Anyone had multiple cortisone shots in joints or around tendons & noticed an overall change?

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Ides
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Date Joined Nov 2003
Total Posts : 7077
   Posted 4/4/2006 9:10 PM (GMT -7)   
I have had cortisone or a derivative injected in both shoulders, thumbs, wrists, and today in my thumb tendon. The last few times I have noticed that I get what appears to be some systemic benefit. I went to the rheumy's office today very stiff in the back, hip and thumbs. After the thumb tendon injection, I felt much better all over. Perhaps getting rid of the huge pain in the thumb raised my overall sense of well being. Anyone else experience anything similar?
CD, Ankylosing Spondylitis, peripheral neuropathy
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Ducky
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Date Joined Mar 2005
Total Posts : 3199
   Posted 4/5/2006 3:49 AM (GMT -7)   
Hey Ides! I'm glad you've gotten some relief... hhhmmmm... that is interesting, about your shot in your thumb. I'm gonna have to do some research on that and get back to you... keep posting and let us know how you are doing - Duck
Diagnosed January 2005 - Psoriatic Arthritis/Spondylitis
-Currently taking 50mg shot weekly of Enbrel
Diagnosed May 1998 - Graves Disease
-Complete Thyroidectomy September 1998 - While 11 weeks pregnant
Other Complications - GERD/Scoliosis/Hiatal Hernia/Graves Disease of the Eyes
Current Meds -  Enbrel/Prevacid/Synthroid
Past Meds - Inderal/PTU/Prednisone/Voltaren/Feldene/Mobic/Cortisone and Steroid Shots


erin.K
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Date Joined Mar 2005
Total Posts : 3148
   Posted 4/6/2006 7:20 PM (GMT -7)   
eyes  i have a freaky thing:  whenever i get an MRI that involves IV contrast....i swear to God that i have like freakish superwoman energy for like 2 days!  i think it's the IV contrast chemicals. tongue
it's possible you might get some overall effect from the shot.  they are typically slowly absorbed by the joint...so some of it is bound to leak out to the surrounding tissue.
 
i sure hope they continue to work for you!
when i get my knees done...it lasts for about a month with no knee pain.
 
i prefer the steroid shots over oral steroids....anyday!
Active, Severe RA. Crohns Disease. Chiari Malformation & Right Brain venous anomoly. AS. Emphysema. Rheumatic Lung. MVP and Tricuspid prolapse. Had Lymes disease for 10 years.
Meds: Humira 40mg every 4 days; pred; Pentasa; Imuran; dilaudid; diazepam; Avinza 30mg; MiraLax & too many others.


Ducky
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Date Joined Mar 2005
Total Posts : 3199
   Posted 4/7/2006 5:10 AM (GMT -7)   
Hhhmmm, sounds like you need to get that stuff more often if you get superwoman energy! :) Would do you some good! :)
Diagnosed January 2005 - Psoriatic Arthritis/Spondylitis
-Currently taking 50mg shot weekly of Enbrel
Diagnosed May 1998 - Graves Disease
-Complete Thyroidectomy September 1998 - While 11 weeks pregnant
Other Complications - GERD/Scoliosis/Hiatal Hernia/Graves Disease of the Eyes
Current Meds -  Enbrel/Prevacid/Synthroid
Past Meds - Inderal/PTU/Prednisone/Voltaren/Feldene/Mobic/Cortisone and Steroid Shots


erin.K
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Date Joined Mar 2005
Total Posts : 3148
   Posted 4/7/2006 8:35 AM (GMT -7)   
eyes  ya know what i also think:
 
when i get the steroids injected into the knee joints...the pain is soooooo bad for 2 days in the knees, that everything else doesn't seem THAT BAD.  lol.  so i ask the rheummy, "is this a trick or something?"  he said,"yeah...it's like a punch in the nose...get your knees done & you forget about your elbows/hands and shoulders!"   he was only kidding of course.
 
hey Ides, how long do your shots last for?
with my knees, i get to have a good month without bad throbbing, but after a month or so...they start up again.
 
i hate having the joints done, it wouldn't be so bad....but i can't move them fro like a week after the shot.
 
hope you're doing ok.
:-)  
Active, Severe RA. Crohns Disease. Chiari Malformation & Right Brain venous anomoly. AS. Emphysema. Rheumatic Lung. MVP and Tricuspid prolapse. Had Lymes disease for 10 years.
Meds: Humira 40mg every 4 days; pred; Pentasa; Imuran; dilaudid; diazepam; Avinza 30mg; MiraLax & too many others.


