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CaMama
Veteran Member


Date Joined Mar 2005
Total Posts : 1884
   Posted 8/30/2005 8:20 AM (GMT -7)   
Question, Social Security called - they want me to get a range of motion test to continue on with my case. Is this encouraging news or not so good?
 
Apparently my insurance does not cover this. SDI said they may send me to someone - how much is something like this going to cost or will it cost me anything if SDI is sending me?
 
**
 


erin.K
Veteran Member


Date Joined Mar 2005
Total Posts : 3148
   Posted 8/30/2005 3:34 PM (GMT -7)   

 

CaMaMa, cool

first of all...SSI/DIS should make you go to THEIR doctor for this! the first time i applied i recieved a letter from SSI stating i need to be examined by their doctor for approval. it was free of cost...but bloodwork i had to pay for.
i really believe they have their own doctor that everyone is screened by. like a few days after i got this letter from SSI, they sent me an appt date and time to see the doc.
well, it's GREAT news if you have lessened or little range of motion in your arms and neck and legs! :-) that means you FAILED the test!!! :-) and therefor your liklihood of recieving dis. is very good! :-)

when they looked at me (i was 18 at the time), they basically said, "she's young, she can walk a bit...no way." DENIED. sad

again, if it's SSI's doc, then i really do not think we're suppose to pay anything.
play it REAL BAD! i'm telling ya. these people are relentless and if you can go to the bathroom by yourself...most of the time they'll say you are able to care for yourself and work. what's wrong with this system is that THEY DON'T SEE US EVERYDAY. mad and that really eats at me. mad i really think that if i had a pretty good drug problem, 15 kids, and was schizo i would have gotten disability. i was discriminated against..and if i get denied again i will take them to court.
they denied me because of my AGE and education level! you believe that???!!! and they felt my condition will resolve within 6-12 months! and that was in 2002. confused

i really hope & pray you get what you truly deserve! i hate this system, and it's hard and unfair at many times. so hang in there and don't give up, even if they deny you...go and appeal it and apply again, and again!
it's freaking me out that it's been 3 months and i have heard NOTHING from my claim...my case worker does not return my messages asking for a status of my claim. i mean, what is a sick person suppose to do when she is running out of SAVINGS to pay for bills, meds, and docs?? and cannot work?? not everyone has a rich uncle to count on, and some people are already poor. i don't think they get that.
i wish you the best...i'm right there with ya....is this giving you anxiety??? my heart races all day just thinking of it.
i hope you have a good family. are you getting by?? is this permanent dis. or temporary dis.?
write back soon,
{{{{{{{{{ hugs }}}}}}}}}}}}}}
erin

Post Edited (erin kachmar) : 8/30/2005 4:39:10 PM (GMT-6)


Flopsie
Veteran Member


Date Joined Jun 2005
Total Posts : 1361
   Posted 8/30/2005 3:38 PM (GMT -7)   
I was sent to several of SSDI doctors and never had to pay a dime, they even reimbursed me for gas. If they want you to go, then they pay.

flopsie
Don't walk in front of me....I may not follow
Don't walk behind me....I may not lead
Walk beside me..and be my friend...
                                    Albert Carnus
 
and Lord, put your arm around my shoulder and your hand over my mouth
 
Help HealingWell.com continue to help others. Donate Today....http://www.healingwell.com/donate/
 
co-moderator for Arthritis and Anxiety/Panic
 

CaMama
Veteran Member


Date Joined Mar 2005
Total Posts : 1884
   Posted 8/30/2005 6:21 PM (GMT -7)   

Thanks for the info. I appreciate it....I can't believe they denied you Erin...that stinks...I hope you hear back from your case worker soon and with some good news! I have a feeling I"ll get denied, I guess most do first time around anyway, right? It's hard for me, I know working is just out of the question, but I sure miss making an income.

I am currently on temporary/state dis, I'm applying for permanent thru social security as the temporary is going to max out soon and doc says I'm going to be out of commission for quite a while. This afternoon suddenly couldn't swallow with a big lump in my throat <sigh> - if this mean I am coming down with something (again! ugh!) it certainly explains this last week with my fatigue, joints, memory/concentration, and over emotional issues.

