Arthritis or not?

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buster99
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Date Joined Jul 2005
Total Posts : 8
   Posted 7/22/2005 12:50 AM (GMT -7)   

Hi everyone, I’m here hoping that someone can point me in the right direction.

I started getting pain in my shoulder about 10 years ago, gradually the pain has spread to most of the joints in my body. I have seen several doctors over the years and all but one said I didn’t have arthritis, usually commenting on my age (I’m late 30’s). eventually one referred me to the joint specialist who looked at the joints in my hand and wrist and said I didn’t have arthritis, and my pain was probably just due to my job. Manual labour from 18 to 35, now I have a desk job, and that my joints were just wearing out!!! All the usual blood tests prove negative.

I do also have psoriasis, but again, the doctors say I don’t have psoriatic arthritis.

I’m taking Diclofenac for the pain at the moment, which reduces it to a dull ache.

 

The biggest trigger for the pain is shock to a joint. Yesterday, my 18 month old son hit my thumb with a toy, this morning it is bruised, but more to the point, I could hardly get out of bed today, the pain was in every joint. It seems to happen that way, that if I jar or have an impact to a joint, every joint in my body reacts to it.

 

Is this a common occurrence, or does it lead to a certain condition? I’ve lost faith with the doctors I’ve seen, as they are very dismissive and treat me like I am making something from nothing, but in reality, some days the pains so high, I’m reduced to staying in bed and left feeling very nauseous.

 

Since seeing the specialist (about 2 years ago), my finger joints are now showing signs of swelling ands disfigurement that I associate with arthritis.

 

Any help or advice would be greatly appreciated.

 

Thanks for taking the time to read.

 

Chris


BamBam
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Date Joined Jun 2005
Total Posts : 18
   Posted 7/22/2005 9:24 AM (GMT -7)   

Hi Chris,

    Sure sounds like arthritis..I'd recommend an consult with a rheumatologist, also start keeping a daily journal of your symptoms, be as clear as possible, listing joints affected, any heat, pain, swelling, etc.

     You just have to be persistant..as frustrating as it is until you find a dr. that will pay attention. Something is going on and you know your body better than some dr. that only sees you on occasion. I had symptoms off and on for years before it finally got debilitating enough and my lab finally showed that I had Rheumatoid arthritis. THEN the dr.s said, "oh, well, we think this is what was going on years ago when your shoulder was going out on you". IT IS SO VERY FRUSTRATING!!!

     I wish you luck and remember..just keep with it, change drs. till you find one that is receptive and willing to listen!

BamBam

   


Donna


CaMama
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   Posted 7/22/2005 1:43 PM (GMT -7)   

Hi Chris,

I've been in the same position as you are in now - years of trying to find a doctor to diagnose me with what my problems were. Good luck and keep looking for the right doctor! Psorisis can lead to psoriatic arthritis I am told.

Has any of the doctors done x-rays on your joints? If your fingers are getting disfiugred, there should be some sign on them of what is happening. Different forms of arthritis apparently take a different form of degeneration on your joints. Don't settle for them just going by blood tests because they can often be negative even when you most definitely have it.

That's about all I can write now...good luck.

**

 


 


SnowyLynne
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Date Joined Apr 2004
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   Posted 7/22/2005 2:55 PM (GMT -7)   
I was dx with Osteoarthritis at age 25.It does happen.
SnowyLynne


buster99
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Date Joined Jul 2005
Total Posts : 8
   Posted 7/23/2005 5:55 AM (GMT -7)   
I had an x-ray a few years ago, they only looked at my shoulder though and ignored the rest of my joints.
 
the main query is if anyone else suffers from a type of reaction in the rest of thier joints as a result of a shoch to just one.

erin.K
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Date Joined Mar 2005
Total Posts : 3148
   Posted 7/23/2005 6:29 PM (GMT -7)   
hi Chris,
i feel your fustration.i have 16 specialists under my belt!.....and they still all scratch their heads. i hear what you are saying about touching or hitting one joint and then the rest of that appendage and or whole body reacts. mine is mostly to walking. my feet feel as if all the tiny bones are breaking when i first put them on the floor in the morning, and then immediately after the pain goes to the knees like a sharp snap and then to the hips too.
i'm 24 and have been going through this since 13. i hate it. have you ever had a Bone Scan? that would show exactly where the problem is.
my RA and other complications are a result of an untreated Lyme's disease for over a decade. do you think perhaps this could be from an unresolved infection? have you ever been exposed to lyme's, spotted fever, staph, syphillis, strep? there also is a thing called reactive arthritis which comes from virus or infection as well.
my heart goes out to you. are you anywhere near Manhattan? the bone & joint disease hospitals are some of the best in the world.
sincerely,
erin

CaMama
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Date Joined Mar 2005
Total Posts : 1884
   Posted 7/23/2005 11:06 PM (GMT -7)   
I'm going to let one of the more medical-adept people here answer your question. They have a broader knowledge than my wishy-washy answer of "sometimes, yes...for me" to your main question.
 
