my best friend has no RA anymore

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roza
New Member


Date Joined Mar 2006
Total Posts : 15
   Posted 3/16/2006 3:38 AM (GMT -7)   
My best friend gave me a call this morning proudly saying that our rheumatologist said that she has no RA anymore. Gosh, I felt happy that she is well but in a way sad
that I don't have a close friend who is phone call away who would listen to my ocassional pain from RA. But , then again it may be a sign from God that I will get well soon.

Honestly I have been praying for both of us to get well & my faith in God is so strong but i really feel confused eyes . I am an obedient patient, I take all the medicines prescribed like methotrexate, prednisone, plaquenil, arcoxia etc and my friend did not take any ot it not even the pain relievers instead she searched the internet on alternative medicines because she was afraid of all the side effects of the medicines i'm taking& the serious illness that an RA patient may have because of the medications. Imagine the the pain she went through.

I feel happy about the good news & quite depressed & anxious to know when will my time come.

eyes

erin.K
Veteran Member


Date Joined Mar 2005
Total Posts : 3148
   Posted 3/16/2006 4:04 PM (GMT -7)   
Hi Roza,
I think what your friend means is that she is in a remission from RA. Technically, you can not "get rid of" RA. One can get to a level of supreme functioning as she was before she developed RA and not show the signs/symptoms and disease process. Basically, her RA is dormant or not active.
I know your frustration and depression about this. I wish my case of RA wasn't severe. I hate also the waiting game.
But I will not lose hope that so to speak,"I will have RA NO MORE!!!!!!!!!"

You seem in your writing depressed about this. Is it really bad? Very limited in your abilities to get around?
When you feel OK enough, please write back & let us know how your situation is.
I hate to say it...but I get envious and jealous of people I watch get up, get ready for work, leave in their cars, pick up their kids & do it all again the next day.
RA is very taxing on the psyche especially if it has been a long standing case. Disapointment with medication failing, doing all you can on your part but nothing meeting you even half way.... it is tormenting.
Be happy for your friend, I am. Anyone living with this, no matter what the degree of severity...deserves a time off from this.
You take care of yourself.
Sincerely,
Erin
Active, Severe RA. Crohns Disease. Chiari Malformation & Right Brain venous anomoly. AS. Emphysema. Rheumatic Lung. MVP and Tricuspid prolapse. Had Lymes disease for 10 years.
Meds: Humira 40mg every 4 days; pred; Pentasa; Imuran; dilaudid; diazepam; Avinza 30mg; MiraLax & too many others.


madgirlything
Regular Member


Date Joined Feb 2006
Total Posts : 22
   Posted 3/17/2006 3:33 AM (GMT -7)   
hi
wow your friend is lucky to be in remission the only time i went into remisson was when i was pregnant and breastfeeding my last 2 kids (youngest is nearly 15 now lol). sometimes makes me wish i carried on breastfeding forever lol.hope you are feeling better soon.
mad smurf

roza
New Member


Date Joined Mar 2006
Total Posts : 15
   Posted 6/13/2006 8:21 AM (GMT -7)   
hi erin & mad!
thank you for your replies. i'm sorry i just replied now. honestly, i was really confused then it is only now that i got back to the forum.
does being in remission mean temporary? our rheumy did not require her to comeback after getting her blood results. NO MORE RA for my friend.anyways, i'm now taking the herbal medicines she was taking. it worked for her & may be God is telling me to give it a try.
sometmes, i feel sad on the days my joints limit the things that i can do for the day but again my rheumy said i'mso lucky i could still drive, walk(slowly) etc.
I now feel happy for my friend & I have realized that RA CAN BE HEALED.
tks & wishing everybody to stay well tongue
endometriosis 1997
RA 2003


erin.K
Veteran Member


Date Joined Mar 2005
Total Posts : 3148
   Posted 6/13/2006 11:15 AM (GMT -7)   

dear Roza,

good for you!  keep the faith and you know what?...stick to it as long as you can.  if this is working for you, that's wonderful.   not too many people can be so successful with supplements and naturapathy so you are very fortunate.   i wish you the very very best.

with RA, it is a chronic and progressive disease.   it does have potential to go into remission.   some remissions can last months...some years...some decades! every case is unique.   some doctors will keep their pt.'s on medication during remissions as mantainance and a precautionary treatment; while others will order meds stopped or leave it up to the pt.

do keep track of your signs & symptoms and your progress.

keep us posted!  what is it you are taking?

great to hear from you.

sincerely,

erin  (ps: i had deleted one post. it was a duplicate of the one below.) 


Active, Severe Rheumatory Arthritis. Crohns. AS. Chiari Malformation & Right Brain venous anomoly. Partial complex seizures. Emphysema. Rheumatic Lung & Heart. MVP and Tricuspid prolapse. Had Lymes disease for 10 years.
Meds: Humira 40mg Q 4 days; Pred 20mg prn; Pentasa 4G daily; Imuran 50mg; Dilaudid 4mg; Diazepam 5mg; Avinza 30mg; Reglan; Meclizine; LidoDerm; MiraLax & too many others.


roza
New Member


Date Joined Mar 2006
Total Posts : 15
   Posted 6/14/2006 3:26 AM (GMT -7)   
hi erin!
 
thanks you very much!
 
my friend is taking agaricus blazei murill. mushroom from brazil or japan. she got her agaricus from japan. since ra is an auto immune disease,she decided to work on her immune system. during the first few weeks of taking agaricus, she encountered pain 4x greater than typical ra daily pain but after a month her blood test showed an improvement & relief in pain improves gradually until it disapperead. so she continued taking it & had her monthly check up until her rheumy told her that the ra is gone & its not a remission. she was taking b-complex.calcium,fish oil & glucosamine chondroitin. she does her regular exercises at home daily.she is still taking agaricus for maintainance at a lower dosage.
 
