New Topic Post Reply Printable Version
37 posts in this thread.
Viewing Page :
 1  2 
[ << Previous Thread | Next Thread >> ]

erin.K
Veteran Member


Date Joined Mar 2005
Total Posts : 3148
   Posted 9/16/2005 3:05 PM (GMT -6)   

SSi and Dis are horrible.  it's like i'm stuck in the system.  not only am i not going to get an approval or denial until December...but i can not qualify for medicaid either until then!  or PAAD!  i called SSI and all the numbers they gave me for assistance until december (i have officially $174 dollars left in my savings)...and i have to apply for general assistance or welfare.  an at home visit takes 4 to 6 weeks!  they do that for people with mobility problems..but i cannot wait 4 to 6 weeks.

have to go there in person.  which is going to be hard to do.  i hope i don't have to stand.

USA is no place for the infirmed.  what the heck are you suppose to do if you're sick?? makes me sick to my stomach what i had to go through over the phone today.  

 

CaMama
Veteran Member


Date Joined Mar 2005
Total Posts : 1884
   Posted 9/17/2005 12:34 AM (GMT -6)   

No. I'm sorry. I will NOT accept that.....there has got to be a means for you to survive after all this....utterly ridiculous...unacceptable....Keep searching Erin....December is way too long....there has got to be another answer with at least ONE of these organizations to get you help NOW.

I'm SO sorry to hear this....I will pray extra hard tonight that you get some assistance NOW.

***


 


effie
Regular Member


Date Joined Mar 2005
Total Posts : 344
   Posted 9/17/2005 12:56 AM (GMT -6)   
What about a call to a local newspaper reporter on the state of this system that you have paid taxes into?????

We have reporters here that would go to town on a story like our Erin's.

I agree this is just not acceptable.

Judy/Effie

CaMama
Veteran Member


Date Joined Mar 2005
Total Posts : 1884
   Posted 9/20/2005 11:16 AM (GMT -6)   
well, my sdi appt today went very poorly....doc was very discouraging....will write more later.
 
 


erin.K
Veteran Member


Date Joined Mar 2005
Total Posts : 3148
   Posted 9/20/2005 1:15 PM (GMT -6)   
oh boy...that doesn't sound good. the SDI doc i saw a few years back was hellish. it was like .."oh, you can stand up and touch your finger to your nose...you're fine."
a decision wasn't made today was it?
my heart goes out to you ... i hate this too.
i know it's upsetting. keep your head up...that's all we can do. and now the grueling part is WAITING. ugh.
when you feel ready, let us know what happened okay. i'm sure you're exhausted now. physically and emotionally. it's so draining.
{{{{{{{{ hugs for Camama }}}}}}}}}}}}
erin

Flopsie
Veteran Member


Date Joined Jun 2005
Total Posts : 1361
   Posted 9/20/2005 1:20 PM (GMT -6)   
ditto. ((((((hugs for Camama))))))
Don't walk in front of me....I may not follow
Don't walk behind me....I may not lead
Walk beside me..and be my friend...
                                    Albert Carnus
 
and Lord, put your arm around my shoulder and your hand over my mouth
 
Help HealingWell.com continue to help others. Donate Today....http://www.healingwell.com/donate/
 
co-moderator for Arthritis and Anxiety/Panic
 

CaMama
Veteran Member


Date Joined Mar 2005
Total Posts : 1884
   Posted 9/20/2005 11:52 PM (GMT -6)   

Well, I'm mad at myself just as much as I'm mad about the situation....here's what happened (the WHOLE scoop):

I've had a bad cold and it's been keeping me up at night...so, I'm stuffy sounding....we had a very unusual (for here) electrical storm last night that kept all of San Diego awake last night as well as causing numerous accidents this morning. Now, the rain has made my allergies act up on top of the cold I have. I got up, got the kids ready for school (hubby woke up sick w/stomach flu) and left w/o eating breakfast because I hadn't planned on dealing with kids and ran out of time.

I get there 30 minutes early....the doctors arrive over an hour late. The room is freezing, so I put (at nurse's suggestion) my sweatshirt over my exam paper robe, fall asleep (great for already goopy eyes, right?) and am getting hungry. At 9:30 the doctor finally walks in (I got there at 7:28.) He makes some comment about my being cold. I just mumble a "yes" trying to wake up and look alert and remember all that I wanted to make sure I got across.

He asks me some questions and somehow or another the topic focus' on the illnesses, not the arthritis....and not the fact that it is the arthritis causing these illnessess.... He basically tells me after being there 2 minutes that I really don't have a case. He gives me such a quick physical exam I think he did it just as a formality. He talks again that my blood tests in April show my sed rate is normal and that my liver functions were just above normal, not causing any real warning flags. I ask if he had the other test copies between Dec-July that showed otherwise. He flipped through some pages and never answered me.

He goes back to the illness thing (and I just don't think of going back to the autoimmune and arhtritis aspect of it....I was just so upset at the way he seemed to have made a decision about me before really doing anything that I wasn't thinking) and says, "well, these test results are not strong enough for them to make a decision...that's why they sent you to me, but I don't make the decision. The government wants to see solid evidence that there is a problem and your test results don't have anything tangible....ANYONE can come in here and say they are sick.....(good place for me to remind him it's not just that....it is all the problems combined caused by the arthritis topped with disabling pain, but I don't think of it).... we could see thousands of people every year saying they're sick.....(this makes me think that the fatigue from the cold, the stuffy nose, and probably pale face made it look like I was a big fat faker.....like I'm some idiot trying to come in with the sniffles and claim disability)......but, we'll try and see what we can do....." Huh???? I didn't quite get what exactly he meant by that. I asked if SSI would have more than what he had - like ALL of the test results, reports on how many times I've been in ER this year alone w/serious infections, x-ray results showing the arthritis, etc...his response, "I hope so."  