Ides
Forum Moderator


Date Joined Nov 2003
Total Posts : 7077
   Posted 4/7/2006 3:48 PM (GMT -7)   
Erin,
I have had mixed results with joint and tendon injections. For instance, I had my right shoulder injected last May. By the third day, it was 75% better. Was able to begin exercising, strengthening the muscles to better support the joint, and within a month was pain free in that shoulder. To this day, it is A-OK. My left shoulder and biceps tendon got so bad that my range of motion was like 15%. Had it injected in November. I had maybe 50% improvement for about 3 weeks. It got progressively worse and the rheumy had to inject it again in February. This time, it worked much better but is still not 100%. I've been trying to build the muscles on that shoulder because the rheumy says the next time it goes bad, I'll be seeing the ortho surgeon.

So far, this thumb tendon injection has relieved about 80% of the pain. I was told to rest it for at least a week to give the inflammation a chance to resolve. Since I "forget" and start bending it, I have it splinted. I am detemined to follow orders to give myself the best possible chances. If this tendon calcifies like my Achilles did, I am going to be in a world of permanent hurt and limited function.

At this point, if the rheumy says I need a joint or supporting tendon drained and/or injected, I pull out my pen to sign the release. The possibility of having more tendons calcify scares me due to the problems the already calcified ones give me.

Thanks for asking about me, Erin! Hope all goes well for you.
Ides
CD, Ankylosing Spondylitis, peripheral neuropathy
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missie1227
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Date Joined Nov 2005
Total Posts : 751
   Posted 4/11/2006 11:06 PM (GMT -7)   
ides- one week ago today i had a pred shot of 80 mg in my tushy. after a few days it helped me so much that i cant believe it. i would have to say it gave me overall relief of about 45% feeling better i didnt have the bone crushing fatique and for the first time in i dont know how many months i didnt have to take a nap in the afternoon which was a msut for many moons now. i had to off the provigil as  it gave me skin blisters and dried out my skin all over worse than what it was before.
ths pred has it draw backs i know, i lost 12 pounds but now wanna eat the entire house out. i was 176 now 164.
i need tobe at 135.
but if i can get a few weeks relief this has my vote. i dont wanna get like jerry lewis was before he came of the steriods he blew up to 260 pounds but he has a bad back and went into the hos to wean off the steriods and now lost  alot of weight also. he is still i  imagine in a lot of pain though, why he was on the steriods was from the slips and falls he took as a comedian in his movies, i guess he did all his own stunts and landed hard on his back.
 but i am going to keep on doing the steriods if this is the kind of relief i can get, i am not gonna say i feel normal but PRETTY better than i was for the last 3-6 months in a non stop flare. my rhuemy says i can expect to have about two weeks relief from this last shot before it wears off. now i have some insomina also from it. i am on HRT for 10 yrs now. part of this compondent is for me to lower the dose on the combipatch, as i need to adjust down from it also. HRT is protective of the bones while steriods robs the bones though which is a down side. i am looking at the quality of life here though.
i hear if you take the shots and not do the oral steriods, it is better for you side effect wise.
i am going to play out the steriords until i can no longer get any relief from it then look to the next thing to help me.
i hope this helps you. i did not have any of the crankiness assoc with taking pred so far.
i am going to try to do this every other month
i am glad i didnt do the eppis' in my spine as i feel safer doing a general shot that will go system wide instead of the spine alone, this way my entire system benefits from it.
9-02 crash w/ C-5-6-7 anterior/posterior fusion in neck w/11 screws and 4 metal plates. multilevel HNP at T & L section. FMS, PA in dec 05. SSI approved after 2.5 yr wait. sezuires, CTS, etc. on norco, xanax etc. i dont know what else is wrong with me and neither does anyone else!!!


