Ankle Fusion-"To fuse or not to fuse...that is the question!"

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Yaz008
New Member


Date Joined Nov 2005
Total Posts : 2
   Posted 11/26/2005 2:00 PM (GMT -7)   
I'm reposting this from another question that's had a lot of replys to it, so maybe this as a fresh question will get some play.
 
This looks like a good place to start. OK, here it is. I'm having ankle fusion surgery in January. Two 1/2 years of every conciveable treatment tried. Braces, boots, cast, meds, cortizone, 2 surgeries, Enbrel injections for 12 weeks, drained, looking for infection, even went to infectious disease doc looking for some weird strain of lyme disease. All treatments complete failures. Every single blood work came back stone cold normal. No gout, or any recognizable infection. However, the CT bone scan came back white hot in the ankle joint. It's swollen like a softball and feels freshly broken every day. 
 
 Just got back from seeing a hot shot surgeon in Charlotte who confirmed what my local doc said-- fusion is the only way left to go.
 
Now the questions-- is there any kind of alternative treatment I'm missing? Will this work? Can I get rid of my pain? I'm out of ideas. I need my life back. Thanks for letting me rant
 

Ducky
Veteran Member


Date Joined Mar 2005
Total Posts : 3199
   Posted 11/26/2005 7:18 PM (GMT -7)   
Hey Yaz008 - First of all, let me say welcome to Healing Well... 2nd off... wow... do you have a bunch going on with your ankle... I unfortunately do not have knowledge in this area...sorry.. BUT... there is one Miss Erin Kachmar that is a wonderful diagnostician that will be here shortly to share her wisdom with you and help you on your way... good luck to you and please, let us know what happens... best wishes to you - Duck
Diagnosed January 2005 - Psoriatic Arthritis/Spondylitis
-Currently taking 50mg shot weekly of Enbrel

Diagnosed May 1998 - Graves Disease
-Complete Thyroidectomy September 1998 - While 11 weeks pregnant

Other Complications - GERD/Scoliosis/Hiatal Hernia/Graves Disease of the Eyes
 
Current Meds -  Enbrel/Prevacid/Synthroid
 
Past Meds - Inderal/PTU/Prednisone/Voltaren/Feldene/Mobic/Cortisone and Steroid Shots


erin.K
Veteran Member


Date Joined Mar 2005
Total Posts : 3148
   Posted 11/28/2005 3:39 PM (GMT -7)   

Yaz,

I bumped up the ankle brace/fusion thread.  Hoping that someone going through the same thing will help out.

 

 


cbrossman
Regular Member


Date Joined Apr 2005
Total Posts : 191
   Posted 11/29/2005 12:26 PM (GMT -7)   
I have ankle issues, compounded by my RA, but definately created by years of basketball, turned and broken ankles, and recently mountain bike crashes. I've had reconstructive surgery on the left twice, once on the right. Mostly, they just removed floating chips, tightened up ligaments, and cleaned up bone spurs. I've been told by 2 orthopedists (sp?) that fusioin is probably in my future, but one recently told me that some docs are starting to do joint replacements in that area.

My understanding is that fusion is a last resort. It would hinder my biking and hiking, the only real benefit is pain relief. I won't do it until I can't take it anymore, and I can take a fair amount. Until I found out I had RA and started taking drugs that are hard on the liver, I would take lots of Advil. Now I take none. How about cortizone shots? That has helped my knees quite a bit during some recovery periods. What about some strengthening exercises, swimming, biking, ... stuff that will activate the joint w/o the pounding of running or even hiking.

For me, I'll try anything before I get the fusion, well almost anything. In my situation, it will drastically change my lifestyle!

I know Lance says "Pain is temporary, quitting lasts forever", but he has been cured, and probably has better Docs than we do ... Craig.

Ducky
Veteran Member


Date Joined Mar 2005
Total Posts : 3199
   Posted 11/29/2005 1:02 PM (GMT -7)   
Amen!
Diagnosed January 2005 - Psoriatic Arthritis/Spondylitis
-Currently taking 50mg shot weekly of Enbrel

Diagnosed May 1998 - Graves Disease
-Complete Thyroidectomy September 1998 - While 11 weeks pregnant

Other Complications - GERD/Scoliosis/Hiatal Hernia/Graves Disease of the Eyes
 
Current Meds -  Enbrel/Prevacid/Synthroid
 
Past Meds - Inderal/PTU/Prednisone/Voltaren/Feldene/Mobic/Cortisone and Steroid Shots


erin.K
Veteran Member


Date Joined Mar 2005
Total Posts : 3148
   Posted 12/27/2005 4:47 PM (GMT -7)   
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