Post Edited (erin kachmar) : 11/22/2005 9:06:30 PM (GMT-7)
Glad you got time to spend with her! My grandmother is my hero! She kicked end stage colon cancer's BUTT!!!! complete remission. Here's to grandmothers!
When you say restless, is she just having like "cabin fever"? and frustrated with everything, or is she physically restless? like tossing and turning, restless legs, uncomfortable, dizzy, headache? Clinical restlessness can be brought about by edema/swelling. Take notice if her hands and arms and feet twist inward whe lying down and turn stiff. Just for caution. Unlikely, but swelling near the brainstem can cause increases pressure around the brain causing restlessness. Let me know. This I have never heard of with what she has, but with kids NEVER LEAVE A STONE UNTURNED I'm sure you feel the same way.
Is she sounding nasal? The "talking through her nose" can be from irritation to the sinuses from the reflux caused by the dyshagia.
I meant to ask, some kids get mouth ulcers with this making it MORE painful to eat. Salt water swishes help with that.
What are her days like now??? Is she able to get about a little???
Tell Grace we at HW say "Goodmorning! and We're thinkin' of ya! Hang in there sweetheart!"
Take care Jay4