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erin.K
Veteran Member


Date Joined Mar 2005
Total Posts : 3148
   Posted 11/29/2005 8:03 PM (GMT -7)   
Hey everybody,
 
Boy was this a disappointment.  Then again, knowing the system and how unfair it is...I'm not surprised.
Guess I have to appeal.  I just hope I can physically do it.  They say I can do it online.  I hope I get a hearing.
Basically because I'm not blind...I'm OK.
So there is this career out there somewhere where I can do from in my bed, for a few minutes a day when I'm able and earn a living & be insured??  Is this true??  If they can find that, I'll take it.  But I'm pretty sure that was made ILLEGAL a long time ago.  Ok, I have some humor...I must not be that depressed right now.
I know I'm not the only one that's been through this and that's what's getting me through right now.  So there will have to be a third time around.
I hate this and I really hate my body.
It's so much easier to be normal.
 
This too shall pass.
erin

Ducky
Veteran Member


Date Joined Mar 2005
Total Posts : 3199
   Posted 11/30/2005 7:22 AM (GMT -7)   
Hey Erin -
 
So sorry to hear this... I honestly just don't get it... what do we have to do to prove disability?  You're right, this too shall pass... you're stronger than you think, you'll be fine... Appeal, and if that doesn't work, appeal again... Didn't you talk to a Senator or something before?  Do you think that would help in this case? 
 
My heart goes out to you... Duck
Diagnosed January 2005 - Psoriatic Arthritis/Spondylitis
-Currently taking 50mg shot weekly of Enbrel

Diagnosed May 1998 - Graves Disease
-Complete Thyroidectomy September 1998 - While 11 weeks pregnant

Other Complications - GERD/Scoliosis/Hiatal Hernia/Graves Disease of the Eyes
 
Current Meds -  Enbrel/Prevacid/Synthroid
 
Past Meds - Inderal/PTU/Prednisone/Voltaren/Feldene/Mobic/Cortisone and Steroid Shots


CaMama
Veteran Member


Date Joined Mar 2005
Total Posts : 1884
   Posted 11/30/2005 8:16 PM (GMT -7)   

Oh geez, Erin!!! What is going on with those people! Get a lawyer...forget the appeal - get someone to do it for you! There are a ton of places you can find online.

I sent my 1st appeal at the beginning of the month and haven't heard a peep yet.....

My prayers are with you...I hope you get the support and help you need....I'm floored you did not get it this time around with all that you have been going through and diagnosed with since your last application!

**


 


oreo
Veteran Member


Date Joined Feb 2004
Total Posts : 528
   Posted 12/2/2005 8:58 AM (GMT -7)   
Erin, I am so sorry. I wish there was an easier way to get around this. Life is just not fair sometimes. I so wish that anyone who needed disability could get it without having to jump through hoops. If you could jump, why would you need it, right? :-) I will keep you in my prayers as you are going through this. I agree with Camama, get a lawyer to do the work for you. They might be able to find a loop hole that might get you qualified sooner then your personal appeal could.

Oreo
God will never give us more then we can handle, I just wish that God didn't trust me so much.
 
Remember healing comes one step at a time, sometimes it seems that its two steps forward and one step back, but ultimately, always in a forward direction!!!
 
Help HealingWell continue to help people.  Please donate today.  Every little bit helps.  To donate go to www.healingwell.com/donate
 


erin.K
Veteran Member


Date Joined Mar 2005
Total Posts : 3148
   Posted 12/2/2005 2:20 PM (GMT -7)   

Thanks Oreo, you're great.  You guys I feel have helped me most to get through that ordeal.

The appeal is being sent in the mail.  I should get it next week.  I know that there are lawyers who take no payment unless you get your claim settled.  I have to think about it.  I most likely will end up getting a lawyer...(perhaps it's time to call some peeps who owe me favors!)

Money is a major issue.  I was getting by OK for a while...but today, forget it...the Dr and transportation and meds set me back.  I want one of those pro bono lawyers!

One step at a time.  Doing my best to keep positive.

