we've much in common. have a bad case of RA and Crohns as well. the joint pain is what is most terrible. so off the bat my heart goes out to you for living with this...it's not easy.
your arthritis seems worse the day of your shots? could be a few things: could be that by the time you are due for you injection, the previous one is wearing off thus leaving you in more pain/inflammation the day near your next injection. in that case, you could always inquire about dosing the Humira @ every week or even every 10 days rather than every 2 weeks. i take it every 4 days @ 40mg.
any apprehension or anxiety about the injections or stress in general that day can add to tension making your body hurt even more.
also, with RA and any autoimmune disease the body and it's reactions to ANYTHING is highly sensitive. so, some may find that after any procedure...whether it be a blood draw, an injection, dental work, even a MASSAGE....can trigger mini acute responses of hightened "flare ups".
ok...you have Crohns so i take it that for you all NSAIDs are out of the question right? i cannot take nsaids...i bleed & get a CD flare up.
in reality, NSAIDS are best for inflammation. you do need an antiinflammatory...which unfortunatley will most likely be prednisone evrey now and then for bad flare ups and pain. Vicodin and narcotics help pain, yes....but they really do nill for the throbbing part. which stinks. i've just added Imuran to the combo of meds I'm on for joint pain and it does help keep my elbows and shoulders from throbbing and getting severe pain.
darvocet-N is pretty good...it has a tylenol component to it.
but...if pain is a major problem and you want good pain management a safe way to go would to be on an extended slow release narcotic and something for breakthrough pain. Vicodin is a little short acting. there are morphine that are slow release and act all day.
i still have to use ice/heat/compression/elevation even with everything i'm on. so it's a lot of work to keep pain at a tolerable level.
thing is....do not be ashamed of pain relief. with proper pain management people are able to walk/work/do daily activities and get back a good chunk of quality of life.
remember, you've two culprits working against you. RA pain is bad enough...but throw Crohns joint pain on top...it's hell. i wish it were just one thing.
take care alice.
Active, Severe RA. Crohns Disease. Chiari Malformation & Right Brain venous anomoly. AS. Emphysema. Rheumatic Lung. MVP and Tricuspid prolapse. Had Lymes disease for 10 years.
Meds: Humira 40mg every 4 days; pred; Pentasa; Imuran; dilaudid; diazepam; Avinza 30mg; MiraLax & too many others.