hurting can't wait for my doctor appointment

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taintedangel
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Date Joined Jun 2005
Total Posts : 303
   Posted 4/11/2006 8:02 AM (GMT -7)   
You might say i just need a shoulder to lean on at the moment.  I litterally hurt all over.  I was hurting and aching so bad when I got home from work last night I took half a pain pill that my husband has for his back problems.  He takes them once in awhile.  anyway, I took half of one last night cause I hurt so bad all over.  It helped a little bit but my legs and ankles were still giving me some trouble when i went to bed last night and i woke up so stiff this morning.  I'm right back where I was yesterday in very much uncomfortable pain.  Its an all over hurt.  It starts with ankles and knees in the morning sometimes lower back and by mid morning everything is hurting shoulders, neck, wrist.  Yesterday evening my wrist and hands felt so tight and they were so red and swollen by the time I got home.  I'm so sick of this.  I know something is going on I Just know it is.  I can't wait until I get to the doctor and hopefully get some answers.  I"m tired of hurting day in and day out.

deb in indiana
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Date Joined Aug 2005
Total Posts : 387
   Posted 4/11/2006 8:09 AM (GMT -7)   
I was like that for aboit a week even with the meds iam better today take care and i hope you get to feeling better soon DEB

taintedangel
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Total Posts : 303
   Posted 4/11/2006 8:49 AM (GMT -7)   
thanks Deb i appreciate it.  I just go from one day to the next hurting and wondering what the heck is going on.  My appt is set for May 1st.  I may call today though and just see if by chance they've had any cancellations and if so I'd take them.  I'm so ready to get to the doctor and find out why i hurt like this.  Last night I noticed every time i would change positions sleeping which i find myself doing pretty often something would pop or crack.  My elbow got pretty tight on me during the night i actually had to wait a minute before i could stretch it out.  I had to hold it with my hand and stretch slowly.  That probably had more to do with the fact i had my arm tucked under my pillow but still it hurt.  I find myself waking up more and more during the night with something bothering me. sorry just needed to complain a bit.  I feel like i'm about 60 years old today and i'm only 31.  i get up slowly after i've been sitting for an hour or longer.  I have to just to make sure a- i have my balance and b- everything is working together.  i know that sounds silly but hey i've litterally fallen up stairs when everything wasn't working together so its not so silly.  if someone asked me to go hiking this evening i wouldn't go because i just don't feel like i have the energy to do that kind of thing right now which sucks cause i used to love hiking.

taintedangel
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Date Joined Jun 2005
Total Posts : 303
   Posted 4/11/2006 9:49 AM (GMT -7)   
well the doctor did have a cancellation for tomorrow morning. I'm trying to work it out where I can go in the morning instead of waiting until may 1st. I figure its better to go while i'm hurting as much as i am. I don't want to wait to long and then go may 1st and not be hurting as much you know. I'll keep you posted. I'd much rather go earlier anyway than wait another three/four weeks. might as well get this process started if I can.

taintedangel
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Date Joined Jun 2005
Total Posts : 303
   Posted 4/11/2006 12:56 PM (GMT -7)   
oh well i tried for the appointment tomorrow it was just a 15 minute time slot and since i'm a new patient that wouldn't work. it was worth a shot. I've lived with these aches and pains for a bout four or five months i think i can make it a few more weeks. its just frustrating. have a good one.

erin.K
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Date Joined Mar 2005
Total Posts : 3148
   Posted 4/11/2006 2:20 PM (GMT -7)   

sad  it's awful isn't it?

i would suggest, write down everything EVERYDAY about the pain, what brings it on, how it doesn't go away, the pooping, cracking, intensity of the pain, all of the specifics, and how it is interfering with your everyday life.  it's good to do this NOW while it's happenning.  you might be right, when may 1st rolls around the pain might not be as terrible as it is now...and when it's not that bad....we tend to forget HOW BAD it was.

gosh, that's too bad about the apointment.  i pray there's another cancellation for a half hour or something.

you know...the question i hate the most is when the MA takes you into the Drs room & asks, "So what is hurting you today?"  and in my head i'm like "well everything where do i start?"  and many times i tell them evrything & it's just too much, they don't write all of it down! hah!

i feel for you!  all of my joints are effected by RA and it's rare that i get a few days of tolerable quality of life without too much pain.

may 1st is a few days away....keep thinking of that.

rest well. take good care.

