Feeling good is good

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cbrossman
Regular Member


Date Joined Apr 2005
Total Posts : 191
   Posted 8/12/2005 10:58 AM (GMT -7)   
I hope everyone is feeling well today, or at least on their way to feeling better.
I will take a little credit because of my stubborn attitude and desire to be in good condition, but I know I have been lucky with the drugs as well.
So lucky, in fact, that I played a little basketball last evening, the first time in well over a year. It was good ball, young bucks with game. Took an elbow to the cheekbone in one game and came back to my buddy's house with 8 stitches.
Oddly enough, the whole experience was very positive. Scars, even on the face, are always cool for boys, and the simple fact that I can go out and get these scars is a blessing every day!
I hope you all get your own chances for scars very soon.

Never give up, never surrender ... Craig

Flopsie
Veteran Member


Date Joined Jun 2005
Total Posts : 1361
   Posted 8/12/2005 11:51 AM (GMT -7)   

Craig...HOORAYY for you. So glad you were able to do some of the things you love to do. yeah Sorry about the stitches though, even if scars are "cool for boys" eyes

Hope you continue to feel well enough to do the things you enjoy.

So when is the bike ride?...LOL,

Warm wishes to you,

flopsie


Don't walk in front of me....I may not follow
Don't walk behind me....I may not lead
Walk beside me..and be my friend...
                                    Albert Carnus
 
and Lord, put your arm around my shoulder and your hand over my mouth
 
 

straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 13461
   Posted 8/12/2005 1:48 PM (GMT -7)   
Hey Craig:

I have many battle wound scars, mostly from fighting some sort of darn illness or disease, I need a rest from getting those scars. LOL.

But, its always nice to hear about someone doing pretty good, such as yourself, gives the rest of us a glimmer of hope. You just keep those fairly good days a coming.

Susie


Ducky
Veteran Member


Date Joined Mar 2005
Total Posts : 3199
   Posted 8/12/2005 4:27 PM (GMT -7)   
yeah  Congrats to you playing basketball!  Remember... CHICKS DIG SCARS! tongue
Diagnosed January 2005 - Psoriatic Arthritis/Dactylitis/Spondylitis 
   -Currently taking 50mg shot weekly of Enbrel
 
Diagnosed May 1998 - Graves Disease
   -Complete Thyroidectomy September 1999 - While 11 weeks pregnant


effie
Regular Member


Date Joined Mar 2005
Total Posts : 344
   Posted 8/13/2005 9:17 AM (GMT -7)   
Congratulations Craig!!!! Sounds like you are doing wonderful. I have been doing much better on the Humira too. I am not ready for basketball, but am definately doing a lot more walking. I hope to get to the beach and swim many days next week. A friend of mines son, was very crippled with AS at the age of 26. With biologics he has been able to go back to playing his favourite sport, beach volleyball. Once again thank you for the encouragement for all of us.
Judy/Effie tongue tongue tongue tongue tongue tongue tongue

cbrossman
Regular Member


Date Joined Apr 2005
Total Posts : 191
   Posted 8/16/2005 8:06 AM (GMT -7)   
The scar is not so bad, but my wife is kinda mad at me.
"You have not played ball in almost 2 years and you go out and get 8 stiches"

I am feeling good, I was a little concerned that this would aggrevate the RA, but it didn't happen. OTOH, I am getting tired of taking these shots, not enough to quit yet, but enough to dread Sunday evening on Tuesday morning.

I'm not the sharpest tool in the shed ... Craig

effie
Regular Member


Date Joined Mar 2005
Total Posts : 344
   Posted 8/16/2005 7:41 PM (GMT -7)   
Dear Craig,
Sorry to hear that the injections are so painful. You would think that just because you are in good shape you would not have to endure painful injections. My sis was director of a paediatric unit and she used to always insist that they put this special bandaid on injection site about 15 minutes before giving a child an injection. It somewhat froze that area and then the needles didn't hurt. I can not remember which one you are on, but I know if I called Humira, they would just either tell me immediately, or phone the rheumy to find out if that was possible. It is too late now for me to call sis and ask her the name of the bandaid that froze the area. Plus she probably would not call me back anyway. Oh well, life goes on. Are you getting your injections weekly? Hope I can find out more info for you.
Judy tongue :-) smurf

Howlyncat
Elite Member


Date Joined Jan 2005
Total Posts : 24909
   Posted 8/17/2005 8:25 AM (GMT -7)   
Craig ........Our daughter is very phobic about needles and so the doc rx her the patch ....it is a mix between lidocaine and prilocaine ....goes on 30 min prior to injection ......called "emla".....hope this helps ,take care and God Bless ...Lyn
 
Contribute today to support Healing Well Forums...Donate @
 
 
    I cannot keep your feet from stumbling..........I can only offer my hand that you might grasp it and not fall...........Lyn


effie
Regular Member


Date Joined Mar 2005
Total Posts : 344
   Posted 8/17/2005 8:40 AM (GMT -7)   
oh thank you so much Lyn. You have just confirmed that I am not going crazy. I knew there was something I just could not remember details. I see no reason why they could not give that to you Craig, but I will call Humira and check. Hang in there and do not stop the injections before your doctor tells you too. You have done so well. Keep it up!!! You are an inspiration. cool tongue :-) smurf scool :-)

Sheila1366
Regular Member


Date Joined Aug 2005
Total Posts : 384
   Posted 8/20/2005 7:49 PM (GMT -7)   
Good for you Craig.I have been out of the gym for 2 weeks now.I hope to get back in there soon and work up a good sweat and feel the burn again.Lets you know you are alive.It's funny how we welcome things like stiches and a good cardio sweat.When you feel so bad for so long, when you get to play any of the bumps that come along with it is ok.

