Visit with rheumy

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celebrate life
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Date Joined Dec 2014
Total Posts : 2064
   Posted 10/22/2016 12:59 AM (GMT -6)   
I finally got to see my rheumatologist today. The wait time here in NoCal was 6 months from the time I scheduled appt! He is literally the only rheumy that covers a span of over 100 miles, including some not so rural areas. I haven't seen him in over 5 years.
Anyway, we discussed tx options if the enbril peters out. I'm pretty well controlled with occasional flares and need cortisone shots in my knee a couple times a year. I was pleased to hear that from the time I was dx'd there were only 3 meds on the market that worked well, and now I have the option of two more tnf blockers and three other meds. Most are subq injections. Some are IV, and of course there is a pill now too.
We decided the next course of action was to do nothing new and not rock the boat, buy if I need to move on I can do it through my GP, and not have to wait another 6 months to see him again. He's a nice guy and very knowledgeable out of San Francisco. He travels to our remote locations, which I'm grateful for.

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Date Joined May 2013
Total Posts : 548
   Posted 10/23/2016 9:54 AM (GMT -6)   
That is awesome that he will travel and also work with your GP Beth. What a great Doc. Glad to hear that you are maintaining well and can stay the course. It's also so nice to have some options as well in case things change.
I think the only one I have not been on now is Rituxin and honestly I don't think I wish to take it because of the long shelf life and all the infections I get these days. Of course, I said that about Enbrel too decades ago.
Glad to hear that you were able to get in finally. It can be a real challenge seeing a doctor when you are living in a rural area for things like RA but it sounds like your GP is very good as well. My Aunt sees her GP and rarely goes to a Rheumy. I have considered doing the same once I am through with all the disability stuff. I prefer mine to my new Rheumy and her office staff anyway.

Take care, -Don

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Date Joined Jul 2015
Total Posts : 595
   Posted 10/23/2016 7:27 PM (GMT -6)   

I'm glad you finally got to see your doctor! I know you've been waiting a long time. It sounds like a smart decision to stay with the Enbrel if it's working pretty well for you. And it's nice there are other options in case you need to switch down the road.

OT - I didn't know any parts of No. Calif. were that rural, but what do I know, I'm across the country in SC. I guess the big cities must be near the coast, and southern Calif. is the more populated part of the state. I guess inland would be rural come to think about it. Forgive me, I am rambling! I was in Calif. years ago - it's a beautiful state but impossible to see everything in a short amount of time. All the best.

Diagnosed with ulcerative colitis in 2005 and rheumatoid arthritis in 1998. On Remicade since 2005 for both diseases. For UC tried sulfasalazine, Lialda, colazal and others which made me ill. Started 50 mg. Imuran July 2015. Use peppermint oil capsules and Bentyl which help during a flare and with IBS symptoms.

Caregiver for mother with Alzheimer's Disease (for Alz. forum)

celebrate life
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Date Joined Dec 2014
Total Posts : 2064
   Posted 10/24/2016 12:36 AM (GMT -6)   
Thank you Don and Alice for you thoughtful replies. I think of you often Don, and do hope that you find something that works without awful side effects.
Alice, we do live on the Coast. about 100 miles north of SF. Beautiful, but remote. Amazon prime is our friend smilewinkgrin
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