erin


Active, Severe RA. Crohns Disease. Chiari Malformation & Right Brain venous anomoly. AS. Emphysema. Rheumatic Lung. MVP and Tricuspid prolapse. Had Lymes disease for 10 years.
Meds: Humira 40mg every 4 days; pred; Pentasa; Imuran; dilaudid; diazepam; Avinza 30mg; MiraLax & too many others.


taintedangel
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Date Joined Jun 2005
Total Posts : 303
   Posted 4/12/2006 4:49 AM (GMT -7)   
thanks for the support erin. I've been trying to write it down these last few days the pain and symptoms and what not. I figure if I go in with a two page or more of things maybe they'll take me a bit more seriously. I went to sleep pretty good last night but only because i was purely exhausted. I still had the dull aches as i was falling asleep but i just ignored them the best I could and went on to sleep. Still woke this morning with everything aching which means by the end of the day I'm really going to be hurting. My hubby just doesn't seem to understand why my legs have been hurting so bad in the evening. I'm not one to complain about hurts to much but this is nuts. Every day its the same thing in all the same places. The nice thing about seeing this doctor is my grandmother goes to him so he'll already have an idea that arthritus does run in the family. so that's a plus. I just hope that's what it is. i try not to focus to much on the hurts but some days my goodness it just gets to be to much.

taintedangel
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Date Joined Jun 2005
Total Posts : 303
   Posted 4/13/2006 5:30 AM (GMT -7)   
i have a question; can your PCP admister blood work for RA? My appointment isn't for two more weeks and I just simply am not feeling well at all. I go home every night hurting somewhere generally all over. I've been having these aches and pains for months now and apparently they aren't going to go away. I feel like I need to be doing something between now and my appointment with the RA doctor. I haven't had any kind of blood work done as of yet and was wondering if your PCP could admister the general test. It would at least be a step in the right direction don't you think?

erin.K
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Date Joined Mar 2005
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   Posted 4/13/2006 9:55 PM (GMT -7)   
YES! on the gigantic checklist of labs, there is a set of labs specific for RA. it'll include a RF, ANA, CRP, ESR. the rheumatoid factor and ANA will be good to have before you see a rheummy.
i have never heard of a PCP not being able to do it. so i think it's a good idea!

best wishes,
erin
Active, Severe RA. Crohns Disease. Chiari Malformation & Right Brain venous anomoly. AS. Emphysema. Rheumatic Lung. MVP and Tricuspid prolapse. Had Lymes disease for 10 years.
Meds: Humira 40mg every 4 days; pred; Pentasa; Imuran; dilaudid; diazepam; Avinza 30mg; MiraLax & too many others.


taintedangel
Regular Member


Date Joined Jun 2005
Total Posts : 303
   Posted 4/18/2006 4:49 AM (GMT -7)   
Thanks i think i'm going to schedule some lab work next week with my regular doctor that way when they ask about lab work i can say yes i've had that done. I'm feeling pretty good this morning. i slept good last night and that helps a lot when i get a good nights sleep. i hope all had a good easter weekend. i did. hubby and i spent it with family. i was pretty achy about mid day yesterday and took some tylenol and within an hour i could tell it had helped a little bit, but by the time i got home i ened up taking some more before bed. just a couple of more weeks and i go to the RA doctor he'll probably laugh me right out of the office I don't know that's just the feeling I get, but with arthritus running in my family I'd much rather get things checked out now instead of waiting until its to late for any kind of treatment to benefit me. have a good day all.

erin.K
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Date Joined Mar 2005
Total Posts : 3148
   Posted 4/18/2006 8:16 AM (GMT -7)   

mornin' taintedangel,

definitely have your primary doc write you up for a set of labs.  the rheumatologist will however send you for more! (most likely he/she will...but this set of bloodwork will be a repeat of the RF, ANA, and a panal of connective tissue lab studies) also, the rhuemmy sometimes like to have "his own set of things".  but these things are good...the more you can rule out the better.

one thing you can tell the Dr. is how you respond to the Tylenol.  If it relieves pain, for how long, and also what time of day is the pain the worst.  If you have achey throbbing joints and you take an NSAID...that'll tell the doc that "Hey...there must be inflammation somewhere if antiinflammatories are stopping the pain."  rheummies make diagnoses sometimes on what medications work!  if a hard to crack case of RA is seen by a doc and the pt is put on say Enbrel, and the symptoms lessen...that'll give a definitive DX of autoimmune arthritis or inflammatory arthritis (RA, Psa...) 

needless to say...i wish you good luck but be prepared to be patient. i do not think you'll be laughed out of the office, but in the beginning...there might be a bit of trial and error regarding Dx and meds until they find specifics.

