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Kimber
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Date Joined Jun 2005
Total Posts : 1852
   Posted 9/29/2005 5:55 PM (GMT -7)   
Hi everyone,
I hope everyone is doing well today. I have a couple questions for those of you with arthritis in your hands and feet. My rheumy diagnosed me with Fibro in 2001 and he said I also have arthritis but he waiting for more evidence to make a diagnosis (I'm 36 btw). He's basically treating my symptoms because none of my tests are showing anything except for a high ANA which can mean anything. I guess I'm getting upset because my mother had RA and became diabled at very early age because her tests showed nothing until it was far along in progression. It's tolerable to deal with right now, but the fatigue is getting really bad and my newest thing is swollen veins on the back of my wrists up into my arm. It looks like I have earthworms moving around in there. This sound familiar to anyone? Thanks for any input.

God bless,
Kimber

CaMama
Veteran Member


Date Joined Mar 2005
Total Posts : 1884
   Posted 10/1/2005 2:10 PM (GMT -7)   

Hi Kimber, and welcome.

I haven't had what you're explaining about your veins. Has the doctor seen that? What did he say? Does it hurt when they swell like that? It sounds serious. There is so many different forms of arthritis and things that can happen from a flare. There are some nurses here that may have some ideas on it. However, you may not hear from any of them until Monday. Weekends here are sometimes quite slow

Have they given you any meds to help with the pain and inflammation yet?

Fatiuge is hard to deal with and accept in to your life. It's not always bad and sometimes you can find things to help make it better, or at least things to avoid that make it worse. It'll take time,first you have to figure out what is causing it for sure. The blood tests often do not show the RA, but our bodies don't lie when there is something wrong. Keep at your doctor to find you answers and relief. There are so many new meds out there that help slow down the progression of RA, that I have hope that our future with RA is better than our parents/grandparent's generation.

Hang in there, there are a lot of knowledgable and wonderful people here on HW for support. I know it is hard to accept the thought of having arthritis, you'll find many threads talking about the mourning period we all go through when we realize we have to relearn our bodies, but it doesn't mean you'll have the same problems your mother did.

**


 


Kimber
Veteran Member


Date Joined Jun 2005
Total Posts : 1852
   Posted 10/1/2005 5:31 PM (GMT -7)   
Hi CaMama,
Thank you for your reply and words of encouragement. My hands are always kinda stiff, hard to open and close. I seem to have these episodes of feeling extra horrible with pain and fatigue for a couple weeks then I feel better but not totally if that makes sense. My wrists started swelling weird like that after the latest episode, so I haven't been to the doctor yet to discuss it although I plan to. Compared to the pain in my feet , my wrists don't really hurt they feel more numb than anything. Holding small objects is getting to be troublesome as well as opening up things. My rhuemy has me on Mobic and Zanaflex which help some with the pain, but not with the fatigue. He thinks that my fatigue is due to my bad sleeping with the fibro so has me take the Zanaflex at night before I go to bed. I do sleep through the night now but I still feel like never went to bed in the morning. During the "episodes" the fatigue is like 3 times as bad and it's all I can do to stay awake.

Thanks for listening and any input is appreciated. I hope you all have a wonderful weekend:)

God bless,
Kimber

CaMama
Veteran Member


Date Joined Mar 2005
Total Posts : 1884
   Posted 10/1/2005 10:40 PM (GMT -7)   

Yes, it does make sense to me, I know exactly what you are talking about.

My fingers at times get so bad I can barely type - pressure, movement, and even just trying to rest the hand takes all my concentration because it is so uncomfortable (to put it lightly.) My fingers are a relatively newer problem, my feet went kaput 10 years ago leaving me immobile for about 3 years. The fatigue has been a life-long problem (I had arthritis as a child.)

It stinks when pain is keeping you up at night, but it's sleep that will help make it better for the next day. I would discuss with the doctor to try the least and the lightest amount of medication possible (that makes you sleepy) to start with and go from there. I have the same problem. I was even Rx'd the children's dosage of Zyrtec (allergy med) because the adult version made me too groggy the next day.

If you are not seeing your doctor soon, I would consider calling him and discussing this new problem and seeing if they can move your appt. up sooner to be checked out.  At least discuss it over the phone and maybe he can ease your mind to what it is????

I have not been on the meds you mentioned, but on others, I was told to take lots of folic acid and/or a B complex daily. You might want to ask your doctor if this could possibly help with the fatigue. It was not a wonder fix, but there is some improvement when I take it regularly.

Take care and have a great weekend. **


 


Flopsie
Veteran Member


Date Joined Jun 2005
Total Posts : 1361
   Posted 10/4/2005 12:45 PM (GMT -7)   
Kimber, Have you had any test to see if the blood is flowing the right way in your arms and wrists?There is a condition that causes the blood to flow backwards and will cause this symptom, ask your doc about it.
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