 

 


Ducky
Veteran Member


Date Joined Mar 2005
Total Posts : 3199
   Posted 12/2/2005 4:22 PM (GMT -7)   
There are lots of lawyers out there that can help you with no cost to you... you should at least call and see what your options are, you don't have to get one now, but at least have one on "retainer" so to speak. Let us know how it goes.... Duck
Diagnosed January 2005 - Psoriatic Arthritis/Spondylitis
-Currently taking 50mg shot weekly of Enbrel

Diagnosed May 1998 - Graves Disease
-Complete Thyroidectomy September 1998 - While 11 weeks pregnant

Other Complications - GERD/Scoliosis/Hiatal Hernia/Graves Disease of the Eyes
 
Current Meds -  Enbrel/Prevacid/Synthroid
 
Past Meds - Inderal/PTU/Prednisone/Voltaren/Feldene/Mobic/Cortisone and Steroid Shots


CaMama
Veteran Member


Date Joined Mar 2005
Total Posts : 1884
   Posted 12/2/2005 7:32 PM (GMT -7)   

I've seen on the internet that there are some out there that won't take a dime unless you win, then they take a percentage of your retro check. So, I would guess if they feel you don't have a chance - they won't take you in.....HOwever, erin, I can't imagine with your list of issues that they would even consider denying taking your case.

Thought and prayers and gentle hugs your way.

:-)
 


Boo
Veteran Member


Date Joined May 2004
Total Posts : 724
   Posted 12/4/2005 3:09 AM (GMT -7)   
yeah  ERIN, Get a Social Security Lawyer!  That's what I did after TWO denials.  It took me two years (counting from the time I started) but it was worth it.  She (lawyer) took a small percentage of my settlement, which was retro from the time I became disabled (about five years of monthly payments from the time I had to stop working at the hospital).  It can be done.  That's what some of these folks specialize in.  Get on the phone. 
I've been gone again and missing you guys.  Had "bunion surgery" on Nov. 23 but it turned into a joint replacement.  So much for simplicity, huh?  That's the neat thing about being "one of us", never a dull moment.  Life is full of surprises.  I'm blessed in that I was referred to one of the best podiatric surgeons in the state with a personality to boot!  I love him.  Even with an ugly "boot", stitches, and bandages the pain is gone.  Gone, tell you.  I forgot what it was like to walk and not scream at the same time.  I lost about a week of my life as I am about the cheapest date in town and it took forever for the Morphine to get out of my system.  Hubby had fun with my talking in my sleep and forgetting how I got from one room to another and why.  Heehee.  I'm still at home and not "babysitting" at the business.  Get my stitches out tomorrow.  My love to all,  Boo

Ducky
Veteran Member


Date Joined Mar 2005
Total Posts : 3199
   Posted 12/4/2005 8:17 AM (GMT -7)   
Oh Boo, my goodness. Glad to hear that you are feeling better! Good luck to you and let us know what the doc says tomorrow! - Duck
Diagnosed January 2005 - Psoriatic Arthritis/Spondylitis
-Currently taking 50mg shot weekly of Enbrel

Diagnosed May 1998 - Graves Disease
-Complete Thyroidectomy September 1998 - While 11 weeks pregnant

Other Complications - GERD/Scoliosis/Hiatal Hernia/Graves Disease of the Eyes
 
Current Meds -  Enbrel/Prevacid/Synthroid
 
Past Meds - Inderal/PTU/Prednisone/Voltaren/Feldene/Mobic/Cortisone and Steroid Shots


Boo
Veteran Member


Date Joined May 2004
Total Posts : 724
   Posted 12/4/2005 9:11 AM (GMT -7)   
Thanks, Ducky! I sure will. Boo

erin.K
Veteran Member


Date Joined Mar 2005
Total Posts : 3148
   Posted 12/4/2005 1:17 PM (GMT -7)   
smurf  hey Boo!  i'm glad you're recovering well.  hope it continues.  yep...never a dull moment.
thank you for your suggestion on the ss lawyer.  so far, i am going to fill out the appeal and new medical info (it really looks as if they just looked at JUNE! for all of my medical info!)  all the dates they refferred to were in June...what the heck?  yeah, and what about the rest of the past 5 years????????? confused    don't get it! confused
i'm going to talk with a good friend of mine who is in the life insurance business...he knows a lot about this stuff.
and if i need a lawyer & feel things are really not right, i will get one.
i just feel very discriminated against, every time they say...oh, your age/education/job training....blah blah BLEH!
thank you again for your thoughts.
erin

Ducky
Veteran Member


Date Joined Mar 2005
Total Posts : 3199
   Posted 12/4/2005 4:35 PM (GMT -7)   
Hey Erin, how was your weekend? Get to rest some and spend some good time with your honey?
Diagnosed January 2005 - Psoriatic Arthritis/Spondylitis
-Currently taking 50mg shot weekly of Enbrel

Diagnosed May 1998 - Graves Disease
-Complete Thyroidectomy September 1998 - While 11 weeks pregnant

