New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

deb in indiana
Regular Member


Date Joined Aug 2005
Total Posts : 387
   Posted 1/15/2006 5:26 PM (GMT -7)   
I was just wondering how you tell the difference of p/a and o a i have o/a and i need a knee replacement but hubby's insurance changed and the new dr says i am to young i will be 50 in may i had tests done and they came back normal for arthtris i have been going to pain dr for 6 years and iam on celerbrex,ultram'zanaflex,elavil my family dr gave me darvocet for break threw pain had a mri on spine and its bad also but my thumbs on right hand hurts all thetime and now the left one hurts  its bothering more then the knee and the pain dr said i need life time of injections  and he would just by pass me and send me to the dr that does injections but i filed ssd  and i had to go to ss dr and he was telling me how bad the injections are i have had 15 so far so i don't know what to do now the pain dr i feel doesn't want to see me any more i was seeing him every 3 months now he just writes meds for a year and i told him the meds aren't working but he wrote them for a year any ways i don't know if its cause i filed ssd or i told him how i really felt  that he isn't seeing me for a year instead 3 months now and the family dr that did bllood work says its normal i don't need a rumy dr now  so if you understand all this please help  i just not sure what to do now but my son is helping me with my ssd and he says i shouldn't change drs now in the middle ssd cause thanks deb

Ducky
Veteran Member


Date Joined Mar 2005
Total Posts : 3199
   Posted 1/15/2006 6:38 PM (GMT -7)   
Hey deb... PA is Psoriatic Arthritis, do you have psoriasis? PA is normally found in your toes, feet, fingers, hands, wrists and spine.. but can affect other areas also... Some of the sure fire signs of PA is 1) Psoriasis 2) dactylitis (which is the swelling of your fingers and toes so that they have a "sausage-like" appearance) and 3) nothing shows up in your bloodwork... You need to see a rheumy, if I were you I'd try and schedule an appointment... you don't have to give up your regular doc, just getting a specialists advice... good luck to you, let us know what happens - Duck
Diagnosed January 2005 - Psoriatic Arthritis/Spondylitis
-Currently taking 50mg shot weekly of Enbrel
Diagnosed May 1998 - Graves Disease
-Complete Thyroidectomy September 1998 - While 11 weeks pregnant
Other Complications - GERD/Scoliosis/Hiatal Hernia/Graves Disease of the Eyes
Current Meds -  Enbrel/Prevacid/Synthroid
Past Meds - Inderal/PTU/Prednisone/Voltaren/Feldene/Mobic/Cortisone and Steroid Shots


deb in indiana
Regular Member


Date Joined Aug 2005
Total Posts : 387
   Posted 1/15/2006 7:08 PM (GMT -7)   
Yes i do have psoriasis i will be 50 and i have had it since i was 23 my toes do have the sausage look and the two small toes have knotes on them and are real red all the time my other toes are getting knotes also i showed them to my pain dr and he said thats its from my back the two toes hurting all the time DEB                

missie1227
Veteran Member


Date Joined Nov 2005
Total Posts : 751
   Posted 1/15/2006 10:25 PM (GMT -7)   
hi deb- i have this also. i just  found out about this  in dec/jan but have had it for a long time, 3 years that i know of in my scalp/fingers.
same fingers with itchy rash then blisters up then peels off.
 
rash in the back of my head hairline, had for 3 yrs. php thought it  was fungal and treated me with anti fungals, selsin blue shampoos, and ketazonale shampoo, nothing took it away it is still there and now i went to  a rhuemy who looked at my fingernails, scalp etc and said i had PA.
 
gave me a tube of clobetasol creme to put on scalp, nothing takes it down.
9-02 crash w/ C-5-6-7 anterior/posterior fusion in neck w/11 screws and 4 metal plates. multilevel HNP at T & L section. FMS, PA/AS in dec 05. SSI approved after 2.5 yr wait. sezuires, CTS, etc. on norco, xanax etc.


