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elcamino
Veteran Member


Date Joined Sep 2005
Total Posts : 1744
   Posted 4/18/2006 6:30 PM (GMT -7)   
I do my enbrel shots on tuesdays, and I have to tell you guys that tonight, after my shot, I hurt so bad I can hardly move.  I just got out of a hot bath, and even that didn't help much at all.  I suppose i can take another ultracet, but I'm trying to avoid taking too many of them.  Jeez, I wish this enbrel would do something already.  It's only been 6 weeks, but rheumy feels with 3 months of humira I should have felt something by now.  it's not fair that it works for everyone else except me--wow--I really am whining now :)  I'm sure I'll feel better tomorrow.
 
Elcamino

erin.K
Veteran Member


Date Joined Mar 2005
Total Posts : 3148
   Posted 4/18/2006 7:06 PM (GMT -7)   

hey,

i gave Enbrel 2 years!  and now the Humira has been 8 1/2 months of giving it a "shot". 

are you not on a combo of 2 meds?

i am still optimistic that another 3 months will start to show some improvements for myself.  time, time, time.  honeslty, 6 weeks isn't a very long time.  i understand the want & need for something to work and provide relief.

hang in there!


Active, Severe RA. Crohns Disease. Chiari Malformation & Right Brain venous anomoly. AS. Emphysema. Rheumatic Lung. MVP and Tricuspid prolapse. Had Lymes disease for 10 years.
Meds: Humira 40mg every 4 days; pred; Pentasa; Imuran; dilaudid; diazepam; Avinza 30mg; MiraLax & too many others.


elcamino
Veteran Member


Date Joined Sep 2005
Total Posts : 1744
   Posted 4/19/2006 5:24 AM (GMT -7)   

Hi Erin,  my rheumy just started me on plaquenil as well, but that takes up to 6 months!  I've read that methotrexate combined with one of the tnf-inhibitors can increase its effectiveness.  I may ask him about it the next time I see him.  Rather than give up on enbrel, perhaps try it with methotrexate.  He said he was going to take me off enbrel if I didn't show any effects in the next month or so.  I think it may be messing with my blood counts a bit because I'm starting to get lots of little bruises on my forearms and legs. 

I haven't read about the combination of plaquenil and enbrel?  he only put me on plaquenil for suspect lupus/mctd.  I still hurt pretty bad today, but my husband has the flu so I'm home with the kiddies.  I hope I don't get it.  The last time I had a virus it triggered a major flare.

Elcamino


cbrossman
Regular Member


Date Joined Apr 2005
Total Posts : 191
   Posted 4/19/2006 10:08 AM (GMT -7)   
Sorry ElCamino!!!

Many docs seem to feel that Enbrel is more affective with MTX. I was on MTX for 4 months with minimal relief. I started Enbrel and I got noticably better, but it took 2 months. My situation is unlike yours in that I never tried Humaria.

FYI, I've been reducing my MTX amount over the past several months, and found that RA symptons are creeping back in. It leads me to believe that for me the combination of MTX and Enbrel is the best.

Hang in there, the flu could easily cause additional discomfort, even if you don't feel you have it. I would suspect that you probably do, but all the drugs you (and many of us) are on mask the symptoms, or at least feel more like our typical RA symptoms.

In fact, let's put a positive spin on it, which I truely believe is possible (and Erin can correct me if I am way off). You do have the flu, you are feeling bad because of it. BUT, because of the affectiveness of the RA drugs, your flare is less than you expect. Once you get over the flu, you'll feel great!!!

or at least that is how I would prefer to look at it ... Craig

elcamino
Veteran Member


Date Joined Sep 2005
Total Posts : 1744
   Posted 4/19/2006 1:31 PM (GMT -7)   

Thanks Craig, your post made me smile.  I do, in fact, have the flu.  Husband is on the downside of it, but it does take at least two days to get through your system.  I'll probably have to take off tomorrow too!  The ultracet I'm taking is keeping my fever at bay; without it I'm sure I would be burning up.  Only person in the house not sick right now is one of my twin daughters, and she's very grouchy--with our luck, she'll have it by tomorrow.

Elcamino


erin.K
Veteran Member


Date Joined Mar 2005
Total Posts : 3148
   Posted 4/19/2006 2:06 PM (GMT -7)   

rest up you flu folks!  the good thing w/ a mild flu is :  it will pass. :)  i love stuff like that.  God, when i catch a cold...i feel so normal!  and when the cold goes away...i feel even more normal.  i guess my theory is, catching stuff is cool in my book...because unlike RA, you can get rid of most things!  i wish sometimes i had something cureable, or something that can be "cut out" surgically.  as is life.

mmmmm yeah, i think the MTX & Enbrel will be a good idea for you elcamino.  i too want to add the MTX with the Humira i am on now. (need to straighten out the childbearing thing first with my man! oy!)

hey elcamino, if you wantedto stay on the shots...couldn't you say "no" to the rheummy?  you had mentioned that the doc wants to take you off of them in a months time.  shouldn't you be the one making that decision?

it is expected to have some blood abnormalities w/ these drugs, but they are expected & if not in danger levels...monitoring is sufficient.

i bruise easily all the time and have a little bleeding disorder, am immunocompromised, H&H are borderline, and my lymphocytes are skyrocketed....but in terms of a patient on immunosuppressants and biologics...this is kinda "normal".

i just worry that they'll pull you off the TNFs before it has even had a chance to start working.

:)


Active, Severe RA. Crohns Disease. Chiari Malformation & Right Brain venous anomoly. AS. Emphysema. Rheumatic Lung. MVP and Tricuspid prolapse. Had Lymes disease for 10 years.
Meds: Humira 40mg every 4 days; pred; Pentasa; Imuran; dilaudid; diazepam; Avinza 30mg; MiraLax & too many others.


elcamino
Veteran Member


Date Joined Sep 2005
Total Posts : 1744
   Posted 4/19/2006 3:31 PM (GMT -7)   

You're right Erin,  it is ultimately my decision whether to stay on the enbrel or not.  I may ask to  be put on methotrexate in addition to the enbrel and see if that makes a difference.  Like you, though, I need to get the whole birth control thing situated.  I've about had it with this whole mess, and I just want it to go away.  I'm ready to try  methotrexate, provided my rheumy doesn't have other news for me when I go in next (he is testing me for lots of other things, polymyositis for one).  Prednisone is the only tx for that, I believe.  And you know what, when I took prednisone for a week last November, that's the best I'd felt in a very very long time.  I know it's a dangerous drug, and I certainly saw what it did to my mother over the years, but wow, just to have a few days of relief and energy!

You're also right about the flu passing!  Unlike this stupid joint pain that's been with me for so long now.  At least I know I'll feel better in a couple of days...

Elcamino

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