Internal vibration sensation

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catsanddogs
New Member


Date Joined Feb 2017
Total Posts : 7
   Posted 2/15/2017 2:14 PM (GMT -6)   
Hello from England smile

I have Rheumatoid Arthritis and recently have been feeling a continuous internal vibration feeling and sometimes the feeling of electric shocks in my hands and feet.
I have had a blood test for thyroid , diabetes etc and an xray on my neck but nothing is wrong.
I am finding it hard to sleep at night .

Does anyone else suffer from this problem ?

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 2/16/2017 12:57 AM (GMT -6)   
Sounds like fibromyalgia. Check out the forum here and talk with them.
Joy
Lupus, RA, Fibromyalgia, Glaucoma, Asthma, Hypothyriodism, Sleep Apnea, Depression, Allergies, diabetes, and benign familia tremors

When life throws you lemons....
Pick them up and throw them right back at them! :))

catsanddogs
New Member


Date Joined Feb 2017
Total Posts : 7
   Posted 2/16/2017 4:40 AM (GMT -6)   
Thank you very much for your reply. I will try there

Alice22
Veteran Member


Date Joined Jul 2015
Total Posts : 595
   Posted 2/17/2017 10:50 AM (GMT -6)   
Hello and welcome!

Can you describe the sense of vibration in more detail, if possible? For example, what part of your body are you feeling it in - your heart, ears, head? Do you hear it as well as feel it? If you do hear it, what does it sound like? Do you have this sensation both in your home and elsewhere? When your head in on your pillow at night is it like a pulsing sensation in your ear?

What medications are you on, and did this start at soon as you began experiencing symptoms of RA?

Alice
Diagnosed with ulcerative colitis in 2005 and rheumatoid arthritis in 1998. On Remicade since 2005 for both diseases. For UC tried sulfasalazine, Lialda, colazal and others which made me ill. Started 50 mg. Imuran July 2015. Use peppermint oil capsules and Bentyl which help during a flare and with IBS symptoms.

Caregiver for mother with Alzheimer's Disease (for Alz. forum)

catsanddogs
New Member


Date Joined Feb 2017
Total Posts : 7
   Posted 2/21/2017 11:59 AM (GMT -6)   
Hi Alice,

Thanks for your reply.

The vibration is all over , from toe to my jaw. It's like the vibration when you sit in a car with the engine running , or if you put your hand on a fridge or your PC , it feels like that . It is not painful and nothing shows outwardly, no tremors. If I'm busy , I don't tend to notice it but it is still there.

I was diagnosed with RA in 1993 and Im now taking Enbrel and MTX ,

I have seen a RA consultant at the hospital and he thinks it is cervical myelopathy so they will do more nerve conductive tests and maybe an MRI .

Alice22
Veteran Member


Date Joined Jul 2015
Total Posts : 595
   Posted 2/21/2017 8:09 PM (GMT -6)   
I hope you get to the bottom of it. At first I wondered if it could be something environmental interfacing with something internal but it doesn't sound like it (I experience something along those lines which is why I asked so many questions). I wonder if any calming medications (ie, xanax, ativan) would curtail this sensation, or the heat of a hot shower or bath. I know that is not very scientific but it wouldn't hurt to try. In any case I hope your doctors can figure this out and you can find some relief soon.

Alice
Diagnosed with ulcerative colitis in 2005 and rheumatoid arthritis in 1998. On Remicade since 2005 for both diseases. For UC tried sulfasalazine, Lialda, colazal and others which made me ill. Started 50 mg. Imuran July 2015. Use peppermint oil capsules and Bentyl which help during a flare and with IBS symptoms.

Caregiver for mother with Alzheimer's Disease (for Alz. forum)

jeanneac
Veteran Member


Date Joined Feb 2009
Total Posts : 1877
   Posted 2/27/2017 7:06 PM (GMT -6)   
catsanddogs, I know what you are talking about! This happens to me just as I am waking up! It's usually in the upper body but sometimes it's the whole body. I have no idea what it is really but my rheumy also said it might be fibromyalgia. I don't know but I get it and sometimes it goes away. It's annoying. I have RA and Sjogrens.
Sjogrens syndrome 2/15 via lip biopsy:depression, fibromyalgia
colitis-resection 11/10, hashimoto's thyroiditis, morphea, GERD
Meds: plaquenil, synthroid, metformin, nexium, restasis, estrogen patch, prometrium, VSL #3, evening primrose oil, alpha lipoic acid.

catsanddogs
New Member


Date Joined Feb 2017
Total Posts : 7
   Posted 3/3/2017 3:55 AM (GMT -6)   
Hi Jean ,
Thanks for your reply. smile

It's good to hear from someone else who has this though I'm sorry you suffer from it .
I'm glad my Consultant is taking this seriously as its a strange thing and I was worried people would think I was making it up .

I have Sjogrens syndrome too . I take methotrexate and Enbrel .
I have not been diagnosed with fibromyalgia but I do have many of the symptoms.

Alison

jeanneac
Veteran Member


Date Joined Feb 2009
Total Posts : 1877
   Posted 3/3/2017 6:30 AM (GMT -6)   
some of our symptoms can get really strange and we have so many. It seems like there is rarely a day that something isn't wrong-sad That gets really frustrating! And it seems like auto immune diseases like the company of other auto immune diseases.
Sjogrens syndrome 2/15 via lip biopsy: Seronegative RA , fibromyalgia
colitis-resection 11/10, hashimoto's thyroiditis, morphea, GERD
Meds: plaquenil, synthroid, Januvia, nexium, restasis, estrogen patch, prometrium, VSL #3, evening primrose oil, Omega 3 supplement-Maxi Tears.

catsanddogs
New Member


Date Joined Feb 2017
Total Posts : 7
   Posted 3/4/2017 10:57 AM (GMT -6)   
We do seem to have a few autoimmune illnesses in our family!

I've managed to avoid the thyroid and diabetes issues so far though I have neurosensual hearing loss and tinnitus which I believe could be autoimmune too.

Glea
Regular Member


Date Joined Apr 2013
Total Posts : 101
   Posted 3/19/2017 9:32 PM (GMT -6)   
I have experienced this in the past! It's really uncontrollable. The first time it happened its was very uncomfortable and just strange! I freaked out! My rheumy told me it was fibro! It's really frustrating when you have so much going on and then a new pain or sensation comes up and makes you wonder sometimes if you're just loosing it! I really feel that once you get a diagnosis of any autoimmune disease, there's always something new to follow!
Just a day or two ago I started having that vibration hit me and the next thing you wa flare! Oh well you get use to it but it doesn't mean you can forget the pain much less the weird vibration.
Glea; )
Rheumatoid arthritis, carpal tunnel, IBS, osteoarthritis and herniated discs, secondary fibromyalgia

catsanddogs
New Member


Date Joined Feb 2017
Total Posts : 7
   Posted 3/25/2017 12:14 PM (GMT -6)   
Hi Glea,

I'm lucky that's it's not painful but it is very annoying at times especially at bed time .
If I keep busy I'm not always aware of it but I find that when I'm tired or ill , it's harder to cope with and I've had a few "make it stop moments" !
I'm seeing my rheumy at the beginning of May, he wrote a letter to my GP saying they may do an MRI scan .

I hope you are feeling better after your flare up . smile
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