Other Complications - GERD/Scoliosis/Hiatal Hernia/Graves Disease of the Eyes
 
Current Meds -  Enbrel/Prevacid/Synthroid
 
Past Meds - Inderal/PTU/Prednisone/Voltaren/Feldene/Mobic/Cortisone and Steroid Shots


Boo
Veteran Member


Date Joined May 2004
Total Posts : 724
   Posted 12/4/2005 9:19 PM (GMT -7)   
Erin, they're probably going to keep doing that to you because of those very reasons.  I would go ahead and talk to a SS lawyer.

deb in indiana
Regular Member


Date Joined Aug 2005
Total Posts : 387
   Posted 12/5/2005 9:01 AM (GMT -7)   
i got turned down the second time i appealed in aug. haven't heard any thing my son is going to law school and he says it takes time i even went to there dr and he couldn't believe i was taking 27 pills and inhalers a day for ddd,arthtritis,astma ,allergies,sugar b/p,ib,fm but iam hanging in there can't give up now DEB

erin.K
Veteran Member


Date Joined Mar 2005
Total Posts : 3148
   Posted 12/5/2005 9:17 AM (GMT -7)   

Thanks guys!

Nope, I won't give up.  This is my body and well being I'm fighting for.  Heck...I paid into  the system for over a decade....I did my best all these years while sick, and just can't do no more...at least not now.  I want nothing more than to be better in the future.

Am going to talk with some people this week when I see my appeal package & read it over.

What a terrible thing to go through and put people through when ill.

 


Ducky
Veteran Member


Date Joined Mar 2005
Total Posts : 3199
   Posted 12/5/2005 9:24 AM (GMT -7)   
Makes you wonder, what they would do if they were in your position huh?
Diagnosed January 2005 - Psoriatic Arthritis/Spondylitis
-Currently taking 50mg shot weekly of Enbrel

Diagnosed May 1998 - Graves Disease
-Complete Thyroidectomy September 1998 - While 11 weeks pregnant

Other Complications - GERD/Scoliosis/Hiatal Hernia/Graves Disease of the Eyes
 
Current Meds -  Enbrel/Prevacid/Synthroid
 
Past Meds - Inderal/PTU/Prednisone/Voltaren/Feldene/Mobic/Cortisone and Steroid Shots


oreo
Veteran Member


Date Joined Feb 2004
Total Posts : 528
   Posted 12/5/2005 7:56 PM (GMT -7)   
Boo, HUGS!!!!!!!!!!!!!!!!!!!!!!!!!!

Welcome back. I have been wondering how you are. It has been a while. So glad that your surgery went well and you are back up and on your feet. The saying is so true that when your feet hurt, you hurt all over. I remember being there and I will do everything I can to not go back to it. My empathies are with you. Will be praying for you as you continue to recover. It is so great to have you back with us.

(((HUGS)))
Oreo
God will never give us more then we can handle, I just wish that God didn't trust me so much.
 
Remember healing comes one step at a time, sometimes it seems that its two steps forward and one step back, but ultimately, always in a forward direction!!!
 
Help HealingWell continue to help people.  Please donate today.  Every little bit helps.  To donate go to www.healingwell.com/donate
 


Boo
Veteran Member


Date Joined May 2004
Total Posts : 724
   Posted 12/6/2005 6:33 AM (GMT -7)   
I am doing great! Got the stitches out yesterday and can drive now. Taking it slow though. Boo

oreo
Veteran Member


Date Joined Feb 2004
Total Posts : 528
   Posted 12/7/2005 9:14 AM (GMT -7)   
Glad to hear. Hope it continues to improve. Great to have you back with us.

Oreo
God will never give us more then we can handle, I just wish that God didn't trust me so much.
 
Remember healing comes one step at a time, sometimes it seems that its two steps forward and one step back, but ultimately, always in a forward direction!!!
 
Help HealingWell continue to help people.  Please donate today.  Every little bit helps.  To donate go to www.healingwell.com/donate
 


MainePam
Regular Member


Date Joined Jan 2005
Total Posts : 40
   Posted 12/9/2005 12:36 PM (GMT -7)   
My daughter has been turned down twice and she is in the process of getting "free" lawyer to handle the case. Do you have any free lawyers places there. We are in Maine and there is a place for low income people and they handle social security cases. I guess the lawyer has never lost any of the cases she has taken. But as you know it takes time. My daughter has already been severaL MONTHS AND THEY SAY ONE YEAR BEFORE BEFORE SHE EVEN GETS A COURT DATE. But after it is over she will have a big check !!!

