Opinions Needed on Best Type Mattress for RA

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Alice22
Veteran Member


Date Joined Jul 2015
Total Posts : 595
   Posted 3/21/2017 10:02 AM (GMT -6)   
Hi,

I am in the process of researching beds to buy as my own bed is 14 years old and I think contributes to my nightly shoulder pain. I don't like the feel of the foam beds and am leaning toward a hybrid (innerspring + foam). The best rated one in stores is the Simmons Black Beautyrest but it's very expensive - over $3000. There are online stores that sell comparable high end mattresses for a fraction of that but I'm nervous about buying a bed I can't try out, even though they all seem to have a 100 day trial period. I always thought a slightly firm bed with a soft pillowtop would be the most comfortable, but have heard from a few sources that a soft mattress is better for pressure points (hips, shoulders). Does anyone have any thoughts or opinions on this? Thank you.

Alice
Diagnosed with ulcerative colitis in 2005 and rheumatoid arthritis in 1998. On Remicade since 2005 for both diseases. For UC tried sulfasalazine, Lialda, colazal and others which made me ill. Started 50 mg. Imuran July 2015. Use peppermint oil capsules and Bentyl which help during a flare and with IBS symptoms.

Caregiver for mother with Alzheimer's Disease (for Alz. forum)

Captaindd
Regular Member


Date Joined Nov 2015
Total Posts : 65
   Posted 3/21/2017 5:32 PM (GMT -6)   
I have a regular mattress that I have raised in the front to help with my problem with acid reflux. For my RA in both shoulders I sleep on my back with a pillow under each arm which helps out a bunch. I am not taking any meds for the RA. I have a fixed bike with handles that go back and forth that I ride for 30 minutes each day. I use hand grips and do 60 on each hand once a day. I do small dump bells 10 pounds 60 curles each arm once a day. Add the one that helps the best is I have a Gold Gym restain band device that installs on my bedroom door that I use to loose up my shoulders each night before I go to bed. The Gold Gym I got at Walmart seems to be the best thing I have found. I also put deep heating rub on the effected area.
10/9/06 PSA.05 11/04/2010 PSA 1.8 10/22/2013 PSA 4.1 3/03/2014 PSA 4.4
10/08/2014 PSA 5.9 VA 11/10/2014 PSA 7
11l20/2014 Started Gluten Free Diet Weight 268 Pounds
12/12/2014 Biopsies Parts 1,2,3,4,and 5 Benign Part 6 Positive 10% Gleason Score 3+3
3/32/2015 PSA 5.1 9/16/2015 PSA 9.0
9/17/2015 Stopped eating red meat,dairy, eggs,chicken,turkey 11/09/2015 PSA 10.5
12/18/2015 All Biopsies negative

Alice22
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Date Joined Jul 2015
Total Posts : 595
   Posted 3/21/2017 9:58 PM (GMT -6)   
Hi Captaindd,

That's great that you're able to do all that exercise and that it helps you. I would like to exercise but by the time I have time at the end of the day I'm too tired, and my exercise options are limited now. I do something similar with a pillow but I put my second, softer pillow halfway down on my regular pillow so that when I lay down the softer pillow is underneath my shoulders. That does help alot. The deep heating rub you use sounds like a good idea - I'll pick some up. Thanks!

Alice
Diagnosed with ulcerative colitis in 2005 and rheumatoid arthritis in 1998. On Remicade since 2005 for both diseases. For UC tried sulfasalazine, Lialda, colazal and others which made me ill. Started 50 mg. Imuran July 2015. Use peppermint oil capsules and Bentyl which help during a flare and with IBS symptoms.

Caregiver for mother with Alzheimer's Disease (for Alz. forum)

Don_D
Veteran Member


Date Joined May 2013
Total Posts : 548
   Posted 3/24/2017 8:43 AM (GMT -6)   
Hi Alice, I have a lot of shoulder pain especially at night and the only way I can sleep is sitting up unfortunately. So, we bought a really comfortable lift chair and I use it. It has been a lot better for me and I can usually sleep pretty well now. When I was still trying to sleep in a regular bed I found that a soft pillow type mattress for some reason was no good for me. I had to have a bunch of pillows that I could arrange around me and under my arms to get the pressure off of my shoulders and keep me from rolling onto them in my sleep.

All kinds of new normals with RA. Hope you find something that works for you. -Don

straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 15005
   Posted 3/24/2017 9:11 AM (GMT -6)   
Hi Alice, the mattress thing is what feels good to the person. I have a fairly new pillow top that is now on a guest bed upstairs. I tried it for 6 months & just could never get comfortable on it. I now sleep on a different type that is really firm but also has some give in it. I do not know the brand, lol. I can tell you it is very, very heavy & I do not have the energy this morning to go in there & take the sheets off of it to look. I slept in a recliner for several years & graduated back to the bed in the past month. When I change the sheets I will write it down & post it here.

The only way I would consider ordering something like this online is I would go to a store & try it out first. Then if you want to consider buying one you will know if you like it or not. I would do an online order if it would save me money.

