a couple on elbows, ankles, and a few on lower back. The standing joke is that I look like a mummy some nights. However because they are so reasonable , you can get like 40 patches for two dollars in Canada, that I can afford to use them freely. I always keep a couple in my wallet for emergencies. I swear they sometimes work better than the strongest pain killer. I have checked with several of my doctors and none of them have any objections to me using them. In fact at one point my family doctor started using them herself for migraine headaches. I hope you can find them. I really prefer them to tiger balm. Tiger balm does not work nearly as well for me and is much messier. They also seem to act like a tensor on my knees and give me strength. Hope they can help you too.
judy/effie

erin.K
Veteran Member


Date Joined Mar 2005
Total Posts : 3148
   Posted 6/27/2005 10:00 AM (GMT -7)   
Judy, 
i was impressed with your info girl! very nice. i tell ya, the chinese and asian culture definitely know something! WE SHOULD NIC-NAME YOU PATCHES! do these patches contain capsasin? i am very glad they provide some relief. also, it's good to hear of some remedies that do not wreck havoc even more on our systems.
that's interesting the nasal cleansing thing! a lot of my girlfriends who are nurses are into homeopathics and even Darhma therapy and reiki. they are certified in those areas as well. you've a great combo... eastern & western medicine. kick's butt!
uuugghh...Levaquin can be brutal. let me tell you.....i had to be on high doses of Levaquin in combination with a few other antibiotics when i was being treated for Lymes and the Levaquin does indeed cause major pains. not only i the muscles... but what it did with me is it drew out the bacteria from my joints and my knees blew up and it took ya to tears! i called my neurologist about it and she said "oh yea....that's the levaquin."  geeesh!
so yea, that's a med i agree is best kept far far away if we can prevent it!!!
the saline cleansing is everyday? that's dedication. how long have you been doing it? and is this typically for chronic sinus sufferers? nice info!
take care! :-) :-) :-) :-) :-) :-) :-) :-) :-) :-) :-) :-) ERIN

curley
Veteran Member


Date Joined Mar 2005
Total Posts : 4305
   Posted 7/4/2005 5:30 PM (GMT -7)   
I just wanted to let you'll know how I'am doing.I see my ENT tomorrow I still do not feel well,I feel as if I have a tune of bricks on my forhead.It seems like know matter what we try nothing seems to help.I'am doing the salt water steam it does loosen up enough to let me breath some what.I'am just tired of the pain and and tired of not feeling well.I will let you'll know what my ENT has to say tomorrow.Please pray that I want have to have surgery.

Curley......
a.k.a.Mela.......

CaMama
Veteran Member


Date Joined Mar 2005
Total Posts : 1884
   Posted 7/4/2005 11:35 PM (GMT -7)   
Oh boy, Curley.
 
Please feel better. Good luck tomorrow. I will be thinking of you and praying for a good and productive appointment ending with much relief!
 
**

erin.K
Veteran Member


Date Joined Mar 2005
Total Posts : 3148
   Posted 7/5/2005 12:39 PM (GMT -7)   
curley,
how did it go? my thoughts are with you....all in all, i'm hoping everything turns out to be in your best interest and works out in the end. i would hate to have surgery myself...don't blame you for feeling this way, you've had enough already! hopefully there is a solution to ease your pain other than surgery. keeping my fingers crossed for you. wishing you much much luck. take good care curley. xxxxooxooxooxoxox
sincerely,
erin

curley
Veteran Member


Date Joined Mar 2005
Total Posts : 4305
   Posted 7/6/2005 7:35 PM (GMT -7)   
Hi every one,

Sorry I have not posted but not been feeling well and I did go see my ENT and he did another ct scan and it has not gotten any better.The cyst that I have in my sinus cavety has also gotten big so as I guessed I will be having surgey.I'am waiting on them to get an approval from my insurance co.and once we have that then we can shcdual surgery.

And top off not feeling my crohns is acting up been very nauseated can't eat any thing because I throw it all back-up even liquids is hard to keep down.

I also got a letter from my insurance(I'am on Tenn-care and Medicade)to day and I can only get five scripts a month.(2 name brand 3 generic)the rest I will have to pay for are not take them.

Thanks for all the support that you'll have given it really does mean alot.