Erin, have you thought of applying for welfare to help you out in the meantime or would that screw up ssdi for you?  You might want to look in to it if you haven't already.

**
 


erin.K
Veteran Member


Date Joined Mar 2005
Total Posts : 3148
   Posted 8/30/2005 7:53 PM (GMT -7)   
i can apply for public utility assistance, food stamps etc... when i get approved. or maybe even now? i'm not sure..i know i am elidgable. they might be working this into the claim..there is something about food stamps in my claim i know that.
i need it...i do not see me well enough to work part time. i am appealing immediately if they deny me this time.
i mean, this is out of hand and is rightfully deserved.

CaMama
Veteran Member


Date Joined Mar 2005
Total Posts : 1884
   Posted 8/30/2005 9:06 PM (GMT -7)   

I'm praying that you don't have to go to the appeals process and you get approved asap as well as get a retro check in your hand.

 

**


 


Juliah
Regular Member


Date Joined Mar 2005
Total Posts : 21
   Posted 9/1/2005 9:59 AM (GMT -7)   
I'm encouraging those of you who get denied to APPEAL. In the state of Florida, you are pretty much guaranteed to get denied the first time. You can appeal and if approved, I believe you get back-pay to the date you first applied. Good luck to all! Love, Juliah

erin.K
Veteran Member


Date Joined Mar 2005
Total Posts : 3148
   Posted 9/2/2005 12:12 AM (GMT -7)   
Camama,
whats the word? are you getting to see the doc they provide??
ya know...i called again TODAY, and left ANOTHER message for my claims person. ya don'y get anywhere. that's 7 messages and no response! i hope you are getting better communication than i!!!!!!!
did you start enbrel yet???
when you do....register for Enliven services. they send you nifty colorful sharps containers!!! and all neat stuff. and a travel fanny pack too! for airplanes!
{{{{{{{{{ hugs }}}}}}}}}}}}}
erin

CaMama
Veteran Member


Date Joined Mar 2005
Total Posts : 1884
   Posted 9/2/2005 8:22 PM (GMT -7)   
Cool, I'll sign up w/them Erin! Thanks for the tip - and when (if) you start Remicade, sign up for Remicare - they sent me a nice dark blue fleece blanket to cuddle up with during the infusions! yeah
 
I have not started Enbrel....I'm waiting just a little while. Basically, I'm concerned about getting sick, I've been borderline ill the last week and after what I just went through w/Remicade, I don't want to increase any chance of that happening at this point while I'm adjusting to the kid's new school schedule. I don't need any more stress on my body - as it is right now, I'm wiped out from this week (though, it was busier than normal) and can barely move (I know, I know, Enbrel might HELP that) and I've started getting this new lower back pain near my right hip. Ugh....
 
I got a letter in the mail yesterday stating they were sending me to a doctor...okay, now tell me how fishy this sounds - they are sending me to someone in DOWNTOWN (quite a drive from me) San Diego with an appointment at 8:00 A.M.!!!!! I'm going to have to leave my house at 6 in the morning to fight traffic to get there by 8! Holy Cow and mornings are REALLY SLOW and HARD for me  - I'm sure you can all releate!  Are they doing this to see if I'll make it or call and cancel/reschedule? I just KNOW that time was picked on purpose, but I'm not sure if I am expected to complain about it or just suck it up and show up? :-)
 
Erin, maybe you should try reaching someone else - is it possible you case worker isn't there anymore or on vacation???? I can't imagine them being that awful!!!!! Do you say, "Please call me back either way" - yeah, I bet you do.....I"m sending a big kick in the pants your case worker!!!!
 
***
 


erin.K
Veteran Member


Date Joined Mar 2005
Total Posts : 3148
   Posted 9/2/2005 10:00 PM (GMT -7)   
In regards to your appt time. I would say give them a call back & explain it takes like 3 hours to get mobile in the morning, and that you thought about it and you would like a later appointment so you can have someone "help" you get ready and get there. see what they say??
i believe my appt time was quite early...but then you WAIT sometimes.
yea, i plea for her to call me bad, it goes something like this: "hello this is so n so (my SS# and phone and all) i have not heard anything about my stautus of my claim. i am running out of savings and am getting worse physically. i need to know what to do. i cannot support myself and afford my meds and doctors, please call me back for i need asistance. it has been 3 1/2 months already...blah blah blah."
so we'll see....i'll call again tuesday.
oy!

