RA really makes me mad

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cbrossman
Regular Member


Date Joined Apr 2005
Total Posts : 191
   Posted 1/26/2006 5:59 PM (GMT -7)   
I wanted to title it slightly different, but decorum got the best of me.

As most of you know, I've been feeling pretty darn good for almost a year now. When I first got RA, it came on slowly, until one memorable weekend when all heck broke loose. Then I was diagnosed, started MTX and later Enbrel as well, and slowly I started feeling better. During the summer I was feeling great, and riding tons of miles.
In October, the doc and I decided to reduce my MTX amounts by 40%. Maybe that was a bad idea, because over the past 4 weeks I've been sliding backwards. Wrists, hands and elbows are feeling RAish, my energy level is lower, and my mental state of mind is taking a hit, and it has been getting worse over that period of time.
This is a sneaky, insidious disease, and I'm learning you can't let your gaurd down. I got cocky, I thought I had it beat ... I guess I was wrong.
I see the doc next week, I suspect we'll increase the MTX shot. And I'll have to be patient, I don't usually go to crap overnight, nor do I reverse the direction with any speed.

I kicked its butt once, so I can do it twice, just as importantly, if I can do it, so can anyone else.

This is a fight I don't plan on losing ... Craig

erin.K
Veteran Member


Date Joined Mar 2005
Total Posts : 3148
   Posted 1/26/2006 6:32 PM (GMT -7)   

Craig...you've just the determination as I do.  How frustrating.  Once you think you're in the clear "BAM!".  You're on top of it though...I like what you said, you kicked it's butt once and shall do it again.  My honey is in the process of training for a half marathon in April...I'm training to get back to work at least 2 days come summer time!  It is a constant battle, just wish we had more arsenal against it or perhaps a better "incoming radar"!

I'm confident in you.


Active, Severe RA. Crohns Disease. Chiari Malformation & Right Brain venous anomoly. Emphysema. Rheumatic Lung. MVP and Tricuspid prolapse. Had Lymes disease for 10 years.
Meds: Humira 40mg every 4 days; pred; Pentasa; Imuran; dilaudid; diazepam & too many others.


Ducky
Veteran Member


Date Joined Mar 2005
Total Posts : 3199
   Posted 1/27/2006 9:57 AM (GMT -7)   
Good luck Craig... keep on trucking... and keep us posted!
Diagnosed January 2005 - Psoriatic Arthritis/Spondylitis
-Currently taking 50mg shot weekly of Enbrel
Diagnosed May 1998 - Graves Disease
-Complete Thyroidectomy September 1998 - While 11 weeks pregnant
Other Complications - GERD/Scoliosis/Hiatal Hernia/Graves Disease of the Eyes
Current Meds -  Enbrel/Prevacid/Synthroid
Past Meds - Inderal/PTU/Prednisone/Voltaren/Feldene/Mobic/Cortisone and Steroid Shots


CaMama
Veteran Member


Date Joined Mar 2005
Total Posts : 1884
   Posted 1/27/2006 10:32 AM (GMT -7)   
Hey Craig, keep up the good fight! Also, don't forget, that other factors can cause a flare, which doesn't mean all hope is lost - you just need to readjust for a short while. If I recall, January and February are the heavy winter months where you are - which could cause more problems with the RA. Also, if you were exposed to a virus, the flu, whatever, even if you don't come down with it, if your body starts fighting it - your body will start lashing back via the arthritis.
 
You'll get through this. You are strong and determined and can get through this no problem!
 
**
 
 
 


cbrossman
Regular Member


Date Joined Apr 2005
Total Posts : 191
   Posted 1/27/2006 10:52 AM (GMT -7)   
Thanks ladies,
That is the thing with RA isn't it, at least for me. I never really know why I feel good or bad, and once diagnosed, it is pretty easy to blame the disease. More than anything else, I wish I knew what to expect, and why my body is feeling the way it does.

Flu/colds have been going around, and my stomach has been bothering me. Of course I've had my flu shot.
I'm not quite as active as I was 3 months ago when there was no snow on the ground. Work is a little stressfull lately. Lower levels of MTX. I have never gotten younger any single day in my 44+ years. And no one promised me that the drugs would work forever. So which is it?

