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effie
Regular Member


Date Joined Mar 2005
Total Posts : 344
   Posted 7/20/2005 11:29 PM (GMT -6)   
Thanks curley,
I sure will start to pray that they will accept the appeal you applied for and you get those drugs covered. My goodness, it is not like you have any choice. Without the drugs you would have no quality to your life at all. It's not like you are asking them to cover you for some kind of 'botox" to get rid of a few wrinkles. You truly need these meds. i do not understand how the US system works. But it just seems like when you need compassion and understanding the most you have to fight for it.

We have some similar issues in Canada, except we can see whatever doc we want. You just sometimes have to wait a long time to get in to see one of the best docs.

Our medicine is not covered either unless you are a pensionere or are on welfare and then they can make you take the chapest form of the drug.

For example my Humira was $1789.00. Luckily, I am on a long term disability leave, but officially I am still employed by my old employer. Thus Humira is covered under my drug plan. The drug plan at my work requires you to pay out for the medicine first and then get reimbursed.

I am pretty sure that I have noticed a couple of posts by different people on how Americans can get drugs cheaper, or for free.

My best girl friend used to be a doctor, well she still is, but as long as she attended some continuing education courses, she would get massive amounts of samples of drugs. She used these for her own family and self, since she did not have a drug plan, self employed, and she would give them to her patients who had told her that the cost of prescriptions was difficult. She would also use the samples if she was not sure how well a drug would work and wanted to do some trials.

I have never heard of that new antibiotic and am not sure if it is available in Canada yet.

But it sounds similar to zithromax and might really help you.

I am glad you found an ENT surgeon accepted by your insurance, and August will not come soon enough for you.

I am going to write a seperate post for all of my wonderful friends here at arthritis HW to tell them all about my rheumy appt. today and that will fill you in on how I am.

Thanks for asking. Take care. keep me posted.
Judy/Effie

Flopsie
Veteran Member


Date Joined Jun 2005
Total Posts : 1361
   Posted 7/21/2005 12:33 AM (GMT -6)   
Curley, hope you are feeling better, and not to stresed over the wait.

Straydog, I 'm praying you have the strength to get up and get some movement

Camama, hope you are feeling better also,

you are all in my thoughts and prayers,

flopsie
Don't walk in front of me....I may not follow
Don't walk behind me....I may not lead
Walk beside me..and be my friend...
                                    Albert Carnus
 
and Lord, put your arm around my shoulder and your hand over my mouth
 
 

erin.K
Veteran Member


Date Joined Mar 2005
Total Posts : 3148
   Posted 7/21/2005 6:58 AM (GMT -6)   
hey curley,
straydog is very, oh so correct. drug co's and docs are willing many times to have you fill out forms if you do not have the income to get meds such as remicade or humira for example, and they approve you and send them at perhaps just shipping costs and that is it. you might already know this though. i wish you well with it curley!
Aha! this fact is very true.....any infection in the area around your mouth and eyes and inner cheeks will GO STRAIGHT TO YOUR BRAIN IF LEFT UNTREATED! scary right? lets tell our kids not to pop their pimples today! LOL
take good good care curley, will be praying for you!
erin

curley
Veteran Member


Date Joined Mar 2005
Total Posts : 4305
   Posted 7/21/2005 12:21 PM (GMT -6)   
Susie Hey,

You know I don't know what I are alot of other people on this site would do with out you.I can remember When I first found HealingWell I felt so alone and you were the first person to reply and I have been greatfull for you every since.

Between my sinuses my gut and I'am sweeling again and I'am in terabile pain.I guess you could say I'am drained.I have no energy and to tell you the truth I'am ware down.

I guess maybe after I get this sinus thing out of the way at least maybe my head will quit hurting.I see my Rhumey Monday was suppose to have seen him this past Tuesday but he had emergeny.

So We have got to set down and see if there is any cheaper meds that he can put me on.I got a letter yesterday and my insurancwe will no longer pay for my Humira and Remicade.

All I can say is the Govener of the State of TN is going to kill alot of people because they will know longer have the meds that will keep them alive.

Now Susie enough about me how are you doing?I hope that you were able to get out of bed this morning.How is your pain doing?Let me know how you are.

Curley....
a.k.a.Mela....

curley
Veteran Member


Date Joined Mar 2005
Total Posts : 4305
   Posted 7/21/2005 12:35 PM (GMT -6)   
Flopsie and Erin,

Thanks so much for for being so careing.Not feeling real well my head is hurting and I'am swelling again you can't tell what is my feet and what is my ankles.I'am in so much pain.I'am haveing one of thoes shoot me day's.I will keep you'll up-dated on how I'am doing.


