Shortness of breath

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Don_D
Veteran Member


Date Joined May 2013
Total Posts : 548
   Posted 7/19/2016 10:46 PM (GMT -6)   
Hi Guys, I apologize for my absence and lack of updates. I checked out OK with a pulmonary check up but I still have this breathing issue off and on. Usually it is my high pain days which are pretty frequent. Also, I too have been on MTX for the last 3 years or so at the max dose weekly. I will have to speak with my Rheumy and see if there is something else we should be testing for because of this.

I am still on Actemra as well and still having side effects in my upper GI. I took my shot on Friday and all day Saturday and most of Sunday it was extreme. Almost unbearable. I get about 2 days of noticeable relief after this and then I am flared up again. It's been 2 months now and I'm pretty sure I need to come off of it.

I had a referral to a PM clinic and that was a Godsend. The Doctor was very helpful and was not worried about giving me meds for breakthrough pain. I was very grateful for this and it has been a huge relief. He also gave me some new type of coated ibuprofren that I tried taking but after a couple days of it my stomach was a total mess again. I wish I could handle it, I wouldn't need near the pain meds if I could.

I am still trying to get an upper GI scope but my insurer has been pushing back on it of all things. I don't understand it but I am jumping through their hoops and eventually Im sure it will happen.

At any rate I am now on short term disability and trying my best to accept that and not beat myself up over it. Not easy but I am grateful to have paid into it all these years and have it when I finally need it. I am trying to stay as active as I can even on bad days. I have been dealing with depression as well off and on.

I want to thank you all for your thoughts and prayers. I promise I will not disappear for such a long period without saying hi. It helps me to stay connected with you all and I am grateful for all of you. Welcome aboard to CA-Lynn. This is a great board! :)

-Don

MarleneF
New Member


Date Joined Jul 2016
Total Posts : 12
   Posted 7/28/2016 6:57 PM (GMT -6)   
Rituxan can cause severe breathing problems, something to do with an enzymatic reaction in the lungs. It's been 3 years since I went off for that reason, and I am just starting to be able to breath normally.

Then there is Rheumatoid Lung Disease. A simple X-ray will show RA nodules in the lungs. Not sure how they treat it, I haven't had it yet.

Another thing is methotrexate lung. That is definitely cause by mthx. I never had that, although I was on mthx for 9 years. Instead, I had liver problems and had to go off, although it worked 100% in combo for me on Kineret. Those were the days!
"More than that, we rejoice in our suffering, knowing that suffering produces endurance, endurance produces character and character produces hope. And hope does not disappoint, because God's love has been poured out through the Holy Spirit who has been given to us." Romans 5:3-5
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