Enteropathic arthritis belongs in the family of spondylitis diseases. about 1 out of every 5 people with IBD will develop enteropathic arthritis. I was diagnosed with it a year ago. Then my condition continued to worsen despite treatment. Further testing determined that I have Ankylosing Spondylitis. The Spondylitis Association of America has excellent information about this family of diseases.
To read about enteropathic arthritis, go here: http://www.spondylitis.org/about/ibd.aspx
To read about ankylosing Spondylitis, go here: http://www.spondylitis.org/about/as.aspx
I'm trying to learn about this type of arthritis too. My dr didn't use this term, just said it was arthritis related to cd. Sounds like you have it much worse than I do. I get pain in my back, feet, fingers, and have had some in my knees and hips when I pushed exercising too hard. I'm currently taking darvocet for it, which helps some, but the back pain seems to be the worst during the night. Lately I've been doing some stretching and I think it may be helping but it's a little too early to tell. Thanks for the links Ides.
Post Edited (Ides) : 11/9/2005 3:30:15 PM (GMT-7)
I think I need to take your advice and find a new 'rheumy' that specializes in AS. My current 'rheumy' knows about the SI joint inflammation. I gave him a copy of the report, and he was not interested in seeing the films. He's actually kind of obnoxious, but I didn't know who else to go to......not many in my area. He did prescribe an NSAID.....Piroxicam (Feldene), but it made my colitis worse after about a week (increased bleeding), so I stopped taking it, and that's as far as it went........he didn't suggest anything else, except the prescription pain meds I was already taking.....but had to stop taking those too. Is there something that they can prescribe that will help, that won't also irritate my colitis?
I'll check my records tonight for that HLA B27 test and if I don't see it, I'll check with the doctor's offices that I don't have all the blood test copies from yet. I do have copies of all of my xrays/films, and most of my blood tests, but not all of them. I also have copies of my medical records from some of the doctors, but not all of them either. I need to take your advice again and request all of them and take the time to research/review them........that's something I haven't taken alot of time to do yet, but I know I need to.
I've been researching the SCD diet.......I'm sure you've heard of that. I've been trying to stay away from certain foods/drinks, but I haven't been totally strict with it.......it's very hard to do! But, I think I'm gearing up to try this SCD diet and see if it helps my joint/muscle pains, by hopefully calming down my colitis for an extended period.
My back/SI joint is really not good today......not sure what I did to it to make it worse, but I feel like I just took a 6 month relapse. Have to move really slow, or I get those electrical shock type feelings that feels like my spine is just going to crack in two. I'm told by the doctors that this is all muscle related. It feels like it's bone/joint-related to me, but what do I know.
Thanks so much again for listening, and for all your advice! I need to get all my records organzied, review them, and find myself a new doctor. I'll let you know how I make out.
Hope you are doing well! Take care. Cheryl