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erin.K
Veteran Member


Date Joined Mar 2005
Total Posts : 3148
   Posted 1/24/2006 7:00 PM (GMT -7)   
Hey all,
 
Just wondering if anyone has had any experience or was ever RX'd or offered a pain medication, Nubain?  It's a morphine type pain medication given IM, SC or IV.  It's successful in treating chronic pain and also RA pain.  Unlike morphine, it's supposed to be better in that it doesn't have the CNS depression and withdrawel risk.
 
Figured I would ask.  I called a pain management doc today.  My GI referred him to me.  But when he called me back, he said his thing is really epidurals, nerve blocks and injections and kind of just spine and disc stuff.  He's not an oral RX pain med type of doc.  Which was totally cool because @ least he was honest and didn't waste my time or money.  So he gave me some advise & suggested some pain medications my PCP can RX.
 
Ugh, so I guess my PCP has to be my pain management doc!
That means I have to do my homework and pick a med! (He basically will just ask,"well what do you want?") argh!!!  I was really looking for a pain doc who was like...GOOD! :-)   and up on the newest and innovated stuff.
So......
 
Can't take any COx2's or NSAIDs
No ultracets or ultrams or toradol/tramadol.
Darvocet ...I'm tolerant to now.
Dilaudid @ 4mg is just OK....too short acting.
Percocet 5-325mg APAP is alright.
 
Any others  should think about?
Thanks so much.
Erin
Active, Severe RA. Crohns Disease. Chiari Malformation & Right Brain venous anomoly. Emphysema. Rheumatic Lung. MVP and Tricuspid prolapse. Had Lymes disease for 10 years.
Meds: Humira 40mg every 4 days; pred; Pentasa; Imuran; dilaudid; diazepam & too many others.


Ducky
Veteran Member


Date Joined Mar 2005
Total Posts : 3199
   Posted 1/25/2006 8:03 AM (GMT -7)   
Why didn't the pain management doc refer you to someone else? This way your PCP wouldn't have to prescribe you any? It would be nice for you to see a separate doc for pain management, I don't understand why they don't get that... Sorry Erin, I feel your frustration...
Diagnosed January 2005 - Psoriatic Arthritis/Spondylitis
-Currently taking 50mg shot weekly of Enbrel
Diagnosed May 1998 - Graves Disease
-Complete Thyroidectomy September 1998 - While 11 weeks pregnant
Other Complications - GERD/Scoliosis/Hiatal Hernia/Graves Disease of the Eyes
Current Meds -  Enbrel/Prevacid/Synthroid
Past Meds - Inderal/PTU/Prednisone/Voltaren/Feldene/Mobic/Cortisone and Steroid Shots


erin.K
Veteran Member


Date Joined Mar 2005
Total Posts : 3148
   Posted 1/25/2006 12:54 PM (GMT -7)   
confused  uh....good question.  i don't know?  & i suppose i went "phone stupid" when speaking with the pain doc and didn't ask him for another name.  but perhaps he's right.  if that's what "he" would RX....perhaps i should just go to my PCP until i find someone else?
then again, i can always tell my GI what happenned & he can ramble off the rest of the names he mentioned to me....maybe the others are more geared towards what i'm looking for and better suit my condition.
here we go AGAIN! eyes
Active, Severe RA. Crohns Disease. Chiari Malformation & Right Brain venous anomoly. Emphysema. Rheumatic Lung. MVP and Tricuspid prolapse. Had Lymes disease for 10 years.
Meds: Humira 40mg every 4 days; pred; Pentasa; Imuran; dilaudid; diazepam & too many others.


Ducky
Veteran Member


Date Joined Mar 2005
Total Posts : 3199
   Posted 1/25/2006 5:34 PM (GMT -7)   
If it ain't one thing, it's another... :(
Diagnosed January 2005 - Psoriatic Arthritis/Spondylitis
-Currently taking 50mg shot weekly of Enbrel
Diagnosed May 1998 - Graves Disease
-Complete Thyroidectomy September 1998 - While 11 weeks pregnant
Other Complications - GERD/Scoliosis/Hiatal Hernia/Graves Disease of the Eyes
Current Meds -  Enbrel/Prevacid/Synthroid
Past Meds - Inderal/PTU/Prednisone/Voltaren/Feldene/Mobic/Cortisone and Steroid Shots


elcamino
Veteran Member


Date Joined Sep 2005
Total Posts : 1744
   Posted 1/26/2006 5:42 AM (GMT -7)   

Hi Erin,

Just curious--why can't you take ultracet?  I'm currently taking that because I can't take any of the NSAIDS either, including the Cox-II inhibitors.  Ultracet works well for me, although my pain is probably nothing like your pain.

Elcamino


erin.K
Veteran Member


Date Joined Mar 2005
Total Posts : 3148
   Posted 1/26/2006 10:50 AM (GMT -7)   

Goodmorning elcamino & thanks for checking in on my inquiry!

Regarding the Ultracets: I was taking them back in 2002 for joint pain. They really did nothing for the pain and on top, they made me very dizzy but even worse...they made me hurl! Oh I would vomit sometimes 3 or 4 times a day and every time I would get in a car too, carsick. 

