no, no you're not freaky! welcome to HW keekledee.
i think you need a GOOD and thorough evaluation and the whole sha-bang of rheumatic and autoimmune blood works and xrays and MRI's. i think you'll find a bunch of obective findings that wil lead to a good treatment plan.
genetics is so wishy washy with RA, CD, and all AI diseases. they say there is a STRONG correlation...but then like your situation!....this happens a lot! and is very confusing to people and doctors.
every person will manifest disease uniquely. as you'll find and read here @ HW....some folks have positive labs up the wall! and are less symptomatic. and others are all physically & clinically symptomatic...yet lack the gene markers/titers/ and assays for the diseases. and some are a combo of both! LOL.
it's tough. it's intricate. and it seems nothing comes very easily.
what is you next plan of action?
i wish you good luck. and please write back soon.
Thanks for the words of encouragement. My biggest problem this week is Doctors. My new Pc forgot to order an MRI and to refer me to a rheumatologist before she went on vacation for 2 weeks. Her nurse tells me that nothing can be done until she gets back? I called a rheumatologist and tried to make an appointment. Apparently, there are only 3 rheumatologists in the state of Maine and the earliest appointment is at the beginning of August!!! This state is horrible for healthcare. I previously lived in Massachusetts, which has excellent healthcare, and am regretting now that we moved here. Today I'm going to look into rheumatologists in Boston, although my insurance won't cover it. I just want someone to help me feel better because my PC's have never done more than tell me to take Ibuprofen. (that doesn't work) It really is frustrating. Hopefully, whoever else is reading this in fortunate to live where there are actually doctors. Enough complaining! You're right about trying to see the funny side of our "bad" genes. I always have to remind myself that there are other's worse off. Of course, there are also others much better off! (not fair!) You are strong and I admire that. I admire everyone who is going through this. Thanks again.