erin . question

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gingerlou
Regular Member


Date Joined May 2005
Total Posts : 47
   Posted 7/21/2005 3:27 PM (GMT -7)   
 i have diagnosed with arthrtis in my neck ,fibro ,and costochronditis . i don,t want to sound stupid  but when i have my period everything flares up and  it seems like  i am usually tired i just want to sleep  i,m 36 is this normal? thanks ginger

erin.K
Veteran Member


Date Joined Mar 2005
Total Posts : 3148
   Posted 7/21/2005 4:07 PM (GMT -7)   
dear ginger,
that's a very significant question and you are ABSOLUTLEY RIGHT!!!  hormones play a big part of autoimmune diseases and inflammation (especially FIBRO!). it is shown that WOMEN get more AI disease than men. wonder why? i believe it's hormones. we get a big rise then fall and that sends out all sorts of cortisol and other FLAMERS!!!! that flare up already ripe joints. it is shown also that the vast amount of RA, fibro, lupus and others are sprung up after PREGNANCY! aren't we lucky!
how bad are you? is it before or during that your are worse? does your doc know? he may Rx that you (and i would Rx as well) to perhaps take an extra dose of an NSAID if not contraindicated or harmful (but you know...ask first) or perhaps the doc can give you extra analgesics for that time. are you on the pill? sometimes that lessens the effect of menses but you probably already know that,
hhmmmmm.... eyes i'm just brainstorming here.
the GOOD THING= you now when you feel extra flarey! so listen to your body! taking some extra precautions around this time is an excellent idea.
have you tried supplemental calcium? that has shown to not only ease menses but steady hormones and mood and relax muscles that may flare as well.
not to jump too conclusions....but if you are an arthritic make sure you have your OBGYN check for endometriosis which can be very painful and unfortunatley is common among RA women....a whacky correlation (i had already a growth the size of a grapefruit removed that had adhered to my appendix & piece of large bowel) so ya never know.
i feel the way you do as well! just like when it's extra humid out i tend to flare more and during my period it is just the same. stress has a lot to do with it too.
if there is anything more i can do let me know. i have access to plenty of docs and nurses! i am in graduate school now and will be specializing in infectious disease and rheumatics.
very nice talking to you ginger! :-) :-) :-) :-) :-) :-) :-) :-) take good care & hear from you soon!
erin

Post Edited (erin kachmar) : 7/21/2005 5:12:04 PM (GMT-6)


gingerlou
Regular Member


Date Joined May 2005
Total Posts : 47
   Posted 7/21/2005 4:18 PM (GMT -7)   
erin, i feel bad during the first few days of my period and also after i quit bleeding around the fifth day of my period i feel like  like my body is beenig sucked dry my sister does the same way ,i feel really good the day before and the first day of my period  ihave all kinds of energy ihave told drs. this and they say well thats strange . also woulld a diet of high protein help fibro ? i need to lose i,m 5"5 and weigh 178  please let me know

erin.K
Veteran Member


Date Joined Mar 2005
Total Posts : 3148
   Posted 7/21/2005 9:13 PM (GMT -7)   
hey ginger!
strange? what planet does your doc work on? tongue is your doc a man? it is the MOST COMMON THING IN THE WORLD!!!!  for example...personal example....myself, my sister and even my mother had always had this ENERGY SURGE the day before or first day of the menses....and then the feeling of crapiness kicks in. for me....i clean and organize like CRAZY!!! and in all feel real good....weirdly good the first day or one before. and then other times it is like this horrible FATIGUE!!!! plus very very painful at times too. my sister was a puker atop of things tongue . this rollercoster is hormonal ginger. a big DIP and plateau and downfall and raise. i totally hear you! and this time of the month definitely acts on arthritis and fibro. even in fibro....many women experience much more severe period cramps  .....thus the walls of the vagina and uterus are mainly smooth muscle!
 weeeeeeehoooooooo! good stuff eh?
i know the weight thing is tough. i applaud you for wanting to take control of it! yeah your height and weight are not way out of the ball park so that's good...you only have a little bit to go!!! what are your physical capabilities? i mean like running, aerobics, bike etc...because with arthritis and fibro a lot of activities can be painful. and then we focus on diet change as the big factor. with protein diets...you may lose quickly....but at first it is mainly water. this is good  because it gives people a JUMP START so to speak and they get enthused cause they see results. try it if you feel its okay for a while.....but i would say do not stick to strict protein. it can lead to ketosis which is a condition where your body makes too many keytones and you turn acidic and that is critical....so always keep the fruits and veggies!!! :-)
i've been having weight issues of my own....not in a good way either. i'm 5"5 and 91 pounds sad . and it hurts to even lay in bed sad . i have been quite ill and dropped 20 pounds as soon as i started chemotherapy, plus on top of pain...don't feel like eating much & have lost lots of muscle from little exercise.
but the way i eat is like  9 or 10 very small meals a day and i keep losing.....so maybe in another person this would work too! (of course healthy foods and not the junk i shove in! LOL. i'm up to a pint of Ben & Jerry's a day and still losing...its scary).
so experiment & have fun with it! i tell some of my patients "do not think of it as diet....think of it as dining!" it takes some lifestyle change but i am all for the european style....nice atmosphere, candle, music, taking your time, wine! but in reality, if one has children this is impossible!
but you are on the right track....a weight loss of even 5 or 10 pounds will help with fibro and arthritis and make ya feel good all in general.
or.....i can send you my meds and you'll shrink to 80 pounds in 10 days!! tee hee hee!
i wish you well....you have great posts! have a good evening!
and also....this may or may  not be of use to you, but i had what is called tetany (a painful form of generalized muscle spasms caused from neuro Lyme's disease), and my wonderful neurologist had put me on a very high calcium diet. lots of chocolate skim milk drinks, cheese, yogurt and endless spinach! sauteed ofcourse with garlic and oil! the diet worked wonders for the muscle pain and i did in fact lose 5 pounds in like 1.5 weeks.
so you have lots of options!
be well,
erin
 

