Remicade Allergic Reaction

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Ladyslipper
New Member


Date Joined Apr 2006
Total Posts : 3
   Posted 4/9/2006 1:39 PM (GMT -7)   
sad  I had my first Remicade treatment.  Halfway through I developped hives, shortness of breath, bad feeling in stomach then all over, went to er, got megadose of steriods,  that evening I god a bad reaction from steroids, hiper active, crying not stop etc.... now I am sick with the flu.   My doctor has never had a patient with an allergic reaction so she want's me to try again next month.  I am scared.  I don't think I will put myself through this again.  My insurane will not pay for embrel which I am noy allergic to, but will pay for remicade.  I am on methotrexate and that helps.  Any comments or advice you can give me to help me make up my mind on what to do next will be apprediated.

Ducky
Veteran Member


Date Joined Mar 2005
Total Posts : 3199
   Posted 4/9/2006 1:55 PM (GMT -7)   
Hey Ladyslipper... welcome to Healing Well... Sorry you had such a bad reaction to the Remicade. Since your insurance won't pay for the Enbrel, will they pay for Humira or Orencia? Let us know how you are doing... Duck
Diagnosed January 2005 - Psoriatic Arthritis/Spondylitis
-Currently taking 50mg shot weekly of Enbrel
Diagnosed May 1998 - Graves Disease
-Complete Thyroidectomy September 1998 - While 11 weeks pregnant
Other Complications - GERD/Scoliosis/Hiatal Hernia/Graves Disease of the Eyes
Current Meds -  Enbrel/Prevacid/Synthroid
Past Meds - Inderal/PTU/Prednisone/Voltaren/Feldene/Mobic/Cortisone and Steroid Shots


Ides
Forum Moderator


Date Joined Nov 2003
Total Posts : 7077
   Posted 4/9/2006 3:53 PM (GMT -7)   
If someone has an obvious allergic reaction to Remicade, then your doctor should be able to appeal to your insurance company to allow the Enbrel. I think you need to push your doctor to try this. As scary as your reaction was and with your level of fear, I think you need to push the doctor to appeal. Also, call your insurance yourself and talk to the benefits people about the situation. If you do decide to try a second Remicade infusion it is imperative that you be premedicated. My GI premedicates with prednisone for a couple days prior.
CD, Ankylosing Spondylitis, peripheral neuropathy
Please help support this forum. http://www.healingwell.com/donate/ 


missie1227
Veteran Member


Date Joined Nov 2005
Total Posts : 751
   Posted 4/9/2006 5:11 PM (GMT -7)   
sorry- i would NOT take any of them at all after that episode


9-02 crash w/ C-5-6-7 anterior/posterior fusion in neck w/11 screws and 4 metal plates. multilevel HNP at T & L section. FMS, PA in dec 05. SSI approved after 2.5 yr wait. sezuires, CTS, etc. on norco, xanax etc. i dont know what else is wrong with me and neither does anyone else!!!

Post Edited (missie1227) : 4/9/2006 10:28:53 PM (GMT-6)


Ladyslipper
New Member


Date Joined Apr 2006
Total Posts : 3
   Posted 4/9/2006 7:30 PM (GMT -7)   
Hello Ducky,
 
Insurance won't pay for Humira either and I had no side effect with it.  What is Onecia ?  Never heard of it. 
 
I will call my insurance tomorrow and also my primary care physician.  I have not felt well since I took the remicade two weeks ago. I am all jittery inside and jump at any noise.  The telephone ringing really bothers me and I never felt that way before.  I am also feeling depressed. Thanks for advice

Ducky
Veteran Member


Date Joined Mar 2005
Total Posts : 3199
   Posted 4/10/2006 4:41 AM (GMT -7)   
Orencia and Kineret are 2 new biologics that are out there, they are used sometimes when a person fails Humira or Enbrel... I agree with Ides, you need to have your rheumy talk to your insurance company!
Diagnosed January 2005 - Psoriatic Arthritis/Spondylitis
-Currently taking 50mg shot weekly of Enbrel
Diagnosed May 1998 - Graves Disease
-Complete Thyroidectomy September 1998 - While 11 weeks pregnant
Other Complications - GERD/Scoliosis/Hiatal Hernia/Graves Disease of the Eyes
Current Meds -  Enbrel/Prevacid/Synthroid
Past Meds - Inderal/PTU/Prednisone/Voltaren/Feldene/Mobic/Cortisone and Steroid Shots


erin.K
Veteran Member


Date Joined Mar 2005
Total Posts : 3148
   Posted 4/11/2006 2:37 PM (GMT -7)   
yes, it is definitely worth pushing for.  Ides & Ducky are so very right.  doctors have pull...they may deny it, but they do.  (it's just the matter of putting in a few minutes of time and paperwork).
they can call you insurance company.
 
also, Enbrel & Humira have assistance programs where if you are denied coverage after doing everything in capabitlities...they will help pay for the injections at little to no cost.  but most likely, if you do have medical insurance & a diagnosis....it will be covered.  it'll take a little fight though.
 
folks go through several medicines.  it might take trying a few and giving each some time.  they all work a little differently.
just because one has a severe allergic reaction, doesn't mean the others will do the same.
remember, Remicade is going RIGHT INTO YOUR VEINS!  that's direct bioavailablity.  all direct infusions run a risk of danger.  heck...even a bag of normal saline!....if it is not primed correctly...a person can get an embolism!
 
we're rooting for you!  take good care. 
Active, Severe RA. Crohns Disease. Chiari Malformation & Right Brain venous anomoly. AS. Emphysema. Rheumatic Lung. MVP and Tricuspid prolapse. Had Lymes disease for 10 years.
Meds: Humira 40mg every 4 days; pred; Pentasa; Imuran; dilaudid; diazepam; Avinza 30mg; MiraLax & too many others.


CaMama
Veteran Member


Date Joined Mar 2005
Total Posts : 1884
   Posted 4/11/2006 10:27 PM (GMT -7)   

Hmmm, I thought I responded to this post already.

I say do not bother taking it....when I first started taking Remicade, I did not have any problems other than an itchy throat during the infustion...and some fatigue afterwards (normal for an infusion.) After a while, I slowly started having problems that worsened in time to the point I was always sick with infections and eventually got a flare afterwards. My eye would swell up, my liver went toxic and a year later I'm here still trying to feel a little stable in health (getting there - knock on wood!)

You're obviously allergic to it, with something that bad, I don't think solumederol is going to do much even with a zyrtec or benedryl to boot.

Good luck.

**


 


missie1227
Veteran Member


Date Joined Nov 2005
Total Posts : 751
   Posted 4/11/2006 10:43 PM (GMT -7)   
sorry i woud error on the side of caution. esp if these new ones have not been tested enough...i am too cautious and conversative

9-02 crash w/ C-5-6-7 anterior/posterior fusion in neck w/11 screws and 4 metal plates. multilevel HNP at T & L section. FMS, PA in dec 05. SSI approved after 2.5 yr wait. sezuires, CTS, etc. on norco, xanax etc. i dont know what else is wrong with me and neither does anyone else!!!

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