Had THE TALK today

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 11/8/2016 9:58 PM (GMT -6)   
Today my rheumatologist told me to consider going on a biologic.

Frankly, the thought of giving myself shots scares the daylights out of me. He said they could do the infusion with me, but that is worrisome to me too. I have a needle phobia.

I wonder if I can get a local doctor to just do the shots for me? I bring in the medicine and a nurse gives it to me. I can handle that better. I don't mind paying for someone to give me the shot.

What are your experiences with going on Humera or embril? confused
Joy
Lupus, RA, Fibromyalgia, Glaucoma, Asthma, Hypothyriodism, Sleep Apnea, Depression, Allergies, diabetes, and benign familia tremors

When life throws you lemons....
Pick them up and throw them right back at them! :))

Alice22
Veteran Member


Date Joined Jul 2015
Total Posts : 595
   Posted 11/9/2016 4:14 PM (GMT -6)   
Joy,

I am like you as far as needles go, and somehow I managed to give myself an Enbrel shot twice a week for 6 years. That was back in 1999 to 2005 and I think they've made it easier now. You can probably find a nurse to do it for you. It is well worth the trouble. So is getting an infusion. Remicade is super easy - no shots - just a little prick in your vein to receive the infusion. For me remicade has been easier than Enbrel but both are well worth it. I would give it a try - you can do it!

Alice
Diagnosed with ulcerative colitis in 2005 and rheumatoid arthritis in 1998. On Remicade since 2005 for both diseases. For UC tried sulfasalazine, Lialda, colazal and others which made me ill. Started 50 mg. Imuran July 2015. Use peppermint oil capsules and Bentyl which help during a flare and with IBS symptoms.

Caregiver for mother with Alzheimer's Disease (for Alz. forum)

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 11/9/2016 11:27 PM (GMT -6)   
I also was told the rheumatologist will not be accepting my insurance next year!

So I'm on the hunt for a new rheumatologist now.
Joy
Lupus, RA, Fibromyalgia, Glaucoma, Asthma, Hypothyriodism, Sleep Apnea, Depression, Allergies, diabetes, and benign familia tremors

When life throws you lemons....
Pick them up and throw them right back at them! :))

Don_D
Veteran Member


Date Joined May 2013
Total Posts : 548
   Posted 11/11/2016 7:21 PM (GMT -6)   
I don't think anyone has not been nervous about it but after a while you get used to it. A friend of ours kid was just diagnosed with RA and put on enbrel so she came over and I showed her how to self inject and she has been fine ever since. She's 14 so if she can do it I know you can too.

As far as a nurse doing it Im sure they will if you ask them too. Mine volunteered to do mine for me each week if I wanted but after showing me the first time I was good with it. Its just under the skin so it is really hard to screw it up.

As far as infusions go I would much rather take a weekly injection. Infusions last much longer and should you get sick you can skip your weekly shot versus an infusion which has a much longer shelf life to wear off.

wearyRAsufferer
Veteran Member


Date Joined Mar 2010
Total Posts : 2445
   Posted 11/12/2016 8:38 PM (GMT -6)   
Hey CT

I too am a needle phobe but I managed to give myself Humira shots a few years ago. I don't take them anymore because I didn't get the result I was looking for. (to feel pre-RA)
I picked Humira because the frequency was less often then Enbrel.
I had myself all worked up and I felt like you did- why can't I just go to the dr. and he can do it? I'll pay for the co-pay for an office visit-no problem. However that wasn't an option. He did give me the first one as a demonstration on what I had to do and when he pushed the button-it was all a big nothing! I was like- that's all it is? It's fast, and the way the "pen" is built you never see the needle.
Wishing you all the best.

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 11/13/2016 12:52 AM (GMT -6)   
I've been researching Humera and found out if you have a latex allergy to not use it. I'm allergic to bandaids and first aid tape.
Joy
Lupus, RA, Fibromyalgia, Glaucoma, Asthma, Hypothyriodism, Sleep Apnea, Depression, Allergies, diabetes, and benign familia tremors

When life throws you lemons....
Pick them up and throw them right back at them! :))

Don_D
Veteran Member


Date Joined May 2013
Total Posts : 548
   Posted 11/14/2016 1:00 AM (GMT -6)   
Wishing you the best CT. I hated the thought of it as well but I was so sick I would have done about anything to start feeling better. Pain can be a mighty big motivator. Hope you are doing well.

