been lost in the woods it seems

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missie1227
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Date Joined Nov 2005
Total Posts : 751
   Posted 4/4/2006 6:25 PM (GMT -7)   
took my first iv shot of predisone 80 mgs in my  rear. anyone have this done? any help from it?
rhuemy says it should help some for a couple of weeks. is this a large dose to take iv 80 mgs?
i hope i dont freak out on it
9-02 crash w/ C-5-6-7 anterior/posterior fusion in neck w/11 screws and 4 metal plates. multilevel HNP at T & L section. FMS, PA in dec 05. SSI approved after 2.5 yr wait. sezuires, CTS, etc. on norco, xanax etc. i dont know what else is wrong with me and neither does anyone else!!!


erin.K
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Date Joined Mar 2005
Total Posts : 3148
   Posted 4/4/2006 7:34 PM (GMT -7)   

hey,

actually the butt shots are lifesavers during bad flares.  it's a pretty generous shot, into the muscle. ummmh, they give a big dose, but it's safe...it kinda breaks the flare.

i usually feel a little better after 6 hours & then the next day. it disperses slowly...so it's not an instant whopping dose of medicine all at once.

i usually get 60mg in a shot...but 80mg isn't too out of the ballpark.

i sure hope you feel better from it.  it does help with the throbbing severe pain.

what brought you to get one?  in a lot of pain?

take good care,

erin 


Active, Severe RA. Crohns Disease. Chiari Malformation & Right Brain venous anomoly. AS. Emphysema. Rheumatic Lung. MVP and Tricuspid prolapse. Had Lymes disease for 10 years.
Meds: Humira 40mg every 4 days; pred; Pentasa; Imuran; dilaudid; diazepam; Avinza 30mg; MiraLax & too many others.


missie1227
Veteran Member


Date Joined Nov 2005
Total Posts : 751
   Posted 4/4/2006 9:10 PM (GMT -7)   

oh hi erin- i got tired of the severe nausa associated with the pain thresholds i been having and am under tons of stress physically and emotionally this is taking its toll on me. am beginning not to care anymore waht they heck they all do to me.

i figured i got to try something. was  in a ibs D flare for few weeks now back to ibs-c

i just dont understand it anymore. eyes bothering me with the sunlight, blisters on hands for no reason? now doc  wantsto test me for luppy ana and RA latex blood test....dud i thought he did this already wit hthe ana? why the wait? i now i know why, he needs me to come back every month for more money for him when he could have ordered all these tests the first day off the bat...but that would be too easy to figure out......i took my script to the pharmacy to fill for humira and the phar told me not to take the med, he thought it was too dangerous a drug for me.....said none of his patients that he fills scripts for are on this drug for the side effects. i told my rhuemy this today and he was pissed off at the phar who told me this.

oh well, well see how this shot goes. by the way any one know how long it takes for me to get the moon face and humps on back from pred?

does it go away after you stop the shots?

thanks


9-02 crash w/ C-5-6-7 anterior/posterior fusion in neck w/11 screws and 4 metal plates. multilevel HNP at T & L section. FMS, PA in dec 05. SSI approved after 2.5 yr wait. sezuires, CTS, etc. on norco, xanax etc. i dont know what else is wrong with me and neither does anyone else!!!


Ducky
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Date Joined Mar 2005
Total Posts : 3199
   Posted 4/5/2006 3:47 AM (GMT -7)   
Hey missie - some people don't get the moon face or buffalo hump... and some do, like everything else, it's a crap shoot. I had to take prednisone for Graves disease a long time ago. I was on it from May - September, and I have the moon face and buffalo hump. I took it in pill form 4 times a day, everyday. So I was on a pretty high dose. And no, it doesn't go away, it may decrease a bit, but I still have mine. And it was in 1998 that I took the prednisone.

