Post Edited (effie) : 7/18/2005 10:05:03 PM (GMT-6)
Post Edited (effie) : 7/18/2005 10:09:51 PM (GMT-6)
How are you coming along towards doing your tb test? Hope you have managed to get that done, thats one monkey less on your back.
I have crohns arthritis and osteo. The pain became so unbearable and debilitating that my pain mgt dr implanted a morphine pump on June 29. I did very well, and I guess I became so confident about things that I over did it and put myself right back where I started. My dr was not happy about this and chewed me out about it. They did increase the medicine some. Things have slowed down somewhat, but I know the pain is still there. Live & learn I guess. But, it did teach me a lesson. LOL.
I see my orthopedic dr tomorrow for another check up on my knees. I had surgery on both last year. Sept he scoped the r-knee and found a tear in the meniscus. Three weeks later he scoped the l-knee and found a partial tear of the ACL, so that was repaired. He cleaned up both knees as much as he could but says there is so much arthritis in them. I am also bone on bone. So, on my 1st post-op visit on l-knee, I am walking up the sidewalk to his office, on crutches and tripped over a crack in the sidewalk, went down on the fresh scoped knee, twisted it and in his words tore it up real good. Was put in a long leg brace and stayed in it till mid June. In addition, after the surgeries, I underwent five injections in each knee of a medicine call Supaartz. Its lubricate and at first my knees stopped popping, but now they are back at it. But, since all of this I have fallen and twisted both knees, bruised the bone in the r-knee. We have already talked knee replacements, but he wanted the pump put in too, to see how it helped with the knees. Also, I was in so much pain he said there was no way he would put me thru the surgeries until we came up with a solution to get the pain under control. My current plan is when the incision on my stomach heals, then I will get in my pool and exercise the knees to see if I can get some movement in them. They stay stiff & swollen. I have to walk with a cane and have to limit my time up on my feet.
I did not know Humira had to be injected in the stomach. The girl I told you about that took it for cd was injecting herself in her leg. WOW, not sure I could do the stomach thing. I have had the shots in the stomach when having surgery to keep from getting blood clots and they are not much fun either.
Need to get to bed and try & sleep since I have the drs appt in the am. Hope you are doing well. Susie
Post Edited (effie) : 7/21/2005 3:17:21 AM (GMT-6)
Effie, I just wrote you a HUGE HUGE reply and I hit SOME BUTTON that seemed to have deleated it ALL! (my son wanted me to add that!) So, I cannot write it all again right now...I will say:
My kids are 17 months apart, both by c-section no diabetis or preclampsia. I can write more detail later if you would like - it was a REALLY long reply.
I hope you all start feeling much better soon, keep me informed on how you are doing! I'm sorry to hear you ailments. I had a few "good" days there and am now suffering....I wasn't ignoring you guys, but preparing for my mom's short visit....she is gone now and I'll try to catch up on here over the next couple of days if I can.
Erin, your energy makes me so happy, I am sending you a BIG hug <<<<HUG!>>>> and THANK YOU for always making me feel so wonderful! I love chatting with you too and if I'm up late I'll log on - but I'm putting in an order of GOOD SLEEP for us all this weekend!
The liver issue was diagnosed in early Dec - however, I think it probably started over the Fall because it was about August when I started to feel my world collapsing. It was in Dec. that I got so bad I couldn't stand or stay awake. Then the sinus/ear infection mid/late Dec (antibiotics, 2 rounds) then the pneumonia in May (thankfully only one round needed - the first time in 3 years!!!) And I think I had been on a pretty long stretch w/o antibiotics when I got ill at that point. I don't know what test they do to determine it being autoimmune hepatitis - but my doc I think is basing it on everything I've been through these last few years, all autoimmune stuff and there is no hepatits that it must be yet another one of those "things" from the psoriatic arthrits since they can't really determine why it's acting the way it is. No one has mentioned bile salts to me....tell me more....
You are right about the meds - like I mentioned, my doc had an awful reaction herself to Humeria, but is doing fabulous on Enbrel. My brother in law did well on Enbrel, but doing awesome on Remicade....you just never know.
My daughter has been an angel...yeah!!!! Apprently she was really bad at one point yesterday and my husband punished her (I was out on a wild goose chase trying to exchange a broken toy! The one chore took me 3 1/2 hours!) But, she has been her old sweet self. It is amazing. But, I fear what will happen the next time - each spell has been worse than the last and being able to control her has gotten harder and harder. Effie, yes, I really do want your input on this, you are NOT being nosey and I appreciate the EAR and the HELP - any suggestions I can try would be wonderful! Please let me know what else you need to know to offer help.
My daughter says she is very scared to start K. I'm trying to be proactive with her about the change in August reminding her of using our words when something is wrong - even if we don't know the right words to describe how we feel. But, these spells get her so out of sorts and her emotions are uncontrollable - I don't know if it will help. Hysterical and manic are words that often come to mind during them. Of course, stubborn as well!
The pregnancy question - with her I had this undefined stress I could not shake. I was in great mood and loved the fact I was having a baby - but I do not know if it was the nature of the pregnancy or the being taken off Paxil cold-turkey like I was at 8 wks along that did the physcial stress to me like that. With my son, I was as happy and laid back as could be, that strange feeling of stress deep in my gut wasn't there. The funny thing is - each kid's personality reflects my pregnancy, my daughter is very serious and very high strung. My son is laid back and basically wears his heart on his shoulders. I had an immune system of iron (couldn't get sick!) while having her and she in turn rarely gets very sick. I was induced because of her size vs. mine - but they realized after many hours of labor and FINALLY giving me an epidural that she was breech. From the day she was born, you could cut the air with a knife everytime someone other than my husband came in to the room, especially visitors. She didn't like ANYONE even touching her (and that lasted for about 8 months) other than me or my husband. She is over that, and I contribute some of that to her brother being born and getting so much attention because he'd let everyone hold him.
With my son, my arthritis was in remission, but I was sick as a dog. A cold at 11 weeks turned in to pneuonia and brochitis. I was sick until 33 weeks along. I had a c-section because of the recent one w/daughter. My arthrits came back 10-fold that very night after I had him and I haven't been the same since. by the way, my son gets sick very easily- colds and fevers. He'll get a fever if we're up out of the house later than normal and/or past his bed time.
Oh, and they are 5 1/2 and 4. Thank you for the 'mother' compliments. I love my kids to death and they ARE my world, but I know my health has kept us from doing as much together as I'd like, even just here at home. It has also caused me to be more lenient than I should be at times. My house after 3 years of being here still looks like a storage unit and is often a pit. I often spend the mornings lying down because I just can't move and am so exhausted. I don't know what i'm going to do this Fall when my daughter's class starts at 7:40!
I hope all is well with you. Did you get the TB test yest?
Post Edited (erin kachmar) : 7/24/2005 10:25:35 AM (GMT-6)