I was diagnosed with Crohn's Disease in 2001 but am trying to live a normal life for a 22 year old. It's hard to keep the constant smile on my face when I feel so sick.
Post Edited (CaMama) : 10/29/2005 9:49:50 AM (GMT-6)
Hi Lynne. I'm sorry you're dealing with sore hips. I have the same problem. I was diagnosed with RA a couple of years ago, but it seems that I may have pending cd instead. Crohn's arthritis, according to my rheumatologist, normally does hit the hips, lower back, shoulders, and sometimes the neck as well. I cannot take any NSAIDS either because of possible cd (plus they just wreak havoc on your system, IBD or not). I've currently started sulfasalazine and I'm waiting for it to kick in. If I were you, I would go to a rheumatologist for the arthritis symptoms. They are specialized in that, even IBD related arthritis.
Thanks - other than a headache right now, I'm doing better than I was over the weekend. It's probably a sugar headache anyway - the kids and I were baking cookies today to pass out to her class for her birthday tomorrow. While I finished the cookies, the kids frosted christams cookies we baked over the weekend....needless to say - a lot of finger licking and cookie tasting happened and the 3 of us over did it. Like I need more calories on this extra 80 I'm lugging around!
On a better note - I had a follow up ultrasound on my liver today. The doc actually ordered a full upper abdomen check. The technician said my liver looked good! Last Dec. it was measured at 24 mm (??? is that the right unit of measure?) and today she barely could stretch it to 20...meaning it was really only 19 mm and said that is in the upper part of the normal range. She also said my kidneys looked fine (well, at least she mentioned ONE of them looked okay.) I also had my first mamogram - yikes! Doc said, '35, immono compromised, and history of benign breast tumors in your family - it's time to start." Oh joy. I was supposed to get blood work done as well, but the woman was too rough on my ONE vein and after having fasted for 11 hours at that point with only one bottle of water for the ultrasound I said, "forget it, I'll come back another day!"
I hope you too feel better! Keep your fingers crossed for me that I hang in there for a few more days - we're taking my daughter to Sea World tomorrow and I want to be able to walk! Then we're having family over on Saturday for her and I need to clean and prepare! **
I'll have to answer you elsewhere Erin, I don't think Samuel wants to know how it went!
Samuel - keep up the good work, I hope you get the answers and help you need to feel better. We're always here for you.
HAH! You guys rock. You know Duck, that's my guilty pleasure...America's next top model...funny you mention it. Nah, I'm too short, 5"5....have to be at least 5"7.
The weather is giving me quite the beating. Had 10 LidoDerm patches total on my knees yesterday. Then the darn elbows started. Aaah. Never got the steroid injections....gonna have to this week though.
Just hoping to have a decent night, going to dinner & decorating our little christmas tree tonight. My honey's got about 13 inches of snow where he is. Yikes.
So Camama, it's a definite start of Enbrel in January?
Oreo, how are the sinuses? Did you get lots of snow too? I know it hit in Canada around near where you are.
Wishing everyone a good day.
AND A BIG WELCOME TO ALL NEW MEMBERS!!!!!!!!!!!!!!!!!!!!!!!!!
5'5"! What I would GIVE to be that tall! Oy, quit your complainin' (I'm 4'11, by the way.)
The 'girls' are doing fine...thanks for asking. Guess I'll just answer how it went - they got squished pretty hard during that mamogram, but I survived. After my whiny "OW! That hurts" from the first pictures, the lady was a bit more careful for the rest. A bit, I say. NOT a comfy procedure, that is for sure and they made that room SOOOOOOOOO cold!
We're gonna probably decorate the house tomorrow as well. Possibly get a tree then as well.
So, I was sleeping tonight...exhausted and went to be later than I should have. Hubby had night off and we watched The Day After Tomorrow. about 1 a.m. I woke up with a stuffy nose and feeling like my throat was coated in yuck. So, here I am... Well, at least I made it through daugther's birthday w/o BEING sick during it....in all her 6 years, I've been seriously ill for most of her birthdays. I hope that trend is over!