Pam

Boo
Veteran Member


Date Joined May 2004
Total Posts : 724
   Posted 12/9/2005 12:56 PM (GMT -7)   
Pam, I didn't have a free lawyer although maybe there are some in your state.  My SS lawyer took a small percentage of the settlement.  Maybe Legal Aid does it for free.  Boo

erin.K
Veteran Member


Date Joined Mar 2005
Total Posts : 3148
   Posted 1/11/2006 4:20 AM (GMT -7)   
finished FINALLY filling out my appeal...out it goes today in the mail! good luck to me.

CaMama
Veteran Member


Date Joined Mar 2005
Total Posts : 1884
   Posted 1/11/2006 10:23 AM (GMT -7)   
Good luck.  I hope you get it and this is the last of it! You've been through and are going through way too much to not get assistance at this point. You really need and deserve it. Here's hoping for a speedy decision in your favor.
 
I need to call on my claim and make sure it didn't get dropped. My PCP didn't want to send in info wanting it to come from the Rhuemy, not her.  I finally got her to understand last week that both of them need to assist in my claim and she SAID she'd fax the stuff that day, but if she didn't for some reason, SDI said they were going to drop my claim if they didn't get her info by the 9th.
**


 

Post Edited (CaMama) : 1/11/2006 10:25:21 AM (GMT-7)


Rene'
Regular Member


Date Joined Dec 2005
Total Posts : 386
   Posted 1/11/2006 10:54 AM (GMT -7)   
Hi Erin,

I usually post on the Fibromyalgia board but I do have OsteoArthritis as well. I just wanted to let you know I have applied for SSD as well. I have been denied twice and am now waiting for a hearing date. I was told it can take 10-16 months for a hearing date. It has been exactly 10 months for me. I did write my Senator requesting a Congressional Intervention in my case. I just sent that off about two weeks ago so I haven't heard anything regarding that yet either. So that may be something for you to think about if it starts to take to long for your hearing date.

Good luck to both of us and everyone else applying for SSD.

Rene'

missie1227
Veteran Member


Date Joined Nov 2005
Total Posts : 751
   Posted 1/11/2006 9:17 PM (GMT -7)   
hi guys- you can win this!!. i was denied 3 times on paper, i live in fl.
this state is overwhelmed with cases so they have to farm them out to a out of state ALJ and i had to have a hearing by teleprompter. i got an atty after my 2 denial. they took the case and said we get max allowable by law 5300 from your case should you win it.
 
they wouldnt have taken it if i didnt have a good case.
i applied june 03, got the hearing jan 3 this year, got approved finally. they owe me 34 months pay back since they figured out i bacame disabled on the date of my crash 9- 02'
 
now i went to a rhuemy who says i got psoratic arthtirs and it is in the entire spine with end plate scerlrosis with each vertrebre, my docthinks i have AS
 
this is a very painful condition and it is crippling
i have yet to find any real pain relief except for glousamine chrondrotin with msm and norco.
my rhuemy did a complete blood panel and now lookingfor hla b 27
 
my brother has this also.
not a happy person right now. and really dont want to hear that i have AS either. anyone know how long for the disease takes to end stage for AK to envelope the spine?
 
thanks
failed neck surgery from T-bone crash was passenger and a drunk came out of a liquor store parking lot and hit us. neck fused at c-5-6-7 anterior and posterior. NS used my right hip bone to fuse my neck posterior and laminectomy, foraminotomy, anterior corpectomy (from c3-c7- a corpectomy is where they strip away the bone from the front vertrbre and put in donor cadaver bone, then two metal plates with 5 screws) posterior fusion with 6 more screws and two more metal plates that were put in too long for my neck and have to come out-NS goof up. left torn rotator cuff re-attached with two pins in shoulder, bilateral carpul tunnel, HNP T 7-8, 9-10- 11-12. HNP at L5-S1 and L2-3. mild chairi hindbrain herniation of 3mm. FMS, generalized seziure disorder from closed brain injury since my head hit the air bag at 45 mph and 3 cm  mass in brain from 'head tongs' they used to hold 'head' in place for the posterior fusion, depression/aniexty (wonder why) childhood incest survivor. Just only won ssi hearing after waiting 2.5 years and 3 denials. taking norco,  xanax, ambien, provigil etc. tried nearly every AD on the market with miserable side effects, awaiting blood tests by rhuemy doc to see if anything in my blood since i took 5 pints of blood with the posterior fusion-nerly died from that one.

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