taking steroids for RA?

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ginger44
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Date Joined Jun 2005
Total Posts : 6
   Posted 6/22/2005 1:45 PM (GMT -7)   
Hi Everyone! Hope you are all doing well. I am just getting by, but trying to think positively. Camama I did not have a reaction to Prednasone. I just dont want to take steroids, I hate them. See you later! Ginger44

erin.K
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Date Joined Mar 2005
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   Posted 6/23/2005 9:57 AM (GMT -7)   
morning Ginger
i hate steroids too. this is my first real experience on them. i hand it to a lot of people who have to be on them frequently! the only good thing i have to say about prednisone is that it DID stop the throbbing and allowed me to move my arms again after a severe flare. arghhh....and they keep ya up at nite too. on 40 mg twice a day prednisone after IV solumedrol in hospital.
along with you, i'm trying to think positive. keep up the good work and my thoughts will be with you!
erin

ginger44
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Date Joined Jun 2005
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   Posted 6/23/2005 11:56 AM (GMT -7)   
Hi Erin! Do you have PA or RA? I have PA. I have been having alot of trouble lately, but i will manage as always. I learned about a convention in Boston for PA and RA, it is supposed to be very good. Its through the National PA Foundation. Anyway, you hang in there and try to stay on as little as possible steroids. I know what your talking about with Pred. it kept me up all night! Talk to you soon Ginger

erin.K
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   Posted 6/23/2005 9:03 PM (GMT -7)   
:-)  thanks ginger! are you in MA? i love it there especially Cape Cod.  :-)  i have rheumatoid arthritis effecting all joints plus my heart and lungs and spleen. also ankylosing spondylitis. it all happened from when i was 12 and caught Lyme's disease and was misdiagnosed (ignored rather) and not tilll 10 years later did i recieve treatment for the Lyme's and only since 2002 have i been starting Tx for RA. mad am 24 now. it's not under control at all at this point so i am figuring i have to go inpatient sometime before the fall at a special hospital. the Lyme's caused several neurological and neuromuscular complications as well...so that's why the rheummy's really can't grasp this correctly. sad switching from enbrel to humira come next month.
ughhh....steroids are the worst! devil devil devil devil devil they are the DEVIL devil devil devil devil devil devil
up all nite? terrible isn't it? do you take them for PA flares? have to admit though....it did stop the throbbing and allowed for more movement.
i used to actually conduct workshops and education groups for arthritis and inpatients in hospitals. if and when i am able to work again and after graduate school i want to work in the big joint and bone disease hospitals. there are a few great ones in manhattan. i love the field. but i HATE having to actually experience it myself. but it helps me be a better person having to deal with this (i guess that is where i struck my interest) and at the same time caring for people. in where i used to work, i actually noticed that the BEST oncology nurses were those who indeed themselves had overcome cancer. funny how we all fall into place somehow.
and you will manage ginger! that's all we can do i guess. can not wait to be through with the roids!
when did you first develop PA? there was a little boy, 9 year old patient, and he had it. so awful, his skin was like a map or something , big red and discolored patches all over. but he was such a sweet kid and good spirits (but of course he was much more mature than the rest of his peers) .
is your skin actually painful? burn? does it hurt to be touched? is it comparable to say lupus? i bet the sun is a problem too eh? what do you take for it? and does it affect the same joints as say a RA person? i'm curious on how people differ...so please don't mind my questions :)   smurf
the best to you always & goodnight
erin

ginger44
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Date Joined Jun 2005
Total Posts : 6
   Posted 6/24/2005 12:14 PM (GMT -7)   
Hi Erin! I think its great that you want to be in that field. Who better to be understanding than a person that knows from personal experience what it feels like. I hope that you start to feel better soon! I have had PA for 18 years, I got it when I was 17 and I am 35 now. Sometimes your skin is sore but not all the time. Its mostly ugly and irritating. You know how your body sheds every couple of days, well with Psoryasis your body thinks theres something going wrong in that area and it over produces cells to correct the problem, when really there is no problem. So, it produces skin cells so fast that they build up because it doesnt have enough time to shed off. Your immune system is attacking healthy tissue. Just like RA and PA. To bad we all couldnt get an immune system transplant, then we all would be Great! Our Immune systems are all in need of some counseling eyes I think they all malfunction problems! Oh! and about the sun its actually good for our skin, it can help alot. Tanning beds to. By the way I am in Las Vegas, Nv. Where did you say your from? see you later keep smiling Love Ginger44 confused

CaMama
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Date Joined Mar 2005
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   Posted 6/24/2005 11:30 PM (GMT -7)   
I hear ya on hating the steroids....I felt like I was in a corner with that one and had to try the pre-med with the infusion. It helped, but I had the jitters all night long! sad The infusion actually stuck with me this time also.  (not sure if the pneumonia 3 weeks later had anything to do with drug though!)
 