After ALL that, he spent maybe 5 minutes with me total. I left there so upset and of course as I was walking out realized all that I didn't say and probably should have. I was driving home by 9:43.

I think I made a lot of mistakes in dealing w/him.....it was bad timing for me with this cold and the allergies from the storm......I just hate feeling like I have to defend myself when the facts are there, I feel bad enough having to even BE there....like you, Erin, I cannot believe I am in this predicament. I am college educated, been a career woman, was brought up to always be self-sufficient even if married....and it kills me not to have that option and just not be able to handle much of anyhthing let alone a job. Even though the last 10 years have been rough on me physically, I gotten through them and just wasn't expecting THIS to happen - all these illnesses and everything else that has been slowly getting worse over the last 2 years.   I thank G-d that I'm not worse than I am, I hear so many sad stories here on HW and know I could be so much worse, but at the same token, these illnesses have gotten so severe that even the doctor has been worried for me....when your PCP calls you 2-3 times a week for a month at home to check in on you - you know she's concerned!
 
I better end here...too long a post....getting too upset and then mad at myself mad for feeling upset and sorry for myself. I'll get over it.
 
**
 


erin.K
Veteran Member


Date Joined Mar 2005
Total Posts : 3148
   Posted 9/21/2005 11:56 AM (GMT -6)   
wow!...all i can say is that what you went through sounds just like the ignorant doc i had. they are relentless Camama. do not feel bad about yourself. you might have to go through this again. it usually goes denied once, denied twice, and third times an approval...which sucks and is NOT fair.

yea, ...mine skimmed through my med records and said, "hmmm you've got a lot going on....but other than that you're pretty healthy!"....gee wiz...okay, passing out and having 3 to 5 head injuries is healthy? ok! RA is healthy? ok! and that was 3 years ago. so NOW a lot worse has happened and progressed and has gotten to the point where the RA is crippling...i wonder if i'm still healthy??

you did nothing wrong...they absolutely are hellish. i bet if you had a good heroin or cocaine problem you'de get approved on the spot! or had 10 kids! bam...approved!

i'm praying for you and for your strength to get through this.
again...a decision hasn't been made yet. so don't lose all hope. and worse comes to worse...apply again! that's what i am doing. and make sure you have a letter from your PCP stating your disability...that helps.

i swear, if i win the mega millions NO ONE here will have to worry about medicine or doctors! :)
i remember i cried for a long time too...feeling like the doctor thought i was a phoney. but they don't see us everyday. the whole system is screwed up.
in my thoughts,
{{{{{{{{{ hugs to Camama }}}}}}}}}}}}}
erin

knitnut
New Member


Date Joined Aug 2005
Total Posts : 18
   Posted 9/21/2005 12:08 PM (GMT -6)   

You know, I logged on early this morning and almost typed that same word CaMama and Erin.  WOW was/is all I could think of to say.  But I thought that was because of my screaming MTX hangover headache.  BUt I still can't think of anything other than that stinks and at least its over for now. Cliches at best so ignore them. It shocks me how you were treated when I know of people who are on disability that maybe are questionable just like Erin said. 5 minutes is less than you get at the vet when you take your dog in for fleas.  Shouldn't be that way.  The great "they" really need to do more of a "home visit" like they do for adoptions or in-home medical care authorization, to see what things are really like for the people applying. 

 


I will continue to knit no matter what!  A


erin.K
Veteran Member


Date Joined Mar 2005
Total Posts : 3148
   Posted 9/21/2005 2:26 PM (GMT -6)   
i'll still NEVER forget their reason for my first denial, it went like this...."Given your AGE and EDUCATION, we feel you are responding to treatment and your condition will resolve in 12 months."

WHAT!!???

i was 20. age discrimination. 3 years later, yea....i improved a whole lot! yea. i'm mountain climbing.

i get ticked off just by thinking of it.
all i can say is Shame On Them.

knitnut
New Member


Date Joined Aug 2005
Total Posts : 18
   Posted 9/21/2005 4:56 PM (GMT -6)   
How does age and education have anything to do with RA, Crohn's or any other chronic illness I wonder. LIke saying young educated people don't get cancer. or get over it better. Wierd.
I will continue to knit no matter what!  A


curley
Veteran Member


Date Joined Mar 2005
Total Posts : 4305
   Posted 9/27/2005 3:48 AM (GMT -6)   
I'am on SSI and the only Doctor that I was sent to see and it was on of there Doctors was a srink.I had to pay for nothing I did feel out a form and they sent me a chack for my milage.They will pay for that if they do not send you a form to fill out for your milage then you can requst one so you can get your money back for the gas it took for you to go see this are other Doctor's.
Thanks
Curley......
a.k.a.Mela...........

New Topic Post Reply Printable Version
37 posts in this thread.
Viewing Page :
 1  2 
Forum Information
Currently it is Wednesday, October 18, 2017 7:27 AM (GMT -6)
There are a total of 2,883,646 posts in 316,446 threads.
View Active Threads


Who's Online
This forum has 157539 registered members. Please welcome our newest member, sdfsdfdsfdf03.
377 Guest(s), 11 Registered Member(s) are currently online.  Details
RedLabel, bill2009, 07kr5, sdfsdfdsfdf03, luckylibra, Ron42661, dar2017, Terry's Cellar, sgagsa345454546, SharonZ, Mb244


Follow HealingWell.com on Facebook  Follow HealingWell.com on Twitter  Follow HealingWell.com on Pinterest
Advertisement
Advertisement

©1996-2017 HealingWell.com LLC  All rights reserved.

Advertise | Privacy Policy & Disclaimer