Hi everyone, I’m here hoping that someone can point me in the right direction.
I started getting pain in my shoulder about 10 years ago, gradually the pain has spread to most of the joints in my body. I have seen several doctors over the years and all but one said I didn’t have arthritis, usually commenting on my age (I’m late 30’s). eventually one referred me to the joint specialist who looked at the joints in my hand and wrist and said I didn’t have arthritis, and my pain was probably just due to my job. Manual labour from 18 to 35, now I have a desk job, and that my joints were just wearing out!!! All the usual blood tests prove negative.
I do also have psoriasis, but again, the doctors say I don’t have psoriatic arthritis.
I’m taking Diclofenac for the pain at the moment, which reduces it to a dull ache.
The biggest trigger for the pain is shock to a joint. Yesterday, my 18 month old son hit my thumb with a toy, this morning it is bruised, but more to the point, I could hardly get out of bed today, the pain was in every joint. It seems to happen that way, that if I jar or have an impact to a joint, every joint in my body reacts to it.
Is this a common occurrence, or does it lead to a certain condition? I’ve lost faith with the doctors I’ve seen, as they are very dismissive and treat me like I am making something from nothing, but in reality, some days the pains so high, I’m reduced to staying in bed and left feeling very nauseous.
Since seeing the specialist (about 2 years ago), my finger joints are now showing signs of swelling ands disfigurement that I associate with arthritis.
Any help or advice would be greatly appreciated.
Thanks for taking the time to read.
Sure sounds like arthritis..I'd recommend an consult with a rheumatologist, also start keeping a daily journal of your symptoms, be as clear as possible, listing joints affected, any heat, pain, swelling, etc.
You just have to be persistant..as frustrating as it is until you find a dr. that will pay attention. Something is going on and you know your body better than some dr. that only sees you on occasion. I had symptoms off and on for years before it finally got debilitating enough and my lab finally showed that I had Rheumatoid arthritis. THEN the dr.s said, "oh, well, we think this is what was going on years ago when your shoulder was going out on you". IT IS SO VERY FRUSTRATING!!!
I wish you luck and remember..just keep with it, change drs. till you find one that is receptive and willing to listen!
I've been in the same position as you are in now - years of trying to find a doctor to diagnose me with what my problems were. Good luck and keep looking for the right doctor! Psorisis can lead to psoriatic arthritis I am told.
Has any of the doctors done x-rays on your joints? If your fingers are getting disfiugred, there should be some sign on them of what is happening. Different forms of arthritis apparently take a different form of degeneration on your joints. Don't settle for them just going by blood tests because they can often be negative even when you most definitely have it.
That's about all I can write now...good luck.
Oh, and if you were Dx w/OA and haven't been seeing a Rhuemy, you need to! Also, if you are seeing one shame on them for not giving you a full order of x-rays to see what's going on with your joints!
Well, I hope someone can help you with similar problems. You might want to also post on the other forums to see if someone there has any ideas (I think there is a chronic pain and fibromyalgia forum.)
The two things I have that do come close to what you are experiencing is - once I get hurt like that, I sometimes have a reaction beyond that spot, but I don't know if it is a domino effect or it can actually cause a flare or mimic one. Though, I don't remember it effecting everything unless it happens to correspond with a flare.
The second, my feet are so bad, that I have problems beyond just joint pain and if I do anything to jarr a foot (step/stand wrong, step on something, trip) I seem to react beyond the foot, it is hard to explain. Maybe a domino effect, shock to the system, or my body just can't handle that pain so it reacts everywhere, I don't know. It is very strange.
Post Edited (erin kachmar) : 8/1/2005 10:58:37 AM (GMT-6)
That is a drag about the situation you are encountering over there. We have similar problems, like Erin said, with people ruining it for others. Even for over the counter medications they had to put a limit on them (cold, sinus meds) because so many people were stockpiling them and creating drugs from the ingredients. Same with our Federal and State programs to help people who have lost their job or have become disabled. Too many people have abused the system that the people who really need or qualify for the help get denied or have to go through judge and jury to get approved. It is ridiculous.
I hope you find relief soon and a doctor who can see beyond the book cover and really do some investigating on what the root problem is.
Buster, thanks for the update and hope you continue to search until you find an answer. We will be thinking of you and praying you find some answers quickly.
I have a friend in Wales and she says your country is really beautiful. Hope to visit myself sometime.
Warm wishes to you,