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Catz
Regular Member


Date Joined Aug 2005
Total Posts : 20
   Posted 8/5/2005 7:44 PM (GMT -7)   
I am new to this so try to bear with me.  I have been reading your questions and answers for a while.  I was diagnosed with RA about six months ago.  Did the Plaquinal, MTX and now just had my first Humira shot.  Was scared to death but have given my dogs shots so I said I could do it to myself.  Really I was very nervous but listening to you all and how brave you are gave me strength.  You all are life savers.  Will try to check back often.  It is so hard to work 40 hrs and I will probably have to get another part time job just to cover the $365.00 a month for my shots.  Thank God I have insurance which picks up most of the cost.  Just wanted to let you all know how grateful I am you are there.  And I wish you all the best. tongue

CaMama
Veteran Member


Date Joined Mar 2005
Total Posts : 1884
   Posted 8/5/2005 11:46 PM (GMT -7)   
I'm so glad to hear you are getting treatment from the doctors and support from HW. Good luck with the Humira.
 
I hope you don't have to get a second job after working 40 as it is...that is a lot for someone to handle, especially someone with RA.
 
Take it easy and good luck. I hope we hear more from you.
**
 
 


Flopsie
Veteran Member


Date Joined Jun 2005
Total Posts : 1361
   Posted 8/6/2005 5:40 AM (GMT -7)   
yeah  Hello and welcome,
 
Congrats on your first shot..see it was easy.
 
You have found a wonderful place and you will find a lot of friendly folks here. Hope you can visit us often.
 
Sorry you are having to take on more work, but hope all works out for you,
 
flopsie
Don't walk in front of me....I may not follow
Don't walk behind me....I may not lead
Walk beside me..and be my friend...
                                    Albert Carnus
 
and Lord, put your arm around my shoulder and your hand over my mouth
 
 

curley
Veteran Member


Date Joined Mar 2005
Total Posts : 4305
   Posted 8/6/2005 1:42 PM (GMT -7)   
Hi and Welcome to HW,

We are so glade that you found us,sorry that you have RA thoe.Please feel free to post any time you would like.We are here for you.I know it has been a life saver for me.I just wanted to let you know you are welcome any time.

Curley..........
a.k.a.Mela..........

Catz
Regular Member


Date Joined Aug 2005
Total Posts : 20
   Posted 8/7/2005 6:35 PM (GMT -7)   
Well, I'm here again. Been doing a little better. Would be a lot better if I could get of the Pred. Rhuemy said have to continue until the Humria has time to kick in. Guess I sure don't want to go back to not being able to move my hands or wear shoes. With the weather getting cold I would be a sight wouldn't I. To top it all of I would be a looney bug too with all the Tylox I take when I'm flared up but only way to function. My regular MD is wonderful but my Rheumy leaves a bit to be desired. I hope everyone is doing ok. Guess if you don't hear from someone for a while that means their not doing so good. Will try to keep up with everyone.
My husband is fixing to start a partime job to help with the meds maybe when I feel better I can get a small part-time job also. He is such a wonderful husband always does what ever I need help with at the time and never complains. I don't know if I would be so good at this. He has helped me get dressed, brush teeth, etc. I am so lucky to have him and love him so much. I hope you all have someone to help when you are flared up also.

Cat

BamBam
New Member


Date Joined Jun 2005
Total Posts : 18
   Posted 8/7/2005 7:05 PM (GMT -7)   

tongue  Hi Catz..and welcome.

  I too am a fairly new member to the site and it is unbelievable how supportive these people are. If you have a question there is someone who can answer since there are several nurses (including me), and usually someone who has already gone through the same test/procedure/diagnosis or fear that you are facing and if you just need to whine (as I frequently do) devil  , they will listen and then offer advice, support or just a pat on the back and the words "I understand"...those are magical words when you are feeling so bad. There are also quite a few with the knack to make you laugh even when you feel like total crap.