Sheila

oreo
Veteran Member


Date Joined Feb 2004
Total Posts : 528
   Posted 8/22/2005 6:55 PM (GMT -7)   
Craig, WAY TO GO!!!! As a wife, I can understand where yours is coming from and as a fellow sufferer, I can wholey understand where you are at. Live for the good days. It is awesome that you could go out and hang with the boys and for a while forget that you have a chronic illness. (and you didn't suffer for it the next day :)) That's what these meds are all about. Getting our lives back. Maybe not 100% but at least 80%. May you continue to improve to the point that unless you remind yourself you wouldn't remember that you have this illness!!!!!!!!!!!! This is s-o-o-o-o-o-o-o-o AWESOME!!!! YAHOO!!!!!!!!! Craig is getting there!!!!!!! This so calls for a celebration!!!!!

Don't give up on the injections unless the side effects are too bad. As for the "patch" that is being suggested I can only add my two cents worth in here and that is unless it is the initial poke that bothers you, the patch won't really help. The patch only numbs the upper layer of the skin. Often what is the painful part is the burning of the med as it is injected. The patch doesn't numb deep enough to help that.

I hope that all is well with you tonight. You are in my thoughts. Wow, what a postive thing. You have me pumped tonight. Here's hoping I can sleep.
Oreo
Worry not for tomorrow, for tomorrow will take care of itself.
 
Remember healing comes one step at a time, sometimes it seems that its one forward and 2 back but ultimately, always in a forward direction!!!
 
Help HealingWell continue to help people.  Please donate today.  Every little bit helps.  To donate go to www.healingwell.com/donate
 


cbrossman
Regular Member


Date Joined Apr 2005
Total Posts : 191
   Posted 8/23/2005 10:51 AM (GMT -7)   
Thanks Oreo,
Physically the shots are no big deal (I am a macho guy afterall eyes), but emotionally it just makes feel like a sick SOB, and it is not easy for me to deal with. I don't like this type of dependance, pain I can deal with, having to depend on something outside myself is pretty hard.
But I suppose we are all feeling this a little, these chronic diseases have taken a bit of control from us, and I am sure none of us like it.

really a big baby ... Craig

erin.K
Veteran Member


Date Joined Mar 2005
Total Posts : 3148
   Posted 8/23/2005 12:37 PM (GMT -7)   
hey there Craig,
you know, it takes a real man to do what you're doing.  i understand what you mean by having to depend on some man made drug to get ourselves better when we're so used to being physically SUPER!  you have a lot of drive Craig & i applaud you.  i have seen a lot of paients refuse to take chemo & DMARDS & biologics because they were too proud or thought they could "fix" themselves....they don't turn out to well in the long run.
my favorite thing i used to be able to do was when i felt like i was getting a bug or the flu or a cold...i would go to the gym for like 3 hours and sweat it out!!!  and it never failed (missing those days).  i was a hellovan' athlete. yeah i used to cure strep throat with 7 mile runs and 7 cloves of garlic! tongue
i was also thinking....that if you're muscular the shots may be getting into the muscle causing some pain.  i know the 50mg Enbrel inj were torture because the med burns badly.
you're right...it's a whole other story when you're vulnerable to having your body control you and not the other way around.
do you train for marathons?
the best to you
erin

oreo
Veteran Member


Date Joined Feb 2004
Total Posts : 528
   Posted 8/23/2005 6:51 PM (GMT -7)   
Craig, hear you there. Most days I don't feel sick at all. Those are the days that I also think, "maybe I should try not taking the meds anymore". Been that route. I hate to think that my whole life now revolves around medications. That without them I couldn't function. I don't like to be dependant on anything. (God excepted) My hubby has been so supportive through all this. I don't know how I would have survived this far without him. The meds also take a burden off him because I am not in the pain that I was in. I would take this over what we had to deal with before. I don't like it but the alternative is really depressing. I don't know if we ever get to the point of really accepting this. This is the hand that we have been dealt and we just have to work through it.
I loved your post. Really made me smile tonight. You are a great guy (from what I've gathered reading your posts). Not a lot of guys would come on here and talk with us gals. Thanks for sharing your "maleness" with us. You do have a unique perspective on the disease. Thanks for being here.
Oreo
Worry not for tomorrow, for tomorrow will take care of itself.
 
Remember healing comes one step at a time, sometimes it seems that its one forward and 2 back but ultimately, always in a forward direction!!!
 
Help HealingWell continue to help people.  Please donate today.  Every little bit helps.  To donate go to www.healingwell.com/donate
 

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