Ducky
Veteran Member


Date Joined Mar 2005
Total Posts : 3199
   Posted 1/16/2006 7:29 AM (GMT -7)   

:-)  Morning Ladies -

Well, sounds like you guys have PA... welcome! :-) Deb, you said that your toes have a sausage like appearance, that is one of the key indicators of PA... I got this off of an arthritis website:

about 95% of those with psoriatic arthritis have swelling in joints outside the spine, and more than 80% of people with psoriatic arthritis have nail lesions. The course of psoriatic arthritis varies, with most doing reasonably well. Symptoms include:

  • Silver or grey scaly spots on the scalp, elbows, knees and/or lower end of the spine.
  • Pitting of fingernails/toenails
  • Pain and swelling in one or more joints
  • Swelling of fingers/toes that gives them a "sausage" appearance.

Go to this website:

Dactylitis Images

It's got pics of dactylitis, and see if this is similar to what your toes look like... also, do you have piting in your nails?  Looks like someone took a pin and tried poking holes in your nails?  confused   That is also a symptom. 

My pain started in my right 4th toe... then spread to all my toes on my rt foot... then spread to my left foot... both my wrists are affected as well as some of my fingers... My pain started in October of 2003, it wasn't until January 2005 that I was diagnosed with PA... It is now in my spine as well.. My rheumy put me on Enbrel in March of 2005.  since then I have done about a 160... not a complete 180 'cause I still have very bad days, but the good outweigh the bad now.  Since starting the Enbrel, I haven't had to taken any other type of meds for the pain.  I take temovate cream for some of the lesions.. but even those are minimal since I started Enbrel.  It has cleared up 95% of my psoriasis spots.  Talk to your rheumy... My doctors didn't know what was wrong with me, but when I asked them if I might have PA and should them all the stuff I had printed off of the internet, they said.. ."Well why didn't you tell us you had Psoriasis?"  Like I knew that a skin disease could cause arthritis! 

Missie, I posted a reply to you about what you could use for your scalp, try Pentrax shampoo.  You can get it at most drugstores, it is pricey though.  Sometimes you can get it prescribed to you.  Around here (I live in Charleston, SC) it is anywhere from $15 - $17 a bottle.  But the bottle will last a while as long as you only use it for your scalp and use your regular shampoo for the rest of your hair.  When I first started using it, my doc even said to apply it to my scalp before I went to bed, and wrap my head in saran wrap to let it soak in, then wash it out in the morning... I never did that, didn't want to mess up my sheets, and it smells just like tar... eyes I didn't want to subject my hubby to that!

Good luck to you guys, please let us know what you decide and what the latest developments are - Duck


Diagnosed January 2005 - Psoriatic Arthritis/Spondylitis
-Currently taking 50mg shot weekly of Enbrel
Diagnosed May 1998 - Graves Disease
-Complete Thyroidectomy September 1998 - While 11 weeks pregnant
Other Complications - GERD/Scoliosis/Hiatal Hernia/Graves Disease of the Eyes
Current Meds -  Enbrel/Prevacid/Synthroid
Past Meds - Inderal/PTU/Prednisone/Voltaren/Feldene/Mobic/Cortisone and Steroid Shots


deb in indiana
Regular Member


Date Joined Aug 2005
Total Posts : 387
   Posted 1/16/2006 10:41 AM (GMT -7)   
Thank you so much i wonder know if i was missed treeted the pain dr said i had fm,ddd,o arthtris but he knew about the psoriasis also then 4 ortho drs said i had o/arthtris maybe i have both then i wonder if the knee replacement would even work with the p/a mine toes do look like the ones in the pictures but not ias  bad i use dovonex cream on the lesions i have them on the arms knees  and thighs but out all my family i am the only one that has it iam just glad my kids don't have it yet take care and thank you guys i don't post much but i read daily DEB

