Antibiotics & RA

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erin.K
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Date Joined Mar 2005
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   Posted 11/15/2005 5:56 PM (GMT -7)   
Hi all!
 
Just putting this out there to see what ya'll think.  The neurologist I had seen for 3 years who treated and cured the Lymes Disease I had, also treated the RA or Lymes arthritis (because at that time they were not sure what type of arthritis I did indeed have) with antibiotics. But after 6 years, they figured the autoimmune disorders were sequela of Lymes that went untreated for almost a decade.  That was in 2001 to 2003.  Have not been on antibiotics since.
 
BUT!...Came down with swollen glands thursday and was put on one gram Augmentin per day...and wouldn't ya know....JOINT PAIN VERY VERY MINIMAL TO NONE!!  For 3 days now.
 
Just wondering, has anyone been treated for RA with antibiotics?  I know it is a controversial and "old" way of treating RA and I have never been to a rheummy who had that theory to practice.  But my neurologist believes it.  And obviously it is doing something! right?  Is this treatment outdated? confused    I know I have read several articles regarding antibiotic therapy for RA.
 
I'm definitely going to bring it up @ next rheummy appt.
I mean, geesh...what are my options??  Loading up on pred?  Gotta weigh my options here. 
 
Just thinking that this is by no means a coincidence that the antibiotics are reducing the joint pain.
Would love to hear what you guys think.  And also if anyone had antibiotic therapy as a first treatment for their RA.  And, is anyones case of RA or arthritis of one that was triggered by a bacteria?
 
Thanks so much & take care
Sincerely
Erin 

Post Edited (erin kachmar) : 11/15/2005 6:08:37 PM (GMT-7)


Flopsie
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Date Joined Jun 2005
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   Posted 11/15/2005 6:08 PM (GMT -7)   
Erin, my mom , my sister and myself had antibiotic therapy as the first treatment for RA. I do believe it helped me because I was not bothered with pain for quite awhile. My sister had massive antibiotic treatments when she was 6 years old and was not bothered again with significant pain until a couple of years ago. Gosh, hon, may help, You just never know.
You Only Have One life..One chance..Treat It and Others around You Gently...
 
Moderator for Arthritis Forum
 
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erin.K
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Date Joined Mar 2005
Total Posts : 3148
   Posted 11/15/2005 6:13 PM (GMT -7)   
Hey Flop thanks!
I knew I could count on you!! First on the scene! I wonder if this proposal would fly with the rheummy?? I'm desperate you know, and if taking an antibiotic could help the joints even the slightest, I'm game!

Thanks for sharing your story.
Now, how do I go about "talking" to the rheummy without him looking at me like I have 6 heads? this is a guy who doesn't Rx pain relievers! (only cox2s and nsaids) Or maybe I should just tell him the series of events with the glands, the augmentin and see his response to that.

Thanks again Flopsie,
Erin

Flopsie
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Date Joined Jun 2005
Total Posts : 1361
   Posted 11/16/2005 1:19 AM (GMT -7)   

erin, I found this and thought you might find it interesting.

"I have had RA for 3 years. Pain and stiffness were increasing, then a year ago I found the info about antibiotics on the net.. I talked to my doctor who was happy to prescribe Minomycin (a tetracycline) I have been on it for a year. Today I have about 10% of the pain and stiffness I had a year ago and I continue to improve. I ride (yes really ride) my horse daily and continue working normally."

I found several sites that talk about taking this drug and having very good results from it.



You Only Have One life..One chance..Treat It and Others around You Gently...
 
Moderator for Arthritis Forum
 
Please Help Healing Well Continue To Help Others..
Donate Today....Even The Smallest Amount Helps!

Post Edited (Flopsie) : 11/16/2005 1:26:58 AM (GMT-7)


Ducky
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Date Joined Mar 2005
Total Posts : 3199
   Posted 11/16/2005 6:26 AM (GMT -7)   
Wow, wouldn't that be your luck Erin? All these different meds, and possibly you're saving grace will be antibiotics? Too cool! I think you need to call your rheumy ASAP, and if he doesn't agree, get a second opinion. Would be so nice if you could get off 60% of the meds you're on now for just one! Easier on the pocketbook too! :) Good luck to you and let us know what happens! - Duck
Diagnosed January 2005 - Psoriatic Arthritis/Dactylitis/Spondylitis 
   -Currently taking 50mg shot weekly of Enbrel
 
Diagnosed May 1998 - Graves Disease
   -Complete Thyroidectomy September 1998 - While 11 weeks pregnant
 
Other Complications - GERD/Scoliosis/Hiatal Hernia/Graves Disease of the Eyes


erin.K
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Date Joined Mar 2005
Total Posts : 3148
   Posted 11/16/2005 8:18 AM (GMT -7)   

eyes  Ugh, can my winning streak be over?  Woke up with awful knee & leg pain.  Hopefully it will go away.  Guess we'll just have to see how the day goes.  But still, the joint pain in the hands and elbows have been pretty good.

