I am new to this site... It is so nice to finally find a place to vent. So here goes...
about 10 yrs ago I starting having major back pain. I was only 23 yrs old and figured I just threw my back out. Well continuing for the next 5 yrs, I always made excuses of why my back hurt, softball, work, etc.
It wasn't until my then boyfriend (now Husband) started making remarks... You are getting worse, you walk with a limp, you can't do some normal daily functions, Did I finally wake up.
I started with my PCP and he sent me to a Orthopedic Dr. who sent me for and MRI. Well it didn't show anything and he gave me pain meds. Of course this didn't help anything, so I started to see a Chiropractor, we tried everything... the best was traction. I can't tell you how nice it felt to be relieved even if it was only temporary.
Needless to say, I continued to decline... More MRI's and X-rays still nothing showed up. Visits to the Emergency Room.. to have them tell me there was nothing they could do because I was expirencing muscle spasms in my back and sent me home
By this point there were times that I could barely walk, I was in so much pain. I was seeing the Chiropractor 3-4 times a week, sometimes daily. He did the best he could.
Mentally I started to accept that this is the way I will have to live the rest of my life, which was extremely hard for me since I have always been a very active person.
2 yrs ago I finally went to see a GI for some bathroom concerns I had. She had ordered a bunch of tests which included the Small Bowel Follow Through (I think this is the test name) It's the one where you have to drink the barium. I remember the technican asking me if I had lower back pain. I thought funny you should ask... I sure do. To find out I have arthritis in my both of my Sacro Ilium joints.
You mean to tell me I'm not going crazy and there is a reason for all my pain. It was actually nice to hear the diagnosis. Well to top it off, I was diagnosed with Crohn's too.
I have been on Remicade since July and I feel like a new person. I have actually been able to play sports again with no pain.
Thanks for listening, it's just nice to get off my chest. I'm sure some of you know it's hard to find support when people think your crazy!!!
CD dx in May 04' - Syptoms for 2 yrs prior
Sacroiliacitis dx in May 04' - Syptoms for 10 yrs prior
Psoriasis - Life Long