celebrate life
Veteran Member


Date Joined Dec 2014
Total Posts : 2065
   Posted 11/20/2016 12:09 AM (GMT -6)   
Hey Tater,
I've used both the pen and injection for humira and enbril. I have a latex allergy too, but the pen didn't bother me. It might just mean a little redness at injection site if your allergy is mild. I prefer the injection so I can control how fast to inject, but twice now I've accidentally dropped the syringe and the needle just snaps off and you're screwed.
I had better results from humira...like AMAZING results. I went from couldn't walk to: I can do anything except kneel. I run, jump, open ziplocks and jars, climb stairs and hike. Biologics gave back a normal life for over ten years now.
Good luck with whatever you choose.
Beth

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 11/22/2016 3:49 PM (GMT -6)   
I get blisters from bandaids and medical tape. They also take a layer of skin off when removed.

I'll have to discuss this with my new rheumatologist.

My hands and feet have been hurting something terrible for two days now. I finish a short round of predisone today.
Joy
Lupus, RA, Fibromyalgia, Glaucoma, Asthma, Hypothyriodism, Sleep Apnea, Depression, Allergies, diabetes, and benign familia tremors

When life throws you lemons....
Pick them up and throw them right back at them! :))

wearyRAsufferer
Veteran Member


Date Joined Mar 2010
Total Posts : 2445
   Posted 11/23/2016 10:27 PM (GMT -6)   
CT

I can understand your concern under the circumstances. Hope you can find an alternative.

BadDay
Forum Moderator


Date Joined Jan 2011
Total Posts : 1036
   Posted 11/25/2016 1:10 AM (GMT -6)   
Hi couchtater I would tell your Rheumatologist about your allergy they may be able to either put your mind to rest or find something else for you
if you do go ahead with Humira Remember I had that Bad reaction when I tried it So Keep a Watch on your Temperature and any sore throat Also Get Regular Blood tests done and be sure they are checked by your doctor
But also remember Many people use it with Great Results
as for the injections if you can't do it yourself your local doctor or their Nurse would be able to do it for you, or your community home care nurses
it is just a matter of shopping around
Try Not to Worry
FORUM MODERATOR Rheumatoid Arthritis for 30Yrs. Asthma,Fibromyalgia,Osteoperosis,Cervical Spondalosos,Degenerative Disc Disese,Disc Bulges, Diabetes,Heart SVT & AF, Sleep apnoea,Nocturnal Respiratory Failure,Panic Attacks,Anxiety
on; Methotrexate , Arava , Endone, Targin 20mg (oxycontin) , Prednisone, Metforman(Diabex) , Tambocor. Oxygen & Cpap, Prolia Injection ,Lyrica

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 11/25/2016 5:38 PM (GMT -6)   
Thanks, Bad Day.
Joy
Lupus, RA, Fibromyalgia, Glaucoma, Asthma, Hypothyriodism, Sleep Apnea, Depression, Allergies, diabetes, and benign familia tremors

When life throws you lemons....
Pick them up and throw them right back at them! :))

celebrate life
Veteran Member


Date Joined Dec 2014
Total Posts : 2065
   Posted 12/15/2016 2:38 AM (GMT -6)   
Hey Joy, I am curious if you decided to begin the humira regimen?
Beth

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 12/15/2016 10:02 PM (GMT -6)   
I'm in the middle of switching doctors so I'm going to wait until I talk to my new rheumatologist
Joy
Lupus, RA, Fibromyalgia, Glaucoma, Asthma, Hypothyriodism, Sleep Apnea, Depression, Allergies, diabetes, and benign familia tremors

When life throws you lemons....
Pick them up and throw them right back at them! :))
New Topic Post Reply Printable Version
Forum Information
Currently it is Wednesday, October 18, 2017 12:40 PM (GMT -6)
There are a total of 2,883,755 posts in 316,421 threads.
View Active Threads


Who's Online
This forum has 157553 registered members. Please welcome our newest member, Jones_bond.
445 Guest(s), 22 Registered Member(s) are currently online.  Details
alephnull, countingstarsx, JayMot, notsosicklygirl, carattop, Lapis_29, Witsend415, Casa11, Radi, island time, Pirouette, JNF, Turboz, chikinnooodle, 1000Daisies, getting by, Lynnwood, NKinney, kmclark1, Tim Tam, Jones_bond, Vgrantn


Follow HealingWell.com on Facebook  Follow HealingWell.com on Twitter  Follow HealingWell.com on Pinterest
Advertisement
Advertisement

©1996-2017 HealingWell.com LLC  All rights reserved.

Advertise | Privacy Policy & Disclaimer