A question for Curley

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effie
Regular Member


Date Joined Mar 2005
Total Posts : 344
   Posted 7/12/2005 10:50 PM (GMT -7)   
Hi curley!!! Thank you for all the kind words you have shared with me.

I noticed on one of your posts that you are taking Humira. I am scheduled to go on this as soon as I get the tb test done.

Could you tell me how Humira has worked for you? How long did it take for you to get relief? Were you ever on methotrexate or arava? Did you have to stay on methotrexate after you started the Humira? How difficult is it to give the injections? Do the injections hurt?

I would appreciate any information you could share.

Thank you,
May god bless you and keep you safe.
Judy/effie

curley
Veteran Member


Date Joined Mar 2005
Total Posts : 4305
   Posted 7/13/2005 12:05 AM (GMT -7)   
Judy Hi,

Glade to hear from you and I will answer you questions as best as I can.

(1)Judy I will start with the Humira,I have been on humira for just a little over a year and I want lie to you it does hurt some what it's like a burning pain.I take it every other week.

(2)I do belive that if I had not been put on Humira I would still be in a wheel chair.Yes that is how bad off I was.I was in that wheel-chair for a year before we decided to try Humira I was desperate.

I'am on 40mg and you have to keep it refridgarated like you do insuline.I all way's take mine out about 30 minutes before giving my self a shot,they say not to inject it while it is cold.

Judy it took about two months before I noticed any change but the wait was well worth it.But I do want to stress that not all meds work the same for every body.But I do think that it's worth a shot.

I'am on Methotrexate have been so for all most two years,my Dad takes it all so.I take 100units once a week.I use a insuline needle because they are thin and they don't hurt you.Infact to tell you the truth I don't even feel it half the time.

I do want to stress to you that if you have choice do the shots because the pill form can be brutle.My Dad was on pill form and for the first couple of day's it would make him very ill.He is now doing the shot form and neither one of us have that problem any moore.

I do have a few question's thoe.Have you ever given your self a shot?If not don't worry they will teach you how to do so.I gave my self my first shot in the Doctors office.

The reason that I have stayed on Methotrexate is because 1.it not only helps with the oa,ra,it also helps with people that have crohns also.

curley
Veteran Member


Date Joined Mar 2005
Total Posts : 4305
   Posted 7/13/2005 12:08 AM (GMT -7)   
Sorry Judy I pushed the wrong thing but any way I have never tried Arava so i can't help you with that one.If there are any other question you have please don't hesatate to ask.


Curley..........
a.k.a.Mela...........

effie
Regular Member


Date Joined Mar 2005
Total Posts : 344
   Posted 7/13/2005 1:07 AM (GMT -7)   
Thank you curley. That was so sweet of you to give me a response so quickly. I appreciate your honesty.

I give myself insulin injections two or three times a day. There have been a couple of times when I had to up my insulin injections up to 5 or 7 per day.

Do you have diabetes?

The one thing I hate when I require an increased amount of insulin is the site rotation. I normally inject left arm, right arm, left leg, right leg and so on.'
However I am also suppose to include the abdomen as a part of the regular rotation of sites. I avoid abdominal injections as often as possible. I find they really hurt. However, if my blood sugar is high it is imperative that I use the abdomen as an injection site. Abdominal injections of insulin are absorbed into the body the quickest.

Lately, perhaps the last three weeks my psoriatric arthritis and osteoarthritis, and fibromyalgia have really acted up. I can not get out of bed or off a chair without help. I have almost constant pain, and stiffness.

I am sorry to hear that you were wheelchair bound. But glad to hear that the Humira has made such a difference in your life. Are you able to work?
Do you have any children? What conditions do you have? Do you also have fibromyalgia?

Thank you for all of your support and answering my questions. It is so nice to be able to hear about this new proceedure from a real person.
May god bless you,
Judy/effie

curley
Veteran Member


Date Joined Mar 2005
Total Posts : 4305
   Posted 7/14/2005 7:15 PM (GMT -7)   
Effie Hi,

Sorry it took me alittle longer to anwser but not been feeling to good.I hate to hear that you are a diabetic.I do not have fullfleg diabitie's but runs on my mom's side really bad.I'am a border line diabetiic.

I do not work have not since May of 03,I get Disability thank god it took all most two year's to get it.

I do not have any children,I had to have a hysterectomy when I was 20 because I had a still born and they riped my uterest in three different places and could not be repaired.

I have crohn's,RA,OA,and may have LUpus but not been diagnosed withit yet my my Rhuemy is pretty sure I do but he said he had some other test that he wanted to do.My salovya (I know I spelled it wrong)glade is not working like it should so I takeSalagen 5mg three times aday and it does help.

I hope that you are feeling well and yes it is nice to have some one to talk to that understand's what you are going through.Please keep intouch with me and I will do the same.If you don't mind me asking where do you live.I'am in Knoxville TN.

Curley......
a.k.a.mela.......

effie
Regular Member


Date Joined Mar 2005
Total Posts : 344
   Posted 7/14/2005 11:28 PM (GMT -7)   
Dear Curley,
Thank you for answering all of my questions. I really do appreciate you sharing your experiences.

I live in a city about twenty five miles from Tononto, Ontario, Canada.

I am sorry you had to have a hysterectomy and sorry for the loss of your unborn child. I am sure that was and is still difficult. Did you have to go on replacement hormones?

Thank goodness you finally got approved for disability. That is terrible that it took that long. I hope it was retroactive.

You wrote about salovya (glade): i think the second word was a typo and you meant gland. What is this condition?
Does it cause you to have difficulty swallowing your own saliva? I have that some days and have no idea what it is.