It is probably easier having RA if your not an engineer type like me, I need concrete answers ... Craig (I really don't mean that I have it harder than anyone else!, just that my style deals with the unknowns less well than other types)

Ducky
Veteran Member


Date Joined Mar 2005
Total Posts : 3199
   Posted 1/27/2006 11:05 AM (GMT -7)   
I hear ya Craig... I'm a black and white type person too, drives me nuts when there just isn't any answers.... You said it all in your post... you are in a flare 'cause of everything you listed... let the weather warm up some and then you'll start riding more, and then you'll be back to your old self... hang in there...
Diagnosed January 2005 - Psoriatic Arthritis/Spondylitis
-Currently taking 50mg shot weekly of Enbrel
Diagnosed May 1998 - Graves Disease
-Complete Thyroidectomy September 1998 - While 11 weeks pregnant
Other Complications - GERD/Scoliosis/Hiatal Hernia/Graves Disease of the Eyes
Current Meds -  Enbrel/Prevacid/Synthroid
Past Meds - Inderal/PTU/Prednisone/Voltaren/Feldene/Mobic/Cortisone and Steroid Shots


Flopsie
Veteran Member


Date Joined Jun 2005
Total Posts : 1361
   Posted 1/31/2006 7:50 PM (GMT -7)   
Craig, I am rooting for you buddy,
I know you can do it. You have the determInation and the guts to KICK RA IN THE ...,

FLOPSIE

cbrossman
Regular Member


Date Joined Apr 2005
Total Posts : 191
   Posted 2/1/2006 6:02 PM (GMT -7)   
Thanks flop and all,
I have lots of determination, brains, not so much. Yeah, I played basketball again the other day, joints are really p.o. Last time I played, I got stitches below my right eye, this time is better ... I guess.

I think I'll take today off from working out ... Craig

Ducky
Veteran Member


Date Joined Mar 2005
Total Posts : 3199
   Posted 2/2/2006 5:20 AM (GMT -7)   
No stitches for Craig! Woo-hoo! :)
Diagnosed January 2005 - Psoriatic Arthritis/Spondylitis
-Currently taking 50mg shot weekly of Enbrel
Diagnosed May 1998 - Graves Disease
-Complete Thyroidectomy September 1998 - While 11 weeks pregnant
Other Complications - GERD/Scoliosis/Hiatal Hernia/Graves Disease of the Eyes
Current Meds -  Enbrel/Prevacid/Synthroid
Past Meds - Inderal/PTU/Prednisone/Voltaren/Feldene/Mobic/Cortisone and Steroid Shots


CaMama
Veteran Member


Date Joined Mar 2005
Total Posts : 1884
   Posted 2/3/2006 10:02 AM (GMT -7)   
Hang in there Craig!
 
It's not just you, we all want concrete answers. We get sick of the shoulder shrugs; the "I guess..." and the "I don't know..." answers; the unknown of "will I feel better enough to do X on that particular day..."; as well as the constant 'blame the disease' answers.
 
 
 
**
 


erin.K
Veteran Member


Date Joined Mar 2005
Total Posts : 3148
   Posted 2/6/2006 9:39 AM (GMT -7)   

Hiya Craig!

What's new?  Better/ Worse/ Same?  Hang in there buddy.  Can't wait for Springtime, I'm confident it will be kind to you and you'll be spittin' out those miles in no time!

My advisor for grad school called me Friday to check in on me & to see what my plans are for September (if I'll be physically capable of doin 8 hour days and hospital work).

I said hellyeah!  It just came out!  NO BRAINS!...sometimes I think it's better that way.

Like Yoda said...."Do, or do not...there is no try!"  and I'm going to stick with that.

Also I told her when she "gave me a lot of credit for not giving up going through what I am with this disease"....that by having this has not damaged my motivation and determination.

People call me a blockhead sometime for being thick headed.  But being a stubborn-Russian pays off sometimes! LOL. Ya think there's NOTHING YOU CANNOT DO! Hoping this will get me by!

Hats off to ya Craig!


Active, Severe RA. Crohns Disease. Chiari Malformation & Right Brain venous anomoly. AS. Emphysema. Rheumatic Lung. MVP and Tricuspid prolapse. Had Lymes disease for 10 years.
Meds: Humira 40mg every 4 days; pred; Pentasa; Imuran; dilaudid; diazepam; Avanza 30mg & too many others.


cbrossman
Regular Member


Date Joined Apr 2005
Total Posts : 191
   Posted 2/7/2006 7:16 AM (GMT -7)   
I've been feeling better for the past week and had my Rheumatologist appointment yesterday. She thought it was probably a cold or flu knocking me down and was nothing to worry about.
She doesn't feel that cold weather or stress has any cause in RA flairs, but that sometimes you can flare for no obvious reasons.

back on track ... Craig
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