  I also have RA along with a few other problems. IT SUCKS!!!!!!! Anyway, I hope you find strength to face your battles with the help of your husband and your new friends here.

  Looking forward to getting to know you better!

BamBam


Donna


Catz
Regular Member


Date Joined Aug 2005
Total Posts : 20
   Posted 8/7/2005 7:27 PM (GMT -7)   
Thanks you all are so great. I'm sure I will get all the info to help me learn to deal with this horrid disease and get me through the ruff spots. Guess I better try to get some beauty sleep and take my seems like 100th pill just to sleep through the night. Oh well at least I sleep. Ha Ha

erin.K
Veteran Member


Date Joined Mar 2005
Total Posts : 3148
   Posted 8/7/2005 8:46 PM (GMT -7)   
:-)  hi Cat! and welcome to HW.  very good to have you.  i hear you when you said "my rheummy leaves much to be desired"  i feel the same way.  my pcp is great.  the rheummy is very passive.  it is a major help in having a disease and having someone to love and help you with it.  i'm happy you have that someone.  i know i would be completely lost without my honey.  people are sometimes the best medicine!
is your arthritis very advanced? i'm glad you started humira therapy.  it is getting to be a very popular med here lately!
to introduce myself a bit....i'm 24 with RA, AS, several lyme's complications and a newly found case of colitis, just got out of the hospital friday nite. i'm in school for my BSN in nursing with specialty in infectious disease and rheumatics.
this disease is tough...but it has blessings that come along with it.  we all become teahers, educators and healers as well.
love the name! Cat! i have 6 of them!!!!
sincerely,
erin

Catz
Regular Member


Date Joined Aug 2005
Total Posts : 20
   Posted 8/8/2005 1:22 PM (GMT -7)   
I guess according to my blood work it is very advanced according to my rheumy he had it done 3 times before he belived it and each time it got worse and worse. He said must be a lot going on inside. But you couldn't tell that to my fingers, wrist, neck, feet. I have had 3 major flares in the last 6 months. I went about 3 months on Plaqunil with no problems then surprise flare (cort shot, pred, meth, diflenac) Did a little better but flared again then he upped the meth to 7 once a week (shot, pred, diflenac) Sick as a dog took me off meth and just on pred, diflenac and humira shot. Seems to be working a little. Maybe wishful thinking but I am having faith. Needless to say my pcp has seen the worst of it and let my rheumy have it about getting me in when I am flared. Once they told me it would be a month before I could get in. (I overheard my doctor let him have it and I was in the next day surprise)

Right now I am just trying to ride it out until the Humira kicks in, with the pred, diflenac and Tylox when needed. It is all I can do to get up and go to work in the morning. I sure don't want to but sometimes I think it is a blessing because I would probably slip into a major depression.

I am 47 years old my husband is 39 yrs old. He is soooooo sweet to me. Got me a younger man. Hee Hee guess from the looks of things that is probably a good thing. We have been married almost 16yrs and he has practically raised both of our boys as his own. I also, have two boys the oldest was 4yr and the youngest 2yr when we met. One is going to graduate in the spring with his BS in Construction management and the other is in his 2 yr majoring in Physical Therapy or something like that according to him. Ha Ha. We have 2 minature schnauzers 1yr and the other is 6mo. They are my replacements for the empty nest. They are much cheaper than the kids. Ha Ha and no back talk. We also, have a very old cat (15 yr) she is such a baby. I work as a payroll administrator for a electrical contractor.

I do have a question is there anything that can be done to get rid of that bloated feeling when on the preds?

Thanks,
Cat

Flopsie
Veteran Member


Date Joined Jun 2005
Total Posts : 1361
   Posted 8/9/2005 10:11 PM (GMT -7)   

Hi Cat,

If you are bloated while taking Prednisone, you should first tell your doctor about it. Then you will probably need to go on a low salt diet and take a potassium supplement daily.

I stress talk to your doctor first, just to make sure nothing else is going on with you. I am sure a phone call to the office would work.

