painful tingles at night

What type of fatigue do you have?
2
Daily - but, I can tolerate it - 50.0%
2
I'm almost always ready for a nap - 50.0%
0
Somewhere between 1 & 2 - 0.0%
0
Only when I stay up all night - 0.0%
0
Only during a flare - 0.0%
0
Depends on the weather - 0.0%

 
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CaMama
Veteran Member


Date Joined Mar 2005
Total Posts : 1884
   Posted 3/14/2006 10:27 PM (GMT -7)   
When I was on Remicade, I started having a problem in my right arm - I'd wake up in the middle of the night with my fingers/hand painfully asleep (I know that sounds weird), it would often be at least up to my elbow hurting (if not farther up my arm.)  My whole wrist and fingers feel like they are going to fall off - I have to get out of bed and shake my arm and massage my fingers to get them to stop hurting. It's not like the painful pins and needles you get in your foot or leg when it falls asleep, it's a really strange and scary (maybe because I'm 1/2 asleep) pain.
 
Anyway, I've been off Remicade almost a year now, and it is still happening....the pain is worse in my last 2 fingers, which are the ones the arthritis hurts the most...they get that awful feeling like they are curled up over my middle finger and just have the awkaward hurt and annoying feeling that they would be best if just removed.
 
Any ideas on what is causing this?
***
 


Morticia32
Regular Member


Date Joined Feb 2006
Total Posts : 59
   Posted 3/15/2006 3:44 AM (GMT -7)   
Dear CaMama,

I have this everynight, with my right leg. It effect my whole leg, it hurts like crazy and the leg feels like its dead. I have to actually lift my left with my hands to move it. And im only on MTX. I have no clue on what causes it, except that i imagine our nerves are screaming in confusion.
Diagnosed: Hypothyroid 1990, Endometriosis 1997, Agrophobia 1998, Objective Tinnitus 2004,Rhematoid Arthritus Feb 2006.
Procedures Done: Gallbladder Removed 1994, 3 Endoscopes, 5 Laps for Endo, Hysterectomy 2003, Angiogram 2003.
Medications now: Synthroid, Lexapro, MTX, Lortab.


Ides
Forum Moderator


Date Joined Nov 2003
Total Posts : 7077
   Posted 3/15/2006 4:08 PM (GMT -7)   
CaMama, what you describes happens to me. I have had this for many years. Mine is caused by the position I sleep in. Mine is caused by pressure on my elbows, compressing the nerves, or by sleeping with my wrists bent in a odd position. Waking up with the sensation is one way your body lets you know to move the effected limb. I used to have it much worse, causing me to awaken several times a night. My doctor ordered a special half cast to sleep in to prevent me from putting my wrists in the position causing the nerve to pinch. I no longer wear the cast. My fingers fall asleep now from the elbows compressing.
CD, Ankylosing Spondylitis, peripheral neuropathy
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CaMama
Veteran Member


Date Joined Mar 2005
Total Posts : 1884
   Posted 3/15/2006 8:06 PM (GMT -7)   

Thank you. Does the pain sometimes last all day? I feel the muscle (I think that is what it is) all the way from my 2 last fingers up through my arm.....I can't seem to shake the feeling off.  Though, it's only really bothersome when I am stiff or sore.... It is not the dead arm feeling, but just a "gotta shake it off" one that I can't seem to get rid of.

**


 


Ides
Forum Moderator


Date Joined Nov 2003
Total Posts : 7077
   Posted 3/16/2006 5:27 PM (GMT -7)   
Do you do any type of work that involves repetitive movements? The reason I ask is it is possible that you have injured a ligament or tendon. When you say you feel the muscle all the way from your fingers up the arm, it makes me think you are not feeling muscle. Does it feel cord like? Have you had a doctor check this out? I get inflammatory tendonitis [called enthesitis] from my ankylosing spondylitis. Tendon inflammation can be very painful with movement.
CD, Ankylosing Spondylitis, peripheral neuropathy
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CaMama
Veteran Member


Date Joined Mar 2005
Total Posts : 1884
   Posted 3/16/2006 9:38 PM (GMT -7)   

yeah, I guess you could call it a cord feeling.

I do work with computers, but I have been out of work for a year now. and I believe it started when I was I out of work for a year (my health seems to allow me to work for one year at a time, with a year off in-between lately.)

**


 


erin.K
Veteran Member


Date Joined Mar 2005
Total Posts : 3148
   Posted 3/17/2006 6:19 PM (GMT -7)   

oooh, when i was at the stables w/ my honey, this horse had a doughnut around it's wrists on her 2 front legs.  i asked the vet what for....he said that horses tend to sleep w/ their wrists tucked in & they develop nerve damage & arthritis from it!

so it's kinda like what happens when we sleep on our arms, nerves get compressed, you get the pins n needles thing.

i would guess it is most likely positional and small vessel and nerve related.