Well take care, and I am very sorry to hear that you have not been feeling well.
May God Bless you,
Judy/effie

curley
Veteran Member


Date Joined Mar 2005
Total Posts : 4305
   Posted 7/15/2005 10:58 PM (GMT -7)   
Judy Hi,

I'am glade that I was able to help it alway's makes me feel better when I get a chance to help others.

To anwsere your question Salovya Gland,I have candition that makes me have dry mouth really bad have to keep my mouth moist by sucking on ice and drinking alot of fluids.I'am on medication for it and it has help good bite.I can't produce salovya like a normal person that does not have this problem.And yes I do have a hard time swallowing my med's and food to.

You did'nt say much on how you are doing so I'am asking how are you doing?I hope every thing is going ok with you.

It is so nice to have you to talk to I feel like I can relate to you and it's nice to be able to lean on each other for support.I hope that you have a great week-end.

Curley........
a.k.aMela........

erin.K
Veteran Member


Date Joined Mar 2005
Total Posts : 3148
   Posted 7/16/2005 11:30 AM (GMT -7)   
Curley!
hey there....do you have Sjogren's ? all the mucus membranes are constantly dry. it's a part of arthritic diseases sometimes. just curious!
take good care!
erin

curley
Veteran Member


Date Joined Mar 2005
Total Posts : 4305
   Posted 7/16/2005 6:41 PM (GMT -7)   
Erin HI,To answer your question yes that is what I have Lucky me.Hope you and Judy are having a good week-end.


Curley......
a.k.a.<ela.....

effie
Regular Member


Date Joined Mar 2005
Total Posts : 344
   Posted 7/17/2005 12:53 AM (GMT -7)   
Dear Curley,
Thank you so much for your help. I will never forget your kindness.
I am sure it is hard for people to understand how scared I am. Part of me wants to try the Humira, and another part is telling me to go for a double knee replacement. Just very confused.
You asked how I was so I will tell you. I do not like to talk about it. However, in the last two weeks or so my pain level has really gotten high. I started a new sleeping aid, Trazodone, and a week later or so I started to try a new anti depressant, Zoloft. I find that all I want to do is sleep. I will sleep for over 30 hours at a time.

My son was fixing my computer, which was acting up. Somehow he managed to read an email I had written about him. He was totally devasted that I would share our private info world wide. I understand his disappointment in me. I may have to ask Peter to delete all of my posts.

I just feel very tired and am very worried about a lot of things. It is better, for me, if I do not think about my own problems, but concentrate on others, and trying to help them.

I have found some very special friends at HW. I thank God for my new friends. It gives me a reason to wake up, to read what is happening with my new friends and how everyone is doing. Thank you for being there for me, I hope one day I can help you too.

I really hope I get my act together next week, get the tb test done, get the forms I need to get filled out for my insurance filled out, and get my blood work and x-rays done. It would also help if I could get the dishes and laundry done insteaad of just sleeping all the time.

Things that used to be so easy for me are such a struggle now.

Thank you for asking about how I was doing.
You, and many others on this site have helped me so much. I thank all of you and wish you all health, happiness and laughter.
Judy/effie

Post Edited (effie) : 7/17/2005 2:14:08 AM (GMT-6)


curley
Veteran Member


Date Joined Mar 2005
Total Posts : 4305
   Posted 7/17/2005 10:46 AM (GMT -7)   
Judy thank's for letting me know how you are doing.If you do not mind me asking Who put you Trazodone?

I was on that drug for awhile and all I did was sleep and when I did manage to stay awake I felt groogie,like I was here but was'nt here.What dosage are you on.

I too am on Zoloft 100mg and it has helped bettter than any of the others that I have on and belive me I have been put on a lot of them.If you need to talk just let me know.

I did manage to get out of the house yesterday it was nieces bithday turned six.Hope to hear from you soon.

Curley........
a.k.a.Mela..............

erin.K
Veteran Member


Date Joined Mar 2005
Total Posts : 3148
   Posted 7/17/2005 1:44 PM (GMT -7)   
effie,
hang in there my friend!
one day at a time and if need be....one hour at a time! we are all here for you!
curley,
how are your sinuses? a-hah...i am a good detective with diagnoses of Sjogren's! see, all of that studying in nursing school has payed off! its such an uncomfortable condition i am sure. take good care.
erin

effie
Regular Member


Date Joined Mar 2005
Total Posts : 344
   Posted 7/18/2005 4:03 AM (GMT -7)   
Hi curley and erin, I have just awaken and I am not even sure what day of the week it is. However my computer reminder says I have an appointment with the rheumatologist on Wednesday at 2:00. Thank God for laptops cause I sure did not remember that one.
Curley my family doc put me on trazodone to help me sleep. Well now that seems to be all I do.
Erin thanks for continuing to care. What a diagnostician!!!!!
You are amazing!!!!!
Hope you are both feeling better.
with sincerest thoughts,
Judy/effie

erin.K
Veteran Member


Date Joined Mar 2005
Total Posts : 3148
   Posted 7/18/2005 7:05 AM (GMT -7)   
eyes  judy,
i feel so much for you right now, you worry me as the pain and sleep and fatigue are concerning. i know how it is....am here for you. going through some tough pain with you too! just keep an eye on how things progress.
and don't forget, it is perfectly normal to feel the way you do about Humira, with all the doubt and questionings. and let me add, the knee replacement is not a bad idea! :-)    people are going STRAIGHT FOR IT nowadays with great success! but since you have the humira, it will be worth your while perhaps....so don't worry, you will do fine.
smurf  stay strong effie!
{{{{{{{{{{{{{{{{{{{{{{{take good care}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}
erin
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