Curley.....
a.k.a.Mela........

momom
New Member


Date Joined Aug 2003
Total Posts : 1
   Posted 7/6/2005 7:47 PM (GMT -7)   
Curley, I have had sinus surgery and it is OK, not like in the old days, and you will fill better. I have Ra and Lupus and Fibro, Deg disc disease and chronic sinus, with a few other's thrown in. Do the surgery, afterr a week you will wonder what the fuss was all about. Good luck

curley
Veteran Member


Date Joined Mar 2005
Total Posts : 4305
   Posted 7/6/2005 8:03 PM (GMT -7)   
Momom,,

Thanks for letting me know about the surgey.I would like to ask how bad was the pain after the surgey?My ENT said that for the first week that I will hurt pretty good and the reason for that is I have cyst in my sinus cavatiy.

Curley.....

effie
Regular Member


Date Joined Mar 2005
Total Posts : 344
   Posted 7/13/2005 12:42 AM (GMT -7)   
Dear Curley,
I am sorry that you have to have surgery. Will this surgery be done as an outpatient, or will you have to stay in the hospital for awhile. You have really been through a lot lately. Perhaps the surgery caused an increase in your arthritc pain. From what I understand persons with arthritis have a difficult time with their arthritis during the recovery stage of surgery.

I will keep you in my prayers.
God Bless,
Judy/effie

erin.K
Veteran Member


Date Joined Mar 2005
Total Posts : 3148
   Posted 7/14/2005 4:46 PM (GMT -7)   
curley,
will keep you in my thoughts & prayers. sending you blessings and strentgh during this time. speedy recovery with this surgery!
sincerely,
erin

oreo
Veteran Member


Date Joined Feb 2004
Total Posts : 528
   Posted 7/19/2005 6:54 PM (GMT -7)   
Curley, you are in my thoughts and prayers as well. Take care and I hope the surgery goes smooth and the pain non-existant.
Oreo
Worry not for tomorrow, for tomorrow will take care of itself.
 
Remember healing comes one step at a time, sometimes it seems that its one forward and 2 back but ultimately, always in a forward direction!!!
 
Help HealingWell continue to help people.  Please donate today.  Every little bit helps.  To donate go to www.healingwell.com/donate
 


tiadesai
New Member


Date Joined Jun 2005
Total Posts : 15
   Posted 7/20/2005 6:35 AM (GMT -7)   
well
if its getting worse and not healing why wait for your doctor to come?
go to an alternate doctor and do something quickly otherwise the pain may increase
all the best

curley
Veteran Member


Date Joined Mar 2005
Total Posts : 4305
   Posted 7/20/2005 10:28 AM (GMT -7)   
Hi,

I have an appointment with a pain doctor the first of September so untill then I will have to deal with the pain.I woke up this morning with terrable pain.Took a hot bath and took some pain meds it has eased up some what.I'am drained,just trying to take it one day at atime.Thanks for your in-put.

Curley........
a.k.a.Mela...........

straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 13451
   Posted 7/20/2005 10:49 AM (GMT -7)   
Curley,

Since you have a cyst in your sinus cavity that is a serious problem that you really need address. Do not let it go. My niece had a cyst in hers and had the surgery and did fine. However, according to the ENT had she not had it done, could have been very bad. Susie


effie
Regular Member


Date Joined Mar 2005
Total Posts : 344
   Posted 7/20/2005 6:25 PM (GMT -7)   
Hi Curley,
I am so saddened to hear that you are suffering. Is it the cyst in your sinus cavity causing you all the pain or something else, like the chrons or arthritis? Or is just everything acting up all at once.

My heart goes out to you.

You mentioned that you had to find a ENT surgeon that was approved by your insurance company. It must be hard to have to be making all the calls when you are already feeling so poorly.

You also mentioned that you have now been informed that the number of prescriptions you can get per month is limited to 5. That is terrible. Some people are just not blessed with good health and need more than 5 prescriptions per month.

When you were on the antibiotics, I know your arthritic pain was worse while you were on the Levaquin, but did it help with the sinus pain?

I totally hate sinus pain and can sympathize. It never lets up and really grates on your nerves. Well at least it does to me, I find I get very irritable from the constant pain.

I do get relief from using a warm compress for 20 minutes, just a wash cloth I have warmed up under hot water and then microwaved for 30 or 40 seconds. After a 20 minute break I then ice my sinuses with a washcloth that I have wet and stuck in a plastic bag in the freezer for about 10 minutes. Then back to the warm cloth. I always finish with the warm cloth. It is very relaxing for me.

