Enbrel users opinions needed

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constantpain
Regular Member


Date Joined Mar 2013
Total Posts : 36
   Posted 9/9/2016 1:07 PM (GMT -6)   
I've had Rheumatoid Arthritis/Sjogrens for 3 years now. I first started slowly with Plaquenil for the first year and then added Sulfasalazine and now have been on that for a year. I still have pain and my Rf is normal now after being at 58. My CCP was at 250 and now 200. I still have pain and my toes are like splitting in half in the middle. My hands hurt and parts of me here and there. I have been approved for Enbrel through Safety net which they are sending me through the mail till January. I also have hep C and the Enbrel is now approved for this. I would like to have everyones thoughts that have been on Enbrel. Don D, I remember talking to you a while back and you were always so informed. I would love to have your opinion on this too please. Thanks for any input on this. I am hoping to get off Sulfalalazine and maybe the plaquenil to. What scares me most is that i will start it and then they will not let me renew next year, Please any advise, input, from any Enbrel users out there. Thanks

Alice22
Veteran Member


Date Joined Jul 2015
Total Posts : 595
   Posted 9/9/2016 10:44 PM (GMT -6)   
Hi,

I started using Enbrel in 1998 a few months after I was diagnosed with RA, until 2005, and it helped me immensely. I basically had no pain at all while on Enbrel although my RF had been over 300. My only problem was giving myself the shots, but somehow I managed and it was well worth it. I switched to remicade when I was diagnosed with ulcerative colitis - otherwise I'd probably still be using Enbrel. If you were approved I'd think you'd be able to get it next year too, but either way, I'd start it now if you can. Best wishes - I hope it helps you as much as it helped me.
Diagnosed with ulcerative colitis in 2005 and rheumatoid arthritis in 1998. On Remicade since 2005 for both diseases. For UC tried sulfasalazine, Lialda, colazal and others which made me ill. Started 50 mg. Imuran July 2015. Use peppermint oil capsules and Bentyl which help during a flare and with IBS symptoms.

Caregiver for mother with Alzheimer's Disease (for Alz. forum)

Don_D
Veteran Member


Date Joined May 2013
Total Posts : 548
   Posted 9/10/2016 4:12 PM (GMT -6)   
Hi CP,

I took Enbrel as well for 12 years and it worked incredibly well for me. Im glad to hear that you were approved that is great news :) In my experience I have never had insurance not renew an RX after approving it but I wouldn't worry about it honestly. Give it a try and see if it is going to work for you. I hope that your experience was like mine. I had a very profound improvement on it within the first week taking it. I was then able to stop my other RX over time and only take it. We all are different however and the immune system is unique and so complex we all seem to have different experiences with them.

I hope that it helps you too. I really felt like I had my life back on it.

Take care and God Bless. -Don

constantpain
Regular Member


Date Joined Mar 2013
Total Posts : 36
   Posted 9/22/2016 12:19 PM (GMT -6)   
Hi,Don, It wasnt the insurance company that approved me, it was the Enbrels site that approved me. It was approved till 2017 and they want me to get medicaid and i have been turned down for it. I am on disability and have medicare which dont pay for anything. Thats why I am so afraid to start and then have to stop in 3 months. So I dont know what to do except maybe stockpiling until next year to hear approval, Sounds crazy what we have to do to survive. Hope your doing better these days, CP.
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