Curley.........
a.k.a.Mela............

Flopsie
Veteran Member


Date Joined Jun 2005
Total Posts : 1361
   Posted 7/21/2005 1:14 PM (GMT -6)   
I have sent an alert to admin. and to the mods related to above post, this lady is selling her book. We all know there is NO cure for RA
Don't walk in front of me....I may not follow
Don't walk behind me....I may not lead
Walk beside me..and be my friend...
                                    Albert Carnus
 
and Lord, put your arm around my shoulder and your hand over my mouth
 
 

SnowyLynne
Veteran Member


Date Joined Apr 2004
Total Posts : 1539
   Posted 7/21/2005 4:05 PM (GMT -6)   
I used to have bad sinus infctions,so one day I told my Dr.we are not getting rid of ALL the infection,leaving 1%.So,he gave me a shot of Rocepfin,& followed up with 10 days of Cipro,I haven't had a sinus infection since,that was 5 yrs ago.
SnowyLynne


erin.K
Veteran Member


Date Joined Mar 2005
Total Posts : 3148
   Posted 7/21/2005 4:10 PM (GMT -6)   

Jeanine,

although we appreciate your drive and ambition to help RA....there really isn't allowance of solicitation on HW. that is commercialling your book and literature. the post may be deleated, i apologize. but rather....please still post with us and share YOUR personal story about what foods worked for you and YOUR success.

sincerely,

erin


erin.K
Veteran Member


Date Joined Mar 2005
Total Posts : 3148
   Posted 7/21/2005 4:18 PM (GMT -6)   
Dear Curley,
we are here for you babe! i am so sorry as well for your pain. no ankles eh? maybe they are gone for good and that will be 2 less joints you gotta worry about! :-) tee hee hee, LOL :-) tongue tongue tongue
just wanted to see if i could get a laugh outa ya during this very tough time...i know its soooooo hard. having a bad pain day myself.
you have a pain spec. app. coming in sept. what are you taking now for pain?
 
Susie,
you have been a godsend with your wisdom and knowledge of how the Rx system works.  you are so right. if not for you i would never have been able to file my forms for humira! thank you! this is something i never even knew about.
you all are great!
 
erin

erin.K
Veteran Member


Date Joined Mar 2005
Total Posts : 3148
   Posted 7/21/2005 4:24 PM (GMT -6)   
jeanine,
i did find your post about acids very interesting. yes, i believe that people are sensitive to specific allergens and acids indeed. but what about people who suffer from gout? who need acids? or are you specific to JUST RA? are you an MD? a RD? i have read that peppers triggers flares? is this true? maybe, can you post the BIG triggers of diets that may cause RA flares? lots of people here say that milk and tomatos set them off. how long did your diet last until you went into remission?
looking forward to speaking with you! please keep posting!
sincerely,
erin

erin.K
Veteran Member


Date Joined Mar 2005
Total Posts : 3148
   Posted 7/21/2005 4:27 PM (GMT -6)   
great job snowlynne!
those were strong antibiotics that totally kick bacteria butt! sometime docs do not give enough days supply to totally wipe out the infection and then they come back stronger! thats fantastic you were rid of it. i wish you lots of sinus well being always!
sincerely,
erin

curley
Veteran Member


Date Joined Mar 2005
Total Posts : 4305
   Posted 7/21/2005 7:13 PM (GMT -6)   
Erin,

I want to thank you for the laugh,I really needed that.As for the pain I'am still in pain but it has eased up some what.I take Locets for pain but I have been on them for a little over a year and they just don't work like they use to.

my Rhuemy nurse called today and wanted to know if I have had my blood work done and I told her yes and she ask when did I have it done because they have not gotten the results (my PC does my blood work because he is close to me and my Rhuemy is an hour and a half away)any way I told her that I had a copy and that I would bring them monday.

I have been trying to move around to try a stay limber as possible,when I get still for any lenth of time it makes my pain worse.I thank all of you for being so caring and thoughtfull.

Curley......
a.k.a.Mela.......

erin.K
Veteran Member


Date Joined Mar 2005
Total Posts : 3148
   Posted 7/21/2005 9:46 PM (GMT -6)   
cool  wishing you a very peaceful nite curley! redface
yea, tolerance to pain meds is fustrating, especially since many docs are hesitant to Rx stronger analgesics. darn those stupid kids who party and abuse narcotic pills! mad makes the world a tough place for folks like us who need them for health reasons.
your in my thoughts.....stay limber the best you can. remember "a little goes a long way"
till tomorrow
erin
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