Next stop Retuxin.

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

Don_D
Veteran Member


Date Joined May 2013
Total Posts : 548
   Posted 8/8/2017 9:56 PM (GMT -6)   
Hi all, been a while since I've stopped by and I was thinking as much today when I was at my Rheumy appt and she mentioned getting my flu and pneumonia shots this fall. smile

At any rate, she wants to put me on Retuxin now after being on MTX and Actemra and seeing some decent results but nothing really to write home about.

So, I thought I would ask if anyone here is on it, how long and what kind of side effects, effectiveness etc?

I hope you all have had a decent summer and maybe some relief as well with the better weather it brings.

Take care, -Don

Don_D
Veteran Member


Date Joined May 2013
Total Posts : 548
   Posted 8/17/2017 6:51 PM (GMT -6)   
Wow nobody has taken Retuxin, not very confidence inspiring and I have been having a bunch of second thoughts on it anyway because it is so long acting with immune suppression.

I think I am going to tell her no. It just doesn't feel right to me.

celebrate life
Veteran Member


Date Joined Dec 2014
Total Posts : 2066
   Posted 8/17/2017 11:24 PM (GMT -6)   
Hi Don,
Let us know what you decide. I see a change of meds in !y future, but I can't pull the trigger either. Nothing inspires me to make the switch.
Beth

Scott007
Regular Member


Date Joined Apr 2017
Total Posts : 74
   Posted 8/19/2017 2:19 AM (GMT -6)   
Hi Don,

I only go on this forum now when I get a question from someone. I was answering someone today and saw your post. I have not read about Rituxin, but it is the world's fifth-best-selling pharmaceutical product! It is a biologic that targets B cells of the immune system.

Are you still taking the low dose potato starch as a dietary supplement? You could consider taking Molkosan alongside a higher dose of potato starch. Molkosan shifts the pH to the acidic side of neutrality. The problems that you experienced with higher dose potato starch may be due to the pH of your colon on the basic side of neutral, which allows bad bacteria to thrive. It is easy to determine - just get a pH measurement on your feces along with a test for fecal calprotectin for inflammation.

2rterri
New Member


Date Joined Oct 2017
Total Posts : 3
   Posted 10/6/2017 10:15 AM (GMT -6)   
Hi Don I am new to this forum. I just want to tell you to listen to your gut! I wish I did. I had 3 infusions of Rituxan in 2011. It did not work for my RA. But come to find out it completely wiped out my B cells. I kept having hospitalizations of upper respiratory infections that the drs could not get under control along with asthma complications. After several different hospitalizations ,my pulmonary dr wanted me to go to National Jewish Hospital to have a very thorough work up. Come to find out I had no B cells. This was 4 years later. And the drs asked me if I had Rituxan infusions as one of my treatments. Long story short I now have to receive IVIG infusions to replace my Igg levels to not get infections. This new treatment has worked for my upper respiratory infections but I still continue to have other infections monthly. So if you do decide to get the Rituxan infusion definitely ask your dr to check your igg levels prior , during and after your treatments. If I can help at least one person with my unfortunate experience it will make me feel better. Best of luck to you in your journey with R A.
New Topic Post Reply Printable Version
Forum Information
Currently it is Sunday, October 22, 2017 9:40 AM (GMT -6)
There are a total of 2,885,550 posts in 316,617 threads.
View Active Threads


Who's Online
This forum has 157728 registered members. Please welcome our newest member, Marzi.
369 Guest(s), 13 Registered Member(s) are currently online.  Details
imagardener2, Spoff, Lapis_29, Wishtobewell, KT233, Michael_T, Scaredy Cat, WalkingbyFaith, SydMar, garyi, Ashleyann82587, JkorourkeRN for husband, Lanie G


Follow HealingWell.com on Facebook  Follow HealingWell.com on Twitter  Follow HealingWell.com on Pinterest
Advertisement
Advertisement

©1996-2017 HealingWell.com LLC  All rights reserved.

Advertise | Privacy Policy & Disclaimer