I like your idea on immune system transplats...you know, they make so many drugs out there for everything - you'd think they could finally make a pill to fix THAT! :-)
 
Erin, I don't have bad psorisis on my skin by comparison - but I can tell you when it gets bad it (like on my thumb) I loose chunks of skin and it HURTS really bad. My elbows, for instance, can get so bad that the crack and bleed by bending them and you can forget leaning on them!
 
Cape Cod is awesome! I grew up in MA until I was 10 and my grandfather had a house in Barnestable (I can't remember if that's how you spell it), near the Cape. We actually lived there one summer before we moved to CA - that was such an awesome time!
**
 
 
 
 

erin.K
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Date Joined Mar 2005
Total Posts : 3148
   Posted 6/25/2005 9:47 AM (GMT -7)   
cool  hello Ginger! ooh vegas! pretty nice. never been...was going to last july for a neurology convention with my honey but i was too ill. i agree with the immune system transplants! :-) that would be a true blessing. but i strongly feel that in the future medicine will properly get a hold of RA, PA, lupus and other autoimmune diseases through stem cell therapy. i think that will be the ultimate key. i know the whole thing is controversial...but there are ways to culture stem cells without having to destroy life or any thing like that. i wish congress would push for more self supplied stem cell and umbilical research. i hope in the future that when all babies are born....their cords are saved so they could possibly be free of having to live with horrible conditions like we do now. IF ONLY THERE WERE A PILL TO FIX THIS!!!!
scool  it's 90 here today in NJ! we are in the Ramapo mountains up in northern NJ. very beautiful. but during the week i have a house in a city where it's congested and gross and noisy.
it's been really good talking to you! i like how you described PA!!!! i find that it helps me explain better to patients about disease when i hear from someone who HAS it and how they describe it. so you were very very helpful.
thanks again. have a happy day! tongue
erin

erin.K
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Date Joined Mar 2005
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   Posted 6/25/2005 10:01 AM (GMT -7)   
yeah  happy saturday Camama! saw Bob Dylan last nice. it was AWESOME!!!! so beautiful and he sounded great (you could actually understand what he was singing) great  great show! i felt soooo good for a change. like an actually human being. was nice not to be in agony and actually ENJOY something. had to take some pain meds and downed a few beers...in a lot of pain but made it through.
PA is tough eh? so it's like mainly the skin covering joints that splits the most? sounds uncomfortable sad   are topical meds good? i really like the way you and ginger describe the PA...sometimes it is hard to explain to patients to get them to have an understanding on what happens in terms they can grasp. and sometimes i don't have the words! or get too medical and technical and even i can't understand myself! hee hee! that's fortunate the infusion took this time around!!! :-) :-) :-) how's your lungs? i hope they are getting better and better each day.
thinking about going in the pool today! scool from standing a bit last nite everything is really SORE... so perhaps the water will help.
wishing you a good day and {{{{{{{{{{{ hugs }}}}}}}}}}}}}}}}}}}}
till later,
erin
  cool    having one BIG BAD BOB HANGOVER!!!!!   cool

CaMama
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Date Joined Mar 2005
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   Posted 6/29/2005 10:06 PM (GMT -7)   

Small cough...much better (knock on wood.)

Pain meds and beer...no wonder you sustained 5 hours of dancing your heiny off! yeah

I haven't had topical relief for my psorisis in a while. It's usually a steroid cream. The last one they Rx'd for me isn't cutting it when I need it, but I keep using it anyway - just in case it is helping.

I'm all for that miracle pill that cures all that ails you so you can live a happy, healthy, pain-free life!!!


