Hi there Tonya,
Whoa Lymes! Ouch. That's the road I went down as well. Was untreated for 10 years; went into chronic neuro Lyme; treated finally in 2001 but was left with RA, nerve disorders, seizure disorders and a lot of arthritic problems. So I definitely know where you're coming from.
So the sed rate is 25. sed rates range from 0-20mm/h and then for folks over 50 the range is 0-30mm/h. Sed rate is not a diagnostic of any particular disease, but rather is an indication that a disease process is ongoing and needs investigation. It's a good tool to follow inflammatory processes. It is VERY useful in diagnosing RA and polymyalgia rheumatica too.
With that said...you most likely have something going on here in terms of inflammatory disease.
What were your Lyme titers?
An elevated sed can indicate infection, thus the doc's thinking of Lymes.
An elevated sed can also show in:
Lupus, TB, Pelvic inflammatory disease, heart attack, pregnancy, nephritis, anemia, RA, gout, hypo and hyperthyroidism.
Also, certain drugs can cause an increase like: heparin, coumadin, birth control pills. Menstruation and having high cholesterol can also cause the sed to raise as well.
What tests did you have ruling out the RA??? Are you having joint problems?
Lymes disease, like any bacteria, over time causes arthritis if left untreated or mistreated. And the Lyme bacteria LOVES joints!!!!! That's where they spiral and drill their buggy way into!
It is possible to have chronic Lymes despite prior treatment.
The sed rate is worth your looking into and pursuing especially if you do not feel well. Have the ELISA, western blot and Lyme titers drawn. Better safe than sorry.
Also, I had wonderful results with a neurologist who not only treated my Lymes but also the arthritis too.
Lord only knows what diseases lead to another!
What type of doc do you see?
My best to you Prewitt. Please write back when you get time. I hope this was helpful to you. My heart goes out to anyone who's had to deal with Lymes. I contracted it when I was 13...but never was treated until 21! Also was Rheumatic Factor positive at the time too with joint pain and all whacky IgGs IgMs and all.