I have been lurking here for quite awhile. A little background on my family. Sister has Fibro/Lupus. Aunt was diagnosed with Fibro quite a few years ago, is now diagnose with RA/Lupus. Oldest brother has Appalachia. I was diagnosed with Rheumatoid Arthritis last year. Had a bad flare the Month of February in 2005 and was off work for the whole month. Drugs not working (took me off the Prednisone), couldn’t get out of bed cause I hurt all over on both sides, not sleeping well, depressed cause I wasn’t dealing well with it. Put me back on the Prednisone and then slowly weaned me off.
Changed doctors because I felt that this one wasn’t doing enough for me. New doc took blood test, Rheumatoid factor at 95, under active Thyroid. He referred me to a Rheumatologist. Rumey put me back on Prednisone (also on Levothyroxine for Thyroid), started feeling better. Next visit (two weeks later) to him he came into the room pretty fast and said that my RA was progressing fast, RH factor shot up to 344 have to get me on something to slow it down. Put me on MTX (5/16/2005).
about three weeks ago had a very bad migraine, when I woke up the next morning my left lower back was hurting. Two days later I was over at a friends house and bent just a little and got a shooting pain in my lower back where I had to hold on to something till it went away. Driving home the pain started going down to my knee. I called my Rheumy and got in to see him, thinks it is a slipped disk. Had me stay home from work for two day’s and put me on Hydrocodone for the pain. Also time for my blood work for the MTX, called me the next week and was told to stop taking it and come in for more blood work in two weeks, going today. No other info.
Don’t know what to do, pain is really bad, in my buttocks, groin, front part of leg, down to my knee, left side leg swollen, and right side a little swollen. The hydocodone only last for about 2 hours. Left 2 hours early from work last night because of the pain. This morning pain really bad and can hardly walk on my leg. Hurts to just sit here and type this. I have a home spa that I put in my bathtub and it helps for a couple hours, use ice pack, heating pad, again only helps for about two hours and I also do stretches. When do you decide to go to the ER? And how do you deal with the pain? All of my family lives in other states. Thank god for my son, he helps me through the rough times.
I am sorry that this is so long. And thank you if you took the time to read this.
Post Edited (Lamba) : 3/17/2006 9:35:19 AM (GMT-7)
Yes, you can request a copy of your bloodwork and should get it no problem.
I understand your work situation. People who haven't dealt with pain, depression, etc...do NOT understand whatsoever.
Hang in there, it sounds like you have people working on the problem. Keep your voice being heard, and continue the fight to find out what is wrong and what you need to be pain free.
Post Edited (erin kachmar) : 3/19/2006 12:55:16 AM (GMT-7)
Thanks for replying. There are 7 of us in my family, and none of the other brothers and sister has any kind of problem (yet). I guess that my mom's cousin's daughter had RA really bad. Both of my parents are deceased. I was diagnosed September 2005. My wrist were so swollen that he took a pic of them. I was having problems way before that, just didn't want to admit it.
The first doctor put me on muscle relaxers and the prednisone, and then weaned me off the prednisone. When I was off for that month he screwed me on Short Term Disability. Didn't send in paperwork, and he told the insurance that I was depressed. Then when I went back to work he told them to give me a desk job. There is no desk job there that I could do; I could have lost my job. That is why I found another Dr; my goal was to be referred to a Rheumy.
My Rheumy has only put me on MTX. I asked to be put back on Prednisone cause that was the only thing that seemed to work for me. I haven’t had any side effects really, except for the moon face. But I can live with that if it takes the pain away.
People can be so mean; there is one girl at work that has snide remarks every time I am at home sick. She will say stuff like; she isn't sick, she is just sick of work. I am not a mean person but I would just like to be able to point my finger at her and say, you are going to wake up in the morning and not be able to get out of bed because you can't move any part of your body because of the pain, All your fingers hurt, so you can’t dress yourself or hold anything.
Rheumy said that he will call me to see how it is going. When I see him next I will ask him about other meds.
I am so glad that I decided to post. I am feeling a little better; the med is taken the edge off where I can function. I am in Colorado and it is pretty cold, suppose to snow today and most of next week, probably why RA is acting up.
Lamba wishing everyone is having a pain free day.
That is why I found another doc who sent me to a Rheumy, The Rheumy is great, he cares. I can call him with a problem, and he usually gets back to me that day or the next day.
I am so sorry that it is taken you so long for disability. I have read many places how hard it is. I hope your wait ends soon.
Speaking of that girl, the next night when I came into work, her comment to me was: (sarcastically) So, did you have a nice day off? I responded: yes, I alway's have fun when I am at home in pain and can't move. And then I just walked away.
I thought that I was getting better today, pain still there but not as intense, was able to clean my bedroom. Sat down on the couch and fell alsleep. But tonight the pain is coming back.
When he put me on the MTX he said that the RA was progressing fast. So when he calls me with the results of this Friday's blood work, I will tell him I want to see him to discuss other methods.
I can still work most of the night (I work 4 days, 10 hour shift), but I do feel that the meds are not helping like they were. On the weekends I don't do much of anything, mostly sleep. I save all of my energy for the 4 days. My son lives with me and he does most of the house work.
I am worried, because I don't want to be in that place like I was last February. And I want my weekends back.
Thank you so much for listening to me, it has helped alot.
First, welcome to Healing well. Second, I'm sorry that you're experiencing so much pain right now. I don't believe that I have RA (neither does my rheumatologist), but I have inflammatory arthritis, as noted by a positive RF and joint pains. As far as a trip to the ER is concerned, I've only been once. Last November, my hip and shoulder pain flared big time. At the time, I was not taking pain medication, just Sulfasalazine. I felt horrible for four days, called in to work (which is unheard of), didn't sleep, couldn't eat. Finally, I went to the ER in the middle of the night. I felt so bad I was just about crying--husband was very worried. It was the best decision I could have made. Even though it took forever for them to get to me--it was 4am and not very many staff and I wasn't technically an emergency (I wasn't shot or stabbed or anything), once they did, I received two Toradol injections (great drug), 2 vicodin, and a prescription for prednisone. I was told to follow-up with my rheumatologist. The bottom line is you shouldn't have to deal with that much pain. If you can't sleep and can't eat, I would recommend a trip to the ER. Even though, it's not a pleasant place to be, you'll probably be glad that you went in the long run. Ever since that trip to the ER, my rheumatologist has made sure that I have access to a pain killer. I'm currently taking ultracet with no problems.
I hope you feel better soon.