 


erin.K
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Date Joined Mar 2005
Total Posts : 3148
   Posted 6/30/2005 4:57 PM (GMT -7)   
tongue  CaMama, funny story:
speaking of the remedy that cures all and let's us lead a happy life for a bit....the neurologist that treated and cured my lymes disease, :-) boy was she great, one of those docs that treated not only the disease...but the person as well and didn't refer you out to all different docs for this and that and all the BS we go through. :-) anyway, she was the best.
i remember this one thing that struck me off guard one day and was really funny. i was so ill and on sooooo many antibiotics and having seizures and pain and just miserable. she said " Erin, party....fall in love.....drink.... and laugh a lot...." tongue
i never heard a doc be so "real". she really understood how demanding and stressful a chronic illness is, it's like having a 24 hour job, with no break. in that she was really trying to say that one can take all the modern medicine in the world...and still be sick; but.....if we do the things that bring us joy and separates us from our current physical "disaster" we can be "well".
i'm hanging onto that "wellness" especially now a days.
wishing you a very nice 4th....take the time to soak in some fireworks and lightening bugs!
{{{{{{{{{{{{{ hugs }}}}}}}}}}}}}}}}}}}
erin

CaMama
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Date Joined Mar 2005
Total Posts : 1884
   Posted 6/30/2005 10:56 PM (GMT -7)   
No fireflies here in San Diego... I miss them....I remember them growing up in Mass.
 
Your story just add to my theory about a good doctor - your doctor was a WOMAN!!!! Now, I know all women doctors are not awesome, caring, compassionate, etc - but out of all the doctors I've seen here (and let me tell you, I have seen a LOT of them! sad ) my 2 of my 3 top doctors were FEMALES (both PCPs.) I had one podietrist who was awesome. Eldrely man, short, very friendly - I had been in absolute torture (pain) for a long time and getting no relief, no help, and no sympathy from the doctors. I was 24/7 in tears.  He walks in for the first time and says, "hey squirt!" Now, I guess if I was healthy, that might have put me off - but, his bedside manner was exactly what I needed at that time. He to this day has been the only compassionate,  understanding, comfortable to be around, and caring MALE doctor I've had so far. Sadly, he retired way too soon for me.  He was the one who officially diagnosed the psoriatic arthritis and explained a lot of things to me about how my body was working and attacking itself. He was able to tell ME how I felt and the off-the wall problems I was having w/o me telling him. I had JRA growing up,and nothing was really ever explained or discussed with me about what was going on. In fact, problems I had addressed as a teen to my Rhuemy at the time were responded with a shrug and "I don't know what that is..." when it apparently was very clear a psorisis issues...whether or not I had PA back then (if that is possible) I don't know, but I suffered a lot of years with doctors ignoring me when I needed help.
 
Have a safe weekend. What are you doing?
**
 


erin.K
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Date Joined Mar 2005
Total Posts : 3148
   Posted 7/1/2005 3:11 AM (GMT -7)   
eyes  uh, i hear that. you are oh so right!  my PCP now was like your guy...a big teddy bear who does as much as he can...and then feels bad that he can't do MORE or cure you. it's a great counsel if anything.  but the woman doc (neurologist) you don't find people like that....who gets on the phone & fights with your insurance co..supplies you with meds no charge when you haven't $$ and sees you in an emergency no matter how booked.  in fact...2 weeks ago, my emergency OV doc was a female...and she was GREAT!!!! young, but very mature & seasoned and was telling me stories of her RA and arthritis pt's when she was a student MD in NY.
i'm still up.....no sleep last nite...like a friggin zombie. redface
today i'm going to give it a go at laundry again. i did very well yesterday (it's my workout) but i can only use one arm! hee hee hee.
& i'm then packing up one of my cats (hopefully Pea) & joe's picking me up @7:30 tonite. he's thrilled for it's his last day of work till next tuesday! yeah he deserves a nice vacation...too many long days for him. just watching some races and hanging out outside & the pool and some good records & hopefully a few dances if i'm lucky.
what does san diego have in store with weekend? do you ever go back to Mass? besides Italy and Mexico...MA is my 3rd favorite destination. luv it.
NEED COFFEE!! NEED COFFEE BADLY!!!!
having a feeling i will be going for a GI series. have you been? what's it like? i mean..i've assisted in one....but as a pt? i'm scared. having very bad feelings....something's not right. weight loss is very bad and the BM's and pain is concerning me now.
{{{{{{{{{{{{{{{have a happy morning or something close to that!}}}}}}}}}}}}}}
erin smurf

CaMama
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Date Joined Mar 2005
Total Posts : 1884
   Posted 7/1/2005 9:16 PM (GMT -7)   
Erin, I wish I had some answers for you!!!!
 