Active, Severe RA. Crohns Disease. Chiari Malformation & Right Brain venous anomoly. AS. Emphysema. Rheumatic Lung. MVP and Tricuspid prolapse. Had Lymes disease for 10 years.
Meds: Humira 40mg every 4 days; pred; Pentasa; Imuran; dilaudid; diazepam; Avinza 30mg; MiraLax & too many others.


CaMama
Veteran Member


Date Joined Mar 2005
Total Posts : 1884
   Posted 3/17/2006 11:40 PM (GMT -7)   

I guess I shouldn't have called it "tingles" - it is just this strange dead painful feeling (I know, how can something be painful AND feel dead? I can't explain it other than the pain might be mental because it feels like my arm isn't there....) It's not like my leg falling asleep that HURTS to wake it back up with the feeling of pins and needles going throught foot and leg.

Very strange...the fact it started while on Remicade is what had gotten me concerned initially.
 
**
 


erin.K
Veteran Member


Date Joined Mar 2005
Total Posts : 3148
   Posted 3/18/2006 3:14 PM (GMT -7)   
What about blocked arteries? Do you have any cholesterol or plaque problems? Which could be interrupting blood flow to the appendige.
OK...so it's not a "fell asleep pins and needles" thing, it's a dead feeling. gotcha. Very different adjective.
Can you lift the arm up when it is like this? Turn blue? Red? Swells?
mmmm...awe, my poor mama!
Ooh, was this arm used for Remicade infusion?
{{{{{{{{ big hugs }}}}}}}}}}}
erin
Active, Severe RA. Crohns Disease. Chiari Malformation & Right Brain venous anomoly. AS. Emphysema. Rheumatic Lung. MVP and Tricuspid prolapse. Had Lymes disease for 10 years.
Meds: Humira 40mg every 4 days; pred; Pentasa; Imuran; dilaudid; diazepam; Avinza 30mg; MiraLax & too many others.


CaMama
Veteran Member


Date Joined Mar 2005
Total Posts : 1884
   Posted 3/18/2006 10:15 PM (GMT -7)   

Well, it's usually the middle of the night - so it is dark and I'm freaking out waking up with no arm. I can't recall if I need my good arm to get it itially moving (though, I'm usually running around in the dark - so, it's probably flinging around on its own! tongue )

It is not the arm I typically got infusions in. I do have and off and on choleterol problem.

It's, thankfully, not all the time, but I do seem to go through spurts of it.....hmmm, I'll have to try and pay attention to when they occur - am I on the computer more then, am I having a flare....

****


 


erin.K
Veteran Member


Date Joined Mar 2005
Total Posts : 3148
   Posted 3/19/2006 12:35 AM (GMT -7)   
yeah, i concur! keep a tight journal on when, what you do that day, your position, how long it lasts, for about a month...that'll maybe give you a good reference of how/when/ why.
mmmmmmm? i hope the arm is OK.
{{{{{{{{ hugs to Mamma! }}}}}}}}}}}
Active, Severe RA. Crohns Disease. Chiari Malformation & Right Brain venous anomoly. AS. Emphysema. Rheumatic Lung. MVP and Tricuspid prolapse. Had Lymes disease for 10 years.
Meds: Humira 40mg every 4 days; pred; Pentasa; Imuran; dilaudid; diazepam; Avinza 30mg; MiraLax & too many others.


curley
Veteran Member


Date Joined Mar 2005
Total Posts : 4305
   Posted 3/25/2006 6:44 PM (GMT -7)   
I get as well,some times I wake in the middle of the night and my hand's and arm's will hurt so bad I can't stand it.I for along time thought it was the arthritis but I found out it is due to nerve damage.
Thanks
Curley......
a.k.a.Mela...........


erin.K
Veteran Member


Date Joined Mar 2005
Total Posts : 3148
   Posted 3/29/2006 5:33 PM (GMT -7)   
cool  hey Camama,
how has the arm been and the pains? anything happening at nite recently? any worse/better?
thinking of you.
California must be beautiful now eh? it's 62 today in Jersey, felt like 75, was great. 
Active, Severe RA. Crohns Disease. Chiari Malformation & Right Brain venous anomoly. AS. Emphysema. Rheumatic Lung. MVP and Tricuspid prolapse. Had Lymes disease for 10 years.
Meds: Humira 40mg every 4 days; pred; Pentasa; Imuran; dilaudid; diazepam; Avinza 30mg; MiraLax & too many others.


CaMama
Veteran Member


Date Joined Mar 2005
Total Posts : 1884
   Posted 3/30/2006 12:07 AM (GMT -7)   

It comes and goes...I haven't had it happen in a few weeks -but lately I've been dealing with pinched nerves and such. Neck, shoulder, back/sciatic, feet, calves....ugh.

We've actually had a lot of rain lately...it's been killing me. It makes me so unbelievably tired, our weather has been up and down - one day rainy and frosty, the next warm, followed by very chilly....can't keep up, making body a mess. Could be worse, I know....I am definitely the weather reader...I know when the rain is coming, even when it's not predicted yet!

Hope you are feeling better these days Erin.

**


 

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