Rhum. Arthritis

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tstarbuck
New Member


Date Joined Feb 2006
Total Posts : 4
   Posted 2/6/2006 12:24 PM (GMT -7)   
I am newly diagnosed with RA. I have pain in every joint of my body. Like some of the other posts, I have been shuffled from dr to dr. I have seen every kind of dr, from chiro to hand specialist, now I begin aquatic therapy. I am only 35. Are there times when RA goes into remission? I also have rash on my hands, and my hands draw at night and I have knots in each palm, dr says this is dupytrens, I think it is RA...? My aches have
progressivly gotten worse in 6 months time. :-)

Ducky
Veteran Member


Date Joined Mar 2005
Total Posts : 3199
   Posted 2/6/2006 12:33 PM (GMT -7)   
Hey tstarbuck! Welcome to Healing Well. Sorry to hear that you have been run through the gamut like the rest of us... we are all kindred spirits... I hear that aquatic therapy is very beneficial for RA patients. Yes, there are times that RA can go into remission... what meds are you taking? Are you on any biologics or NSAIDS? I hope you keep posting with us, good luck to you and please let us know how you are doing - Duck
Diagnosed January 2005 - Psoriatic Arthritis/Spondylitis
-Currently taking 50mg shot weekly of Enbrel
Diagnosed May 1998 - Graves Disease
-Complete Thyroidectomy September 1998 - While 11 weeks pregnant
Other Complications - GERD/Scoliosis/Hiatal Hernia/Graves Disease of the Eyes
Current Meds -  Enbrel/Prevacid/Synthroid
Past Meds - Inderal/PTU/Prednisone/Voltaren/Feldene/Mobic/Cortisone and Steroid Shots


tstarbuck
New Member


Date Joined Feb 2006
Total Posts : 4
   Posted 2/6/2006 12:39 PM (GMT -7)   

Currently I am on Mobic, can tell a slight difference in the way I feel, but I also just started taking two a day instead of one. I was given a 7 day sample of Lyrica, but after reading all the horrible side effects, I have not started taking it yet. Maybe someone out there is on this and can give some advice.  Thank you!


erin.K
Veteran Member


Date Joined Mar 2005
Total Posts : 3148
   Posted 2/6/2006 6:11 PM (GMT -7)   
Dear Tstarbuck & welcome to HW,
It's a long, hard road we travel.  I hear you!  RA is very difficult to diagnose & I believe that's why we get handed over from doctor to doctor.  And it takes years sometimes, which is a real shame.
So you're newly diagnosed...when did you start to feel symptoms of RA?  If this is a case where it's caught early...that's wonderful.  Early treatment, the RIGHT treatment, prevents so many complications of this disease.
Some rheummies are using TNF and DMARDs earlier in the disease stages because it has better success rates, as to say waiting for the RA to get out of control & then start a more aggressive treatment.
Cox2's are great & if you feel a difference for the better, stick with it.
In the past 9 years, the RA has been at it's worst this last 2 years.  Been in a flare since August! Awful.
Remission is possible!  I'm still optomistic mine will be coming!
I understand, every joint hurting. 
The Dupuytren of the hands...have you ever been on any medications containing phenytoin? or have any history of liver damage?  that's just some causes of the hand contractures; the etiology is still written as unknown; but treatment for the contractures involves removing the tissue causing it.
Do your ring and little finger bend inward?
Does anyone else have that in your family?  It's suggested that it is genetic and occurs middle age.
Keep track of the rashes.
I think some folks here are on Lyrica.
Wishing you well!  Look forward to speaking with you soon.
Sincerely,
Erin 
Active, Severe RA. Crohns Disease. Chiari Malformation & Right Brain venous anomoly. AS. Emphysema. Rheumatic Lung. MVP and Tricuspid prolapse. Had Lymes disease for 10 years.
Meds: Humira 40mg every 4 days; pred; Pentasa; Imuran; dilaudid; diazepam; Avanza 30mg & too many others.


CaMama
Veteran Member


Date Joined Mar 2005
Total Posts : 1884
   Posted 2/6/2006 8:30 PM (GMT -7)   

Hey Erin, what does the ring finger bending in mean? Mine do that  to the point they have a slight arc in them. Actually, all my fingers turn in towards the middle (kinda like they are bowing down ..... hmmm....)

tstarbuck, welcome. I'm sorry to hear your condition...but, yes, have hope...once the right med combo sets in, you can go in to remission. Here's hoping (none of us can cross our fingers!) that you find that combo soon. I'm 35 as well and often feel 78.....I've tried what feels like "everything" that's out there, but I see there are many more drugs out there for me... I was diagnosed at 11 with arthritis, so, it seems like a lifetime.......I used to do water aerobics years ago, I loved it...I am not sure how that compares to aquatic therapy....but good luck.

**


 


straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 13471
   Posted 2/6/2006 8:46 PM (GMT -7)   
Tstar, please look inthe chronic pain forum to read about the Lyrica. There are several on there that use it. You don' want to possible pass up taking something that may give you relief. It may not affect you the way it does others, remember we all react to medication differently. Hugs, Susie


tstarbuck
New Member


Date Joined Feb 2006
Total Posts : 4
   Posted 2/9/2006 11:51 AM (GMT -7)   

Hey thanks for the reply. I've been quite busy. To my knowledge I've never been on any medication with "phen..." in it. My middle fingers are the ones that give me fits. They draw in at night. I am thinking about going back to my hand specialist and having cortisone shots in my wrists again, wow...that really helped last time. The dr doesn't like to give them too often though.The last time I had the shots, my whole body felt 100% better.  

 

Does anyone else have really good days and then play "catch up? at home (laundry, cleaning, painting) then the next day, pay dear for it? I just can't do the things I used to could, it is really frustrating. My family is really supportive though!

Tammy :-)  


CaMama
Veteran Member


Date Joined Mar 2005
Total Posts : 1884
   Posted 2/9/2006 7:40 PM (GMT -7)   
In response to your question
 
Does anyone else have really good days and then play "catch up? at home (laundry, cleaning, painting) then the next day, pay dear for it? I just can't do the things I used to could, it is really frustrating.
 
YES! Yes. And, yes it is!
 
Feel better.
**
 


erin.K
Veteran Member


Date Joined Mar 2005
Total Posts : 3148
   Posted 2/9/2006 11:34 PM (GMT -7)   
hey Tammy,
 
when i get a day where i'm in tolerable pain and can actually walk around OK...i go CRAZY!  like, shower...dress....do laundry....vacuum....take a walk.
but then after like 6 hours....complete exhaustion.
sometimes when i have a real good day. IT WAS JUNE 19th OF THIS YEAR, yep i remember it!  i actually cried when i had to go to bed because i was so upset the day was over and was afraid that if i went to sleep it wouldn't come back.  sad   sadly, that WAS my last FULL day. funny though i remember the exact date.
but i know what ya mean.
i treasure those precious active moments when they come every now & then.
Active, Severe RA. Crohns Disease. Chiari Malformation & Right Brain venous anomoly. AS. Emphysema. Rheumatic Lung. MVP and Tricuspid prolapse. Had Lymes disease for 10 years.
Meds: Humira 40mg every 4 days; pred; Pentasa; Imuran; dilaudid; diazepam; Avanza 30mg & too many others.

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