Ultracets and Ultram have tramadol in it....something I'm allergic to or just cannot tolerate; don't know which but they make me puke nonetheless.

But for pain...they really didn't help me.  Over the past 6 years Darvocet, morphine, percocet, dialuadid and ugh....prednisone, have been the only medications that can get a grip on the RA joint pain.  It gets that bad.  Sometimes ER bad.

So I'm on a little quest to find a system that works.  Right now I'm just taking dialuadid 4mg when needed, but they're very short acting.

Thanks for your concern. If ya think of anything let me know!

Have a good day.

erin  


Active, Severe RA. Crohns Disease. Chiari Malformation & Right Brain venous anomoly. Emphysema. Rheumatic Lung. MVP and Tricuspid prolapse. Had Lymes disease for 10 years.
Meds: Humira 40mg every 4 days; pred; Pentasa; Imuran; dilaudid; diazepam & too many others.


Flopsie
Veteran Member


Date Joined Jun 2005
Total Posts : 1361
   Posted 1/26/2006 10:57 AM (GMT -7)   

Erin, Hi Sweetie,

Oh so sorry to hear you are still having so much pain. Just wanted to tell you, my sis takes Nubain SC, works very well for her..but as you know, we are all different.

Also, I know you are on some monster drugs, but have you ever though about Toradol, IM, for the breakthrough pain. It works great for post-op patients, sometimes called the wonder drug. Doc could RX it for you and you could give it to yourself, in the thigh, or teach mom to do it.

Feel better.


erin.K
Veteran Member


Date Joined Mar 2005
Total Posts : 3148
   Posted 1/26/2006 5:38 PM (GMT -7)   
Flopsie! thank you so very much for taking the time to write back.  mmmm, i wish i could use Toradol...but like i listed on my NO NO meds nono i can't take Toradol.  was given Toradol IV push and also IM on 3 occassions @ the ER and all times my throat closed & tongue swelled. so it's safe to say i shouldn't & REALLY wouldn't wanna try it again!
ah, thanks for the Nubain info.  I'll bring it up @ my next appt. 
@ the point where i think my best bet is to go on Oxycontin XR and perhaps stick with the dilaudid as a breakthrough med.
you're right...in the hospital Toradol is the "gee this is nice" shot!  tongue   i've given it a few times...very popular in the ER. 
with your sis...did the Nubain  get Rx'd from her PCP or from a pain doc?
luv ya
erin
Active, Severe RA. Crohns Disease. Chiari Malformation & Right Brain venous anomoly. Emphysema. Rheumatic Lung. MVP and Tricuspid prolapse. Had Lymes disease for 10 years.
Meds: Humira 40mg every 4 days; pred; Pentasa; Imuran; dilaudid; diazepam & too many others.


elcamino
Veteran Member


Date Joined Sep 2005
Total Posts : 1744
   Posted 1/27/2006 6:00 AM (GMT -7)   

Ultracet made me dizzy and nauseous too, the first time I took it.  It took me several weeks to try it again, but the first time I took it, I took a double dose (because that's what the directions instructed me to do).  When I took it again, I only took 1 in the morning, and it got me through the morning.  Yeah, it wore off, but I know what you mean by dizzy and sick, so I will only allow myself to take one.  I've also had toradol injections-had no reactions to it and it worked well.  Don't know much about nubain, but I have heard of it.  The Humira and imuran is not relieving any of your joint pains?   I know that you're getting ready to start remicade; hopefully that will do the trick.  Personally, I feel that one shouldn't have to take pain meds if they're taking the heavy duty arthritis/IBD drugs.  Until I no longer need to take the ultracet, I will not consider Humira effective.

Good luck in finding something,

Elcamino


erin.K
Veteran Member


Date Joined Mar 2005
Total Posts : 3148
   Posted 1/27/2006 6:01 PM (GMT -7)   

i know what you mean elcamino.  personally, i feel the same way!  i'm on TNF & Imuran and pred....shouldn't that be ALL?  but it's not the case.  i never thought i would be having to take pain meds myself!  sometimes i think that if i was treated for the RA when it first showed up in my bloodwork (@ 16 y/o) and the joint pain was almost nill & Advil was enough...that i wouldn't be like how i am today.

honestly, Enbrel & Humira in my own feelings, have not helped with the major joint pain enough to not be on pain medication.  the TNF's have helped me the most regarding RA related fatigue, less severe hip pain and the AS back pain. (but...when in a CD flare, here comes major back pain!)  

many nurses though, who i've spoken with & who have helped me through this...they've never known of severe arthritics even while on arthritis meds, to NOT have pain meds.  everyone's different i suppose.  all cases range in severety.

i'm at the point that i'll do or take anything to just be able to get back to work!

thanks elcamino...hang in there!....have a good night.

erin


Active, Severe RA. Crohns Disease. Chiari Malformation & Right Brain venous anomoly. Emphysema. Rheumatic Lung. MVP and Tricuspid prolapse. Had Lymes disease for 10 years.
Meds: Humira 40mg every 4 days; pred; Pentasa; Imuran; dilaudid; diazepam & too many others.

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