take good care


Active, Severe RA. Crohns Disease. Chiari Malformation & Right Brain venous anomoly. AS. Emphysema. Rheumatic Lung. MVP and Tricuspid prolapse. Had Lymes disease for 10 years.
Meds: Humira 40mg every 4 days; pred; Pentasa; Imuran; dilaudid; diazepam; Avinza 30mg; MiraLax & too many others.


taintedangel
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Date Joined Jun 2005
Total Posts : 303
   Posted 4/18/2006 9:50 AM (GMT -7)   
thank you so much for the input and what to expect. it sure helps to have an idea of what i'll be facing when I get there. My doctor did say I should "probably" be checked for arthitus but he didn't come right out and order any lab work. shoot it took a few weeks just to get them to set up an appointment with the RA. I guess they thought maybe the pain would go away. That's what I thought when this first started but several months later I'm still dealing with pain the shoulder and wrist pain are probably the most unbearable by mid to late day that's usually when i start taking the tylenol or whatever i have at work. I'm just anxious to find out if their trul is something going on or if i'm just being silly. I don't think i'm being silly due to the fact i have knots popping up here and there that have never been their before. oh well just about a week and a half and i get to go tell my medical story all over again. I wonder if he's ever heard of hashimoto's disease. That's why i'll be bringing my mom with me cause she's been to a lot of my doctor's appointments in the past from the hematologist to the endocronologist(sp??) she's been their from the beginning of it all and plus she can help fill in the blanks with family medical history stuff that kind of thing. I do appreciate the input though its been very helpful

erin.K
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Date Joined Mar 2005
Total Posts : 3148
   Posted 4/18/2006 1:52 PM (GMT -7)   
very good. it's always beneficial to have someone there @ the appts with you as well.
be well,
erin
Active, Severe RA. Crohns Disease. Chiari Malformation & Right Brain venous anomoly. AS. Emphysema. Rheumatic Lung. MVP and Tricuspid prolapse. Had Lymes disease for 10 years.
Meds: Humira 40mg every 4 days; pred; Pentasa; Imuran; dilaudid; diazepam; Avinza 30mg; MiraLax & too many others.


taintedangel
Regular Member


Date Joined Jun 2005
Total Posts : 303
   Posted 4/19/2006 4:48 AM (GMT -7)   
Well its hump day half way to the weekend. I certainly didn't get my rest last night and I'm feeling it today. i'm kind of in autopilot mode. I went to bed last night and everything was hurting from shoulders all the way down to my toes it seemed like something was aching or throbbing. I'm sure a lot of it is just wear and tear on my body from work and commuting all week but still I want to get things checked out. I'll keep you updated. I'm going to call my family doctor this afternoon and find out what i need to do in order to have some lab work done before I go to the RA doctor. i sure would be nice to have that info before I go. I know he'll have his own things he wants to check which they all do, but at least i can say yes i have had some lab work done. thank you again for the support erin.

taintedangel
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Date Joined Jun 2005
Total Posts : 303
   Posted 4/19/2006 4:50 AM (GMT -7)   
i just feel weak this morning. my ankles and knees and wrist are already bothering me it starts off so mild and by the end of the day everything is hurting

taintedangel
Regular Member


Date Joined Jun 2005
Total Posts : 303
   Posted 4/19/2006 10:20 AM (GMT -7)   
you know something yes having autoimmune issues and health problems are a pain in the butt I won't say they aren't, but I think in some ways it makes us very unique people. I mean come on most people don't know their well being as well as we do. We appreciate those days when we do feel good. I know I do. I get so much when I really feel on top of my game. I haven't truly felt on top of my game in some time now. Yea i have days where i feel more rested than others, but more often than not I'm run down and tired a lot of the time. I guess i'm just trying to find a brighter side to things. I"m tired of thinking and focusing so much on how i feel from one day to the next. we almost have to though so our doctor's know how to adjust medications and what not. My biggest complaint is having to spend so much of the time going from this doctor to that doctor. That's one reason I almost didn't say anything to my family doctor about these aches and pains I didn't want to add another doctor to my growing list. I know its not true but sometimes it seems like a lot of my time is spent at the doctor's office. only to be feeling some better weeks down the road. does anyone ever stop and wonder why this happened to you? why god signaled you out with these things. I do all the time. i'd love to be normal and healthy and just live a normal life and not have to worry about all this crap just once. it sure would be nice huh. shoot by the time we all get to that point their won't be any need to worry about it any more. trust me i've thought along that route too a few times feeling like i was such a burrden on my husband and my parents. i couldn't do that to them. i think that's part of why i never off myself. i couldn't imagine putting them through something like that it wouldn't be fair. I know they get tired of hearing me always say i'm tired or whatever sorry didn't mean to rammble just thinking about things.