To me it sounds like somthing other (or different) than your standard RA if a hit to the thumb caused so much pain the following morning. But, I don't have a clue to what that would be and feel like I"m too much in "idiot" mode lately to even guess or give you a detailed answer why it may or may not be indicative of RA.
 
I hope you  are feeling better and wish you success in finding answers soon!
 
** 
 


CaMama
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Date Joined Mar 2005
Total Posts : 1884
   Posted 7/23/2005 11:13 PM (GMT -7)   

Oh, and if you were Dx w/OA and haven't been seeing a Rhuemy, you need to! Also, if you are seeing one shame on them for not giving you a full order of x-rays to see what's going on with your joints! nono

**


 


erin.K
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Date Joined Mar 2005
Total Posts : 3148
   Posted 7/24/2005 10:13 AM (GMT -7)   
i agree Camama! they should have done more Xrays for Chris.
Chris,
there is also a condition which effects the muscles and ligaments and tendons also. if you react strangley to say when you hit your thumb and it effected a whole bunch of other things.....there is a MUSCULAR conditon where the mitochondria are not performing correctly and it can cause a great degree of pain to even a slightly bumped joint or other part of the body. & this will not show up on any Xray or other films either. only a muscle biopsy will DX it. keep an eye on it!!!!
lots of luck to you & best wishes
sincerely,
erin

buster99
New Member


Date Joined Jul 2005
Total Posts : 8
   Posted 7/25/2005 12:52 AM (GMT -7)   
Hi Erin, unfortunately, i'm nowhere near manhattan, i'm in England. I have to say that looking at this and similar forums, the standard of care and the level of expertise is far better in America than over here. i think it may have something to do with our state funded health system. Thanks for all your responses, i'm only slightly nearer finding out the cause, but i feel a hell of a lot better about it.
I'm still reluctant to visit more doctors, as i just come away deflated and feeling like i'm wasting thier time.
i'm overweight and the standard response from each doctor is that's the cause!!!

Thanks for all your advice and kind words of encouragement

Chris

erin.K
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Date Joined Mar 2005
Total Posts : 3148
   Posted 7/26/2005 1:40 PM (GMT -7)   
dear Chris,
you hang in there and NEVER GIVE UP!!! if you know in your heart something is wrong ... keep pursuing. many folks have to go to over 20 docs till proper treratment is found.
never give up.
erin

CaMama
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Date Joined Mar 2005
Total Posts : 1884
   Posted 7/30/2005 11:34 PM (GMT -7)   
Chris, I have the same "weight" response from many doctors. What they don't realize is when this started, I was not overweight - time, immobility, c-sections, and illnesses lead me to this excessive weight I'm carrying around - so, I KNOW that is just not an acceptable answer! Don't let them get to you. I went years trying to find help and answers and it was very depressing and frustrating!
 
Like Erin said, you know there is something going on. Keep at it with finding help until you get some!
 
Take care.
**
 


Flopsie
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Date Joined Jun 2005
Total Posts : 1361
   Posted 7/31/2005 12:24 AM (GMT -7)   
I have to agree. Sometimes it takes a very long time to find the right doc, then one day..bingo bango..there he is.
 
Best wishes to ya,
flopsie
Don't walk in front of me....I may not follow
Don't walk behind me....I may not lead
Walk beside me..and be my friend...
                                    Albert Carnus
 
and Lord, put your arm around my shoulder and your hand over my mouth
 
 

buster99
New Member


Date Joined Jul 2005
Total Posts : 8
   Posted 8/1/2005 4:49 AM (GMT -7)   
CaMama, i know what you mean, when my pains started, i was in a very physical job and as such, not very overweight, since giving up that job and taking a desk job (because of the pain), i've naturally piled on the pounds.
I used to live in a large town that was renouned for people faking illnesses to get more money from the state, therefore i guess the doctors get used to seeing people 'trying it on' and start out naturally sceptical. once it's on my records as the 1st doc putting it down to weight, i guess it's easier for subsequent ones to jump on the band waggon if they can't put thier finger on the problem.
At the moment, as long as i take my meds regularly, it's down to a dull ache, which i can live with and therefore reluctant to go see another doc.

