Post Edited (sweetpea66) : 11/21/2005 9:54:04 PM (GMT-7)
Welcome to Healing Well.. your story sounds oh so familiar! Do you have Psoriasis by any chance? The reason why I ask is 'cause your story sound a lot like mine, with the exception of the fact that I have psoriasis. I didn't have any type of arthritis until about 2 1/2 years ago. I was divorced, but going through a very bitter and ugly custody battle with my ex... I wore some shoes that cramped up my toes, and went to the dr. for it and was told it was a hammer toe... but then the pain got worse and spread to all my other toes... then it went into my ankles... knees... calf pain.. fingers... wrist... and back... I didn't realize they were all related, just thought I was falling apart! All my bloodwork showed negative for EVERYTHING... bone scans showed the hot spots in my joints, but that was all.. and MRI didn't show anything... It wasn't until I went to a rheumy and he asked me about my psoriasis that by process of elimination he said... "You have Psoriatic Arthritis!" And then he explained to me that all the pain I have been having was from the Arthritis... I was sooooo relieved!
There are other members here that have stories similar to yours also that have RA... and RA as well as PA...
Good luck to you and please keep posting with us, always nice to have a new "face"! Good luck to you and let us know how you are doing! - Duck
Hi Erin & Duck!
Thanks for your replies! I can't imagine life without these forum/chats to be able to discuss our health issues with others that are sharing same life experiences.
about my RA, I haven't yet spoke personally again with my Rheumy since his phone call on the results of the MRI, but I do want to ask him if he thinks it could be Psoriatic Arthritis because of the unexplained scalp lesions I have been battling with. I am now 39, but when I was just 17/18 yrs old I had a bad case on my forearms and fingers and was treated with a Kenolog cream and it cleared up within 6 months. I haven't had much luck with the scalp and I think they are related. My dermatologist I saw 2 yrs ago tried everything he could think of to help and no drug helped. He simply labeled it a dermatitus. When my Rheumy initially looked at it on my scalp in May he sent me back to my dermatologist for a skin biopsy to check for Lupus. Again, it was negative for Lupus and again labeled a dermatitus. So I will raise the question once again now that the results of MRI have been RA. Could you maybe tell me a little more about the Psoriatic Arthritis?
Also Erin, what was your experience on the Prednisone? I had a tough time at first. I experienced an "inside itching" under the skin and a burning feeling. I called the Pharmacist and they told me that it was a side effect and to try a baby asprin about a 1/2 hour before taking it. That seemed to help. I then forgot the asprin one day and never noticed the side effect again and so kept taking it without asprin. Now after 2 1/2 weeks I am occassionally feeling it again but not as bad. It has helped with the pain and since I have no prescription coverage it is an inexpensive drug to be on. $8.00 month for 1 10mg pill a day. I do take it with the ch/msm and that is probably helping too. What is Prednisone exactly? Steroid? I have read so much on all the drugs, my head is full of the FIBRO FOG these days and I can't keep it all straight. What really slows the joint damage down? What would the injections be for exactly? I am so scared of all of this. I want to be sure I can fully understand everthing I'm taking and the disease itself.
Post Edited (erin kachmar) : 11/25/2005 3:00:24 PM (GMT-7)
Self injecting is scary sure! Especially if you are not accostomed to needles. I gave hundreds of shots before I had to do myself...and it was still weird! But you get so confident after you do it yourself! It gets easier. The doc will most likely have your first shot done in the office. But it's totally normal to feel freaked out by it! Don't worry...we'll have a shootin' up party here for you the day you do your first! LOL
The adjunct med? Maybe he has in mind methotrexate or Arthrotec...but he'll figure that out, there are so many. You'll read in the pamphlet that these drugs work well when combined with methotrexate....but that does not mean you will have to absolutely go on it.
The doc appt's will be often. When you need them and typically every one to 3 months. Bloodwork maybe often too depending. Maybe every one to 3 months. Humira has an assistance program that provides you with the medication if you cannot afford it. I am on this program! I receive Humira at no cost. I do believe Enbrel has one as well, but I am not sure.
Both drugs have telephone R.N.'s to answer questions anytime.
I think you're doing great! Also, whatever med you choose, if you are not satisfied after say a year or 6 months...you can try the other one.
Stay positive....no pressure!....I feel you're in great hands! Your doc sounds great.
Oreo, you are right...I was so freaked out by the idea of self injecting into my abdomen; but when I went on Humira that was the area I chose...and it was great. I shoulda listened to ya way back when . LOL
Giving patients injections is a peice of cake...but when it comes to yourself, the best of the best probably get the jitters the first time.
It's a very good area to inject, I agree.