Hope you feel better soon,

flopsie


Don't walk in front of me....I may not follow
Don't walk behind me....I may not lead
Walk beside me..and be my friend...
                                    Albert Carnus
 
and Lord, put your arm around my shoulder and your hand over my mouth
 
 

Ducky
Veteran Member


Date Joined Mar 2005
Total Posts : 3199
   Posted 8/10/2005 5:58 AM (GMT -7)   
I took predinose for a while and I never got rid of the bloat... to this day I still have the "moon-face" and "buffalo-hump" which neither of which I am very fond of... good luck to you
Diagnosed January 2005 - Psoriatic Arthritis/Dactylitis/Spondylitis 
   -Currently taking 50mg shot weekly of Enbrel
 
Diagnosed May 1998 - Graves Disease
   -Complete Thyroidectomy September 1999 - While 11 weeks pregnant


Catz
Regular Member


Date Joined Aug 2005
Total Posts : 20
   Posted 8/10/2005 7:14 PM (GMT -7)   
Thanks so much for the advice Flopsy and Ducky. I see my Rheumy next week and will ask him about it. Already cut out most of the salt on my own didn't know about potassiuim supplement. Ain't life grand.

straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 13451
   Posted 8/10/2005 11:22 PM (GMT -7)   
Hi Catz,

Hope you are feeling better. I was on Decadron Shots for 2 1/2trs. I gained alot of weight and had the moon face. I ran across some old pics not long ago and it wasa taken during the Decadron days, gosh, I looked like humpty dumpty in those pics. I had terrific neck, low back and shoulder pain and my neurologisst is the one who did the injections every six weeks. Little did I know, 2 1/2yrs later and a week in the hospial that I should not have been on the stuff for more than six weeks. It did a number on me, long history of high BP and I ended up stroke line-thats what landed me in the hosptial. Now, if given any type of steroid in go into congestive heart failure on day 3.

Hope you get some relief soon. Hugs.... Susie


oreo
Veteran Member


Date Joined Feb 2004
Total Posts : 528
   Posted 8/19/2005 5:27 PM (GMT -7)   
Catz, very tardy but let me give you a really big welcome to HW. I am glad that you are fitting is so well here with all us. I hope that the humira kicks in really quickly so you can go off the pred. Pretty nasty stuff.
It is always so much nicer when we have spouses/family that we can lean on when we are feeling our worst. Your hubby sounds like a wonderful man. 2 sucessful kids later, it looks like you two did a great job raising your kids while health issues were plaguing you. You have a lot to be proud of.
Keep up posting. And as I said, welcome.
Oreo
Worry not for tomorrow, for tomorrow will take care of itself.
 
Remember healing comes one step at a time, sometimes it seems that its one forward and 2 back but ultimately, always in a forward direction!!!
 
Help HealingWell continue to help people.  Please donate today.  Every little bit helps.  To donate go to www.healingwell.com/donate
 


Sheila1366
Regular Member


Date Joined Aug 2005
Total Posts : 384
   Posted 8/20/2005 8:25 PM (GMT -7)   
Hey Catz.I just wanted to say hey.I am very new here as you can see.
I am so glad you have such a wonderful husband.That means so much.
Working must be so hard for you.I don't know how so many of you can work.
But I know many of you have no choice.I stay at home to take care of my
daughter that has many health problems.But even before she was born I struggled
working.I would always get so sick.Now I know why.

Take care,
Sheila

Catz
Regular Member


Date Joined Aug 2005
Total Posts : 20
   Posted 8/22/2005 1:54 PM (GMT -7)   
Thanks Oreo nice to hear from you too. Welcome, Sheila glad you have found us tell me a little about yourself. It is very hard to work some days. I have been lucky and not missed much work. Thank God for pain pills. It is nice in a way to finally know what is making you so sick if there can be an up side. Guess I better get to work. Talk to you all later.
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