spondyloarthropathy

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

Poppie
Veteran Member


Date Joined Feb 2014
Total Posts : 1923
   Posted 6/22/2016 11:41 AM (GMT -6)   
Hi, I saw my GI as I was feeling quite unwell and he referred me to see a Rheumatologist, and it appears I have spondyloarthropathy which is a complication of UC. At the moment I am on Prednisone 50g a day as my ankle swelled up and bruised to the point that I couldn't even walk, plus all my joints seemed to hurt at once!!

Blinkin nightmare, but I am feeling better every day on the Pred!!

The treatment my rheumy suggested was azathioprine, not sure which that would be, when I taper down from Pred, but I have read that the biologics are better for this condition is this true? I doubt I will be able to afford biologics and it seems crazy to go from Pentasa (which I am allergic to) to a biologic anyway.

With regards to the Pred whats your thoughts on dosage for slowly coming down from 50mg, I have a prescription for 2 weeks at that dose.

Thanks!
Samantha, 45 yrs
Stopped smoking Jan 2013. Diagnosed Left sided UC, 8th Feb 2014.
Pentasa 3.5g daily, Vit D, Multivitamin, Vit B12, 500mcg Molybdenum
Gluten, Dairy and Sulfite free.

Alice22
Veteran Member


Date Joined Jul 2015
Total Posts : 595
   Posted 6/22/2016 10:57 PM (GMT -6)   
When I came down from 60 mg of prednisone (also for UC), I came down very slowly at 5 mg. per week. If you did it that way you'd go to 45 mg. for a week, then 40 mg., then 35, etc. But since you're on the 50 mgs. for only two weeks I don't know if you need to go that slowly. Maybe you could taper in 5 mg. increments every 5 days instead of every 7 days but I would ask your doctor and/or a pharmacist for their advice.
Diagnosed with ulcerative colitis in 2005 and rheumatoid arthritis in 1998. On Remicade since 2005 for both diseases. For UC tried sulfasalazine, Lialda, colazal and others which made me ill. Started 50 mg. Imuran July 2015. Use peppermint oil capsules and Bentyl which help during a flare and with IBS symptoms.

Caregiver for mother with Alzheimer's Disease (for Alz. forum).

Poppie
Veteran Member


Date Joined Feb 2014
Total Posts : 1923
   Posted 6/23/2016 2:05 PM (GMT -6)   
Thanks Alice
Samantha, 45 yrs
Stopped smoking Jan 2013. Diagnosed Left sided UC, 8th Feb 2014.
Pentasa 3.5g daily, Vit D, Multivitamin, Vit B12, 500mcg Molybdenum
Gluten, Dairy and Sulfite free.

Chartreux
Veteran Member


Date Joined Aug 2006
Total Posts : 9657
   Posted 6/23/2016 10:30 PM (GMT -6)   
The azathriprine is a sulfa antibotic and you can look it up on www.drugs.com its a very old RA class medication, but biologics are more common now. Sulfa antibotics have a tendiacy to dry you out so you will need to take it with about a gallon of water, not kidding on that, its very drying, but its worth a try to see if itcan help.
Methotreaxate is a biologic and your doctor might try you on that first, it is lower in costs about 50.00 and usually not covered by insurance, you might be able to be on a trail medication if your doctor does case studies...
However, in the meantime a slow reduction of the steroid, you can break them in half. You have my prayers and well wishes....
**********************************************
* So many dx's I could write a book* "It would be nice if we could use the edit button in real life"...
********>^..^<********>^..^<*******

celebrate life
Veteran Member


Date Joined Dec 2014
Total Posts : 2066
   Posted 6/24/2016 1:11 AM (GMT -6)   
Hi Poppie,
If you have insurance you should qualify for an assistance program. I am on Obama Care and with the assistance program I only pay $10 for my Enbril. Same with humira. That's a pretty high dose of prednisone, so I hope you can taper off and get on something better for your joint pain soon. Best wishes.
Beth

Poppie
Veteran Member


Date Joined Feb 2014
Total Posts : 1923
   Posted 6/29/2016 1:24 PM (GMT -6)   
chartreux...you mentioned that azathioprine is a sulfa antibotic which has alarmed me, as amongst other problems I am sulfite /sulphur/salicylate intolerant, so am I correct in thinking this Med wouldnt work for me due to the sulfa? or maybe I have it all wrong, I will have to look at this carefully.
celebrate life...thanks a lot!
Samantha, 45 yrs
Stopped smoking Jan 2013. Diagnosed Left sided UC, 8th Feb 2014.
Pentasa 3.5g daily, Vit D, Multivitamin, Vit B12, 500mcg Molybdenum
Gluten, Dairy and Sulfite free.

Neenaa
Regular Member


Date Joined Sep 2013
Total Posts : 118
   Posted 7/2/2016 9:54 AM (GMT -6)   
Hi Poppy and Charteux.

Just thought you might like to know that Methotrexate isn't a biologic, it's a disease-modifying antirheumatic drug -DMARD. Biologics are also DMARDs

Good luck with finding the right med for your condition. Kind regards, Neenaa.

CA-Lynn
Regular Member


Date Joined Jul 2016
Total Posts : 24
   Posted 7/7/2016 11:39 AM (GMT -6)   
Regarding MTX: It is a DMARD [though not a biologic] and the generic version can be as little as $5 with insurance.

It's an excellent starter drug, though biologics are really needed for the more aggressive forms of RA.
New Topic Post Reply Printable Version
Forum Information
Currently it is Friday, October 20, 2017 5:07 AM (GMT -6)
There are a total of 2,884,609 posts in 316,504 threads.
View Active Threads


Who's Online
This forum has 157629 registered members. Please welcome our newest member, Vermontguy.
238 Guest(s), 2 Registered Member(s) are currently online.  Details
Jerry L., HMerk


Follow HealingWell.com on Facebook  Follow HealingWell.com on Twitter  Follow HealingWell.com on Pinterest
Advertisement
Advertisement

©1996-2017 HealingWell.com LLC  All rights reserved.

Advertise | Privacy Policy & Disclaimer