Post Edited (erin kachmar) : 7/21/2005 10:17:17 PM (GMT-6)


CaMama
Veteran Member


Date Joined Mar 2005
Total Posts : 1884
   Posted 7/21/2005 11:08 PM (GMT -7)   
Ginger - yes, you can get bad flares with PMS as I am learning these last couple of years. Mine started very noticably a short while after my 2nd child. It gets really bad when I ovulate and then again a 1-3 days before I get my period I get insomnia and a bad flare.
 
As Erin said, watch out for those protien diets. My doc said to stay away as those with autoimmune issues can react very negatively very quickly to them. I am in need of dropping approx. 80 lbs myself after years of being laid up with autoimmune issues.
 
Ask your doctor if there is any problem with you taking the supplement Evening Primrose. My PCP recommended it for the PMS/Flare issues and I have to tell you it helps a LOT including the problems with the flares - at least it makes the flares a bit more tolerable because I'm not dealing with the other stuff as much. I don't take them every day as I get hives when I take vitamins too often, but I do try to take it every other day (every day around my "bad" times) and it seems to still help quite a bit.
 
Erin - you lost weight with a dairy diet??? Wow, I have some type of allergy/intolerance to it. I gain weight when I have dairy and I get flares as well! sad And I love dairy products!
 
**
 


erin.K
Veteran Member


Date Joined Mar 2005
Total Posts : 3148
   Posted 7/22/2005 5:17 AM (GMT -7)   
hey Camama!
the calcium diet was not intended for my to lose weight. (just so happens i did!) what this diet does is it works on the electolytes and cations and anions in the nervous system. the calcium in higher doses stopped the tetany! it was amazing! it worked better than taking the anti seizure meds! when i ask my doc about the weight loss she said "oh yea, that happens because the calcium makes the body use up the fat reserves and burns calories. so it was by serendipity the weight loss!
NOW.....on TV i'm sure you've seen the ads for "DRINK MILK LOSE WEIGHT". there is quite a bit of truth to it.....but they mean use diary as a small snack, it makes you feel full and is good protein for those who can tolerate it. i take Lactaid because i hate the taste of REAL milk!
later Mama!
erin

gingerlou
Regular Member


Date Joined May 2005
Total Posts : 47
   Posted 7/22/2005 10:09 AM (GMT -7)   
thanks erin for the reponse i din,t want to sound silly but i have never had any femle problems much and as i said my male doctor doesn,t know what to make of it . i think maybe my age (36) is kicking in .if you have any more info  please post ginger

erin.K
Veteran Member


Date Joined Mar 2005
Total Posts : 3148
   Posted 7/22/2005 3:05 PM (GMT -7)   
i think your male doctor should have a uterus for a month!
tee hee hee
LOL
erin

erin.K
Veteran Member


Date Joined Mar 2005
Total Posts : 3148
   Posted 7/22/2005 3:08 PM (GMT -7)   
eyes  oh, and ginger....i know you might be thinking this too....but even at age 36 the BIG mean "M" might be creeping up! the pre pre menopausal crap can start as early as 33/35/38....40. just another thought. great eh?
hang in there! talkk to you soon!
erin

gingerlou
Regular Member


Date Joined May 2005
Total Posts : 47
   Posted 7/22/2005 6:42 PM (GMT -7)   
i was thinking maybe the big M may be starting i hope if it won,t be terrible like some womens ihave known and i wish all male doctors had to female for a month to get a better understanding of women and know everything is not always a cut and dry case.thanks ginger
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