taintedangel
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Date Joined Jun 2005
Total Posts : 303
   Posted 4/20/2006 9:52 AM (GMT -7)   
man by body hurts today. Just all over aches. It doesn't help that i got woke up around 2:30 this morning with big thunderstorms rolling through. Then again about 3:45 and by 4:15 I was up. It was time to get up anyway. it just makes for a really LONG day when you get sleep like that and I'll admit the worse I sleep the more noticeable my aches and pains are. all i want to do is get home and stretch out in the recliner but at the same time that's when everything starts to stiffen up on me. oh well, i intend to get to bed early tonight and hopefully sleep straight through. I'm totally walking around in a dazed state of mind today and i hate that feeling. If someone were to hand me a pillow I could probably curl up on the floor and gladly take a nap. I had the popping and cracking thing going on last night when I got woke up by the storms I rolled over and when I did all my joints popped and cracked I was like man this is crazy. my back popped my knees, ankles, elbows. That's becoming a regular thing during the night. I could totally use a shoulder massage right now they are just screaming in pain. I think i'll pop some tylenol and see if that doesn't help a little bit. I sure hope i sleep better tonight. a good nights sleep makes for a much happier more productive me otherwise i'm just a slug all day.

erin.K
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Date Joined Mar 2005
Total Posts : 3148
   Posted 4/20/2006 10:11 AM (GMT -7)   
redface  I know the non-sleep scenario oh too well.  Do you have any sleep aid?
The past few nites it's been like 6am....7am & I'm still up!  AAAAAAAHHHHHHHH.  It is insane (steroids are the culprit for me on this one).
Being in pain is a problem too.  Sleep is impossible when everything is throbbing.
 
Hopefully all will be exhausted & literally become knocked out come sleep time!
I hate insomnia.  Ready for bed myself.
Active, Severe RA. Crohns Disease. Chiari Malformation & Right Brain venous anomoly. AS. Emphysema. Rheumatic Lung. MVP and Tricuspid prolapse. Had Lymes disease for 10 years.
Meds: Humira 40mg every 4 days; pred; Pentasa; Imuran; dilaudid; diazepam; Avinza 30mg; MiraLax & too many others.


taintedangel
Regular Member


Date Joined Jun 2005
Total Posts : 303
   Posted 4/21/2006 9:44 AM (GMT -7)   
well i'm feeling more alert today than i was this time yesterday so that's good. I know by the time i get home i'll be worn out but so far i'm holding out ok. Still have bothersome shoulders and my lower back is stiff but that's nothing new. I slept much better last night than i did the night before only I had to take one tylenol PM to help me get to sleep i still managed to sleep until my alarm went off that's rare for me. I'm just ready to get to the doctor and get things checked out. I still am kind of shocked they couldn't get me in sooner than may but I'm assuming that has to do with being a new patient who knows or maybe their hoping these aches and pains will go away by then will i can asure them the pains are still there. I just have one more week before my appointment. I've been tracking my aches and what not for the last couple of weeks so i can take it to the appointment and show them on paper pretty much what's been going on. anyway happy friday to all.

taintedangel
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Date Joined Jun 2005
Total Posts : 303
   Posted 4/24/2006 9:43 AM (GMT -7)   
hi all hope everyone is doing ok. I've been better. Just not with it today at all. I didn't sleep good last night so I know that has a lot to do with my mood today. I"m also hurting all over. I'll go to my doctor's appointment a week from today. I've got about two weeks worth of info regarding my pain; where it hurts, when, how long and what not. So hopefully that will be helpful to the doctor. I'll rewrite it over the weekend. Its kind of chicken scratch cause I've been jotting things down here and there. I had rough time sleeping friday night too. I woke up a couple of times with major foot cramps. They were so bad I had to get up and walk the floor for a few minutes. Then when I got up the next morning my legs felt so dull and achy. I did manage to do some spring cleaning in the kitchen and I think I just about over did it after I got through with the mopping. That evening my whole body was hurting and stiff. Sunday I just didn't have the energy to do much more than laundry. I really want to find out what i'm dealing with here and get to feeling better, but the sound of some of these post i may never get back to my oldself again. oh well, i'm just really in a mood today and would prefere to be left alone, but i can't do that I have to work and all i'm doing is making it through the day then i can go home get a hot bath some dinner, some tylenol and get to bed early and hope that i'm a different person tomorrow cause honestly right now i'm a little crabby. I don't like crabby me. have a good one.