Have you dropped even more, below 94lbs now? Stay away from the coffee!!! That caffine is not good for your intestines either!!!!! You know that!
 
I haven't had the full GI testing, if you're talking about what I THINK you're talking about! tongue   My mom went through a whole series of that, she was not thrilled. Said it was uncomfortable and intrusive feeling. My husband had some of that testing also and said the same thing. He had the flu a few years ago and it left him with severe IBS for about a year - I guess we're lucky that s all it was, but having the big D for a year was NOT fun. And I know you really can't afford that in your condition! Most of my problems (doc said a form of colitis caused by the arthritis) were subdued by the use of Remicade.
 
We went to the County Fair today last minute, it was fun. Gotta go grocery shopping tomorrow (ugh on a holiday weekend!) now. Daughter is going through a "spell" these last few weeks and causing me and hubby a TON of grief. I actually just posted a long email asking for advice on the ADD forum. Her spells are getting worse and I feel so helpless and like such an awful parent! sad   Reading through the forum, I see a lot of talk of other issues beyond ADD and hope someone can shed some light or give me some guidance on what to do about her. So, she will be about as grounded as you can ground a 5 1/2 year old this weekend.
 
Stay safe. **

oreo
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Date Joined Feb 2004
Total Posts : 528
   Posted 7/4/2005 7:25 AM (GMT -7)   
Hey, Camama, thought here for you, have you had your daughter tested for food allergies and intollerances? If you haven't you might want to check that out. I have a friend at church who's son has many food intolerances and he bounces off the walls when he has gotten into something he shouldn't have. She is also taking him to see a pediatrician to find out if there is some other reason for the "spells" as well. Make a food diary where you list everything (and I do truely mean everything) that she eats/drinks everyday for a week. Also write down her behaviour during that time too. You may find a correlation between some of it. Sometimes it isn't just one thing but a combo of a few things. I am intolerant to milk proteins but find I am okay with a little old cheddar so long as I don't over do it or try to mix it with a really bad allergy spell. Often if my allergies (environmental) are out of control I can't tolerate any milk products without symptoms. My body seems to get overloaded and then I have to take a week to feel human again. Make the arthritis and psoriasis worse too. That is my thought on what you may be seeing with your daughter. Probably not the only thing but maybe a contributing factor.
Oreo
Worry not for tomorrow, for tomorrow will take care of itself.
 
Remember healing comes one step at a time, sometimes it seems that its one forward and 2 back but ultimately, always in a forward direction!!!
 
Help HealingWell continue to help people.  Please donate today.  Every little bit helps.  To donate go to www.healingwell.com/donate
 


CaMama
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Date Joined Mar 2005
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   Posted 7/4/2005 8:51 AM (GMT -7)   

Thanks for your input, Oreo. I have problems with milk as well and it also makes my arthritis flare and psorisis worse!

I put my daughter on soy over a year ago. It was a slow elimination process, but she started having diarreah every day more than once a day. The switch to soy has helped.

If this keeps up, I will be calling the doctor for advice and referrals. I want to get her tested for food allergies as well - I have suspected that could be contributing factor to her behavior. My husband, who I discussed this with last night, thinks it's a load of crap. Nonetheless, I have met and read enough from people who testify behavior differences in their children. I know how I get with certain foods.

My daughter's emotions are stronger than her desire to think and act logically. She gets a thought or feeling in her head and cannot let it go - no matter what the cost. It is exhausting.
 
Oops, speaking of.....I gotta go tend to her again.. sad
 


erin.K
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Date Joined Mar 2005
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   Posted 7/5/2005 12:35 PM (GMT -7)   
oh my! mama, you have a hand full! your poor girl :(
it seems like you're on top of things with the ADD....that must be very tough on the 2 of you. my prayers are with you 2 in hopes that all remain calm & everything gets under control. i've read a lot about wjat oreo and yourself were talking about with the food allergies....i wish you good luck with it. i hope something brings relief.
thanks for your concern as well!
erin

CaMama
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Date Joined Mar 2005
Total Posts : 1884
   Posted 7/6/2005 9:58 AM (GMT -7)   

Thanks, Erin, I hope you are feeling better! Oreo, are you still feeling good? I hope so!