CaMama
Veteran Member


Date Joined Mar 2005
Total Posts : 1884
   Posted 9/2/2005 10:14 PM (GMT -7)   

Hang in there, Erin! You are constantly in my thoughts and prayers. I pray the day comes soon you finally get some good news and stress relief from all this - it just isn't good for you to have that on top of the illnesses.

**


 


erin.K
Veteran Member


Date Joined Mar 2005
Total Posts : 3148
   Posted 9/2/2005 10:36 PM (GMT -7)   

thanks Camama,

honestly, what i write makes what really is happening look good!  it is a terrible ordeal.  but what is keeping me grounded and thankful is that i am able to get my Humira @ no cost, i have a roof over my head, some food to eat, great support from you guys, doctors that truly try to do everything in their capability for me, a wonderful wonderful boyfriend, and 4 absolutley hysterical cats!

regarding money...my meds are my main concern.  i have no car, do not own a house...so nothing i have is worth anything, so nothing can be repossessed.  if i have to file bankruptcy...so be it.  my credit is already ruined!!  and i know i cannot be put in jail for unpaid ER visits and hospitalization.

so i hang on to the notion that I WILL GET BETTER one day & will be able to work a normal nursing shift...even if i have to wait till i'm 40...i don't care.  i've lots to do in this life.

getting SSD would be a life saver and i desperatley need it.  i know that when i run out of funds, Joe will jump in for me....but i don't want him to do that, but i know he would.  he is very very stable and successful.

i bet ya can tell i'm constantly drilling this stuff in my head right??  it's the only way i am staying sane.

hoping for a good outcome from all of this.

it's just really hard having no "plan" or workers disabilty or anything to draw on. 

even this little laptop is not mine!  it's my honey's he gave me for school.  turned out to serve a lot of purposes too!

have a good night

erin  


Flopsie
Veteran Member


Date Joined Jun 2005
Total Posts : 1361
   Posted 9/2/2005 11:15 PM (GMT -7)   
WELL! Nothing wrong with..40 or 30 or 50.......

Don't know so much about 60 not quite there yet!
Don't walk in front of me....I may not follow
Don't walk behind me....I may not lead
Walk beside me..and be my friend...
                                    Albert Carnus
 
and Lord, put your arm around my shoulder and your hand over my mouth
 
Help HealingWell.com continue to help others. Donate Today....http://www.healingwell.com/donate/
 
co-moderator for Arthritis and Anxiety/Panic
 

effie
Regular Member


Date Joined Mar 2005
Total Posts : 344
   Posted 9/3/2005 3:21 AM (GMT -7)   
CaMama,
So sorry to hear they have pulled off that eight o'clock in the morning appointment non sense. It just amazes me when they do that to arthritis patients.

The neurologist who is checking me for MS always books for eight in the morning and so did the rheumatologist for my first appointment.

When I tried to rebook they told me new patients are always seen first thing in the morning.

Anyway it was a two hour drive for me as well. So it meant waking up at 5. I think I just did not bother going to bed.

After seeing my rheumy for several visits and being told I would be part of a clinical study and get put on Humira, after the fourth visit she told me the methotrexate seemed to be making my TOES better, so I no longer qualified for the Humira.

Well the next time I saw her, I made sure I said ouch when she examined my TOES.

GOOD LUCK!! Will keep you in my prayers.
Judy/Effie

Howlyncat
Elite Member


Date Joined Jan 2005
Total Posts : 24909
   Posted 9/3/2005 6:59 AM (GMT -7)   
CaMama..........Over here in Ontario it is the norm to be denied the first 2 times and you appeal each time and then most times on the 3rd try you are given the disabily ..........I went to my last one when I was approved with sores form the pyoderma and sick in a crohn's flare .......I took pics with me and all the research on PG as it is not commonly known about in the med field......finally on the 3rd try I got it after 2and a half yrs .........I was on welfare while waiting........ and I ended up with a real nice retro check just shy of 10,000 so I was happy with that ....as was posted (am sure its the same everywhere) they are relentless and act like its their money they are handling but stand your ground and fight for your rights .........if it gets frustrating let us help you thru it if we can as we have been there and maybe we can offer you some tips and encouragement along the road ......God Bless and be well .......Lyn
 
