have psoratric arthritis and allergic to meds

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debv60
New Member


Date Joined Jan 2006
Total Posts : 7
   Posted 1/30/2006 3:08 PM (GMT -7)   
i was diagnosed 8 yrs. ago after many diagnosis they finally came up with psoratric arthritis/fibromyalgia, im seronegative which also makes things difficult and ana negaative for lupus. my question is i m  allergic to all treatments; remicade, humira and embrel, im on  mtx. inj. now but they are making me worse severe headaches and shortness of breath, i take 15 mg of methadone for pain i was on percocet and vicoden with no relief. i have applied for disability i was denied i am appealing this it has been 1 yr. since i have worked. i also take prednesone, levexol, lexapro protonex. i live with everyday pain and i am psysically eshausted. i do not sleep at night as well, i was wondering if anyone out there is like me. allergic to every med out there. i just am so discusted

missie1227
Veteran Member


Date Joined Nov 2005
Total Posts : 751
   Posted 1/30/2006 3:29 PM (GMT -7)   
yes i am with you on this one friend. i am allergic to many many meds or the ones that work on me sometimes age out and quit.
 
it is very frustrating to deal with this. i have PA and AS ( ankylosing spondy) it was a lousy card game that i was dealt
9-02 crash w/ C-5-6-7 anterior/posterior fusion in neck w/11 screws and 4 metal plates. multilevel HNP at T & L section. FMS, PA/AS in dec 05. SSI approved after 2.5 yr wait. sezuires, CTS, etc. on norco, xanax etc.


MIgrunt
Regular Member


Date Joined Jan 2006
Total Posts : 64
   Posted 1/30/2006 4:26 PM (GMT -7)   
I'm going through the same thing myself.  I have FMS with depression/anxiety and recently diagnosed with cervical spondilosis and possible AS.  My neck has gotten worse over the past month but most meds I am either allergic to or have become immune to their effects.  Get minor relief from Tylenol Arthritis.  Can't take Alieve since it's just a form of motrin which upsets my stomach and doesn't really do anything for me.  I currently taking Cymbalta 60mg that helps with both the FMS and D/A.  Have to use heating pads and looking into those memory foam pillows for some additional help.  Hope to get more info from my rheumo in March.  He's a very popular man and it's hard to get an appointment but well worth it!

erin.K
Veteran Member


Date Joined Mar 2005
Total Posts : 3148
   Posted 1/31/2006 1:47 PM (GMT -7)   

Dear DebV

Welcome to HealingWell.  We've a wonderful person (persons that is) Ducky & Camama who deal with PA.  I am sure they can provide some history and medications they've been on....yo unever know, maybe something different!

I know all too well that feeling of disgust.  Having treatments fail.

I'm going to do a little research to see all of the PA medications.  My medical books are quite modern and many are innovative as well.  They also describe situations when a person is allergic or hypersensitive to the conventional treatments.

I can say that the MTX might be playing a part in the worsening of headaches.  Also, the opioids for pain, can cause depression of the respiratory system, thus making it hard to breath.

I find that my breathing is best if I am at least when lying down at a 35 degree angle supported by pillows behind me.  It provides for better & more efficient lung expansion.

I know this is tough.  In fact, tough does not even begin to decribe this sometimes.  Webster needs to come up with a whole new set of adjectives for illness!

:-)  Hang in there!

Erin


Active, Severe RA. Crohns Disease. Chiari Malformation & Right Brain venous anomoly. Emphysema. Rheumatic Lung. MVP and Tricuspid prolapse. Had Lymes disease for 10 years.
Meds: Humira 40mg every 4 days; pred; Pentasa; Imuran; dilaudid; diazepam & too many others.


CaMama
Veteran Member


Date Joined Mar 2005
Total Posts : 1884
   Posted 2/8/2006 11:51 PM (GMT -7)   

Hi there, yes, I have PA (though, I think I might have Lupus....but, that's another story.)  I have had very little results from most medications I've tried (and I've had one form or another of arthritis since I was a child.) Prednisone is a big no-no for me. Methotrexate made me feel awful, and I had a very tough time breathing while on it as well. My liver also conked out while on it - I came down with an acute case of EBV and mono that got me hospitalized. My liver enzymes were off the charts.

I did get some small relief from Azulphidine/sulfasalazdine, but I had to take a stomach buffer (prevacid) while on it - but that was not an issue for me since it helped and I could tolerate it. I actually took this in conjunction with methotrexate for a while.

Remicade stopped working for me after about 20 months and I started having allergic reactions. My liver, once again, conked out on me - luckily not nearly as bad as the first time. I'm supposed to start Enbrel someday, but am very hesitant after all this.

Since then, I have been on Plaquinil. Now, the write-up on it says not to take if you have psorisis and while on it, it has gotten slightly worse (knock on wood it won't get any more so.) However, my psorisis specifically has always been very mild, so even though I'm "worse" I know I'm still very (knock on wood) mild in the severity. Plus, oddly enough, the plaquinil IS doing something for me. I actually can feel it when I skip a dose - which tells me it's working.  I feel much better once I get back on schedule with it. I've been on it since last May. I do still take a stomach buffer (Nexium now) as I do take a lot of Motrin off an on.  It did give me stomach troubles when I first started it, but that did subside. And when I stop taking it (when I'm ill typically) I have to go through the tummy troubles when I start back up. 

One note: the meds say it can affect your eyesight. I saw an opthamologist today who said he has yet to see anyone w/problems on the med making it sound like they used to give higher doses in the past which did.  You should go see an opthamologist every 6 months to be safe.

Welcome, by the way. I, too, have been out of work for a year. My SDI claim has been denied twice. My doctor has told me if I can't find part-time where I can work from home at least 50% of THAT time to forget about working. My body can't seem to handle the stress of working, let alone life. I've lost 3 jobs due to illnesses (caused by such a weak immune system.)  It is frustrating and depressing! I'm only 35 and I have 2 little ones (well, 6 and 4 1/2) and I'm often too sick or in too much pain to even let them go outside and play with the neighborhood kids. I feel so rotten about it all. My 6 year old is so used to the house being a pig-sty that she thinks a few things picked up is "clean" even though there are piles and piles of stuff everywhere! Ugh! sad
 
Sorry to moan on your thread...I hope you can find something that helps relieve your pain. I can relate completely. **
 

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