Sorry you are having such a hard time with everything. I can't believe that your pharmacist told you that today. If I was your doctor, I'd be mad too. Hang in there, we're here for you... let us know how everything goes - Duck
Diagnosed January 2005 - Psoriatic Arthritis/Spondylitis
-Currently taking 50mg shot weekly of Enbrel
Diagnosed May 1998 - Graves Disease
-Complete Thyroidectomy September 1998 - While 11 weeks pregnant
Other Complications - GERD/Scoliosis/Hiatal Hernia/Graves Disease of the Eyes
Current Meds -  Enbrel/Prevacid/Synthroid
Past Meds - Inderal/PTU/Prednisone/Voltaren/Feldene/Mobic/Cortisone and Steroid Shots


elcamino
Veteran Member


Date Joined Sep 2005
Total Posts : 1744
   Posted 4/5/2006 4:33 AM (GMT -7)   

Hi Missie,

Sorry to hear that you're going through such a difficult time.  Re: the prednisone dose--I haven't had prednisone in shot form before, but in a bad flare I had last November the ER doctor put me on high dose prednisone for a week.  Started at 80 mg.  My rheumatologist said that was pretty high, and I got the impression he wouldn't have given it to me, but all is said and done it worked great.  I felt better that week than I've felt since.

Re: Humira and your pharmacist.  Egads!  Why would your pharmacist tell you that?  Your doctor would not have prescribed it for you if he thought it would harm you.  I can tell you that Humira, and the other TNF-inhibitors, certainly have their risks, but in most cases the benefits far outweigh the risks.  I took Humira for 3 months--never had a negative side effect.  I've been on Enbrel for  month with no side effects.  I think that the TNF-inhibitors overall are probably safer than the immunosuppressants (just my opinion).

Elcamino


erin.K
Veteran Member


Date Joined Mar 2005
Total Posts : 3148
   Posted 4/5/2006 11:16 AM (GMT -7)   
eyes  wow! hey missie, did the pharmacy actually dispense the Humira to you?  i mean...Doctor's orders overide the pharmacist.  the pharmacist isn't allowed to make that judgement nevermind withold medication! confused oh God i cannot believe he/she would say that! so does this pharmacist go around withholding medication because of his/her opinion of it not being "safe"?  that is patient neglect...and legally a form of malpractice if indeed the pharmacist refused to dispense your prescribed medications!  he could get fired for that!  nono honestly, i would call the manager of the pharmacy and report this! (if anything...you might get some freebies in RXs) :-) holey moley!  but, do you have the Humira now?
 
well anyway...back to you. sad you poor thang. {{{{big hug}}}} typically, the systemic side effects of prednisone that really bother people is called the  "Cushingoid Appearance Syndrome".  when you inquired about the 'buffalo hump' and 'moon face'.  this sometimes happens, in most cases, involving long-term/ high dose treatment of prednisone and corticosteroids (all prednisone or mthylprednisone derivitives) . so if a person gets a shot of depopred (that's what you most likely recieved if you got a big shot of the prednisone) every now and then...you will most likely NOT get ill side effects like the moonface and such.  even if you were to recieve a shot of depo say every month...the likelyhood of getting the systemic effects of the steroid you're worried about are very slim.
 
however, you should still be careful around people with colds/viruses because you can still become vulnerable to picking up infections due to pred's immuno-suppressive properties.  the oral forms of prednisone (like the step down tapers and 15mg, 20mg and 40mg pills taken daily) are the ones that cause the most systemic effects.
but do limit your sodium intake...it will help reduce any swelling that may occur while on prednisone.
 
did the doc put you on oral prednisone treatment?
 
awe, the pain's that bad that it has caused nausea? sad yeah, that's rough hon....so sorry.
 
