hi warriors i would like your personal opion

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Jasflower
Regular Member


Date Joined Sep 2014
Total Posts : 165
   Posted 9/26/2016 3:21 PM (GMT -6)   
ive been seeing my dr since 2014 anr and my crp and sed rate fluctuate to normal then to high the highest its been is crp 7 and sed rate at 43.. she says i have fibro and something else is going on... the thing is is today she told me that she want to treat me with embrel.... but she says she has no evidence of really anything but that i keep complaining of chest wall pain and burning feeling nsaids do work for me and once in a while a medrol does pack will help but thats because i have cervicl neck problems wich causes some pain.....again she wants my insurance to pay for the embrel so she basicaly going to call it something... sero negative ankylosing sponylitis.. i was shocked im not scared its just that my gut tells me its not really that so i guess she just wants to treat the inflammtion i told her i would get back to her xrays show nothing either so i know you guys are not drs but do u guys the the inflammation numbers are high enough to jump to embrel i will get a second opinion,, thanks guys

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 9/26/2016 4:35 PM (GMT -6)   
Before going to such extremes I would get a second opinion.

Has she discussed using DMARDS on you? They are MTX, plaquinel, Avara, and cellcept.
Joy
Lupus, RA, Fibromyalgia, Glaucoma, Asthma, Hypothyriodism, Sleep Apnea, Depression, Allergies, diabetes, and benign familia tremors

When life throws you lemons....
Pick them up and throw them right back at them! :))

CA-Lynn
Regular Member


Date Joined Jul 2016
Total Posts : 24
   Posted 9/27/2016 5:26 PM (GMT -6)   
Has your rheumatologist [it IS a rheumatologist, right?] run an HLA-B27 blood test? 95% of all people with AS are positive. You said you have cervical neck pain and I HOPE someone has taken a good look at it, as it could be AS.

Biologic DMARDS, such as Enbrel and Humria, are widely used for AS. In fact, the biologics work better on the spine than do drugs like MTX,

I'm not sure if there was a communication problem with you and your doctor or whether the doctor is NOT a rheumatologist. A rheumatologist knows these things......or should.

Jasflower
Regular Member


Date Joined Sep 2014
Total Posts : 165
   Posted 9/27/2016 10:46 PM (GMT -6)   
Hi ... yes my dr is a rheumatologist and I kept asking her questions all she kept saying was that she done every test on me even tested me for that gene for the ankylosis spondylitis and that's also negative... my dr is supposed to be the best in my area I will be getting a second opinion only thing she has are my elevated inflammation and my complaints of chest wall pain on left side only and burning pain under my skin and elbows and leg always on the left side nothing really on the right side of my body ....
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