Ducky
Veteran Member


Date Joined Mar 2005
Total Posts : 3199
   Posted 1/16/2006 2:24 PM (GMT -7)   
Have you been seen by a rheumy? It wasn't until I saw an actual rheumatologist that I was diagnosed with PA... since you have the dactylitis, I am willing to bet you have PA... see if you can get a referrel to a rheumy, good luck to you, let us know what happens - Duck
Diagnosed January 2005 - Psoriatic Arthritis/Spondylitis
-Currently taking 50mg shot weekly of Enbrel
Diagnosed May 1998 - Graves Disease
-Complete Thyroidectomy September 1998 - While 11 weeks pregnant
Other Complications - GERD/Scoliosis/Hiatal Hernia/Graves Disease of the Eyes
Current Meds -  Enbrel/Prevacid/Synthroid
Past Meds - Inderal/PTU/Prednisone/Voltaren/Feldene/Mobic/Cortisone and Steroid Shots


erin.K
Veteran Member


Date Joined Mar 2005
Total Posts : 3148
   Posted 1/16/2006 2:47 PM (GMT -7)   
hey Ducky!
great images & fantastic duty with the responses!  !!Brava!!
i'm learning so much myself about PA.
seems like the PA gang is growing! glad it's your forte.
what a complicated diagnosing process.
  :-)   erin

missie1227
Veteran Member


Date Joined Nov 2005
Total Posts : 751
   Posted 1/16/2006 9:38 PM (GMT -7)   
hi thanks for the heads up on the tar shampoo pentax- i went to walmart and bought a generic of it for 4.00
 
hopefully it will help some..... i am going to use it after i am donewith my 2 weeks on the colbetosal..so far this has not helped one iota.....
 
my php doesnt know what to do with me anymore and says let the rhuemy help you now...they have thrown up their hands in the air with me....
9-02 crash w/ C-5-6-7 anterior/posterior fusion in neck w/11 screws and 4 metal plates. multilevel HNP at T & L section. FMS, PA/AS in dec 05. SSI approved after 2.5 yr wait. sezuires, CTS, etc. on norco, xanax etc.


erin.K
Veteran Member


Date Joined Mar 2005
Total Posts : 3148
   Posted 1/17/2006 10:49 AM (GMT -7)   
hi missie,
 
i sure can empathize with you regarding "they've thrown their hands up in the air".  my feelings are, that when a patient is not "textbook" doctors tend to get lazy.
i've been brushed off, been refused to be seen, given up on, handed over to someone else as well.  my PCP, he looks at me a sighs & says "i wish i knew what to do to fix you!"
i'm in NJ and been through a slew a docs...basically because i'm 24!  and for some strange reason around here, if you are younger than 70 and have an arthritic problem or chronic disease...docs don't know how the heck to handle ya! 
i guess i live in a very geriatric city!
and when a person has multiple complications, it confuses Drs even more.
i've been told..."people like you are reasons we regret going to med school."
BELIEVE THAT??!!
so that's proof for ya!
if you're a tough case, keep looking and asking around for suggestions on where to move onto next.  i've bluntly come out & ask doctors now that if they DO NOT KNOW HOW TO TREAT ME....can you suggest to me someone who might?
there are a lot of innovative doctors out there with excellent minds, who don't mind taking on the harder of cases.
so don't give up!
New Topic Post Reply Printable Version
Forum Information
Currently it is Saturday, December 10, 2016 3:49 AM (GMT -7)
There are a total of 2,735,789 posts in 301,336 threads.
View Active Threads


Who's Online
This forum has 151436 registered members. Please welcome our newest member, george252.
157 Guest(s), 1 Registered Member(s) are currently online.  Details
UC prisoner


Follow HealingWell.com on Facebook  Follow HealingWell.com on Twitter  Follow HealingWell.com on Pinterest
Advertisement
Advertisement

©1996-2016 HealingWell.com LLC  All rights reserved.

Advertise | Privacy Policy & Disclaimer