Contribute today to support Healing Well Forums...Donate @
 
    I cannot keep your feet from stumbling..........I can only offer my hand that you might grasp it and not fall...........Lyn  
 
 
Moderator for Crohn's,Anxiety/ Panic and Alzheimers 
 
                                   


Howlyncat
Elite Member


Date Joined Jan 2005
Total Posts : 24909
   Posted 9/3/2005 7:02 AM (GMT -7)   
....Erin ....I too was a nurse and I would give anything to get back to doing what I love so much ....I owned my own retirement home?partners with brother ,for many yrs til I got to sick to do it any longer ( crohns and PG as well as A/P disorder ) so I know where you are coming from .........I am 51 and I would go back at 60 or 70 if I was able lol.........Take care and God Bless ..Lyn
 
Contribute today to support Healing Well Forums...Donate @
 
    I cannot keep your feet from stumbling..........I can only offer my hand that you might grasp it and not fall...........Lyn  
 
 
Moderator for Crohn's,Anxiety/ Panic and Alzheimers 
 
                                   


CaMama
Veteran Member


Date Joined Mar 2005
Total Posts : 1884
   Posted 9/3/2005 11:35 PM (GMT -7)   

Thanks for all the tips and info. I'm sure I'll be writing my questions and updates! I will not cause a stir and take the 8 am appt - I guess maybe that would work IN my favor, right? Mornings are tough, right? Maybe so early is a GOOD thing to be tested.

I'll keep you posted.

Now, we just need to gang up on Erin's case worker and give him/her a couple of boots in the pants! mad **


 


knitnut
New Member


Date Joined Aug 2005
Total Posts : 18
   Posted 9/4/2005 4:43 AM (GMT -7)   

THat what I was thinking CaMama!  Go in the morning, without much preparation and show them what mornings are really like!  And have someone take you there so nothing gets a chance to loosen up.

I have thought about applying for SDI too so I am glad you are having this discussion.  I have been wondering what the application process is like (in person?, on the phone?), how you ordered medical records, how much paperwork your doc(s) submits, how much doc charges for that paperwork (mine would) and what other documentation you have to provide.  I know I could call the SDI office but I'm nervous about that for some reason.

Erin and LKE, I was a nurse too before RA and fibro took me out.  OB is my specialty and I miss it.

 

 


I will continue to knit no matter what!  A


erin.K
Veteran Member


Date Joined Mar 2005
Total Posts : 3148
   Posted 9/4/2005 1:40 PM (GMT -7)   
:-)  all of these nurses!!!  yippeeee for me....i'll be needing you all when it is BSN time!!!  i am just an associates graduate right now; but was approved for an excelerated AS to BSN to MSN/PhD program.  all of which will be on hold now till next september.  i CANNOT do the clinical work.  i would never be able to forgive myself if i dropped someone or did something because of my poor grip with my hands and bad joints.  i was very surprised how understanding my dean was.  she was very supportive of me going after my goals even though i may not be able to work a regular nursing job.
so you gals will have fun with me...a rookie.
i'm not very strong in OB!!!  so like Flopsie used to quiz me in cardiac....YOU can quiz me in OB!!!! yeah  
 
i am saying a wish tonite that i get a letter from SSD this week.  it has been 4 months.
i will also write a complaint too....they are negligent for not responding to calls. 7 messages???  come on.
 
hang in there Camama!!  i hope it goes well for you also.
 
luv
 
erin 

CaMama
Veteran Member


Date Joined Mar 2005
Total Posts : 1884
   Posted 9/4/2005 2:30 PM (GMT -7)   
I will keep my fingers crossed for you too Erin! Let's hope the case worker was on vacation and comes back tuesday with a call and some good news for you!!!!
 
Knit - I had made a call to SSI to ask some questions and they just rolled me right along in to the process before I knew what was happening....I was prepared for some of it, since I read what I could on the internet, then called them like I didn't know anything.  The doctor's really don't have anything to do w/it other than they have to feel you are disabled and you have to be out on State/short term disability for at least a year to qualify...my year is up in February, and I was told it was a good idea to start the ball rolling asap.
 