I would like to know if many other people experience the same reaction to shock to a joint as i do though, i reached down to pick something up two days ago and jarred my thumb back and the day after, i could hardly move with pain throughout my body.

Any ideas anyone?

Thanks for all your words of encouragement, i've said it before, but it really does help to know that people are out there.

Chris

CaMama
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Date Joined Mar 2005
Total Posts : 1884
   Posted 8/1/2005 7:37 AM (GMT -7)   

Well, I hope someone can help you with similar problems. You might want to also post on the other forums to see if someone there has any ideas (I think there is a chronic pain and fibromyalgia forum.)

The two things I have that do come close to what you are experiencing is - once I get hurt like that, I sometimes have a reaction beyond that spot, but I don't know if it is a domino effect or it can actually cause a flare or mimic one. Though, I don't remember it effecting everything unless it happens to correspond with a flare.

The second, my feet are so bad, that I have problems beyond just joint pain and if I do anything to jarr a foot (step/stand wrong, step on something, trip) I seem to react beyond the foot, it is hard to explain. Maybe a domino effect, shock to the system, or my body just can't handle that pain so it reacts everywhere, I don't know. It is very strange.

Good luck! I hope you start feeling better.
**
 


erin.K
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Date Joined Mar 2005
Total Posts : 3148
   Posted 8/1/2005 9:50 AM (GMT -7)   
to our dear chris, :-)
hi! i was just thinking if you perhaps ever had a diect injury to your hand? confused   also, nerve damage can cause an effect as you describe as well.
my heart goes out to you!  i'm 24 and i know the look the docs give when they look at your age and say "you're too young, you're fine". mad it's so disheartening and makes ya sick just to think about it.
so people in your town were malingering? or they say malingerers, i'm not sure.  faining illness. and now  everyone has ruined it for you...who has legitimate problems! oh what a world! the same here in the states...we who need strong pain meds like narcotics have a hellovatime getting them because teenagers and college kids partied with Rx drugs and abused them. all over the news for years. so now of course, docs are hesitant many times to Rx drugs like percocet and morphine. not fair eh?
i wish you well chris,
erin
p.s. by the way, i have a weight issue as well...but the opposite. i'm 5'5 and weigh 90 pounds on a good day. i look quite the heroin addict.  so immediately a new doc will think that:   A.  i am a junkie!  or B.  i am an anorexic or bulimec! tongue neither of which are true.  so i can understand....i feel discriminated against sometimes.
 
how is england now? were you close to where the attack was a few weeks back?  i pray everyone is safe. how terrible.
where in england do you reside?  i traveled London, Liverpool and Canterburry (excuse me if i mispelled) i loved Canterburry...was there in 2000 for Easter, magnificant!

Post Edited (erin kachmar) : 8/1/2005 10:58:37 AM (GMT-6)


CaMama
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Date Joined Mar 2005
Total Posts : 1884
   Posted 8/1/2005 9:13 PM (GMT -7)   

That is a drag about the situation you are encountering over there. We have similar problems, like Erin said, with people ruining it for others. Even for over the counter medications they had to put a limit on them (cold, sinus meds) because so many people were stockpiling them and creating drugs from the ingredients. Same with our Federal and State programs to help people who have lost their job or have become disabled. Too many people have abused the system that the people who really need or qualify for the help get denied or have to go through judge and jury to get approved. It is ridiculous.

I hope you find relief soon and a doctor who can see beyond the book cover and really do some investigating on what the root problem is.

**


 


buster99
New Member


Date Joined Jul 2005
Total Posts : 8
   Posted 8/2/2005 1:06 AM (GMT -7)   
Hi Erin,
I don’t recall ever having an injury to the hand, the ‘domino’ effect happens if I bang any joint, it’s just that the last two occurrences were to the hand.
I don’t think the problem over here lies too badly with drug abuse (but I’m sure it’s a big problem), the major problem here is the extra benefits they can con out of the government if they have an ‘ailment’ that prevents them working. They get free housing, free cars (brand new ones), free everything, many of them live far more comfortably than I do, and my wife and I both work in professional occupations. It’s very annoying.

England’s still very nervy; there are some major backlashes against innocent Muslim people. I’m sure things will calm down soon enough. They’ve captured the 4 people responsible for the failed attacks, so maybe that will enable them to get to the root cause.