Have like 5 more days of antibiotics, so if overall there was some improvement I'm going to pursue this antibiotic treatment with the rheummy. 

The joint pain in the knees could be from me "doing stuff" over the past few days.  Haven't been on my legs that long in a while.

Thanks so much Flopsie!  Will definitely look that med up.

I truly believe that treating EVERY patient with the same standard protocol is not always the way to go.  Maybe since this particular case of RA sprouted from being sick with an infection for a LONG time, perhaps it should be treated in a special manner.  I'm not a text book case, as I think many cases of autoimmune diseases are not textbook cases as well.  And it seems that every doc I see...well geesh, if you're "right from the book" then they don't know what the heck to do with ya!

Hope the day gets better.

Erin


CaMama
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Date Joined Mar 2005
Total Posts : 1884
   Posted 11/16/2005 10:33 PM (GMT -7)   

I've been on antibiotics so much the last year, but I don't remember how my joints felt....however, I was bed-ridden delirium sick most of this time.

Interesting if the antibiotic is a saving grace w/your joints - but won't that really be a catch 22 for you? They wreck havoc on your intestines, don't they? Can you take them while on Remicade since you not technically w/a fever or infection? How would the med combo work for chron's treatment with an RA antibiotic treatment? Curious....whatever the potion, I hope it works!

** 


 


Donna38
Regular Member


Date Joined Jan 2005
Total Posts : 306
   Posted 11/17/2005 1:20 AM (GMT -7)   
Erin,
I have severe Ra but was never offered antibiotics. I didn't even know they could help or was a treatment option. I'm taking several different meds now but none are working for me. I don't really know where I got it from but My sister and I are the only ones in my large family that has it. I hope it continues to help you. Best wishes and good luck to you. Donna
                                            Donna
 
Never look down upon another in judgement for only GOD sits that high!!!
 
May your life always be Happy and fullfilled surrounded by friends and loved ones.
 
Dx  1991 Migraines
DX 1995 Peptic Ulcer
DX- Feb 2004 Lupus & RA
Dx August 2004 Hypoglycemia
Dx January 2005  Fibromyalgia & IBS
 
Meds--Plaquenil, Ultram, Oxycodone, Tricor, Xanax, Trazodone, Soma, Bextra, aciphex, & Vicodin 750mg. Imitrex for migraines


erin.K
Veteran Member


Date Joined Mar 2005
Total Posts : 3148
   Posted 11/17/2005 10:48 AM (GMT -7)   
Hi Donna,
 
Have you ever been on a med like Enbrel or Humira?  Having severe RA with little success with medications is so frustrating...I hate it.  I've been on Enbrel for a year, not much help to the joints, but it did alleviate the AS.  Been on Humira since August, not helping the joints too much...but it does make a difference in my back, the costochondritis, and believe it or not...the CD too!  Always had less GI probs when on a TNF med.
Perhaps you should look into a TNF combo for RA, exhausting ALL options, until we find a combo that works!
 
The antibiotics I recieved when I first had very bad joint problems,  my neurologist was not sure if it was RA or Lymes arthritis (was RA caused by Lymes in the end) was Cipro, Emycin, Levaquin, Amoxiclav, Ceftin, Doxycylcine, Zithromax, and a whole bunch of others I cannot remember....but all in different combos.  It did help the joints.  That was from 2001 to 2003.
 
Flopsie looked up the med, Minomycin (sp?)  a tetracycline antibiotic for RA.
 
Probably like yourself, I'm so desperate to get to a point where I can be at least SEMI CONSISTANT from day to day.  I've been like this since I was 13, at the worst since 20 yr, and now am 24.  I want at least a few good years...I'll even take a few months.
 
This is something I will definitely pursue @ my next appt.  And I'll be sure to let you know Donna.
Take good care
I know it's hard
Erin 

Post Edited (erin kachmar) : 11/17/2005 11:08:48 AM (GMT-7)


erin.K
Veteran Member


Date Joined Mar 2005
Total Posts : 3148
   Posted 11/17/2005 10:53 AM (GMT -7)   
Hey Camama,
I know...it's a double edge sword! I have to weigh my options. Quite honestly, the CD pales in comparison to my joints and pain and mobility. Whatever I let on it to be...multiply that by 100. I try to act like it's not terrible, because it keeps me sane! But I'm not in good shape, at all. So I think I would risk some GI effects and have diarrhea than be in constant pain and have poor quality of life, you know?
It's a hard call.
Yet, I might have luck with Remicade...who knows. These are some things that I'll be going through this winter.
Talk to you later Camama!
Thanks for listening
Erin
{{{{{{{{{{{{{{{{ HUGS }}}}}}}}}}}}}}}}}}}}}}}

erin.K
Veteran Member


Date Joined Mar 2005
Total Posts : 3148
   Posted 11/20/2005 2:46 PM (GMT -7)   
eyes  well, my personal and final conclusion is that i did a heck of a lot better on antibiotics than any nsaid or antiinflammatory...and maybe even better than just enbrel or humira alone too.  had the most "good" days this week and a half than i did in a year...so this at least tells me something.
so this will be my next rheummy appt. topic on december 2nd.  hopefully he'll be familiar with antibiotic treatment or at least see something to it.
if not...am demanding to start Remicade.