You have to sign a ton of medical release forms for them to access your paperwork from your doctors. I'm really not sure what the doctor's wrote down - but other than sending copies of medical records to SSI, they have no say in your case if they think it is valid. MY PCP is the one who felt I should apply for permanent, but had no info - I had to do all the work (which you have to do anyway.) My rheumy, I have no idea what he really thinks or feels, and the GI specialist who was mis-informed during our one visit just thinks I"m fat and if I loose weight, I'll be all better and completely dismissed the PCP's diagnosis and request for confirmation on autoimmune hepatitis. He wouldn't even examine me when I showed up with the inflammed liver and high enzymes and sick as a dog.  So, I don't know what the records may say and if they'll help or hurt me.
 
**
 
 


Flopsie
Veteran Member


Date Joined Jun 2005
Total Posts : 1361
   Posted 9/4/2005 4:07 PM (GMT -7)   

Hiya catmama

Gosh I guess I am just now realizing that all state laws are different on SSDI. In my state, I had to be out of work for 6 months before I could get a check.Could apply the day I became unemployed ,but no money for 6 months. Strange isn't it....



Don't walk in front of me....I may not follow
Don't walk behind me....I may not lead
Walk beside me..and be my friend...
                                    Albert Carnus
 
and Lord, put your arm around my shoulder and your hand over my mouth
 
Help HealingWell.com continue to help others. Donate Today....http://www.healingwell.com/donate/
 
co-moderator for Arthritis and Anxiety/Panic
 
VIEW IMAGE

Post Edited (Flopsie) : 9/4/2005 5:19:09 PM (GMT-6)


CaMama
Veteran Member


Date Joined Mar 2005
Total Posts : 1884
   Posted 9/8/2005 10:20 PM (GMT -7)   
I think some of their policy depends on if the state you live in has a disability program or not. California DOES have a state/short term program tht you pay for when you work. SS won't kick in until the state program is exhausted (which can be up to one year depending on your last year's -more or less - work history.)
 
Six months w/o funds is WAY too long. I'm all for these programs (not for those who abuse it), but it is a shame that they make you go bankrupt in the process.
 
When we were having some problems last year - hubby was part of the SoCal grocery strike out here, 5 mo. w/o any income - we couldn't pay our bills after a while. I was also sick and unemployed at that time as well. I tried to be proactive calling all the credit cards and such asking what we could do to avoid getting bad credit. You know what they said? NOTHING! You HAVE to be deliquent twice and be in bad standing before they help you out with your payment schedule! Is that messed up or what???? Years of being a good customer and I get bupkus for help! nono   Shame on them for making America's money problems worse! 
**
 


Flopsie
Veteran Member


Date Joined Jun 2005
Total Posts : 1361
   Posted 9/8/2005 11:10 PM (GMT -7)   
i agree Camama, We had a hard time while I was waiting to be approved for SSDI. There is no temp dis. here. My hubby worked many long hours just to get us by. We were lucky with the credit cards tho, we had the disability insurance on them, and they made the payments, mininum for us, when Hubby got sick and had to have surgery. He and I were both off at same time with no income coming in,
Don't walk in front of me....I may not follow
Don't walk behind me....I may not lead
Walk beside me..and be my friend...
                                    Albert Carnus
 
and Lord, put your arm around my shoulder and your hand over my mouth
 
Help HealingWell.com continue to help others. Donate Today....http://www.healingwell.com/donate/
 
co-moderator for Arthritis and Anxiety/Panic
 

CaMama
Veteran Member


Date Joined Mar 2005
Total Posts : 1884
   Posted 9/9/2005 8:57 PM (GMT -7)   
You said it!

 


erin.K
Veteran Member


Date Joined Mar 2005
Total Posts : 3148
   Posted 9/13/2005 2:17 PM (GMT -7)   
eyes  oy,
so since i was couch ridden today...what better time to wait on hold for the SSI office.
got some info though.
first being is that i will not be made a decision medically till december.  that's what the lady said.  won't be made till december.
i said i have no way of supporting myself till then.  she gave me a list of numbers.
so i basically have to apply for welfare next week, PAAD which is for Rx's, and NJ cares which is another general assistance program.
for those who are ill, they really make this a living hell don't they.
but at least i have some applications lined up.  i hope i get help through them.
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