**the prednisone may help with the diarrhea and constipation flares you're having.** :-)
 
so what are we doing about the Humira?  did you finally get it?
quite honestly....in my opinion too...Humira i believe is better to be on than prednisone for disease/arthritic treatment.  prednisone is a great drug, yes, but it only treats symptoms and pain and inflammation, and really masks a lot of issues that need disease oriented treatments...but ultimately pred does not slow the progress or help the causitive processes of say for instance RA or Psoriatic arthritis, Crohns, colitis...
regarding the bloodwork?...i don't know why he didn't run all the panels.  eyes usually in a lab script, an M.D. will do the entire autoimmune panels.  confused perhaps he did? and just wants to repeat it?
 
we all feel for ya hon!  :-) tis the life of an arthritic patient!  never an easy time...NEVER!
 
how are you today?  and please let us know about that quacky pharmacist! tongue i've right mind to call him and say.."what the **** man!" LOL.  really!  that would be like me working in the hospital and about to give a prescribed medcation to a patient and deciding to NOT GIVE it because I THOUGHT IT WAS TOO DANGEROUS OF A DRUG! skull   nono ya just can't do that!  well, i hope his stupidity works to your benefit...
my Walgreen's pharmacy screwed up SEVERAL times my Penatasa Rx: wrong dose wrong instructions and wrong name on the bottle (they had another prescribing doctors name on it)...i got a month supply on the house! ;)
 
this too shall pass. write back when you feel well enough to.
 
{{{{{ BIG HUG AGAIN!}}}}}}}
erin
Active, Severe RA. Crohns Disease. Chiari Malformation & Right Brain venous anomoly. AS. Emphysema. Rheumatic Lung. MVP and Tricuspid prolapse. Had Lymes disease for 10 years.
Meds: Humira 40mg every 4 days; pred; Pentasa; Imuran; dilaudid; diazepam; Avinza 30mg; MiraLax & too many others.


missie1227
Veteran Member


Date Joined Nov 2005
Total Posts : 751
   Posted 4/5/2006 2:00 PM (GMT -7)   
hi elcamino, ducky and erin-
 thanks for thinking of me. the shot i got yesterday did help me slightly today with some pain but like you say it is a mask of sorts  so  it doesnt  really attack the issues that i have  but since i am getting so desperate as my body is getting worse and worse and it is like i have gone to rack and ruin within this past three months. my spine is curving to the left side at the lumbar region that i didnt have last year. the docs down here have no clue as to why this is happening.
i have gone to PT for 6 weeks while it helped with some of the issues it hurts me more than when i went in.
the winn-dixie pharmacy taht i went to for the humira, is now closed i hear. and i couldnt get my script back as they have now closed so they moved waht ever scripts i have to someplace else. they didnt give any notice to anyone that they were closing the store and the pharmacy and within one week it was down.
the pharmacy i guess thought he was trying to be helpful to me. he warned me very cautiously not to take this product. he said out of all the patients he has served none of them are on this drug. i told my rhuemy this and he looked flabber gasted.
it was then that i said to him i am not walking out of this office without some kind help today from you be it and injection or something. i had to suggest to him thati wanted to try the pred, he never even thought of it.
i am so frustrated at the health care quality in florida, i scratch my head in confusion over all this. he told me  he was initially from the mayo clinic.
ok so now i am on this. he didnt do a complete palnel of bloods on me initially and i dont know why. my health care paln only allows me to work with a few doctors down here so i dont get a good pick and since i am now on ssdi, i chose not to have the medicare because the doctors dont want to take those patients as they dont get paid much money for them. so i opted to not sign on with the medicare program and jsut keep my united health care plan.
so i will keep on with the predisone for a while i guess, my nect step is to go for a dermtologist to get this cultured from my scalp to find out waht i have cooking there.  i didnt have any latex gloves on when i got this blister so i dont know why he  is looking for a RA latex blood work up on me. and i cant for the life of me figure out why he didnt do a n ANA on me in the beginning. but i guess i will wait and see what else they can tell me
the wacko pham put the fear of G-d in me for this humira though!!!


9-02 crash w/ C-5-6-7 anterior/posterior fusion in neck w/11 screws and 4 metal plates. multilevel HNP at T & L section. FMS, PA in dec 05. SSI approved after 2.5 yr wait. sezuires, CTS, etc. on norco, xanax etc. i dont know what else is wrong with me and neither does anyone else!!!

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