Hair loss--biopsy confirmation, possible Methotrexate link.

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swami7774
New Member


Date Joined Nov 2016
Total Posts : 13
   Posted 8/16/2017 7:51 AM (GMT -6)   
I began my RA treatment last November, first by going on Prednisone, then Methotrexate. I was on and off the MTX due to occasionally elevated liver ATS numbers. I finally stopped taking MTX in early June.
Four weeks ago today my hair started falling out. Within 3 weeks it was almost completely gone. I have gone to the top hair loss people at Mass General. A scalp biopsy confirmed alopecia areata. The doctor thinks it could have been caused, or at least triggered, by MTX. Some of the hair is already growing back(slowly), and the doctor is trying two other methods (injection, and a cream) to stimulate it further.
Has anyone else had or heard of a similar situation? My RA doc advised at the start that MTX can cause "hair loss", but he didn't inform me how drastic it could be. Needless to say I am going to talk to him asap and consider a new RA doc. Incidentally, I was recently switche to Humira, which the dermatologist says may actually help stimulate hair growth.
Thanks for hearing me out.

Indu
New Member


Date Joined Aug 2017
Total Posts : 13
   Posted 8/16/2017 4:02 PM (GMT -6)   
Hello: thanks for sharing this update. It is so disappointing with RA that even doctors are at a loss about proper diagnosis, side effects and medication. My RA doctor recently asked me about which medication I'd like to switch to after MTX ...My reaction was -> Gee I don't know. You tell me, doctor smile

Well, let's look at the bright side, life is kind to us - if not at all times, then at least some times.

Hope Humira works out for you.

swami7774
New Member


Date Joined Nov 2016
Total Posts : 13
   Posted 8/16/2017 4:08 PM (GMT -6)   
I've had 2 Humira injections so far. Shoulders(where most of the RA pain was) feel great...but they've felt great for months.
I resisted going on Humira because I wasn't sure I still had RA. My rheumatologist retested me and said I do.
Going to see him tomorrow, BTW, to let him know about my hair loss. This may not be a pleasant conversation.
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