I use this for sinus congestion and infections, I have never had a cyst in my sinus cavity. I can not begin to imagine how painful that added pressure must be.

If the antibiotics helped with the sinus pain, perhaps your family doc could give you a sample of something like "Zithromax" to help tide you over before the surgery. It is a broad spectrum antibiotic and works very well on my sinus infections. You take two caplets right away and then one a day for 4 more days. I usually need a couple of extra pills then the normal 6 pack that works for most. Therefore my doctor prescribes me two "Z" packs and I take the first two and then one a day for 7 days. I then save the remaining prescription for the next time I get an infection.

"Zithromax" stays in your system and continues to work for a while, so you do not want to assume that it did not work until at least about 4 days after your last caplet. It is a macrolide antibiotic, somewhat similar to "erythromycin', but much more powerful. It binds itself to a different receptor in the bacterias cell protein or something like that, and that is what makes it different.

Levaquin is a completly different type of antibiotic and it does nothing for my sinuses. Some antibiotics work better for some people than others. I prefer the Zithromax caplets rather than the tablets, because you can take them with food, so it makes it a little easier on the tummy. Just a thought. I would suspect that the cyst is most likely the cause of your pain.

I am not a medical doctor.

I can only share with you what has worked for me and what information I can remember that the doctors told me to try and explain it to me.

I had severe headaches and arthritic like pain with Levaquin, but I have never experienced this with Zithromax. You have to be careful with any antibiotic because you can build up resistance to them.

I hope you find an approved surgeon real soon and perhaps if you tell him how much pain you are in on top of the RA, OA and chrons he will get you in for the surgery on a cancellation. Let's pray that you find a compassionate surgeon.

You are in my thoughts and prayers and I am so sorry to hear about you suffering like this.

I will pray for you.
May god Bless you and keep you safe in his ever loving care.
Judy/Effie

Post Edited (effie) : 7/20/2005 8:50:04 PM (GMT-6)


curley
Veteran Member


Date Joined Mar 2005
Total Posts : 4305
   Posted 7/20/2005 7:04 PM (GMT -7)   
Effie Hi,

Thanks so much for the info,I have a surgey date for August and to tell you the truth I can't wait (I never thought I would say that but I just can't deal with this much longer.Yes my crohns and arthritis is acting up as well.

My ENT put me on a new antibotic that just came out it is called KETEK it's like Zithamakes I know spelled it wrong.any way you take it for five day's two at a time and it stay's in you system for up to five day's after you stop taking the antibotic.My ENT said that he wanted me to take that so maybe this will help some,but still gona have to have the surgery because he did another CT scan and the cyst has gotten bigger.

On the Insurance part I have filed an appeal and if approved they will pay for the rest of my meds total cost for my meds is 2,600.48 a month with out insurance.They will continue to pay for my meds untill they review my case so please pray that I win other wise I just don't know.I have talked to a few people that help with meds but have not heard back as of yet.they have to verafiey every thing with my Doctors and then will let me know if they can help with my meds.

I will keep you up-dated on how thing go.Now how are you doing?Let me know.

Curley.........
a.k.a.Mela...........

straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 13451
   Posted 7/20/2005 10:11 PM (GMT -7)   

Curley,

I am so glad you are going to have the surgery on the sinus'. Since your cyst is growing its inevitable surgery is the answer. I just know how serious things could have been for my niece had she not had the surgery. They told her Mom w/o surgery it can go to the brain & be fatal left untreated. Now, you know why I have stressed the need for surgery. My sister has had the surgery twice, she kept having chronic sinus infections. This last surgery really helped her alot.

Now, in the event you cannot get your scripts taken care of with the appeal, you can contact the drug co directly and get your meds sometimes free of charge or very little at all. This is what my sister does, there is no way she could afford all of her meds. They sent her forms to fill out, plus she had to show proof of her income and the doctor had to fill out the form too. All of her meds are shipped to the drs. office and she picks them up there. They are real good about helping peeps on limited incomes or no income. Two peeps that see my gi get their Remicade free, they have no ins so he does their Remicade in his office at no charge.

Get your self to feeling better. I have got to manage to get out of bed tomorrow. I have been in bed all week and thats not good. Hugs & love, Susie

 

 


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