Ducky
Veteran Member


Date Joined Mar 2005
Total Posts : 3199
   Posted 11/20/2005 2:51 PM (GMT -7)   
Hopefully he'll be open to the possiblities of it, I mean honestly, what harm can it do, right? Might even be better on you than the Remicade or Humira... Good luck Erin, let us know what happens! - Duck
Diagnosed January 2005 - Psoriatic Arthritis/Dactylitis/Spondylitis 
   -Currently taking 50mg shot weekly of Enbrel
 
Diagnosed May 1998 - Graves Disease
   -Complete Thyroidectomy September 1998 - While 11 weeks pregnant
 
Other Complications - GERD/Scoliosis/Hiatal Hernia/Graves Disease of the Eyes


CaMama
Veteran Member


Date Joined Mar 2005
Total Posts : 1884
   Posted 11/20/2005 7:35 PM (GMT -7)   

I agree, that is something that definitely needs to be discussed and considered. I will have to take better notice of my time on antibiotics to see how I fare. I had never heard of that before HW.

If the Remicade could counteract the antibiotics, and you stay on them at least long enough to get Remicade in your system.....hopefully you'll feel like the Spring Chicken you're supposed to be! yeah

 

Good luck!**


 


Ducky
Veteran Member


Date Joined Mar 2005
Total Posts : 3199
   Posted 11/21/2005 10:20 AM (GMT -7)   
We all know she's been "shaking her tail-feather"! hee hee hee
Diagnosed January 2005 - Psoriatic Arthritis/Dactylitis/Spondylitis 
   -Currently taking 50mg shot weekly of Enbrel
 
Diagnosed May 1998 - Graves Disease
   -Complete Thyroidectomy September 1998 - While 11 weeks pregnant
 
Other Complications - GERD/Scoliosis/Hiatal Hernia/Graves Disease of the Eyes


Flopsie
Veteran Member


Date Joined Jun 2005
Total Posts : 1361
   Posted 11/21/2005 10:57 AM (GMT -7)   
Amen to that!

erin.K
Veteran Member


Date Joined Mar 2005
Total Posts : 3148
   Posted 11/21/2005 7:02 PM (GMT -7)   
smurf  Yeah I know!  I've got a lot of catching up to do!  This is supposed to be the prime of my life darnit.
Have a great educuation and so much drive...too much to be contained in a lame body. mad
Hopefully by now and the near future, the Humira or Remicade or antibiotics will get me to a level of consistant (or at least fairly consistant) functioning.
Oh what a journey.
erin

Ducky
Veteran Member


Date Joined Mar 2005
Total Posts : 3199
   Posted 11/22/2005 5:32 AM (GMT -7)   
I tell my family all the time, that the reason why I am going through all these health problems now at such a young age, is cause when I get older, I'll be healthy! I'm getting it done and over with now, so I can enjoy the golden years! hee hee hee
[color=#0></FONT><FONT]Diagnosed January 2005 - [/color][color=red>Psoriatic]<FONT color=red> [/color]
-Currently taking 50mg shot weekly of Enbrel



[color=blue>Diagnosed] <FONT color=blue>-[/color] [color=red><B>Graves][/color]

-Complete Thyroidectomy September 1998 - While 11 weeks pregnant



[color=blue>Other] - <FONT color=red>GERD/Scoliosis/Hiatal Hernia/Graves Disease of the Eyes[/color]


erin.K
Veteran Member


Date Joined Mar 2005
Total Posts : 3148
   Posted 11/22/2005 12:30 PM (GMT -7)   
tongue  LOL!  Hey with the way I'm going...I'll live till I'm 105!!!!!!!!!!!!!!!!!!!!!!!!
I like you're thinking!
erin

Ducky
Veteran Member


Date Joined Mar 2005
Total Posts : 3199
   Posted 11/22/2005 12:37 PM (GMT -7)   
I know right... if I'm like this at 35... I will have reached the fountain of youth! hee hee hee
Diagnosed January 2005 - Psoriatic Arthritis/Spondylitis
-Currently taking 50mg shot weekly of Enbrel

Diagnosed May 1998 - Graves Disease
-Complete Thyroidectomy September 1998 - While 11 weeks pregnant

Other Complications - GERD/Scoliosis/Hiatal Hernia/Graves Disease of the Eyes
 
Current Meds -  Enbrel/Prevacid/Synthroid
 
Past Meds - Inderal/PTU/Prednisone/Voltaren/Feldene/Mobic/Cortisone and Steroid Shots

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