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Lisabeans
Regular Member


Date Joined Jun 2015
Total Posts : 144
   Posted 1/17/2017 2:43 PM (GMT -6)   
Hope all is well. I usually post on the lupus forum but I do read here as well. I don't have a diagnosis at this point (2.5 years). I had a positive ana but all other blood tests were negative. I have massive joint and muscle pain and respond well to prednisone. I have been put on plaquanil with little relief. Then we tried sulfasalazine but my liver count went crazy high. Next was methotrexate which did not give me relief. Now we are trying Arava. Has anyone been on this? Any side effects? Just wish I knew what was wrong with me and have something that works. Thanks in advance.
Lisa
Ulcerative Colitis (remission) on lilada
Reflux on dexilant
Recently low positive ana and now on plaquinal

BadDay
Forum Moderator


Date Joined Jan 2011
Total Posts : 1036
   Posted 1/17/2017 6:17 PM (GMT -6)   
Hi it can be So frustrating going thru the diagnosis period and different medications I hope you find something soon
as for Arava I first tried it about 14 yrs ago and it Worked Wonders I felt great almost immediately But then my Liver Enzyme's went thru the roof so I had to stop it BUT then about 4 yrs ago I re-tried it and while I didn't get the same " I feel great" like I did the first time it has been working so I am able along with my many other pills - get thru the day. I Now have had No problems & my Liver Enzyme's have been normal

I take a combination of Methotrexate , Arava & Prednisone for the RA

So any advice I would say is try it & Keep a Close watch on your blood results and even if you do have an issue you can always try again latter
FORUM MODERATOR Rheumatoid Arthritis for 30Yrs. Asthma,Fibromyalgia,Osteoperosis,Cervical Spondalosos,Degenerative Disc Disese,Disc Bulges, Diabetes,Heart SVT & AF, Sleep apnoea,Nocturnal Respiratory Failure,Panic Attacks,Anxiety
on; Methotrexate , Arava , Endone, Targin 20mg (oxycontin) , Prednisone, Metforman(Diabex) , Tambocor. Oxygen & Cpap, Prolia Injection ,Lyrica

Lisabeans
Regular Member


Date Joined Jun 2015
Total Posts : 144
   Posted 1/18/2017 8:31 AM (GMT -6)   
Thanks. Since I don't have a diagnosis and do have ulcerative colitis (in remission) my rheumy only tries on medication at a time. I have always had a hard time with medications too. Just wish I knew what was really wrong with me. Glad the medicine works for you.
Lisa
Ulcerative Colitis (remission) on lilada
Reflux on dexilant
Recently low positive ana and now on plaquinal
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