Wow, I hope that fire continues to burn their behinds. I'm glad you made it in, I'm sorry you had to be in such a rotten state - but if that's what it takes to get help, then so be it. I just hope you have enough energy for the weekend and see your man.
Good luck! I had very good luck with sulphasalazine...I hope you get the same. Will you stop the Humeria once you begin Remicade? It's too bad they can't start you on that NOW. I got amazing results 48 hours after my first infusion.
You guys are the best. Still feel drained, slept for 13 hours! Whoa! Yep, mustering up enough gusto to go to an Anniversary dinner tonite. He sounds better. So hearing my honey's voice sound happy again makes me feel better too. I did have to lie a little and say I feel good....but it's worth it.
I'm doing the Humira's weekly (or every few days) up till after the Holidays (he wants to wait till after new years to start the Remicade) ((so i don't have to worry about all that till after the holidays)).
Curley thank you...boy do you know it! Even like last night, couldn't enjoy my **** food cuz I couldn't cut it! It's just so so hard and EVERYTHING is an EVENT! I just really pray that with the larger doses of Humira, the new meds & starting REMICADE in january..that I will at least be able to get through a day "normally" or I'll take even "halfway normally". Been going on too long and I am SICK of it! I'm desperate and I'll take anything remotely better than right now, ya know?
Duck...I did shave my legs! Had to sit to do it!! But it was a good one! LOL.
Really had a nice time.
Enjoying the sunday.
Erin, I am so hopeful you will get relief from Remicade and can tolerate it long term. It worked wonders for me when I was on it - 48 hours from first infusion and was already showing signs of relief! I kid you not! Before I started it, I met a girl on it for Chrons and her life did a complete 180 for the better on it.
Curly, speak to your doctor about getting help/funding for your meds to apply to. They are out there. I know Remicade has a fund that helps out people w/no insurance and I thought the other 2 biologicals do as well.
Thank you so much Camama for the encouragement. It gives me a lot of faith to hear of people doing well on it. So I'm curious to hear what my rhuemmy & GI have discussed. No one called me back as of yet. I'll call wednesday if I hear nothing by then.
Taking the Humira every 4 days...ouchie! My tummy is getting a little bruised. Tomorrow I have a few things planned...so this will be a "test" to see how my joints and body hold up since being on more potent doses.
Here goes nothin'!
Oh Erin, you are too funny! May your spirit stay strong until you get the treatments you need to feel better. I love the butt crack comment, that is hilarious.
Take care. I hope you are well this Christmas weekend.