I still have not seen the doctor - so much for that "rush" referral. I need to call and make sure I can at least get my appt. on the 7th as it was previously scheduled. I'm coughing again and am congested. I don't know if I picked up my son's flu. I still haven't had my infusion (was supposed to be Jun 13th) and if this gets worse, it's going to be a while. sad

My daugher is not getting any better. We're at a loss. It's killing my joints (constantly picking her up and taking her back to her room because she won't stay - soon as I walk towards her, she plops her 44lbs of dead weight on the floor and she's 2/3rds my height!) She is scaring the crap out of us. This behavior can lead to so much trouble as a teen. I've tried numerous tactics on her, nothing works. I don't know if it's just strong-willed, ADD, or something else....whatever it is, I need to find answers NOW and help her deal with it before she's too old to change. They say kids have their behavior set by 7....she's  5 1/2 and answers may not come quickly.

Saw a GREAT fireworks show from our house. There weren't supposed to be any this year, but they found an alternate spot. Yeah!

**


 


erin.K
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Date Joined Mar 2005
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   Posted 7/6/2005 12:08 PM (GMT -7)   
will be praying for you camama! this is hard..i can only imagine. one day at a time. i'm confident you'll find some answers soon.
{{{{{{{{{{{{{{{{{{{{{{ hugs }}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}
erin

straydog
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Date Joined Feb 2003
Total Posts : 13479
   Posted 7/7/2005 7:30 PM (GMT -7)   

Hi Camama,

I read your post about the problems with your daughter. My son was dx'x hyper when he was 6, he is now 31. But, he could not tolerate his Ritalin, it made him worse. We controlled him with what was called the Feingold Diet. It eliminates alot of the preservatives & additives, food dyes are awful on these kids. Red food dye was the worst of the lot.

Sugar was not his enemy so to speak as most think in this situation. Its the crap they put in our foods. My son was more than a handful and it was pretty rough to handle. See if you can do a google search on the Feingold Diet. Best of luck. Susie 



CaMama
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Date Joined Mar 2005
Total Posts : 1884
   Posted 7/7/2005 8:48 PM (GMT -7)   

Thanks Susie, I will look it up. I suspect there are food allergies involved here and if I can control her behavior w/o medication, that would be awesome. My sister was misdiagnosed as a child and my folks were told to "ignore her, it's a phase and she'll grow out of it." By the time she was 15 she was a psychotic mess. A doctor diagnosed her with ADD, gave her meds, she slept for 3 days straights and woke up a new person. But, they have become her crutch and she never learned how to deal with life on her own.  Sugar, however, WAS her enemy! My daughter was MUCH better last night and today....but, I feel I need to start preparing before the next "spell" hits.

So, I'm a little down today. Going to the doctor - good or bad - always depresses me. I couldn't sleep last night, my whole left side hurt, both hands and feet (fingers and toes the worst) were killing me. I met my new rhuemy. He seems nice, but wants to start at "square one" again. <sigh> he doesn't "buy" the last dx I was given. Wants me off Remicade and on Enbrel. So, I'm a month behind on infusions and have to wait until late August (after a 2 week camping trip we're supposed to be going on - yeah right, w/o meds???) to find out what is going on and what I'll be taking. I don't know if switching is the answer, yes I'm scared of needles and givin g myself a shot scares me - but I don't think that's my problem (yet!) The TNF blockers all cause the same problems with infections and such - I've been having such a problem for 6 months now, why would switching to a different one make any difference? The reasons I was put on Remicade instead of the others was to cover all the issues I have - I don't knwo if Enbrel will help anythign but the RA. Though the plaquinil is helping, he mentioned what I had read and that is it is not a good drug for the psorisis. He claims he is going to scour my chart and go from there. I'm sure, like with everyone else, by the time I see him he'll be singing a different tune and not remembering me at all.

I"m hurting bad today - but lack of sleep and depression are probably not helping. Today is my birthday. I am 35 now. That just didn't help with today - espeically since there was nothing special that happened otherwise today to perk me up or get me excited. I should have waited the extra week or two it would have taken to see him rather than having appt. today.

Is anyone on depression medication? Does that help if it's pain-induced depression or do I just have to deal with feeling of breaking down in front of my kids a couple of times a week?