Also, consider using moist heat, it is much better than dry heat. Good luck.
Susie
Moderator in Chronic Pain & Psoriasis Forums

Alice22
Veteran Member


Date Joined Jul 2015
Total Posts : 595
   Posted 3/25/2017 10:00 AM (GMT -6)   
Don - I'm glad you found a solution to being able to get a good night's sleep. Last night I slept about 4 hours; I just couldn't get comfortable and had to keep moving pillows around. What a pain. But thanks for your input.

Straydog - Thank you, too, for your suggestions and reply. I wonder if you have a Beautyrest - I tried them in the store and they are very heavy mattresses. The online stores don't have their beds in retail stores so unfortunately you can't try them out. But they are highly rated and have a good return policy but still, I'm just not comfortable buying a bed I can't try out.
Diagnosed with ulcerative colitis in 2005 and rheumatoid arthritis in 1998. On Remicade since 2005 for both diseases. For UC tried sulfasalazine, Lialda, colazal and others which made me ill. Started 50 mg. Imuran July 2015. Use peppermint oil capsules and Bentyl which help during a flare and with IBS symptoms.

Caregiver for mother with Alzheimer's Disease (for Alz. forum)

straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 15005
   Posted 3/25/2017 5:47 PM (GMT -6)   
Alice, no it is not a Beauty Rest that I know for sure, lol. In the morning I will pull the sheets off of the side & get the brand & post it here. When I looked them up a few years ago for a friend I had no idea the cost. Ours was bought at an outlet so we did not pay full price.

My husband is a large man, most mattress do not hold up to him very long at all. We were having them made for many years. I can tell you I love this bed & rest so well on it. I have a very bad back & neck & tons of arthritis. Most beds made me hurt worse & I would get sore laying on them, but not with this one.
Susie
Moderator in Chronic Pain & Psoriasis Forums

Alice22
Veteran Member


Date Joined Jul 2015
Total Posts : 595
   Posted 3/25/2017 8:33 PM (GMT -6)   
Susie, now I am curious to know what kind of bed you have! No rush, just when you see the label let me know.
Diagnosed with ulcerative colitis in 2005 and rheumatoid arthritis in 1998. On Remicade since 2005 for both diseases. For UC tried sulfasalazine, Lialda, colazal and others which made me ill. Started 50 mg. Imuran July 2015. Use peppermint oil capsules and Bentyl which help during a flare and with IBS symptoms.

Caregiver for mother with Alzheimer's Disease (for Alz. forum)

ks1905
Veteran Member


Date Joined Sep 2005
Total Posts : 4765
   Posted 4/4/2017 8:58 AM (GMT -6)   
I don't have RA but I recently had surgery to replace my hip, it's been uncomfortable for a few years to sleep. In January I bought one of those Purple Mattresses, www.onpurple.com OMG, it feels like you are floating on the mattress, no pressure points and your whole body is relaxed. I love it. I think it was $1,000 shipped to my house.

I had a Sterns and Foster mattress before this and it was ok, nothing special especially for the price they charge for it. My biggest complaint was that it slept really hot due to cushion top.

Check out the Youtube videos of the Purple Mattress egg challenge.

I did a lot of reading at www.sleepsherpa.com

I'm thinking of getting an adjustable bed frame next [Reverie 8Q], it has a massage feature, head & feet adjustments, zero gravity setting and an alarm clock that will gently adjust the bed to wake you in the morning.
Keith

DX'd with Severe Pancolitis June 2005
Previous Meds: 5ASAs, Predisone, 6-MP. Remicade, Humira, Simponi, Cimzia & Cyclosporine
3-step J-Pouch surgery: 2013 & 2014

Current Condition: Chronic Pouchitis -- Not as bad as I thought it would be
Current Meds: Stelara
Total Hip Replacement: 12/16 -- Thanks Prednisone!!!
www.healingwell.com/community/default.aspx?f=38&m=3755226

Captaindd
Regular Member


Date Joined Nov 2015
Total Posts : 65
   Posted 4/4/2017 10:03 AM (GMT -6)   
Alice I was reading on the Fibromyalgia forum that someone was taking Magnesium Malate for the pain that they where having. So I ordered some for my wife and I got some to try for my self. I have only been taking these capsules for about 3 days and here are the results. My the redness and swelling in my wifes feet has gone down by 50% and she can now more her toes. The swelling in her legs has also gone down. For me I have been sleeping really well. I am not waking up ever 3 hours because of shoulder pain. I fall a sleep real fast. I am still doing my daily exerises and will let you know if any thing else happens. In about 3 days I will taking off for a month or more to go fishing.
10/9/06 PSA.05 11/04/2010 PSA 1.8 10/22/2013 PSA 4.1 3/03/2014 PSA 4.4
10/08/2014 PSA 5.9 VA 11/10/2014 PSA 7
11l20/2014 Started Gluten Free Diet Weight 268 Pounds
12/12/2014 Biopsies Parts 1,2,3,4,and 5 Benign Part 6 Positive 10% Gleason Score 3+3
3/32/2015 PSA 5.1 9/16/2015 PSA 9.0
9/17/2015 Stopped eating red meat,dairy, eggs,chicken,turkey 11/09/2015 PSA 10.5
12/18/2015 All Biopsies negative