Ides
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Date Joined Nov 2003
Total Posts : 7077
   Posted 4/12/2006 12:39 PM (GMT -7)   
Missie, I'm glad that the injection worked for you. Parenteral steroids are out for me. I developed avascular necrosis [AVN] in the top of both femurs from many stints on oral prednisone for my asthma and Crohn's disease. AVN is where a portion of the bone dies. In my case, total hip replacement might be in the works.
CD, Ankylosing Spondylitis, peripheral neuropathy
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missie1227
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Date Joined Nov 2005
Total Posts : 751
   Posted 4/12/2006 3:14 PM (GMT -7)   
Yikes how long were you on them before you found out aboutthis AVN? do you get this from shots also? or just the orall tablets?
9-02 crash w/ C-5-6-7 anterior/posterior fusion in neck w/11 screws and 4 metal plates. multilevel HNP at T & L section. FMS, PA in dec 05. SSI approved after 2.5 yr wait. sezuires, CTS, etc. on norco, xanax etc. i dont know what else is wrong with me and neither does anyone else!!!


erin.K
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Date Joined Mar 2005
Total Posts : 3148
   Posted 4/12/2006 3:31 PM (GMT -7)   

hey missie,

jerry lewis has a very groovy pain stimulator implant thingie.  he pushes a button and it does something to the nerve pathway & it therefor blocks pain receptors! cool huh?  he was on i think "THE VIEW" last year.  it's a spinal implant.  i like jerry lewis.  :)


Active, Severe RA. Crohns Disease. Chiari Malformation & Right Brain venous anomoly. AS. Emphysema. Rheumatic Lung. MVP and Tricuspid prolapse. Had Lymes disease for 10 years.
Meds: Humira 40mg every 4 days; pred; Pentasa; Imuran; dilaudid; diazepam; Avinza 30mg; MiraLax & too many others.


Ides
Forum Moderator


Date Joined Nov 2003
Total Posts : 7077
   Posted 4/12/2006 4:24 PM (GMT -7)   
Missie, I had both oral and IV steroids a lot for most of the '80s. My next time on steroids was for 5 months in 2003. It is not known when the bone death occurred. Mine was found in 2004 when my hip pain was being evaluated. I tend to believe that it occurred during the 2003 prednisone therapy because I remember 3 days of excruciating deep burning hip pain that made it impossible to get out of bed even for the bathroom. AVN occurs mostly at the ends of a long bone such as the femur or humerus. It can also occur in the knees and ankles. Any unexplained pain in the hip, knee, shoulder, or ankle of a person with a history of steroid use, or in a person that is a SCUBA diver, needs investigation.
CD, Ankylosing Spondylitis, peripheral neuropathy
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missie1227
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Date Joined Nov 2005
Total Posts : 751
   Posted 4/12/2006 11:52 PM (GMT -7)   
oh rats and this is b/c of the steriod usage huh?
so if i continue to take the steriods this could happen to me as well. how often does this happen if you know and how do they treat this condition, can it be reversed?
does this occurr afteronly once in while of treatments or constant usage over time? thanks ides and i am sorry you have this
 
and erin- i like jerry lewis also. he has done alot in his life to hlep others with his telethones and all for MD, etc
9-02 crash w/ C-5-6-7 anterior/posterior fusion in neck w/11 screws and 4 metal plates. multilevel HNP at T & L section. FMS, PA in dec 05. SSI approved after 2.5 yr wait. sezuires, CTS, etc. on norco, xanax etc. i dont know what else is wrong with me and neither does anyone else!!!


Ides
Forum Moderator


Date Joined Nov 2003
Total Posts : 7077
   Posted 4/13/2006 11:58 AM (GMT -7)   
Missie, according to the national osteonecrosis foundation, 10-20,000 people are diagnosed with AVN [also called osteonecrosis] each year. AVN can occur from trauma, like a fall or accident, alcoholism, prednisone usage, and SCUBA diving. I could not find how many of the 10-20,000 are from prednisone usage. It is estimated that 10% of all hip replacements every year in the US are from AVN. I don't know if you will get AVN if you continue with steroid injections. It is one of the risk factors of the medication. There is more information about AVN/osteonecrosis and steroid usage at this site: http://www.niams.nih.gov/hi/topics/osteonecrosis/

Bone death cannot usually be reversed. There are some doctors that try to revascularize the dead area by taking a core of the dead area in hopes that new bone will grow and fill in. This is usually tried only in the early stages of the disease. Normal treatment is to replace the joint before the bone collapses.


