Post Edited (erin kachmar) : 11/15/2005 6:08:37 PM (GMT-7)
erin, I found this and thought you might find it interesting.
"I have had RA for 3 years. Pain and stiffness were increasing, then a year ago I found the info about antibiotics on the net.. I talked to my doctor who was happy to prescribe Minomycin (a tetracycline) I have been on it for a year. Today I have about 10% of the pain and stiffness I had a year ago and I continue to improve. I ride (yes really ride) my horse daily and continue working normally."
I found several sites that talk about taking this drug and having very good results from it.
Post Edited (Flopsie) : 11/16/2005 1:26:58 AM (GMT-7)
Ugh, can my winning streak be over? Woke up with awful knee & leg pain. Hopefully it will go away. Guess we'll just have to see how the day goes. But still, the joint pain in the hands and elbows have been pretty good.
Have like 5 more days of antibiotics, so if overall there was some improvement I'm going to pursue this antibiotic treatment with the rheummy.
The joint pain in the knees could be from me "doing stuff" over the past few days. Haven't been on my legs that long in a while.
Thanks so much Flopsie! Will definitely look that med up.
I truly believe that treating EVERY patient with the same standard protocol is not always the way to go. Maybe since this particular case of RA sprouted from being sick with an infection for a LONG time, perhaps it should be treated in a special manner. I'm not a text book case, as I think many cases of autoimmune diseases are not textbook cases as well. And it seems that every doc I see...well geesh, if you're "right from the book" then they don't know what the heck to do with ya!
Hope the day gets better.
I've been on antibiotics so much the last year, but I don't remember how my joints felt....however, I was bed-ridden delirium sick most of this time.
Interesting if the antibiotic is a saving grace w/your joints - but won't that really be a catch 22 for you? They wreck havoc on your intestines, don't they? Can you take them while on Remicade since you not technically w/a fever or infection? How would the med combo work for chron's treatment with an RA antibiotic treatment? Curious....whatever the potion, I hope it works!
Post Edited (erin kachmar) : 11/17/2005 11:08:48 AM (GMT-7)
I agree, that is something that definitely needs to be discussed and considered. I will have to take better notice of my time on antibiotics to see how I fare. I had never heard of that before HW.
If the Remicade could counteract the antibiotics, and you stay on them at least long enough to get Remicade in your system.....hopefully you'll feel like the Spring Chicken you're supposed to be!