erin.K
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Date Joined Mar 2005
Total Posts : 3148
   Posted 4/24/2006 10:14 AM (GMT -7)   
Keep up with your symptom list & concerns/questions. The more the better. The doc might even ask to have it to read for himself. My doc in NYC did that...gave him better insight. Again, the more amunition you have, the easier it will be to follow that roadmap to a diagnosis & treatment.
You're very good at articulating yourself...so feel good in that.
Take care,
Erin
Active, Severe RA. Crohns Disease. Chiari Malformation & Right Brain venous anomoly. AS. Emphysema. Rheumatic Lung. MVP and Tricuspid prolapse. Had Lymes disease for 10 years.
Meds: Humira 40mg every 4 days; pred; Pentasa; Imuran; dilaudid; diazepam; Avinza 30mg; MiraLax & too many others.


taintedangel
Regular Member


Date Joined Jun 2005
Total Posts : 303
   Posted 4/24/2006 11:47 AM (GMT -7)   
my god i'm tired. I mean i just want to go home and curl up in bed and sleep. I keep finding myself closing my eyes at the computer. i can't be doing that. I'll get in trouble shoot i've known people that have gotten fired because of falling asleep at work. I sit here and think thank god just 30 more minutes until break. I'll be able to walk around a bit. I am truly tired today. oh well i just have two more hours of work then i can go home and fall onto the couch for the night. That's all i feel like doing when i get home. i'm just glad we have leftovers from dinner last night. laters

taintedangel
Regular Member


Date Joined Jun 2005
Total Posts : 303
   Posted 4/26/2006 1:31 PM (GMT -7)   
Hey all. Just hope some of y'all are holding your head up today. I feel better today than I have in the last few days. I dont know what it is. I know it rained/stormed tuesday and I just felt plum run down on sunday and monday. Like i was draggin a ton of bricks around with me all day. Today though I feel different on the inside. I feel pretty good, I feel alert, i'm not feeling that exhaustion that i usually feel by this time of the day. Yes I still have aches and pains in my wrist/hands and my feet/ankles and neck/shoulder but my general well being is somewhat elevated today. I know the weather outside is much cooler than it has been. Its in the lower 60's overcast with a slight breeze and it feels great. Not sure if that has anything to do with it, but something does. I might mention this to the doctor monday when i see him. I mean if you were to ask me to do something after work I'd actually feel like saying sure why not. Monday and yesterday I would be like you've got to be kidding. oh i still hurt but i feel pretty good on the inside. if that makes sense. Now tomorrow could be totally different but hey i'm taking advantage of how i feel today i'm actually holding my head up and smiling at people in the hallway that's how i know i feel better. when i actually look people in the eye. anyway back to work

taintedangel
Regular Member


Date Joined Jun 2005
Total Posts : 303
   Posted 4/27/2006 4:50 AM (GMT -7)   
good morning all hope everyone is up in around today. I am aches and pains and all. I really wish i knew how to paint. The sun rise is just beautiful coming up over the river behind the trees. Its definately a site I enjoy seeing every morning. just wanted to say hey and have a good day.

taintedangel
Regular Member


Date Joined Jun 2005
Total Posts : 303
   Posted 4/27/2006 9:51 AM (GMT -7)   
Man I'm having a day completely opposite of yesterday. I feel so sleepy today. I just can't come around and all I really want to do is go home and nap. I ache all over and just feel blah. Why can't I feel the same from one day to the next. I knew today was going to be one of those days when i woke with shoulder pain and just an overall iky feeling. I ate lunch but it was lunch nothing exciting about it. I hope tomorrow is better. I love those days when i feel good on the inside I get so much done. The other night I got some laundry done and clean up the kitchen last night I had to force myself to just get dinner done. I can tell its going to be more of the same this evening by the time I get home at least its leftovers. I just want to be left alone today. I want to sleep that's what I want. I don't feel like i slept to good last night I woke at least once. OH well nice thing is today is half way finished. If i can just pull through the next four hours I'm done and can go home to rest. It just makes for a really long day when you feel so punny. I can't wait to go to the docotr monday and say help me feel better. I'm tired of this roller coaster. I know healthy people have days when they are down but I don't think its anything compaired to what people like us go through with serious health issues along with the other minor health problems can really mess you up some days. they just don't understand.
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