CD, Ankylosing Spondylitis, peripheral neuropathy
Please help support this forum. http://www.healingwell.com/donate/ 


erin.K
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Date Joined Mar 2005
Total Posts : 3148
   Posted 4/13/2006 10:19 PM (GMT -7)   
this is a serious matter. that's why docs monitor you closely. weighing the risks verses the benefits.
i think also that one can only be allowed a certain number of intra-articular injections within a time period.

like with any medication with risks, it can be lifesaving...just used with caution.
i would say though... not to get freaked out by prednisone. if only to control flares, and not on a constant long term therapy....the chances are small for complications such as this missie.
Ides has been through hell & back!!! you're one tough cookie! just asking, how many joint injections have you had alltogether?...ballpark? the number's gotta be up there!
bless you. take good care Ides.
erin


Active, Severe RA. Crohns Disease. Chiari Malformation & Right Brain venous anomoly. AS. Emphysema. Rheumatic Lung. MVP and Tricuspid prolapse. Had Lymes disease for 10 years.
Meds: Humira 40mg every 4 days; pred; Pentasa; Imuran; dilaudid; diazepam; Avinza 30mg; MiraLax & too many others.


missie1227
Veteran Member


Date Joined Nov 2005
Total Posts : 751
   Posted 4/14/2006 1:10 PM (GMT -7)   
it would be nice if my rhuemy would tell me that these things can happen when taking these kinds of meds.
that being said everything has its risk and i am quickly running out of choices to help myself so i have to take some chances with something here. first i was told the risks of doing the eppi's in my spine and had a needle jockey who wanted to do nothing more than give me eppi's up and down my spine, i said no.
now i wanted to try this shot and it worked for  a week now aged out. if i take another one maybe i get a week or two bennies from it.
 
 if i try humira maybe i get sicker from the initial reaction or not, but who wants to try for risks from one shot that may be worse than developing long term AVN over a periord of say years. from what i understand with pred AVN doesnt happen over night maybe.
but if i try humira and get a bad reaction immead, then i could die right away from it also even w/ benadryl or ephenehrine shots.
why put my body through more trama than it can take?
i dont know what to do with my self anymore.
 
 
i am sorry ides, this was your thread i didnt mean to hijack it.
9-02 crash w/ C-5-6-7 anterior/posterior fusion in neck w/11 screws and 4 metal plates. multilevel HNP at T & L section. FMS, PA in dec 05. on SSDI after 2.5 yr wait. sezuires, CTS, IBS ( C & D). norco, xanax, predisone shots. i dont know what else is wrong with me and neither does anyone else!!!


Jbrat
Regular Member


Date Joined Apr 2006
Total Posts : 116
   Posted 4/24/2006 7:44 PM (GMT -7)   
I was just rading about AVN in this post.  I have been on steroids for over 4 years. I now have addisons disease my adrenal glands will not produce cortosone (sp) correctly now.  I am having extreme hip [ain and pain in my upper foot.  I have had stress fractures in my back, heel, ribs and I still think this foot is fractures.  I would welcome any information about what AVN is and what more side effects I can expect from steroid usage.  Unfortuanltey they don't make me feel like superwoman!!!

Here is a list of my meds. I keep trying to decrease or eliminate some but then I get sick again.

 

Accolate 20 mg                        Albuterol  2 mg                      

Atrovent 2.5 ml                        Celexa 20 mg                           1 a day

Flexeril 10 MG            

Florinef 0.1 MG                 

Fosamax  70mg               

Lasix 20 mg.  

Librax                          

Lidoderm Patches                        

Loracet 10 mg                         

Micardis 40 mg                       

Micro-K 10                            

Mobix 15 mg                           

Nexium  40 mg           

Potassium CL 10 MEQ            

Prednisone  5 mg                   

Premarin .0625 mg.                  

Tessalon Perles 100mg 

Zocor 40 MG                          

 

Calcium W/Vit. D                     3 per day (total 1800 mg.)

Vitamin D                                 800 I.U. per day

Centrum A-Z                            1 per day

Stool Softener                          2 per day

 

ALLERGIES:   Compazine, sulfur, imitrex

 

 I also have COPD, Addisons Disease, Osterarthritis, Osterporosis, Acid Reflux (GERD).Depression, (why I have depression, I'll never know). And just all over feel like crap.

 

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