Hello! New to RA.

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Stephen88
New Member


Date Joined Jul 2016
Total Posts : 1
   Posted 7/14/2016 2:59 PM (GMT -6)   
Hey everyone! I've been reading the forum all day and decided to post and just introduce myself. I am a 27 year old male and my GP believe's that I have RA. He has set me up with a rheumatologist and went ahead and prescribed me steroids and anti inflammatory drugs. I am very interested to see what the rheumatologist says and also what rout he will take to treat me. I'm nervous about the drugs as I have never had an illness before and have never taken regular meds before. Thanks for all of your knowledge that everyone has posted as it has been extremely helpful to me today.

- Stephen

celebrate life
Veteran Member


Date Joined Dec 2014
Total Posts : 2065
   Posted 7/14/2016 10:24 PM (GMT -6)   
Hello Stephen and welcome to the HW forum. You are very young to have to begin this journey, and perhaps there will be another explanation for your symptoms. Did your GP give you a blood test? What joints are afflicted?
I would guess the rheumatologist will give you further blood tests and possibly prescribe you plaquenil or methotrexate.
Both of these have the potential for side effects. Whatever he/she prescribes, you will want to ask about the possible side effects.
Best wishes and let us know how your visit goes.
Beth

Post Edited (celebrate life) : 7/14/2016 10:34:40 PM (GMT-6)


Don_D
Veteran Member


Date Joined May 2013
Total Posts : 548
   Posted 7/19/2016 10:17 PM (GMT -6)   
Welcome aboard Stephen. I was the same age as you when I was diagnosed with RA back in the 90's. My dad had it too and it runs in my family unfortunately.

I hope that your tests all come back negative but in the event that they don't this board is a great resource with many caring people with decades of experience with meds and other treatment options.

RA and treatment for it can be a pretty personal experience as some meds may work for me that don't for you etc and there doesn't seem to be a one size fits all approach. If you do have RA it is good they are catching it early. These days Doctors treat it very aggressively so that they can try to stop it from damaging your joints. This has worked very well for me over the years.

Do yourself a favor and start keeping a journal of your flare ups and other issues like fatigue and malaise. Short term memory can be affected by RA. Also, any questions you might have write them down for your Rheumy. They are hard to get in to see and the time with them seems to fly by especially when you have a lot of questions and feel overwhelmed. A good Rheumy makes all the difference with this disease in my experience.

Anytime you have questions fire them off here and someone will be along to try to answer them as well as possible. Take care.

-Don

Alice22
Veteran Member


Date Joined Jul 2015
Total Posts : 595
   Posted 7/29/2016 9:49 PM (GMT -6)   
Hi Stephen,
I just saw your post - welcome! If you do have RA I would try to educate myself as much as possible about the different drugs available. I doubt that your rheumatologist would keep you on steroids very long as they can have severe side effects, but for a short duration at a low dose with anti-inflammatories that should be ok. Many people here use biologics such as Enbrel, Humira or Remicade, but if your disease is mild your doctor will most likely recommend something else. Keep in touch and let us know how your appointment goes - good luck!
Diagnosed with ulcerative colitis in 2005 and rheumatoid arthritis in 1998. On Remicade since 2005 for both diseases. For UC tried sulfasalazine, Lialda, colazal and others which made me ill. Started 50 mg. Imuran July 2015. Use peppermint oil capsules and Bentyl which help during a flare and with IBS symptoms.

Caregiver for mother with Alzheimer's Disease (for Alz. forum).

BadDay
Forum Moderator


Date Joined Jan 2011
Total Posts : 1036
   Posted 7/30/2016 12:20 AM (GMT -6)   
Hi Stephen Glad you have found the site
I was also about your age when diagnosed and it dose throw you for a loop, altho I had been ill since teenage but on and off.
Don said it best keep a journal showing your symptoms good and bad, show fatigue joint pain stiffness Anything you feel is different put in the times they occur are they worse in mornings if so how long do they last etc and what seems to both hurt or help them
also write a list of your fears what you are worried about re medications or side effects

Take this with you to the Rheumatologist , one tip with your journal try to keep it in a list form so it isn't rambly like a letter this just makes it easier for the Rheumy to read and take in the fine points,
even if you have to keep 2 books one you write Everything in and the 2nd you take key points to take with you to Dr.

if it comes back as RA then first Don't Freak Out , I was told by a lovely GP at the beginning;
" You are now on a Long Journey it is a marathon Not a Sprint so Take it slow"

Ask your Doctor or Rheumatologist to refer you to ; Physiotherapist, Occupational therapist, and yes even a Psychologist or Councillor if you need to talk to someone it is no shame in that.
I found the OT to be my best contact in the early days (I've had RA now for about 30yrs) she made me hand splints to support my hands and supports for day time also knee braces and knives specially made for easy cutting she also showed me tricks to doing things that made life easier
There is a lot of help Sometimes Too Much and you can become overwhelmed so again Pace yourself
the Steroids and anti inflams should make you feel a little better in the meantime while you wait your appointment, a lot of Rheumatologists start people early on Biologics to try to get ahead of the RA as early treatment sees better results
once on treatment be sure you have regular blood screening to keep a look for any issues Don't be discouraged if you have side effects to certain drugs it can take a long time to find a drug that works for You,

I personally have not been able to take anti inflamitories or the biologics but have found a good mix with Methotrexate Arava and Prednisone this took Years to work out - well must admit i did hide my head in the sand and refused treatment for a few years after having a bad side effect from both a drug and had a Rheumy that I didn't feel comfortable with but as I ended up Very ill I had to relent and in doing so found Both a wonderful Rheumatologist and he worked out a good drug regime for me I am by no means well but at least I can get out of bed now and living a better life

oops sorry I did ramble didn't I rolleyes

I Really Wish you well and hope you will stay on the site let us know how you get on with your Rheumatologist visit
FORUM MODERATOR Rheumatoid Arthritis for 30Yrs. Asthma,Fibromyalgia,Osteoperosis,Cervical Spondalosos,Degenerative Disc Disese,Disc Bulges, Diabetes,Heart SVT & AF, Sleep apnoea,Nocturnal Respiratory Failure,Panic Attacks,Anxiety
on; Methotrexate , Arava , Endone, Targin 20mg (oxycontin) , Prednisone, Metforman(Diabex) , Tambocor. Oxygen & Cpap, Prolia Injection ,Lyrica

Post Edited (BadDay) : 7/30/2016 12:27:21 AM (GMT-6)


lilac7
Regular Member


Date Joined Nov 2013
Total Posts : 230
   Posted 8/3/2016 8:42 AM (GMT -6)   
Hi Stephen. I'm also a 27 year old and anxious about my join pain. I haven't been diagnosed yet since last time my tests came negative but I'm still skeptic. I do hope your tests come out negative and you don't have to go through it. But if they do come out positive, the first thing should be to educate yourself, as people are saying. One more thing that not every drug will suit you, so you'll have to be observant. And the rheumatologist should be good and understanding. Get started with the physiotherapist at the earliest as well. My mother has arthritis and recently it went so bad and we ended up with the physio because she had a frozen shoulder. So it's good to get started with them, it can really help with the mobility.
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