the monthly blood test she undergoes are rf,esr,cbc,creatinine,ast & alt. i submitted to these bloodtests before taking agaricus & will do it monthly to see if there is progress. i'm on my second week.
 
erin, would interaction of the medicines she is taking have side effects?
 
again, thanks & tc tongue
endometriosis 1997
RA 2003


Mommysangel07196
Regular Member


Date Joined Jun 2006
Total Posts : 30
   Posted 6/14/2006 6:05 AM (GMT -7)   

Hi Rosa,

I can relate to your frustration. It is very hard sometimes for me too. I have had RA since last year. Well I actually should say I had a DX since last year. I'm not really sure how long I have had it. I know that for the past few weeks I have been feeling the pain and other things have shown up. I am still working which I am thankfull for. I work 4 days a week as a security guard. But I do alot of walking so by the end of the night I want to scream skull . Anyway it is true that RA can go into remission although I like many others haven't had that opportunity. Keep the faith Rosa and try everything you can. If you caome across anything that helps please let us know.

                                                                                             Andrea


My name is Andrea and I am 39 years old. I have 3 children. Their ages are 20,17 and 14. I was diognosed with RA last year and i am currently on Methotrexate and Folic Acid. I am very close to my children and I love life. Sometimes I wish that I was a diiferent person but then I look at how fortunate I am to have a wonderful family who supports me and my condition. Hopefully one day they will find a cure, but until they do all of you are in my prayers!!!!


erin.K
Veteran Member


Date Joined Mar 2005
Total Posts : 3148
   Posted 6/14/2006 3:32 PM (GMT -7)   
herbs may and can interact with RX meds. homeopathy on the other hand shouldn't have ANY interaction or cause ANY harm whatsoever.
some herbs can cause thinning of the blood or central nervous system depression; only her doctor could pinpoint this if she is on say blood pressure meds or hormones or anything like that.
but absolutely, if starting any naturapathy or herbal treatments do bring the list to your PCP so he/she can check the PDR (pharmacology book) for drug interactions.
best wishes,
erin
Active, Severe Rheumatory Arthritis. Crohns. AS. Chiari Malformation & Right Brain venous anomoly. Partial complex seizures. Emphysema. Rheumatic Lung & Heart. MVP and Tricuspid prolapse. Had Lymes disease for 10 years.
Meds: Humira 40mg Q 4 days; Pred 20mg prn; Pentasa 4G daily; Imuran 50mg; Dilaudid 4mg; Diazepam 5mg; Avinza 30mg; Reglan; Meclizine; LidoDerm; MiraLax & too many others.


missie1227
Veteran Member


Date Joined Nov 2005
Total Posts : 751
   Posted 6/21/2006 12:16 AM (GMT -7)   
hi- i too, take celadrin ( salmon oil) glousamine chrondrtion with msm and collagen, and vit b sublingual complex buti t has only helped my blood lipids an dcholestrol profiles and the docs says that was from the salmon oil. as fdar as my joints and neck problems i have not found anything else homopathic or otherwise to help me to the degree where i can notice it. but i am glad for your friend maybe i should consult with a homopathic person who can help me also.

9-02 crash w/ C-5-6-7 anterior/posterior fusion in neck w/11 screws and 4 metal plates. multilevel HNP at T & L section. FMS, PA in dec 05. on SSDI after 2.5 yr wait. sezuires, CTS, IBS ( C & D). norco, xanax, predisone shots. i dont know what else is wrong with me and neither does anyone else!!!


VRaths
New Member


Date Joined Jun 2006
Total Posts : 2
   Posted 6/21/2006 4:32 AM (GMT -7)   
To diagnose rheumatoid arthritis American College of Rheumatologists developed the criteria.

* Morning stiffness more than an hour.

* Arthritis and soft-tissue swelling of more than 3 joints

* Arthritis of hand

* Symmetric arthritis

* Specific subcutaneous nodules

* High rheumatoid factor

* Radiological changes showing joint erosion

At least four criteria are needed to establish the diagnosis.

http://alternativetreatment.blogspot.com/

Post Edited By Moderator (erin kachmar) : 6/21/2006 9:31:55 AM (GMT-6)


erin.K
Veteran Member


Date Joined Mar 2005
Total Posts : 3148
   Posted 6/21/2006 8:34 AM (GMT -7)   
VRaths,
Before we can put any links to sites, members have to get permission from Admin 1st. This is to prevent solicitors & spam.
Thanks for posting the criteria, it's always handy.
Erin
Active, Severe Rheumatory Arthritis. Crohns. AS. Chiari Malformation & Right Brain venous anomoly. Partial complex seizures. Emphysema. Rheumatic Lung & Heart. MVP and Tricuspid prolapse. Had Lymes disease for 10 years.
Meds: Humira 40mg Q 4 days; Pred 20mg prn; Pentasa 4G daily; Imuran 50mg; Dilaudid 4mg; Diazepam 5mg; Avinza 30mg; Reglan; Meclizine; LidoDerm; MiraLax & too many others.


roza
New Member


Date Joined Mar 2006
Total Posts : 15
   Posted 6/22/2006 9:35 AM (GMT -7)   
hi all!
 
i really wish that we can all go into remission or better yet be completely healed.  considering alternative remedies is an option but we should not totally rely on it & we should continue to see our rheumy monthly since RA is a aggressive illness.
 
we have different ra cases & cure. just like andrea said,we should still see our blessings.
 
hope everybody stays well.
endometriosis 1997
RA 2003

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