Alice22
Veteran Member


Date Joined Jul 2015
Total Posts : 595
   Posted 4/4/2017 11:29 AM (GMT -6)   
Keith - When I was doing my research I saw the purple bed but didn't look into it because there were so many online bed brands and at the time I was leaning toward a Saatva or Beautyrest. I ended up buying a different brand that was comfortable in the store but too firm when I got it delivered, so I bought a mattress topper and that is helping some. The salesperson said that new beds are always firmer because they aren't "broken in" - I hope he's right because without the mattress topper my bed is like a rock. But thanks for sharing your experience. I'm glad you found a good, comfortable bed, and I'll remember to look into the purple bed if my new bed doesn't get better with time.

Captaindd - That's great that the Magnesium has had such a positive effect for you and your wife! I take Magnesium Glycinate as I have gastrointestinal problems and that is easy on the gut, but I only take it twice a week in the morning. I will look into the kind you take and compare the two and maybe bump up my dose and take it in the evening. Thanks for the suggestion. I'm seeing an orthopedic surgeon about my shoulders next week and will mention that to him.

ks1905
Veteran Member


Date Joined Sep 2005
Total Posts : 4765
   Posted 4/4/2017 12:15 PM (GMT -6)   
Alice did they give you a moneyback guarantee if you didn't like the bed after a certain number of nights? If they did then you might want to take them up on the offer, it's horrible to sleep on a bad mattress.

Purple has a 100 night mattress, and it gets better after the first week.
Keith

DX'd with Severe Pancolitis June 2005
Previous Meds: 5ASAs, Predisone, 6-MP. Remicade, Humira, Simponi, Cimzia & Cyclosporine
3-step J-Pouch surgery: 2013 & 2014

Current Condition: Chronic Pouchitis -- Not as bad as I thought it would be
Current Meds: Stelara
Total Hip Replacement: 12/16 -- Thanks Prednisone!!!
www.healingwell.com/community/default.aspx?f=38&m=3755226

Alice22
Veteran Member


Date Joined Jul 2015
Total Posts : 595
   Posted 4/4/2017 3:30 PM (GMT -6)   
Keith - No, no "comfort" guarantee unfortunately, but a warranty for 10 years if the mattress sags more than an inch. The mattress topper helps alot, but I'm still waiting for that smell that eminates from foam to fully dissipate. It also makes me hot, so I hope at some point the bed softens up and I can ditch the mattress topper. If that doesn't happen I may have to invest in a latex mattress topper (doesn't create heat like foam does) or even go bed shopping again, in which case I will check out the purple bed. But I'm hoping it won't come to that.
Diagnosed with ulcerative colitis in 2005 and rheumatoid arthritis in 1998. On Remicade since 2005 for both diseases. For UC tried sulfasalazine, Lialda, colazal and others which made me ill. Started 50 mg. Imuran July 2015. Use peppermint oil capsules and Bentyl which help during a flare and with IBS symptoms.

Caregiver for mother with Alzheimer's Disease (for Alz. forum)

psbg
Regular Member


Date Joined May 2012
Total Posts : 280
   Posted 6/26/2017 2:40 AM (GMT -6)   
I had a canopy bed topper from
Walmart that I used for years. I couldn't wait to go to bed at night it was that comfy. When I went to replace it they no longer had that brand. But found one on eBay. Thank goodness. Best purchase ever. I read the reviews on purple. While so many loved it I had to read what the ones that didn't like it said. 1000 is a lot of money to me. I got years of comfort for 100. I'm happy. Lol. I hope you find what you need. Hugs
Peggy.
Rhuematoid Arthritis, degenerative joints, herniated disc's in back and neck. Changed from Cimzia to Orencia injections now off Orencia started Rituxan infusion as of May 2014, Plaquenil 400 mg daily, 20 mg. prednisone, hydrocodone for pain. And like most of you I fight with fatigue regularly...

Alice22
Veteran Member


Date Joined Jul 2015
Total Posts : 595
   Posted 6/26/2017 4:15 PM (GMT -6)   
Psbg - I've also found that mattress toppers can be a life saver. The day after my new bed was delivered and I slept on it one night (it was off the charts "firm") I went to Bed Bath and Beyond and bought a 2 inch mattress topper. That completely transformed my bed and now it's very comfortable, and the smell from the foam has dissipated. The only down side is that the bed was already high, and now it's two inches higher. I almost need a stool but I'm on the tall side so can just managed to get into bed on my own.
Diagnosed with ulcerative colitis in 2005 and rheumatoid arthritis in 1998. On Remicade since 2005 for both diseases. For UC tried sulfasalazine, Lialda, colazal and others which made me sick. Use peppermint oil capsules and Bentyl which help during a flare and with IBS symptoms, and turmeric, krill oil, and Methyl B12 daily. (Discontinued CoQ10 d/t terrible heartburn).
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