**


 


straydog
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Date Joined Feb 2003
Total Posts : 13479
   Posted 7/7/2005 9:02 PM (GMT -7)   

Aw CaMama, oh yes, I had a meltdown 1 1/2 yrs ago. I was put on Effexor by my PCP, low dose in the beginning now up to 300mg. I am on Cymbalta 60mg a day which is an anti but also the first true med per my PCP for PN. It is starting to work well for the PN. Then at bedtime I take 15 mg of Remeron to sleep, its an anti also.

Believe it or not, but antidepressants do help with chronic pain. I have had it for 20yrs plus. Last Wed I had a morphine pump implanted and the difference is awesome. But, I have such mixed emotions about it, I am happy with it but scared at the same time. I think I am afraid it will stop working and I will end up back in the horrible pain and trying to juggle pain pills, pain patches, allergic reactions ect.

One thing to keep in mind w/your daughter is try to eliminate foods/drinks with red food dye. Its really hard on them. Also, only let her have caffeine free drinks. This diet made all the difference in my son. Thats awful about your sister, but in many cases that is what happens, they use it as a crutch.

Try and get some help for your self. Go to your dr and tell him about maybe being depressed and the problems with sleep. Lots of hugs coming you way. Susie



straydog
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Date Joined Feb 2003
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   Posted 7/7/2005 9:06 PM (GMT -7)   
HAPPY BIRTHDAY, CaMama


CaMama
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Date Joined Mar 2005
Total Posts : 1884
   Posted 7/7/2005 10:19 PM (GMT -7)   
Thanks!
 
I"m glad you finally got that pain pump - I'll be praying in continues to work for you! I'm so glad it is giving you relief!
 
Thank you for being open and honest about everything. It really helps. I will hopefully talk to PCP on Monday about all this. My feeling is, she may not want to add any more insult to injury with my liver problems if she feels we're better off w/o it. We'll see.
 
With the exception of the occasional glass of chocolate soy, my daugther is caffine free. I will check for the dyes and some of the additives in the snaxs she eats.
 
**
 


oreo
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Date Joined Feb 2004
Total Posts : 528
   Posted 7/12/2005 8:46 AM (GMT -7)   
Camama, so sorry for the pain. Yes, anti's do help even when the pain is the cause. Chronic pain is by far the worst thing to have (in my opinion) when we hurt it is hard to see the "good" in life. Having all the extra stuff too is not helping. Talk with your MD about an anti depressant. Unfortunately they can take a little bit to get into your system and they are not recommened for short-term use as you have to taper off them.
I hope you can find something that works for your daughter. Just a food for thought- could your daughter have an intollerance to the soy? Mine is a milk protein allergy and I react to soy even worse then the milk due to the nature of the proteins. I actually think mine is the other way around though because when I went for allergy testing I was found to be allergic to soy and not milk. The proteins are very similar so your body doesn't recognize the difference it just assumes it is the same allergen. Good luck with it.
Oreo
Worry not for tomorrow, for tomorrow will take care of itself.
 
Remember healing comes one step at a time, sometimes it seems that its one forward and 2 back but ultimately, always in a forward direction!!!
 
Help HealingWell continue to help people.  Please donate today.  Every little bit helps.  To donate go to www.healingwell.com/donate
 


CaMama
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Date Joined Mar 2005
Total Posts : 1884
   Posted 7/12/2005 6:34 PM (GMT -7)   
Thanks for the info, Oreo. I appreciate it. I didn't even discuss with my PCP about the meds. When talking about different meds, she was hesitant about giving me anything because of my liver right now and for some reason I felt uncomfortable bringing up my sadness concerns as I got the feeling she would say the same thing about medicating me any more than absolutely necessary.
 
I was on Paxil for chronic pain/depression many years ago. Much more obvious and worse than what I'm dealing with now - which is why I'm now somewhat aware of what I might be going through. I had accidentally gotten pregnant with my daughter 8 months earlier than planned and my PCP at the time made me stop it cold turkey. I was over 8 weeks pregnant at that point and my body felt so stressed out, even when I was relaxed and happy. I didn't realize at the time what stopping like that could/would/was doing to me. My daughter is SO high strung....I just have to wonder if either being on Paxil those first 8 weeks and/or stopping it cold turkey like that is the reason for her high-maintenance/excessive need for repetition and routine behavior.
 
I guess there is a chance she is having problems with soy - her milk issues are more of an intolerance than an allergy. She is gassy and has diaharreah constantly along with non-stop belly aches when she has milk products. Much of that has subsided with being on soy.
 
**
 

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