I live in Wales, on the West coast of England, so I’m quite a way away from the troubles. If you ever get to England again, let me know and I can recommend some fantastic towns to visit. When people visit England, they invariably and understandably go to London, but from experience, I can say that England (and especially Wales) offers some fantastic tourist opportunities. (I should be paid for this), but to see all I could recommend, you’ll need months over here.

CaMama.. can you give me the address of any other good forums that may help, I’ve tried internet searches, but this one was the only good one I found.

Anyway, better get back to work.

Take care

erin.K
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Date Joined Mar 2005
Total Posts : 3148
   Posted 8/2/2005 1:58 PM (GMT -7)   
oh, chris....another thought (i'm a nurse so always thinking, probably more so than doctors do!) you hit a joint and then there is pain exceeding the point of injury. There is some things called synovitis and tendosynovitis and tendanitis which basically flare up not only the joint but all the little ligaments, tendons, muscles and tiny vessels along the path. it's extrememly painful at times. i believe they diagnose it through Xrays and MRI's. but to treat it they prescribe steroids like prednisone, NSAIDS, sometimes a drug like TOPAMAX or Neurontin too. some people find relief by taking daily ibuprofin even before the pain flares up. they also use rest, ice and or heat too. ice works well for inflammation (it's my saving grace for my shoulder!)
if i think of any more bright ideas i will post them to you.
the best to you and your family!
erin
(i preferred all the english country side and small towns....didn't like london much! it's like new york! and plus an old lady whacked me in the shin while i was letting her pass me on the sidewalk!!! hah! i'll NEVER forget it though!!!)

buster99
New Member


Date Joined Jul 2005
Total Posts : 8
   Posted 8/3/2005 1:01 AM (GMT -7)   
Hi Erin.
I do take ibuprofen as well as Diclofenac, I used to have 3 x 600mg ibuprofen per day on prescription, which helped a lot, but now I’ve reduced that down to 3 x 200mg. Combined with the diclofenac, the pains pretty well manageable.
I’ll look into the 3 things you mentioned and see how closely my symptoms match; maybe I can then talk the next doc to look for them.

I live in an environment where everyone smiles and says hello, and thanks you for moving aside, whenever I visit London, I’m constantly amazed at how miserable and insular everyone is, no-one seems to have any time for each other.

Thanks for all your help, it’s nice to be able to talk to someone about it, I feel bad about burdening my wife with it all.

Flopsie
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Date Joined Jun 2005
Total Posts : 1361
   Posted 8/9/2005 10:29 PM (GMT -7)   
Hi Chris,

We have not heard from you in a while. Just wondered how you were doing.

When you get a chance, would you please update us on any new info you have received.

Thanks and warm wishes to ya,

flopsie
Don't walk in front of me....I may not follow
Don't walk behind me....I may not lead
Walk beside me..and be my friend...
                                    Albert Carnus
 
and Lord, put your arm around my shoulder and your hand over my mouth
 
 

buster99
New Member


Date Joined Jul 2005
Total Posts : 8
   Posted 8/10/2005 12:51 AM (GMT -7)   
Hi Flopsie

I'm doing just fine thanks, been a bit busy at work lately, so i've not visited the forum. I've just been plodding along as usual, but did look into the tendons / nerves thing and it'd definately worth looking into further.
In all my time with the pain, i've never met anyone else that suffers pain in all other joints when i get an impact to just one. i'll keep searching the internet and see shat comes up. maybe i'll make a good study project for some doc somewhere :)

when i get more time, i'll try to contribute to other threads, i'm sure to have an opinion on things

Take care everyone and stay positive

Chris

Flopsie
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Date Joined Jun 2005
Total Posts : 1361
   Posted 8/12/2005 8:16 PM (GMT -7)   

Buster, thanks for the update and hope you continue to search until you find an answer. We will be thinking of you and praying you find some answers quickly.

I have a friend in Wales and she says your country is really beautiful. Hope to visit myself sometime.

Warm wishes to you,

flopsie


Don't walk in front of me....I may not follow
Don't walk behind me....I may not lead
Walk beside me..and be my friend...
                                    Albert Carnus
 
and Lord, put your arm around my shoulder and your hand over my mouth
 
 

buster99
New Member


Date Joined Jul 2005
Total Posts : 8
   Posted 8/15/2005 12:35 AM (GMT -7)   
Hi Flopsie

Your friend is correct, Wales is the most beatuiful place on earth. let me know if you ever make it over here, i'll reccommend some places to go.

Chris
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